Ngaba unazo ezi mpawu? Masifunde ngeSifo sokuGcina ixesha elide sabantu abadala (AOSD)!

Ngaba ngamanye amaxesha uziva uqaqamba, umkhuhlane, kwaye ubuhlungu amalungu kangangeentsuku? Mhlawumbi unerhashalala epinki eluswini lwakho. Ukuba unale mpawu, usenokuba nento esithetha ngayo namhlanje: Isifo Sokuqhubeka Kwabantu Abadala (AOSD). Esi sisifo esingaqhelekanga, kodwa kubalulekile ukuba uqaphele.

Yintoni i-Adult-Onset Still's Disease (AOSD)?

Ngamafutshane, i-AOSD sisifo samathambo esibangela ukudumba esichaphazela umzimba wonke, sibangela ukudumba kunye nentlungu emalungeni . Sinokubangela iintlungu emalungeni, iintlungu zemisipha, umkhuhlane oza ubuye uphele imini yonke, kunye nokudumba kolusu. Ukongeza, ezinye iimpawu zomzimba nazo zinokuvela.

Esi sifo, esibizwa ngokuba yi-'AOSD', luhlobo lwabantu abadala lwesifo i-'Still's disease' okanye i-'(Juvenile Idiopathic Arthritis - JIA)' esenzeka ebantwaneni. Sidla ngokuchaphazela abantu abancinci abaphakathi kweminyaka eli-16 nengama-35. Njengesifo ebantwaneni, ngamanye amaxesha sinokuhlala ixesha elingaphantsi konyaka size sinyamalale, okanye sinokufika sidlule ngokuhamba kwexesha. Iimpawu ``flares'`` zinokufika zidlule rhoqo, okanye zinokufika zidlule ixesha elide. Kwakhona, ezi mpawu ngamanye amaxesha zinokuba buthathaka kakhulu, kwaye ngamanye amaxesha zinokuba qatha kakhulu. Nangona kunjalo, kukho amayeza alungileyo okulawula iimpawu xa zibonakala.

Ziziphi iintlobo eziphambili zesi sifo?

I-AOSD ichaphazela wonke umntu ngendlela eyahlukileyo. Kunzima ukutsho ngqo ukuba iza kukuchaphazela njani. Kodwa oogqirha baye baqaphela ukuba iimpawu zihlala zibonakala ngeendlela ezintathu eziphambili:

I-Monophasic AOSD `(Monophasic AOSD)`

"I-Monophasic" ithetha ukuba iimpawu zibonakala kube kanye kuphela . Oku kunokuhlala iiveki okanye iinyanga ezimbalwa, kodwa kungaphantsi konyaka. Olu hlobo lunokuqala ngequbuliso, kwaye luphele ngokukhawuleza. Khawucinge nje, umhlobo wethu uKasun wayenale mpawu enomkhuhlane kunye nentlungu yamalungu, kwaye emva kweenyanga ezintathu wachacha ngokupheleleyo ngamayeza, kwaye akazange abuye. Yiloo nto ibizwa ngayo le `(i-Monophasic AOSD)`.

Polyphasic AOSD `(Polyphasic AOSD)`

"I-Polyphasic" ithetha ukuba iimpawu zenzeka amaxesha amaninzi . Ezi zinokuvela ngamaxesha athile, ngamanye amaxesha rhoqo emva kweeveki ezimbalwa, iinyanga, okanye kwaneminyaka. Nangona kunjalo, ngokuhamba kwexesha, ezi mpawu zihlala zifutshane kwaye zingabi nzima kangako.

I-AOSD engapheliyo `(i-AOSD engapheliyo)`

Igama elithi "Chronic" lithetha ukuba uneempawu eziqhubekayo, okanye ukuba imeko idla ngokuvela rhoqo . Njengakwizifo ezifana neRheumatoid Arthritis, le meko (Chronic AOSD) inokubangela umonakalo ohlala ixesha elide kumalungu akho.

