Uri kunetseka zvishoma nezvechimiro chemusoro wemwana wako here? Ngatitaurei nezve Craniosynostosis

Wakambonetseka kana kuda kuziva nezvechimiro chemusoro wemwana wako here? Pamwe musoro wako unoita seusinganzwisisike, kana kuti rumwe rutivi rwakati sandara, kana huma yako yakabudikira? Zvakajairika kuti amai kana baba vatye kana vakaona chimwe chinhu chakadai. Nhasi tichataura nezvechirwere chakakosha chinogona kukonzera shanduko dzakadai muchimiro chemusoro. Idambudziko iro vanachiremba vanoti craniosynostosis . Usazvidya moyo, tichataura nezvazvo zviri nyore uye nenzira yaunogona kunzwisisa.

Chii chinonzi Craniosynostosis?

Zvichitaurwa zviri nyore, craniosynostosis chirwere apo majoini ari mudehenya remwana wako, anonzi masutures, anovharana nguva isati yakwana uye anobatana. Uku ndiko kusakwana kwekuzvarwa nako, zvichireva kuti kunowanikwa pakuzvarwa.

Zvino fungidzira kuti musoro wemwana achangoberekwa wakagadzirwa nemapfupa akati wandei anowirirana sezvidimbu zvepuzzle. Pane mipata midiki pakati pemapfupa aya. Mukurapa, tinodana mipata iyi kuti "sutures." Masuture aya akakosha zvikuru. Nekuti, sezvo uropi hwemwana huchikura, masuture aya anobvumira musoro kukura nawo. Ungave wakanzwa nezvenzvimbo yakapfava pamusoro pemusoro wemwana inonzi "fontanelle" (kana nzvimbo yakapfava) . Masuture aya anoumbwa nekuti mapfupa aya haana kubatana zvakanaka. Kazhinji, masuture aya anovhara zvachose pazera remakore maviri kana matatu, uye mapfupa edehenya anobatana zvakasimba.

Zvisinei, mumwana ane craniosynostosis, rimwe kana akawanda ema stool aya anovhara nekukurumidza, zvichibatanidza mapfupa pamwe chete uropi husati hwanyatsokura. Chii chinoitika ipapo? Musoro unomira kukura munzvimbo dzine ma stool anovhara nekukurumidza. Zvisinei, musoro unoramba uchikura munzvimbo dzine ma stool achiri akavhurika. Ndokusaka vacheche vane craniosynostosis vaine chimiro chemusoro chisina kujairika, vachitora maumbirwo akasiyana-siyana.

Dambudziko guru rinogona kuitika kubva pane izvi kuwedzera kwekumanikidzwa kwepfungwa. Fungidzira, uropi hwemwana hunoramba huchikura, asi hapana nzvimbo yakakwana mumusoro kuti hukure. Ipapo uropi hunosundidzirwa. Kuwedzera kwekumanikidzwa uku kunogona kudzikamisa kukura kweuropi, kukuvadza tishu dzeuropi, uye nokudaro kukanganisa kukura kwemwana. Ndosaka zvichikosha zvikuru kurapa chirwere ichi nekukurumidza.

Ndeapi marudzi ecraniosynostosis?

Kune mhando dzakasiyana dzecraniosynostosis. Dzinoonekwa nekuti ndeipi suture iri mudehenya inovhara nekukurumidza. Chimiro chemusoro wemwana chinochinja zvinoenderana.

• Sagittal craniosynostosis: Iyi ndiyo mhando inonyanya kuwanikwa.Izvi zvinokanganisa suture iri pakati pemusoro, iyo inotangira mberi ichienda kumashure. Kana suture iyi yavhara nekukurumidza, musoro wemwana unotora chimiro chakareba, chakatetepa (`scaphocephaly`) . Hurumbo inogona kuita seyakafara.
• Coronal craniosynostosis: Izvi zvinokanganisa imwe yemisungo inobva munzeve ichienda kumusoro kwemusoro (kune rumwe kana divi rese). Murudzi urwu, huma yemwana inogona kunge yakati sandara kune rumwe rutivi uye musoro unogona kuita chimiro chakafara .
• Kurwadziwa kwemusoro kwemwana (Lambdoid craniosynostosis): Izvi zvinokanganisa suture iri kumashure kwemusoro. Murudzi urwu , kumashure kwemusoro wemwana kunotora chimiro chakatsetseka (plagiocephaly) .
• Metopic craniosynostosis: Izvi zvinokanganisa suture inotangira pamusoro pemhino kusvika pamusoro pehuma. Murudzi urwu, musoro wemwana unogona kuita setriangle . Unogonawo kutaridzika semupendero unokwira kubva pakati pehuma.

