Ese umwana wawe afite ikizinga cy'umutuku/umuhengeri ku ruhu rwe? Bishobora kuba "Ibara rya Port Wine"!

Ese wigeze ubona ikizinga cyangwa ibara ry'umutuku ku ruhu rw'umwana wawe ukiri muto cyangwa umwana muto? Hari igihe ibi bigaragara ku maso no mu ijosi. Ni ibisanzwe ko ababyeyi benshi bagira impungenge iyo babonye ikintu nk'iki. Rero, uyu munsi tugiye kuvuga kuri ubu bwoko bw'ikizinga cyo kubyara. Mu buvuzi, iki kitwa kandi `(Port Wine Stain)` cyangwa `(Nevus Flammeus)`. Izina rishobora kumvikana nk'iritangaje gato, ariko reka tubisobanure mu buryo bworoshye.

Iki `(Port Wine Stain)` ni iki? Ese twagisobanura neza?

Mu magambo make, "Ibara rya Port Wine" ni ikimenyetso cy'amavuko gihoraho . Ibi bivuze ko kidashira ubwacyo. Mbere na mbere kigaragara nk'ikizinga gito, cyoroshye, cy'umutuku, cy'umutuku, cyangwa cy'umuhengeri ku ruhu rw'umwana ukiri muto. Ariko, uko igihe kigenda gihita, iki kintu rimwe na rimwe gishobora kwijima no kuzamuka gato no kubyimba .

Iri zina rikomoka ku kuba risa nkaho divayi itukura yamenetse ku ruhu. Tekereza, rimwe na rimwe aka gace gashobora kuba kanini ku ruhande rumwe rw'isura. Gashobora no ku kuboko, ku kuguru, cyangwa ahandi hose ku mubiri. Ariko, gakunze kugaragara ku maso, mu ijosi no ku mutwe.

Iyi ndwara yitwa "Port Wine Stain" ikunze kugaragara gute?

Ibi si ibintu bikunze kubaho cyane. Ugereranyije, abana 3 ku 1.000 bavutse bashobora kugira iyi "Port Wine Stain". Ishobora kugaragara ku bana b'amoko yose, hatitawe ku gitsina. Niba rero umwana wawe afite bene aka kantu, ntugahangayike ahubwo utekereze uti "Kuki ari umwana wanjye gusa?" Ntabwo uri wenyine.

Ese ibi bikomere byo mu muryango bishira ubwabyo?

Iki ni ikibazo ababyeyi benshi bafite. Nkuko byavuzwe mbere, "Port Wine Stain" ni ikimenyetso cy'amavuko gihoraho. Ibi bivuze ko kidashobora kwiyahura cyonyine nta muti. Nubwo hari ibimenyetso bito bishobora kwiyahura buhoro buhoro uko igihe kigenda gihita, "Port Wine Stain" ni gake cyane.

Ese iyi ngingo irushaho kuba mbi uko ugenda usaza?

Yego, rimwe na rimwe birashoboka. Uko igihe kigenda gihita, utudomo twinshi (Port Wine Stain)" tuba twijimye kandi turushaho kuba twinshi, tuzamuka hejuru y'uruhu. Nubwo mu ntangiriro dushobora kuba duto kandi tworoshye, uko igihe kigenda gihita uruhu aho hantu ruri rushobora guhinduka nk'urutare no gucikamo uduce duto. Nanone, rimwe na rimwe iyo habayeho igikomere gito muri utwo duce, dushobora kuva amaraso menshi kuruta uko bisanzwe kandi bishobora kugorana kubigenzura.

Ni iki gituma umwana agira "Port Wine Stain"?

Impamvu nyayo y’ibi ntabwo izwi. Ariko, abahanga mu bya siyansi bemeza ko impamvu nyamukuru ari ukwiyongera kudasanzwe kw’imitsi mito y’amaraso iri munsi y’uruhu rwacu.Izi nkari mu mitsi ziba zaragutse, bivuze ko ari nini kuruta uko bisanzwe kandi zisa n'izirambuye. Niyo mpamvu uruhu rugira iryo bara.

Ubushakashatsi buracyakomeje ku mpamvu izi capillaries zitwara muri ubu buryo budasanzwe. Hari igihe abantu benshi bo mu muryango bashobora kugira iyi ndwara. Ariko, si ngombwa kuvuga ko ifite isano iri hagati ya genetike. Hari igihe ishobora kubaho nta nenge iyo ari yo yose igaragara mu genetike (mutation genetike).

Iki kimenyetso cy'amavuko cya "Port Wine Stain" gisa gute?

Nkuko twabivuze mbere, "Port Wine Stain" ni agahu k'umutuku, umutuku cyangwa umuhengeri ku ruhu. Gafite imbibi zisobanutse neza. Ni ukuvuga ko dushobora kumenya neza aho agahu gatangirira n'aho karangirira.

