Une chirwere chinonzi Myasthenia Gravis (MG) here? Saka pamwe unoziva kuti kusasimba kwetsandanyama, maziso akarembera, kuoma kutaura, uye kumedza zvinogona kuomera sei muhupenyu hwako. Unofanira kushandisa mishonga yakasiyana-siyana kudzora chirwere ichi. Asi chimwe chinhu chaunogona kufara nacho ndechekuti munguva pfupi yapfuura, mishonga mitsva yakaunzwa kurapa chirwere ichi. Nhasi, tichataura nezveZilbrysq, jekiseni idzva rinogona kushandiswa kumba.
Kutanga, ngationei kuti chii chinonzi Myasthenia Gravis (MG).
Zvichitaurwa zviri nyore, Myasthenia Gravis (MG) chirwere chinokonzerwa ne autoimmune system. Izvi zvinoreva kuti dziviriro yemuviri wedu, kana kuti immune system, inotanga kurwisa masero edu ane hutano.
Fungidzira kuti uropi hwedu hunotumira meseji kune tsandanyama kuti 'igovane'. Meseji iyi inofamba netsinga. Nzvimbo iyo tsinga netsandanyama zvinobatana yakaita se'jointion'. Tinoidaidza kuti neuromuscular junction. Pajointion iyi, pane 'receptors' dzakakosha dzinogamuchira meseji yetsinga. MuMG, immune system yedu inorwisa mareceptor aya anonzi 'acetylcholine receptors'. Ipapo meseji inobva kuuropi haigamuchirwi nemazvo netsandanyama. Nekuda kweizvozvo, tsandanyama inoneta nekukurumidza uye inoshaya simba.
Havasi vese vane MG vanowana zviratidzo zvakafanana. Vamwe vanhu vanongoerekana vatanga zviratidzo , vamwe vachiwana zviratidzo zvishoma nezvishoma nekufamba kwemakore. Dzimwe nguva panogona kuva nenguva dzekurerukirwa (kana zviratidzo zvapera).
| Zviratidzo Zvinowanzoitika zveMyasthenia Gravis (MG) | |
|---|---|
| Nhengo yemuviri yakakanganiswa | Zviratidzo zvinogona kuitika |
| Tsandanyama dzemaziso | Kuona kaviri, maziso akarembera. |
| Tsandanyama dzechiso nemuromo | Kusanzwisisa mashoko paunenge uchitaura, kunetseka kutsenga nekumedza chikafu, kuchinja kwezwi, uye kunetseka kudzora chitarisiko chechiso. |
| Mutsipa, maoko nemakumbo | Kuomerwa nekufamba, kutadza kushandisa maoko neminwe zvakanaka, kuoma kubata musoro wakatwasuka. |
| Sisitimu yekufema | Vamwe vanhu (vanenge 20%) vanogona kusangana nechirwere chinokatyamadza, chakakomba, uye chinowanzoisa upenyu pangozi chinonzi "myasthenic crisis". Ichi chiitiko chinoda kurapwa nekukurumidza. |
`Myasthenic crisis` chirwere chekukurumidzira umo tsandanyama dzekufema dzinoshaya simba uye haugone kufema. Chinogona kukonzerwa nehutachiona, kushushikana, kana mimwe mishonga. Kana izvi zvikaitika, zvakakosha kuenda kuchipatara chiri pedyo nekukasika.
Mushonga weZilbrysq unoshanda sei?
Chinangwa chikuru chekurapa MG ndechekudzoreredza kutapurirana kwemashoko etsinga kuburikidza neacetylcholine receptor. Mishonga yakaita sepyridostigmine (Mestinon), steroid dzakadai seprednisone, uye immunosuppressants inowanzo shandiswa kuita izvi.
Zilbrysq iri muboka idzva remishonga inoshanda nenzira yakasiyana. Tinoidaidza kuti 'inodzivirira mishonga inobatanidza'.
Unoyeuka here pandakataura kuti masoja edu emuviri anorwisa tsandanyama dzedu? Pane chinhu chinonzi "nzira yekuwedzera" chinoita basa rakakosha mukurwisa uku. Zvinoitwa naZilbrysq kuvharira mashandiro emasoja aya. Ipapo masoja emuviri anoderedza kurwiswa kunokuvadza pamareceptor. Nekuda kweizvozvo, tsinga dzinotanga kuenda kutsandanyama zvakanaka zvakare, uye simba retsandanyama rinovandudzika zvakare.
Ko Zilbrysq inogona kushandiswa nemunhu wese ane MG here?
Kwete, havasi vese vanogona. Mushonga uyu unongotenderwa chete kuvanhu vane antibody chaiyo inonzi ``anti-acetylcholine receptor antibody'' muropa ravo. Vanhu vazhinji vane MG (inenge 80%-90%) vane antibody iyi. Asi kana usina iyi muropa rako, mushonga uyu ungasabatsira zvakanyanya. Saka, usati watanga kutora mushonga uyu, chiremba wako achaita bvunzo yeropa chaiyo kuti aone kana uine antibody iyi.
Mushonga uyu munoshandiswa sei?
Zilbrysq mushonga wemvura unobayiwa pasi peganda zuva nezuva. Unogona kubaiwa muhudyu, mudumbu, kana kumashure kweruoko.
- Kuchengetera: Mushonga uyu unofanira kuchengetwa mufiriji.
- Usati washandisa: Bvisa mushonga wekudzivirira kubva mufiriji kwemaminitsi makumi matatu kusvika makumi mana nemashanu usati wabaya jekiseni worega uchisvika patembiricha yemukamuri. Izvi zvinoderedza kusagadzikana panguva yekubaiwa jekiseni.