Zonke ezi ntlobo zintathu zibonakala zilingana okanye zingafani. Nangona kunjalo, akunakwenzeka ukutsho ngqo ukuba loluphi uhlobo ekuqaleni. Ngamanye amaxesha, nokuba kucingelwa ukuba "luyi-monophasic" okanye "luyi-polyphasic", kamva lunokuba yi-"AOSD" "engapheliyo".

Zithini iimpawu ze-AOSD?

Ukongeza kwiimpawu eziphambili ezibonakala kwesi sifo, kukho nezinye iimpawu eziqhelekileyo.

Iimpawu eziphambili

• Umkhuhlane: Xa iimpawu zibonakala, uninzi lwabantu luba nomkhuhlane kabini ngemini , kube kanye kusasa nangokuhlwa. Lo mkhuhlane udla ngokuba ngaphezulu kwama-39 degrees Celsius (102 degrees Fahrenheit).
• Ukuqhambuka kwesikhumba: Ukuqhambuka okupinki, ngamanye amaxesha okufana nesalmon kudla ngokuvela ngexesha lomkhuhlane ophezulu . Kusenokuphela xa umkhuhlane uphela. Kudla ngokuvela esifubeni, ezingalweni nasemilenzeni ekuqaleni, kodwa kunokusasazeka emzimbeni wonke.
• Intlungu yamalungu: Abantu abaninzi bafumana intlungu yamalungu , kwaye abaninzi banokudumba nokuqina. Ekuqaleni inokuchaphazela amalungu ambalwa, kodwa ekuhambeni kwexesha, le ntlungu inokuchaphazela amalungu emzimbeni wonke.
• Intlungu yemisipha: Imisipha yakho isenokuvakala ibuhlungu , ingakumbi xa umkhuhlane uphezulu kakhulu.

Ezinye iimpawu eziqhelekileyo

• Umqala obuhkungu.
• Isisu esibuhlungu.
• Ukuziva udiniwe kakhulu.
• I-Malaise yimvakalelo yokungaziva kakuhle, ukuziva ungonwabanga.

Kuvakala njani ukuba ne-AOSD?

Enyanisweni, ekuqaleni, i-AOSD ivakala ngathi sisifo esibangelwa yintsholongwane okanye umkhuhlane oqhelekileyo . Iimpawu ezinje ngomkhuhlane, iintlungu zomzimba, kunye nomphimbo obuhlungu ziyafana nezinye izifo ezininzi eziqhelekileyo. Wena nogqirha wakho ninokuqala ukurhaneleka ukuba ezi mpawu azikapheli emva kweeveki ezimbini ukuya kwezintathu.

Kutheni le nto isifo se-AOSD sisenzeka?

Ukudumba emzimbeni wakho kuko okubangela iimpawu ze-AOSD . Ngokwesiqhelo, inkqubo yethu yokuzikhusela komzimba ibangela oku kudumba ukulwa nosulelo nokuphilisa amanxeba. Kufuneka kube yinto yexeshana. Kodwa kwezinye izifo, njenge-AOSD, inkqubo yakho yokuzikhusela yomzimba inengxaki ngento ethile , kwaye ihlala ibangela oku kudumba nokuba akukho ntsholongwane yokulwa nayo okanye amanxeba okuphola.

Abaphandi abakayazi kakuhle ukuba kutheni oku kusenzeka. Njenge-Juvenile Idiopathic Arthritis, i-Adult Still's Disease ibizwa ngokuba yi-" idiopathic ." Oko kuthetha ukuba unobangela ochanekileyo awaziwa . Akubonakali ngathi yimfuza.

Ifunyaniswa njani i-AOSD?

Iimpawu ze-AOSD ziyafana nezinye iimeko ezininzi. Kwaye ngenxa yokuba yimeko engaqhelekanga, oogqirha basenokungayicingi kwasekuqaleni. Ngoko ke kungathatha ixesha ukufumana uxilongo oluchanekileyo .

