Dzimwe nguva mazita emishonga yatinonyorerwa navanachiremba anonetsa kunzwisisa, handiti? Asi kana tikangonzwisisa kuti mishonga iyoyo inokanganisa sei miviri yedu, tinonzwa zororo guru. Nhasi tiri kutaura nezvemumwe mushonga wakadaro, unonzi Burosumab, unopihwa sejekiseni. Uyu mushonga unokosha zvikuru, kunyanya kune avo vanotambura nechirwere chemajini chinonzi X-linked hypophosphatemia (XLH).
Chii chaizvo chinoitika nemushonga uyu?
Zvichitaurwa zviri nyore, X-linked hypophosphatemia (XLH) chirwere apo itsvo dzinoburitsa mineral phosphate yakawandisa inodiwa nemuviri wedu. Sezvamungangove muchiziva, phosphate inokosha kuti mapfupa edu arambe akasimba. Kana huwandu hwephosphate hukadzikira, mapfupa anogona kushaya simba, kupwanyika, uye kuvana, kukura kusingatarisirwi, pamwe nekurwadziwa mumapfupa nemajoini.
Apa ndipo panopinda mushonga weBurosumab. Mushonga uyu unoshanda nekudzora kuburitswa kwephosphate mumuviri uye kudzosa huwandu hwephosphate muropa kuti hudzokere pahwakajairika. Izvi zvinobvumira mapfupa kuwana phosphate yaanoda uye kutanga kusimba.
Chinonyanya kukosha ndechekuti Burosumab mushonga unodzora chirwere, kwete mushonga. Mushonga uyu unonyanya kuzivikanwa nezita rekuti CRYSViTA.
Zvinhu zvaunofanira kuudza chiremba wako usati watanga kurapwa
Usati watanga kurapwa uku, unofanira kuudza chiremba wako zvimwe zvinhu nezveutano hwako, nekuti ruzivo irworwo ruchavabatsira kusarudza kana mushonga uyu wakakunakira kana kuti kwete.
- Kana uine chirwere chinokonzerwa neitsvo .
- Kana uine allergy yemushonga uyu weBurosumab, chero mimwe mishonga, chikafu, kana dhayi.
- Kana uine pamuviri , kana kuti uri kutarisira mwana munguva pfupi iri kutevera.
- Kana uri amai vanoyamwisa .
Usavanzire chiremba chokwadi ichi, nekuti chakakosha zvikuru pakuchengetedza kwako.
Mushonga uyu munoshandiswa sei?
Uyu hausi mushonga waunogona kunwa kumba. Burosumab ijekiseni pasi peganda . Unopihwa kwauri nenyanzvi yehutano yakadzidziswa muchipatara kana kiriniki.
Munopa vana vadiki izvi here?
Ehe, mune dzimwe nguva, mushonga uyu unogona kupihwa kuvana vane gore rimwe chete. Asi matanho akakosha anofanira kutevedzerwa. Saka, kana uri kupa mwana wako mushonga uyu, bvunza chiremba wevana nezvenyaya iyi.Zvakakosha kutaura navo zvizere uye kuwana ruzivo rwakadzama.
Ko kana ndikawana mushonga wakawandisa?
Izvi hazvingamboitiki sezvo zvichipiwa muchipatara. Zvisinei, kana uchifunga kuti watora mushonga uyu wakawandisa, fonera National Poisons Information Centre paColombo National Hospital nekukasika. Kana kuti enda kuEmergency Treatment Unit (ETU) yechipatara chiri pedyo.
Zvakakosha: Mushonga uyu wakanyorerwa iwe chete. Usagovane mushonga uyu nemumwe munhu chero chikonzero chipi zvacho.
Ndingaitei kana ndikarasikirwa nedosi?
Zvakakosha kuenda kuchipatara/kiriniki pamazuva akarongwa uye panguva yakatarwa kuti kurapwa uku kubudirire. Usapotsa chero imwe yemishonga iyi chero chikonzero chipi zvacho. Kana usingakwanise kuenda pazuva rakarongwa, fonera chiremba wako nekukasika womuzivisa nezvazvo, uye uwane mazano pazuva rinotevera.
Mimwe mishonga isingafanirwe kushandiswa nemushonga uyu
Kune mishonga yakati wandei isingafaniri kutorwa neBurosumab, saka zvakakosha kuudza chiremba wako nezvemishonga yese yauri kutora.
Kana uri kutora mishonga inotevera, iva nechokwadi chekuitaura:
- Calcitriol
- Phosphate inonwiwa nemuromo
Rondedzero iyi haina kukwana. Saka udza chiremba wako nezvemishonga yese yaunotora (kusanganisira mavhitamini, mishonga yemiti, uye zvekudya zvinovaka muviri). Uyewo, iva akatendeseka kana uchisvuta, uchinwa doro, kana kushandisa mimwe mishonga.
Zvinhu zvekufunga nezvazvo panguva yekurapwa
Kana zviratidzo zvako zvikasavandudzika, kana kuti zvikaita sezviri kuwedzera kuipa, udza chiremba wako. Chiremba wako achakutarisa zvakanyanya paunenge uchitora mushonga uyu. Iye achafanirawo kuongororwa ropa nguva nenguva kuti aone zvinhu zvakaita semazinga ephosphate mumuviri wako.
Ndezvipi zvingakonzera migumisiro yakaipa?
Kufanana nemushonga upi zvawo, Burosumab inogona kukonzera migumisiro yakaipa kune vamwe vanhu. Mimwe yeiyi inogona kunge yakakomba, saka zvakakosha kuti uizive.
| Rudzi rwemhedzisiro yakaipa | Tsananguro |
|---|---|
| Migumisiro inofanira kuziviswa kuna chiremba nekukasika | |
| Kusawirirana kwemuviri | Mapundu paganda, kuvaviwa kana mapundu, kuzvimba kwechiso, miromo kana rurimi. |
| Matambudziko panzvimbo yekubaiwa jekiseni | Kurwadziwa, kutsvuka, kana kuzvimba panzvimbo yekubaiwa jekiseni. |
| Zvinhu zvekuudza chiremba wako kana zvikaramba zviripo kana kuti zvichikunetsa | |
| Migumisiro yakajairika | Kurwadziwa nemusana, kuvimbiwa, dzungu, fivha, musoro, kurwadziwa kwetsandanyama, utachiona hwemazino, kurutsa. |
Rondedzero iyi haisi yose migumisiro inogona kuitika. Kana ukaona zviratidzo zvisingawanzoitiki, ndapota tsvaga rubatsiro rwechiremba.
Mharidzo Yekuenda Nayo Kumba
- Burosumab ijekiseni rakakosha rinodzora huwandu hwephosphate mumuviri uye rinopihwa kune chirwere cheX-linked hypophosphatemia (XLH).
- Mushonga uyu unopihwa nenyanzvi yezvekurapa yakadzidziswa muchipatara kana kiriniki.
- Usati watanga kurapwa, udza chiremba wako nezvezvirwere zvako zvese nemimwe mishonga yauri kutora.
- Usambofa wakasiya nguva yako yekuenda kuchipatara. Kana usingakwanise kuenda kuchipatara chero nechikonzero chipi zvacho, zivisa chiremba wako nekukasika.
- Kana paine zviratidzo zvekurwara neganda (zvakadai sekutsvuka kweganda, kuzvimba), tsvaga rubatsiro rwechiremba nekukasika.
- Kana muine mibvunzo nezvemushonga uyu, musatya kubvunza chiremba wenyu.
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