Dambudziko iri rakajairika zvakadii?

Craniosynostosis haisi chirwere chinowanzoitika. Zvichienderana nehuwandu hwevana muUnited States, chirwere ichi chinokanganisa mwana mumwe chete pavana 2,500 . Chirwere ichi chinowanikwawo muSri Lanka.

Ndezvipi zviratidzo zveCraniosynostosis?

Chiratidzo chikuru uye chinonyanya kuoneka chechirwere ichi chimiro chisina kujairika chedehenya remwana. Kazhinji, misoro yedu yakaita denderedzwa. Mumamiriro ezvinhu aya, zvimwe zvikamu zvemusoro wemwana zvinogona kutaridzika seizvi:

• Kureba
• Kuva nemativi matatu
• Kutetepa
• Kubata

Pamusoro pezvo, mamwe mabasa anogona kuonekwa:

• Nzvimbo yakapfava yemwana (fontanelle) haisipo kana kuti diki kwazvo.
• Paunobata musoro wemwana , unonzwa semupendero wakaoma, wakakwirira pane matinji.
• Kurasikirwa nekuenzana kwezvimiro zvechiso (semuenzaniso, ziso rimwe rakaiswa pamusoro kana pasi pane rimwe).
• Kutenderera kwemusoro wemwana kudiki pane zvakajairwa zvichienderana nezera rake.

Dzimwe nguva, craniosynostosis inogona kusanganiswa nechimwe chirwere chiripo. Muchiitiko ichi, unogona zvakare kuona zviratidzo zvakaita se:

• Zviratidzo zvepfari (`Kubatwa nepfari`).
• Matambudziko ekukura kwepfungwa.
• Kutadza kuona zvakanaka kana kuti upofu.

Ndezvipi zvikonzero zve craniosynostosis?

Kutaura zvazviri, vaongorori havasati vaziva kuti chii chinokonzera izvi. Dzimwe nguva zvinokonzerwa nekuchinja kwemajini (kuchinja kwemajini kana kuchinja kwemajini) . Kashoma kuti kuchinja kwemajini uku kuve kwakabatana nenhoroondo yemhuri.

Vanachiremba vakaona kuti zvinhu izvi zvinogona kubatsira pakukura kwecraniosynostosis:

• Kumanikidzwa kubva kunze kwedehenya mwana ari mudumbu.
• Kusarongeka kwekugadzirwa kwema membrane akakomberedza ganda remusoro nepasi pedehenya.
• Dambudziko remajini riri pachena.

Ndezvipi zvirwere zvemajini zvinokonzera craniosynostosis?

Craniosynostosis inogona kuitika sechiratidzo chemamwe mamiriro ezvinhu emumajini. Mimwe mienzaniso ndeiyi:

• Chirwere cheApert
• Carpenter syndrome
• Chirwere cheCrouzon
• Chirwere chePfeiffer
• Saethre-Chotzen chirwere

Aya mazwi ekurapa akaomarara zvishoma, asi chiremba wako achaatsanangura zvakadzama.

Pane zvinhu zvine njodzi here?

Ongororo yakawana kuti zvinotevera zvinogona kuwedzera njodzi yekuva nemwana ane craniosynostosis:

• Chirwere chethyroid: Kune vanaamai vari kurapwa chirwere chethyroid panguva yekuzvitakura.
• Mimwe mishonga: Kune vanaamai vanotora mishonga yekubereka yakaita se clomiphene citrate vasati vabata pamuviri kana kuti vachiri vadiki.

Ungave uine pamuviri kana kuti uri kuronga kubata pamuviri, zvakakosha zvikuru kutaura nachiremba wako nezvekuti ungachengetedza sei hutano hwakanaka panguva yekuzvitakura.

Ndezvipi zvinetso zvinogona kuitika zveCraniosynostosis?

Dambudziko iri rinogona kukonzera mamwe matambudziko, ndosaka kurapwa nekukurumidza kuchikosha.

