Unogara wakaneta here? Unonzwa usimbe? Zvingave Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)!

Unonzwawo kuneta zvakanyanya uye kuneta zuva rose here? Dzimwe nguva unonzwa usina simba zvekusagona kubuda pamubhedha here? Kunyangwe ukarara zvakanaka uye uchizorora zuva rese, kuneta uku hakuperi? Saka ichi chinhu chingave chakakosha kwauri. Nhasi tichataura nezvechirwere chinonzi `Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), icho vamwe vanochidanawo kuti `Chronic Fatigue Syndrome (CFS).`

Chii chinonzi 'ME/CFS'? Zvichitaurwa zviri nyore...

Muchidimbu, ME/CFS chirwere chinoita kuti unzwe kuneta zvakanyanya uye kuneta, zvekuti chinokutadzisa kuita mabasa ako ezuva nezuva, dzimwe nguva kutobuda pamubhedha kuti uite mabasa madiki. Chinhu chakakosha ndechekuti kuneta uku kusapera zvisinei nekuti unozorora kana kurara zvakadii. Zvakare, kuneta uku kunowedzera kana ukaita kunyange basa diki diki remuviri, kana kuti kana uine kushushikana mupfungwa (semuenzaniso, kana uchifunga zvakawanda nezvechimwe chinhu). Zviratidzo izvi zvinowanzogara kwemwedzi mitanhatu kana kupfuura.

Dzimwe nguva vanachiremba vanopa chirwere ichi mamwe mazita, anoti:

• ``Myalgic Encephalomyelitis (ME)''
• "Chirwere Chekusashivirirana Nesimba Remuviri (SEID)"

Usazvidya moyo kana ukanzwa izvi, izvi ndizvo zviri kuitikawo.

Chirwere ichi chinonzi `ME/CFS` chakajairika zvakadii?

Ichi chirwere chinowanzoitika kupfuura zvaungafunga. Mamiriyoni evanhu pasi rose vanotambura nechirwere ichi. Asi chinosuwisa ndechekuti, vanhu vazhinji vanotambura nechirwere ichi, asi hachina kuongororwa nemazvo. Chimwe chikonzero kusaziva nezvazvo. Chimwezve ndechekuti vamwe vanhu vanoomerwa nekuwana nzvimbo dzekurapa.

Ndezvipi zviratidzo zve `ME/CFS`? Tarisa kana uine izvi zvakare...

Chiratidzo chikuru cheME/CFS kuneta kwakanyanya, kunogara kwenguva refu . Kureva, kuneta kunogara kwemwedzi inopfuura mitanhatu uye kusingaderedzi kuzorora kana kurara.

Uyezve, unogona kuona zviratidzo zvakadai se:

• Matambudziko ekurara: Kusakwanisa kurara zvakanaka, kumuka kunyangwe mushure mekurara, kana kunzwa kuneta zvisinei nekuti wava kurara zvakadii.
• Musoro: Kurwadziwa nemusoro kakawanda, dzimwe nguva kwakanyanya.
• Kurwadziwa kwemajoini: Kurwadziwa mumajoini emuviri.
• Kurwadziwa kwetsandanyama: Kurwadziwa kwetsandanyama, kurwadziwa kwemuviri.
• Matambudziko ekufunga: Kuomerwa nekufunga zvakajeka, kuoma kwekuisa pfungwa pachinhu chimwe, kurasikirwa nendangariro. Vamwe vanhu vanodanawo izvi kuti "brain fog."

Kuwedzera kune izvi, panogona kunge paine zvimwe zviratidzo:

• Matambudziko ekuona.
• Kunzwa kutonhora, pamwe kudikitira husiku.
• Manodhi elymph akazvimba.
• Kusagadzikana mudumbu: Zviratidzo zvakafanana neIrritable Bowel Syndrome (IBS), zvakaita sekuzvimba, kunzwa kuguta, kurwadziwa mudumbu, kuvimbiwa kana manyoka.
• Kuora mwoyo, kushatirwa, kutya, uye kuzvidya mwoyo.
• Kushaya simba mumakumbo, kusanzwa simba mumuromo.
• Dzungu, musoro wakareruka, uye dzimwe nguva kufenda.