Nubwo ibi bikomere bishobora kugaragara ahantu hose ku mubiri, bikunze kugaragara kuri:

• Ku isura
• Ku ijosi
• Urusato rw'umutwe (ku mutwe)

Ku bana bato, utu duce twa `(Port Wine Stain)` akenshi tuba tworoshye. Uko umwana akura, iki gisebe cyo kubyara nacyo kirushaho kuba kinini. Ariko, gikura ukurikije ingano y'umubiri. Nkuko byavuzwe mbere, uko igihe kigenda gihita, utu duce dushobora kuba twijimye kandi tunini, tukumva nk'utubuye munsi y'uruhu. Nanone, utu duce dushobora kuva amaraso nubwo haba hari igikomere gito.

Ese ibizinga bya divayi ya Port biri kwangiza?

Akenshi, ibizinga bya `(Port Wine Stain)` ntabwo byangiza ubuzima. Ni ukuvuga ko nta bubabare cyangwa izindi ndwara zikomeye bitera. Ariko, ku bana bamwe, cyane cyane iyo bafite iki kizinga mu maso, cyane cyane iyo ari kinini kandi gifite ibara ryijimye, bishobora kuba isoko ikomeye y'ihungabana. Gutekereza ku miterere yabo bishobora gutera isoni n'ubwoba, bishobora gutuma umuntu atigirira icyizere kandi bigatuma yifuza gusabana n'abandi.

Ni gake cyane, utu duti twa "Port Wine Stain" dushobora kujyana n'indwara zikomeye nka "Klippel-Trenaunay syndrome" cyangwa "Sturge-Weber syndrome." Abantu bavukanye izi ndwara nabo bagira ibibazo mu mitsi y'amaraso mu bindi bice by'umubiri wabo. Kubwibyo, bagomba gusuzumwa na muganga kugira ngo barebe niba hari ingorane zikomeye bafite.

Nanone, iyo ibara rya divayi ya port ribaye rinini kandi rigakwirakwira mu myaka yashize, bishobora kuba ikimenyetso cy'ikindi kibazo cy'ubuzima cyangwa bigatera ibindi bibazo. Urugero, iyo ibara ryakomeretse, rishobora kuva amaraso byoroshye kurusha uruhu rusanzwe. Nanone, abantu bafite ibara rya divayi ya port hafi y'amaso baba bafite ibyago byinshi byo kurwara indwara y'amaso yitwa glaucoma.

Wamenya ute niba ufite "Port Wine Stain"?

Ubusanzwe, umuganga ashobora kumenya niba umwana afite "Port Wine Stain" asuzumye uruhu rw'umwana. Akenshi, ibi bimenyekana akivuka.Muganga azakubaza kandi amateka y'ubuzima bw'umuryango wawe.

Akenshi, ibara rya divayi ya port ni ikibazo cy’ubwiza gusa kigira ingaruka ku ruhu. Ariko, muganga w’umwana wawe azagukorera ibizamini kugira ngo amenye niba ari ikimenyetso cy’indwara ikomeye kurushaho, nka Sturge-Weber syndrome.

Niba umuganga afite gushidikanya, cyangwa ashaka kwemeza ko nta yindi ndwara afite, ashobora kumusaba ko hakorwa ibindi bipimo. Urugero:

• Ibipimo by'amaso bipima umuvuduko w'amaso
• Ibizamini byo gufata amashusho nka X-rays, CT scans, cyangwa MRIs
• Ikizamini gikubiyemo gufata agace gato k'uruhu (Skin biopsy)

Ni ubuhe buryo bwo kuvura `(Port Wine Stain)`?

Ibizinga bya divayi ya Port bidafitanye isano n'ikibazo runaka cy'ubuzima ntabwo bisaba ubuvuzi bwa muganga. Ariko, hari abantu bahitamo gushaka ubuvuzi. Hari impamvu nyinshi zibitera:

• Ingaruka zo kuva amaraso menshi no kwandura indwara zijyana na byo mu gihe habayeho imvune.
• Nyuma, uruhu rushobora kubyimba, rukamera nk'ibibyimba, kandi rugahinduka ibara.
• Ingaruka ku kwihesha agaciro no mu mibanire myiza n'abandi .

Uburyo bukunze kugaragara kandi bukora neza ni uburyo bwo kuvura hakoreshejwe laser. Ibi bikora mu kugabanya imiyoboro y'amaraso yagutse ku buryo budasanzwe, bigagabanya ibara ry'ikibabi cy'amavuko. Ubu buryo bugira akamaro cyane iyo butangiye bukiri buto, iyo imiyoboro y'amaraso ikiri mito.

Ubusanzwe ubuvuzi bwa laser bumara igihe gito, bumara iminota mike gusa. Abantu benshi bagomba gusubiramo ubuvuzi buri mezi make. Nyuma yo kuvurwa na laser, uruhu rushobora gutukura rukumva rwaratwitswe n'izuba. Iyo ubuvuzi bugoye cyane, ushobora gusaba muganga wawe kuguha spray cyangwa cream igabanya ububabare. Abana bato cyane rimwe na rimwe bahabwa anesthesia rusange, kugira ngo basinzire mu gihe cyo kuvurwa.

Ese ibara rya Port Wine rishobora kwirindwa?