- Kudzidziswa: Paunotanga kuwana mushonga uyu, chiremba wako kana nesi vachakuratidza maitirwo aunoubaya nemazvo. Zvakakosha zvikuru kubaya mushonga sezvakarairwa kuti uwane mushonga wakakodzera. Kana paine chausiri nechokwadi nacho, bvunza chiremba wako zvakare.
Zvinhu zvakakosha zvaunofanira kuziva usati watanga mushonga
Ichi chikamu chakakosha zvikuru, saka nyatsoteerera.
Mushonga uyu unogona kuwedzera njodzi yekubatwa nezvirwere zvakakomba, kunyanya hutachiona hwemeningococcal. Nekuda kwenjodzi iyi, mushonga uyu unowanikwa chete kuburikidza nechirongwa chekuchengetedza chinonzi chirongwa cheZilbrysq REMS. Imi nachiremba wenyu munofanira kunge makanyoreswa muchirongwa ichi.
Sechikamu chechirongwa ichi, chiremba wako achakudzidzisa nezvehutachiona hwemeningococcal, maitiro ekudzivirira, maitiro ekuziva zviratidzo, uye kukosha kwekutsvaga mazano echiremba nekukasika kana zviratidzo zvikaitika.
- Majekiseni: Kuti muderedze njodzi yekutapukirwa, chiremba wenyu achava nechokwadi chekuti mawana majekiseni emeningococcal mavhiki maviri musati matanga Zilbrysq. Kana muchida kutanga mushonga nekukurumidza uye musina kubaiwa majekiseni, muchafanira kutora mishonga inorwisa mabhakitiriya kusvika mushonga wacho watanga kushanda.
- Kadhi Rekuchengetedza: Uchapihwa 'Kadhi Rekuchengetedza Murwere' rakakosha. Unofanira kugara uine kadhi iri nguva dzese. Zvakakosha kurichengeta paunenge uchitora mushonga, pamwe nemwedzi miviri mushure mekurega mushonga. Unogona kuratidza kadhi iri kune chero mumwe chiremba anokurapa.
Migumisiro yacho uye nzira yekuzvigadzirisa nayo?
Kufanana nemushonga upi zvawo, Zilbrysq inogona kukonzera mimwe migumisiro yakaipa, asi yakawanda yacho inogona kudzorwa.
| Mhedzisiro yedivi | Maitiro ekutarisira |
|---|---|
| Maitiro epanzvimbo yejekiseni (kutsvuka, kuvaviwa, kuzvimba) | Usabaya jekiseni panzvimbo imwe chete zuva nezuva, asi chinja nzvimbo yacho. Shandisa dzimwe nzvimbo dzakadai sepachidya, mudumbu, neparuoko. Usabaya jekiseni munzvimbo dzine maronda, mavanga, kuzvimba, kana mavanga. |
| Utachiona hwemabhakitiriya (mhino, pahuro, mapapu) | Izvi zvinogona kudzivirirwa nekuwana majekiseni anodiwa. Geza maoko ako nguva nenguva. Gara kure nevanhu vanorwara. |
| Chipembenene | Chiremba wako achaedza ropa rako asati atanga mushonga. Kana ukanzwa kurwadziwa kwakanyanya mudumbu rako repamusoro (rinoyerera kumusana), fonera chiremba wako nekukasika. |
| Njodzi yekubatwa nezvirwere zvepabonde zvakaita segonorrhea | Mushonga uyu unogona kuwedzera zvishoma njodzi yezvirwere zvepabonde zvakaita segonorrhea. Zvakakosha kuita zvepabonde zvakachengeteka (semuenzaniso, kushandisa kondomu) uye kuongororwa nguva nenguva. Taura nachiremba wako nezveizvi. |
Ndingatarisira mhedzisiro munguva pfupi sei?
Kana Zilbrysq yakakunakira, unogona kuona kuvandudzika kwezviratidzo zvako mukati mevhiki yekutanga yekutanga mushonga. Vanhu vazhinji vanoona mhedzisiro yakanaka mukati memwedzi wekutanga.
Zvakakosha zvikuru:Usangoerekana warega kutora mushonga uyu kana chero mumwe mushonga weMG usina kutaura nachiremba wako. Usadaro kunyangwe zviratidzo zvako zvikavandudzika. Zvikasadaro, chirwere chinogona kuwedzera kuipa.
Kana zviratidzo zvako zvikasavandudzika mushure memwedzi mumwe kana miviri, taura nachiremba wako. Iye achataura newe nezvedzimwe nzira dzekurapa nadzo.
Mharidzo Yekuenda Nayo Kumba
- Zilbrysq (Zilucoplan) ijekiseni idzva rinopihwa varwere vane Myasthenia Gravis (MG) zuva nezuva.
- Izvi zvinoshanda nekudzivirira 'system yekubatsira', iyo iri chikamu chesystem yekudzivirira muviri, uye kuderedza kukuvara kwetsandanyama.
- Mushonga uyu unongoshandiswa chete nevanhu vane antibody inonzi 'anti-AChR antibody' muropa ravo.
- Nekuda kwenjodzi yekutapukirwa zvakanyanya, mushonga uyu unowanikwa chete pasi pechirongwa chakakosha chinonzi chirongwa cheREMS. Zvinosungirwa kuti munhu apiwe mushonga we meningococcal jekiseni asati atanga mushonga wacho.
- Gara uine 'Kadhi Rekuchengetedza Murwere' rawakapihwa.
- Usarega kutora chero mushonga weMG kana kuchinja mushonga usina kupiwa mazano nachiremba.
- Usanyara kutaura nachiremba wako nezvemigumisiro kana matambudziko aungasangana nawo.
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