Fungidzira, ko kana iwe ukanzwa marwadzo akafanana neako paunenge uine fivha wobva wanzwa kuneta kwemwedzi yakawanda, pamwe kunyange makore? Ndizvo zvinonzwa munhu ane ME/CFS.

Chinhu chakakosha ndechekuti zviratidzo izvi zvinogona kusiyana kubva pamunhu nemunhu. Vamwe vanhu vanogona kuva nezvishoma, vamwe vanogona kuva nezvakawanda. Zvakare, zviratidzo izvi zvinogona kuva zvishoma pane mamwe mazuva uye zvimwe zvakawanda pane mamwe mazuva.

Chinhu chinonyanya kucherechedzwa chirwere chinonzi `Post-Exertional Malaise (PEM).` Izvi zvinoreva kuti kana ukaita maekisesaizi mashoma emuviri (semuenzaniso, kufamba daro diki, kuita mabasa epamba mashoma) kana kushanda nesimba mupfungwa (semuenzaniso, kudzidzira bvunzo, kuita sarudzo yakakosha), zviratidzo zvako (kunyanya kuneta) zvinova zvakanyanya kwemaawa, kana kunyange mazuva, mushure mezvo. Ichi chinhu chakakosha che `ME/CFS`.

Sei `ME/CFS` iyi ichikura? Chii chinokonzera?

Vanachiremba havasati vaziva kuti chii chinokonzera ME/CFS. Zvisinei, tsvakurudzo yakaratidza zvimwe zvikonzero zvinogona kunge zviri:

• Kuderera kweropa .
• Kushushikana .
• Mushure mekubatwa nechirwere (semuenzaniso hutachiona).
• Kuchinja kwemasoja emuviri : Idzi shanduko dziri mumasoja dzinodzivirira muviri wedu kubva kuzvirwere nekushushikana.
• Kuchinja kwesimba rinogadzirwa nekushandiswa kwemiviri yedu .

Aya ndiwo mafungiro makuru aripo iye zvino, asi tsvakiridzo iri kuitwa mberi.

Ndiani ari panjodzi huru yekubatwa neME/CFS?

Kunyange zvazvo chirwere ichi chichigona kuitika kune chero munhu, vamwe vanhu vari panjodzi huru:

• Vakadzi vanowanzoona chirwere ichi kupfuura varume.
• Kunyangwe ichigona kuitika kuvana nevechidiki, inonyanya kuitika kuvanhu vakuru vari pakati pemakore makumi mana nemakumi matanhatu .
• Zvakaonekwa kuti panogona kunge paine hukama hwemajini. Izvi zvinoreva kuti kana mumwe munhu mumhuri yako aine chirwere ichi, unogona kunge uine mukana wakakura wekuchibata. Zvisinei, majini chaiwo anokonzera chirwere ichi haasati awanikwa.

Ndezvipi zvimwe zvinetso zvinogona kuitika nekuda kweME/CFS?

Kuneta kwakanyanya kunokonzerwa nechirwere ichi kunogona kuita kuti zviomere vamwe vanhu kuita mabasa ezuva nezuva. Tsvagiridzo yakaratidza kuti vanhu vanosvika hafu yeME/CFS havakwanisi kuita basa renguva yakazara kana kuti renguva pfupi.

Fungidzira kuti hupenyu hwaizova hwakaoma sei kudai waisagona kumuka mangwanani wobika tii, kana waisagona kutarisira vana vako, kana waisagona kuenda kubasa?