• Kuwedzera kwekumanikidzwa mukati memusoro wemwana (kumanikidzwa mukati memusoro).
• Kunonoka kukura kana kuremara kwepfungwa.
• Kutadza kufema zvakanaka.

Vamwe vana vanogona kunge vaine matambudziko ekuzviremekedza uye chimiro chemuviri , vangave vasina kuenzana kwechiso kana chimiro chemusoro chakasiyana nechevamwe vana. Muzviitiko zvakadaro, mapoka ekutsigirana, mazano, uye kurapa kwepfungwa zvinogona kubatsira mwana kuti ave nemufananidzo wakanaka.

Vanachiremba vanoongorora sei izvi? (Kuongororwa)

Mushure mekunge mwana wako azvarwa, chiremba achaita bvunzo yemuviri . Vachatarisa kana paine madonhwe akapfava (fontanelles) mumusoro wemwana, uye kana paine mapundu kana mabundu akavharwa nemasonti. Vachayerawo denderedzwa remusoro wemwana.

Kana paine kusava nechokwadi kubva mukuongororwa uku, X-ray kana CT scan inogona kuitwa kuti isimbise chirwere chacho.

Kana zvikasaonekwa pakuzvarwa, chiremba wako anogona kuzviwana panguva yekushanya kwemwana ari muchipatara nguva dzose sezvo mwana wako achikura. Unogona kuona kuti musoro wemwana wako hausi kukura nekukurumidza semuviri wake wese, kana kuti haasi kusangana nematanho ekukura anoenderana nezera rake.

Kana muine zvinokunetsai nezvemwana wenyu, musazeza kutaura nezvazvo kana maenda kuhofisi yachiremba. Chiremba achaita bvunzo dzinodiwa uye achaona mamiriro acho chaiwo.

Ndeipi mishonga yekurapa craniosynostosis?

Nzira dzekurapa dzinoenderana nerudzi rwecraniosynostosis, kuoma kwechirwere chacho, uye zviratidzo zvinokanganisa mwana.

• Kurapa nengowani: Vamwe vacheche vane craniosynostosis isina kusimba vanogona kupfekedzwa ngowani yekurapa yakakosha . Ngowani iyi inodzvanya zvinyoro nyoro padehenya, izvo zvinobatsira kugadzirisa chimiro chedehenya nekufamba kwenguva.
• Kuvhiyiwa: Kazhinji, kurapwa kukuru kwechirwere ichi kuvhiyiwa. Kuvhiyiwa kunoitwa kugadzirisa chimiro chedehenya remwana, kuderedza kumanikidzwa kuri mukati medehenya, uye kubvumira uropi hwemwana kukura. Rudzi rwekuvhiyiwa uye nguva yakanakisa yekuvhiyiwa zvinosarudzwa nachiremba wekuvhiya. Kuvhiyiwa kunogona kuitwa mukati megore rekutanga remwana .
• Kurapa Kunotsigira: Mamwe marapirwo akadai sekurapa kwemuviri, kurapwa kwebasa, uye kutaura zvinogona kudiwa kuti mwana asvike padanho rekukura rakakodzera zera rake.

Pane migumisiro yakaipa here yekuvhiyiwa uku?

Migumisiro yakaipa inobva mukuvhiyiwa haisi mishoma. Zvisinei, mune zvisingawanzoitiki, zvinotevera zvinogona kuitika:

• Mhepo inoputika (air embolism)
• Kusawirirana
• Kubuda ropa kubva paronda (`kubuda kweronda`), kubuda ropa rakawanda (zvingada kuwedzerwa ropa)
• Kugwamba kweropa
• Kukanganisika kwemapfupa kana kusashanda zvakanaka
• Kubuda kwemvura yemumusana
• Kupisa muviri zvakanyanya (hyperthermia)
• Utachiona
• Kudiwa kwekuvhiyiwa kwechipiri
• Zviratidzo zvepfari ('Kubatwa nepfari')

Kunyangwe matambudziko aya asingawanzoitiki, dzimwe nguva anogona kutyisidzira hupenyu uye anotungamira kurufu rusati rwasvika.

Zvakajairika kuti unzwe kutya kana ukanzwa nezvemwana mudiki, kunyanya mwana mudiki, ari kuvhiyiwa. Asi yeuka, vanachiremba vemwana wako vanogara vachiedza kuita zvakanakira mwana wako. Chikwata chekurapa, kusanganisira vanachiremba vekuvhiya, vakadzidziswa zvakanyanya uye vane ruzivo rwakakura mukuvhiya kwemhando idzi. Vanoita kuvhiya uku nekungwarira kukuru, vachideredza njodzi yematambudziko.