Kubera ko abahanga mu bya siyansi bataramenya neza impamvu ya "Port Wine Stains", nta buryo bwo kubikumira. Izi nkovu zo mu gihe cy'amavuko ntiziterwa n'ikintu icyo ari cyo cyose kibaho mu gihe cyo gutwita. Rero ntugahangayike, wibaza uti "Ese ibi biterwa n'ikintu nakoze?"

Niba mfite `(Nevus Flammeus)`, ni iki nkwiye kwitega?

Udukoko twa Port Wine ntitugenda twonyine. Iyo tutivuwe, dushobora kuba tunini, twijimye, twinshi, ndetse tunamera nk'udusimba uko igihe kigenda gihita.

Ku bantu benshi, ibi bikomere byo kubyara ni ubwiza gusa kandi ntibitera ibibazo bikomeye by'ubuzima. Ariko, niba wowe cyangwa umwana wawe afite "Port Wine Stain", ni byiza ko rimwe na rimwe bisuzumwa na muganga.

Nubwo kuvurwa hakoreshejwe laser bishobora kugabanya ibara ry'izi nkovu zo mu gihe cy'amavuko, ibisubizo bishobora gutandukana bitewe n'umuntu ku giti cye. Nubwo nyuma yo kuvurwa neza, rimwe na rimwe nyuma y'imyaka myinshi, utu duce twa `(Nevus Flammeus)` dushobora kongera kugaragara cyangwa tukagira umwijima.

Nigute nafasha umwana wanjye kubana n'"Ibara rya Port Wine"?

"Ikibabi cya Port Wine", cyane cyane ku maso, gishobora gutuma umwana yumva afite isoni kandi ntagire icyo yiyubaha. Hari abantu bashobora kubibona mu buryo butangaje bakavuga ibintu bibabaza. Gerageza ibi bintu kugira ngo ufashe umwana wawe guhangana n'iki kibazo:

• Vugana n'umwana wawe ku buryo bweruye ibijyanye n'iki kimenyetso cy'amavuko mu magambo yoroheje.
• Musobanurire ko iki "Port Wine Stain" ari igice cy'umubiri we, ikintu kidasanzwe, kidasanzwe, kandi gifite amabara menshi kuri we .
• Niba umwana wawe abyifuza, mufashe gukoresha ubwoko bw'imitako ipfutse kugira ngo aho hantu hatagaragara neza.
• Ganira n'abantu umwana wawe aganira nabo (urugero: abarimu, inshuti) ku bijyanye n'ikimenyetso cy'amavuko. Menya neza ko ishuri ritanga ahantu ho gufasha umwana wawe kwiga no kuganira n'abandi nta gutotezwa cyangwa kwirukanwa .
• Itoze gusubiza ibibazo iyo umuntu abikubajije. Urugero, itoze kuvuga amagambo yoroshye nka “Iki ni ikimenyetso cy’amavuko cyanjye.”
• Igisha umwana wawe gufata iki kimenyetso cy'amavuko nk'ikindi kintu gisanzwe ku mubiri we , nk'uko ibara ry'amaso rigaragara.

Ese `(Port Wine Stain)` isaba kwitabwaho by’umwihariko ku ruhu?

Hari igihe uruhu rushobora kuma aho hari "Port Wine Stain". Kubwibyo, ni ngombwa ko ahantu hatoha neza.

Iyo uruhu rwakomeretse (urugero: gukomereka, gukomereka), rushobora kuva amaraso menshi kurusha uko bisanzwe. Rero, komeza ahantu hasukuye uhakaraba neza n'isabune n'amazi. Hanyuma, shyira igitutu aho hantu ukoresheje igitambaro gisukuye.

Ni ryari ugomba gushaka inama kwa muganga ku ndwara ya `(Nevus Flammeus)`?

Niba wowe cyangwa umwana wawe mufite kimwe muri ibi bimenyetso bya "Port Wine Stain", hita ubonana na muganga:

• Niba urimo kuva amaraso, cyane cyane niba kuva amaraso bidashobora guhagarara.
• Iyo isa n'iyanduye (urugero: umutuku, wabyimbye, wuzuyemo amabyi ).
• Niba hari ububabare.
• Niba urimo gushwanyaguza.
• Niba hari ikintu nk'amazi atemba.

Amaherezo, ibintu byo kwibuka (Ubutumwa bwo kujyana mu rugo)

`(Port Wine Stain)` cyangwa `(Nevus Flammeus)` ni ikimenyetso cy'amavuko gihoraho gikunze kugaragara mu maso. Kigaragara nk'ikizinga cy'umutuku, umutuku, cyangwa umuhengeri ku ruhu rw'umwana uvutse, ariko uko igihe kigenda gihita gishobora kuba kinini, kinini, kandi cyijimye. Nubwo akenshi kitagira ingaruka mbi, ntabwo gishobora kwihuza n'izindi ndwara. Kubwibyo, niba wowe cyangwa umwana wawe mufite ikimenyetso nk'iki, ni byiza kureba muganga kugira ngo amugire inama. Uburyo bwo kuvura hakoreshejwe laser bushobora kugabanya isura ye. Ni ngombwa kandi gufasha umwana guhangana n'iki kibazo mu buryo bw'amarangamutima.