Uyewo, kuora mwoyo kunokonzerwa neME/CFSKuora mwoyo kunogona kuitika. Zvakajairika kunzwa wakaneta nguva dzose, uchirwadziwa, uye usingakwanise kuita zvaunoda. Kana uchinzwa wakaneta, taura nachiremba wako nezvazvo. Kune mishonga yakanaka yekuzvirapa.

Vanachiremba vanoongorora sei chirwere ichi chinonzi `ME/CFS`?

Hapana bvunzo chaiyo yekuongorora chirwere cheME/CFS. Chiremba achaongorora chirwere ichi nekukuongorora, kunyatsoteerera zviratidzo zvako, uye kuongorora hutano hwepfungwa dzako.

Chiremba anogonawo kuita bvunzo dzeropa uye bvunzo dzeweti kuti ave nechokwadi chekuti hapana zvimwe zvirwere zvinokonzera zviratidzo zvakafanana.

Pane zvinhu zvakakosha zvinotariswa navanachiremba kana vachifungidzira kuti une ME/CFS (diagnostic criteria). Izvi ndeizvi:

• Panofanira kunge paine kuneta kwakanyanya kwagara kwemwedzi mitanhatu .
• Kuneta uku hakuperi kunyangwe mushure mekuzorora kana kurara .
• Kuomerwa nekurara zvakanaka uye zvine rugare .
• Kuneta kunowedzera kana munhu akashanda nesimba mumuviri kana mupfungwa (iyi ndiyo `Post-Exertional Malaise - PEM` yatakambotaura nezvayo).
• Dzimwe nguva, panogona kunge paine kusagadzikana kana wakamira kana wakagara ('orthostatic kutongerwa') uye/kana matambudziko ekufunga nekurangarira ('cognitive function').

Chiremba anozosarudza kana uine ME/CFS mushure mekufunga nezvezvinhu izvi zvese.

Ndezvipi zvinorapwa zveME/CFS?

Chinangwa chikuru chekurapa ME/CFS ndechekuderedza zviratidzo zvako uye kukubatsira kurarama sezvakajairika sezvinobvira. Vamwe vanhu vangasakwanisa kudzokera kuhutano hwavo hwakazara vasati vatanga chirwere ichi. Zvisinei, kurapwa kunogona kupa zororo rakakosha.

Kune nzira dzinoverengeka huru dzekurapa:

1. Kuchinja maitiro ekurara ('Kuchinja maitiro ekurara')

2. Mishonga

3. Kutarisira mabasa (kunonziwo 'kufamba kwenguva')

Ngatitaurei nezve chimwe nechimwe cheizvi zvakadzama .

1. Kuchinja maitiro ekurara (kujaira kurara zvakanaka - `Kuchena Muhope`)

Chiremba wako asati akupa mushonga, anogona kukukurudzira kuti uite zvimwe zvinhu zviri nyore kuti ukwanise kurara zviri nani, zvakaita se:

• Enda kunorara panguva yakatarwa, muka panguva yakatarwa. Kuita izvi panguva imwe chete zuva nezuva kunobatsira wachi yemuviri wako kutanga kushanda zvakanaka.
• Kana ukarara masikati, usarara kwemaminitsi anopfuura makumi matatu. Kurara kwenguva refu masikati kunogona kuita kuti zviomere kurara husiku.
• Shandisa mubhedha wako neimba yako yekurara chete pakurara uye kuita zvepabonde. Dzivisa kuona TV, kushandisa foni yako, kana kushanda wakagara pamubhedha. Ipfungwa yakanaka kubvisa zvinhu zvemagetsi mukamuri yekurara.
• Dzivisa kudya zvakawanda usati warara.Uyewo, dzivisa doro necaffeine (inowanikwa mutii nekofi) usati warara.

Izvi ndizvo zvatinodaidza kuti 'kurara zvakanaka' kana kuti 'tsika dzakanaka dzekurara'.