Ndinofanira kuona chiremba rini?

Enda kuna chiremba nekukasika kana mwana wako akaratidza zviratidzo zvecraniosynostosis:

• Kana musoro wacho usina kutenderera, kana kuti une chimiro chakasiyana nechaitarisirwa .
• Kana matanho ebudiriro akanonoka .
• Kana paine mitsetse mirefu pamusoro.

Kana mwana wako atoonekwa kuti ane craniosynostosis, kana akaonekwa nezviratidzo zvepfari (kubatwa nepfari) kana kuti aine dambudziko rekufema , fonera 911 (1990 Suwaseriya muSri Lanka) nekukasika kana kuenda kuchipatara chiri pedyo.

Chii chandinofanira kubvunza chiremba wangu?

Unogona kubvunza chiremba wemwana wako mibvunzo yakaita seiyi:

• Chii chinonyanya kukonzera chirwere ichi chinonzi craniosynostosis?
• Munokurudzira kurapwa kupi?
• Ndeipi njodzi dzekuvhiyiwa?
• Chii chinoitika kana tikasarudza kusavhiyiwa?
• Chimiro chemusoro wemwana wangu chinokanganisa mashandiro ehuropi here?
• Kana ndikava nemumwe mwana, mikana yekuti mwana iyeye achavawo nechirwere ichi ndeipi?

Remangwana revana ava nderei? (Kufungidzira)

Kufanotaura kuti mwana achazorwara kunogona kusiyana zvichienderana nehutano hwemwana uye kuti mavanga mangani akavharwa mudehenya. Vana vazhinji vanogona kutarisira kupora zvakanaka kana vakaongororwa uye vakarapwa nekukurumidza. Kurapwa, kunyanya mugore rekutanga remwana, kunogona kuderedza matambudziko ekukura.

Kana craniosynostosis iri chiratidzo chechirwere chemajini, ramangwana remwana rinogona kunge rakasiyana zvishoma. Chiremba wako anogona kukupa ruzivo rwakanakisisa nezveizvi.

Munhu ane Craniosynostosis anotarisirwa kurarama kwenguva yakareba sei?

Vana vazhinji vanoonekwa vaine craniosynostosis vane hupenyu hwakajairwa , kunyanya kana vanachiremba vakaona nekurapa chirwere ichi mumakore mashoma ekutanga ehupenyu hwavo. Zvisinei, hupenyu hwemwana wega wega hunogona kusiyana zvichienderana nekuoma kwechirwere ichi.

Craniosynostosis inogona kudzivirirwa here?

Parizvino hapana nzira inozivikanwa yekudzivirira chirwere ichi. Kumwe kuongororwa kwemajini panguva yekuzvitakura kunogona kuona shanduko dzemajini dzinogona kukonzera chirwere ichi. Mupi wezano wezvemajini anogona kukudzidzisa nezvenjodzi dzemajini ako usati wava nepamuviri uye nezvesarudzo dzekurapa kana mwana wako akazvarwa aine chirwere ichi.

Pakupedzisira, zvinhu zvekurangarira (Mharidzo Yekuenda Kumba)

Sevabereki vatsva, zvakajairika kuti unzwe kunetseka uye kutya paunoziva kuti mwana wako ane chirwere chakadai secraniosynostosis. Zvisinei, timu yevanachiremba yemwana wako ichaongorora chirwere chacho uye ichagadzira hurongwa hwekurapa kudzivirira matambudziko anogona kukanganisa kukura kwehuropi hwemwana wako. Nekurapwa nenguva, vacheche vazhinji vane craniosynostosis vachakura vaine hutano hwakanaka. Kana uine mibvunzo yekuti ungabatsira sei mwana wako, taura nachiremba wemwana wako. Hausi wega, uye vanachiremba, vanamukoti, uye, kana zvichidikanwa, vanopa mazano varipo kuti vakubatsire.

Craniosynostosis , dehenya, musoro wemwana, majoini, kukura kwehuropi, kuvhiyiwa, zvirema zvekuzvarwa nazvo, chimiro chedehenya, fontanelle