2. Mishonga

Zvichienderana nezviratidzo zvako, chiremba wako anogona kukurudzira mishonga inotevera:

• Kurwadziwa: Mishonga inouraya marwadzo yakaita se `Nonsteroidal anti-inflammatory drugs (NSAIDs)`.
• Kune vanorara, kurwadziwa, uye kuneta: Mimwe mishonga yekuora mwoyo, yakadai semishonga yekuora mwoyo (tricyclics).
• Kuderedza kushungurudzika uye marwadzo: Mishonga yakaita se `Selective serotonin reuptake inhibitors (SSRI)` uye `Serotonin-norepinephrine reuptake inhibitors (SNRI)`.
• Kana paine hutachiona: Mishonga inorwisa mavhairasi.
• Kuvandudza mashandiro emuviri wemuviri: Intravenous immunoglobulin (IVIG).
• Kuneta: `Corticosteroids` (idzi dzinofanira kushandiswa nokungwarira kukuru uye chete kana wapihwa zano nachiremba).

Haasi mishonga yese iyi inoshanda kune wese munhu. Chiremba wako ndiye achasarudza kuti ndeipi mishonga yakakunakira. Mishonga mitsva iri kutsvakurudzwawo.

3. Kutarisira mabasa ('Kutarisira mabasa' - 'kufamba kwenguva')

Sezvatakambotaura, zviratidzo zveME/CFS zvinowedzera kana munhu akashanda nesimba kana kuti achifungisisa (Post-Exertional Malaise - PEM). Sekurapa izvi, vanachiremba vanodzidzisa nzira inonzi "pacing." "Pacing" zvinongoreva kuyera zororo rako uye nhanho dzebasa rako.

Paunenge uchidzidzira "kufamba-famba," unodzidza kuti "zvipingamupinyi" zvako chii. Funga nezvezvipingamupinyi izvi semafenzi. Unofanira kuedza kugara mukati memiganhu yakachengeteka yezvinogona kugadziriswa nemuviri wako. Kana ukapfuura miganhu iyi, kureva kuti, kana ukazvisundira kupfuura miganhu yako, muviri wako hauchakwanisi kuzvigadzirisa. Izvi zvinogona kuita kuti zviratidzo zvako zviwedzere kuipa.

Chiremba wako anogona kukubatsira kuona kuti miganhu yako yemuviri neyepfungwa ndeipi. Zvinogona kubatsira kuchengeta dhayari kana bhuku rezviitiko zvaunoita uye manzwiro aunoita mushure mazvo. Kana wangoziva miganhu yako, unogona kuronga mabasa ako kuti agare mukati memiganhu iyoyo.

Semuenzaniso, kana ukaona kuti waneta mushure mekufamba kwemaminitsi gumi nemashanu, unofanira kuedza kufamba kwemaminitsi gumi chete mangwana acho wozorora. Chinhu chikuru cheku "famba zvishoma nezvishoma" kuteerera muviri wako zvishoma nezvishoma uye kuziva miganhu yako.

Kurovedza muviri kwakaoma, kwakadai sekurovedza muviri kwe aerobic, kunogona kuwedzera zviratidzo zveME/CFS. Saka, taura nachiremba wako nezvekuti ndeapi maekisesaizi akachengeteka uye akakodzera iwe.

ME/CFS inogona kudzivirirwa here?

Zvinosuwisa kuti, pari zvino hapana nzira inozivikanwa yekudzivirira ME/CFS.

Chii chinofanira kutarisirwa nemunhu ane ME/CFS?

Hakuna mushonga weME/CFS. Zvisinei, zviratidzo zvinogona kugadziriswa nekuchinja hope, kugadzirisa mashandiro emuviri (kufamba kwenguva), uye kushandisa mishonga. Chinangwa chekurapa ndechekubatsira kuderedza zviratidzo zvakanyanya uye kuvandudza hupenyu.

Kurapa Kwepfungwa Nemaitiro (CBT) kwakaratidzwa kuti kunobatsira vanhu vazhinji vane ME/CFS. Kunovabatsira zviri nani kubata zviratidzo zvavo nepfungwa nemaitiro anokonzera izvozvo.

Unofanira kungwarira zvikuru kuti usashande nesimba rakawanda kupfuura simba rako. Kana wakaneta mumuviri nemupfungwa, "kufamba" - kureva kuti, kutora nguva yekuzorora pakati pekushanda nesimba, kuchinjana basa remuviri nekushanda kwepfungwa - kunogona kubatsira zvikuru.

Chiremba wako anogonawo kukukurudzira kuti ubatane neboka rekutsigirana nevamwe vanhu vane ME/CFS. Mapoka aya anogona kukupa kurudziro yakawanda, ruzivo, uye mikana yekugovana ruzivo nezvawakasangana nazvo nemamiriro ako ezvinhu.

Ndeipi tarisiro yeME/CFS?

Nekurapwa, zviratidzo zvakawanda zveME/CFS zvinovandudzika kusvika pamwero wakati. Zvisinei, vamwe vanhu vanogona kusazombodzokera kuhutano hwavo hwepakutanga. Mabatiro anoita chirwere ichi munhu mumwe nemumwe akasiyana. Zvakanaka kutaura nachiremba wako nezvechirwere chako uye mamiriro acho ezvinhu.

Unofanira kuona chiremba rini?

Kana uine zviratidzo zveME/CFS (kunyanya kuneta kunogara kwemwedzi inopfuura mitanhatu), iva nechokwadi chekuona chiremba. Chiremba wako achaongorora zviratidzo zvako uye achagadzira hurongwa hwekurapa kuti akubatsire kuwana zororo.

Dzimwe nguva, kana waneta zvekusagona kumuka pamubhedha, kuonana nachiremba kunogona kuva dambudziko guru. Muzviitiko zvakadaro, usazeza kutsanangurira chiremba wako pafoni kuti zviratidzo zvako zviri kukukanganisa sei. Chiremba wako anogona kutokwanisa kukupa 'nguva yekuonana' kuti ugone kubatana uri kumba kwako.

Nekuziva chirwere ichi nekukurumidza uye kutanga kurapwa, unogona kuwana zororo nekukurumidza.

Mibvunzo ipi yandinofanira kubvunza chiremba wangu?

Paunoenda kunoona chiremba, unogona kubvunza mibvunzo yakaita seiyi:

• Munondikurudzira kuti ndirapwe sei?
• Pane migumisiro yakaipa here yekurapwa kwacho?
• Ndingawana sei miganhu yemabasa angu?
• Kana ndichinzwa zvakanaka, ndinogona kushanda kupfuura zvandinogona here?
• Ndingavandudza sei maitiro angu ekurara ('kurara zvakanaka')?

Bvunza mibvunzo yakaita seiyi kuti unzwisise zviri nani mamiriro ako ezvinhu.

Mharidzo Yekupedzisira Yekuenda Kumba

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) chirwere chinotyisidzira hupenyu uye chinonetsa. Asi hausi wega.Kana ukanzwisisa chirwere ichi uye ukachigadzirisa nemazvo, unogona kudzora zviratidzo zvacho worarama hupenyu huri nani.

• Kana uine kuneta kunogara kwenguva refu kusingapere nekuzorora , usazviregeredza. Tsvaga rubatsiro rwechiremba.
• Dzidza nzira inonzi "pacing" uye shandisa simba rako nokungwarira.
• Edza kurara zvakanaka husiku .
• Kana uchida rubatsiro, usanyara kukumbira rubatsiro kubva kumhuri, shamwari, uye vanachiremba .
• Mapoka ekutsigira anogona kukupa simba guru repfungwa.

Ndinovimba kuti ruzivo urwu runobatsira. Ramba uine hutano hwakanaka!

Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, ME/CFS, kuneta, kuneta kusingaperi, post-exercise syndrome, kushaya hope, kurwadziwa kwemuviri, hutano hweSinhala