Emva kokuphonononga iimpawu zakho kunye nembali yezonyango, ugqirha wakho uya kuyalela uvavanyo lwegazi kunye novavanyo lwemifanekiso ukuze afunde ngakumbi ngemeko yakho. Uvavanyo olufana ne-X-ray okanye i-ultrasound scans lunokukhangela ukudumba kunye nokudumba kwamalungu akho. Uvavanyo lwegazi lunokuthintela ezinye iimeko. Ukuba uvavanyo lwakho lwegazi lubonisa inqanaba eliphezulu kakhulu le-ferritin, kunye nenani eliphezulu leeseli ezimhlophe zegazi , ezi mpawu zinokubonisa i-AOSD.

Ziziphi iindlela zonyango ze-AOSD?

Oogqirha banyanga i-AOSD ngamayeza ahlukeneyo okulwa nokuvuvukala . Iindidi zamayeza asebenza kakuhle kumntu ngamnye zahlukile. Kungathatha uvavanyo oluthile ukuze kufunyanwe elisebenza kakuhle kwiimpawu zakho. Wakuba ufumene elichanekileyo, kunokufuneka uqhubeke nokusela amayeza ixesha elide, nokuba awunazo iimpawu. Kungoko kuphela apho unokuthintela ukudumba ukuba kuqhubeke.

Amanye amayeza anokubangela iziphumo ebezingalindelekanga ukuba asetyenziswa ixesha elide. Ukuba usebenzisa amayeza anjalo, ugqirha wakho uya kuwatshintsha ngamanye amaxesha amayeza ukuze aphephe iziphumo ebezingalindelekanga.

Amanye amayeza asetyenziswa kunyango ngala:

• Amayeza angengowe-steroidal alwa nokuvuvukala (ii-NSAID).
• IiCorticosteroids (iisteroids ezenziweyo) `(iiCorticosteroids - iisteroids ezenziweyo)`.
• Amayeza okulwa nesifo samathambo (i-DMARDs) aguqula izifo.
• Amayeza ebhayoloji `(Biologics)`.

Ibaluleke kangakanani i-AOSD?

Kwiimeko ezininzi, i-AOSD ichaphazela umgangatho wobomi bakho ngaphezu kwempilo yakho yexesha elide . Oko kukuthi, inokubangela ukungonwabi kwaye iphazamise imisebenzi yemihla ngemihla, kodwa ayisiyongozi emzimbeni wakho kwixesha elide.

Nangona kunjalo, abanye abantu banokuhlakulela uhlobo lwe-arthritis oluqhubekayo noluwohlokayo . Oku kunokwenzeka ngakumbi kwi-AOSD engapheliyo kunakwezinye iintlobo. Ukuba ukuvuvukala kwamalungu akho kukhulu ngokwaneleyo kwaye kuhlala ixesha elide, kunokunyamalala kancinci kancinci. Njengoko imicu ejikeleze amalungu akho iphela ngenxa yokuvuvukala, amalungu akho angaqala ukuhamba endaweni yawo. Oku kuvuvukala kunye nokonakala kwamalungu kunokukhokelela kwiintlungu ezibuhlungu kumalungu akho.

Kunqabile kakhulu, iimeko zokudumba ezinxulumene ne-AOSD zinokuchaphazela amalungu akho angaphakathi, njengentliziyo kunye nemiphunga. Oku kunokukhokelela kwiingxaki ezinzulu ngakumbi. Nangona i-AOSD ngokwayo isenokungayichaphazeli indlela ophila ngayo, ezi meko zesibini azinakukubulala.

Ziziphi iingxaki ezinkulu ezinokwenzeka?

Iingxaki ezingaqhelekanga kodwa ezinzima ziquka:

• I-Pericarditis.
• I-Myocarditis.
• I-Disseminated intravascular coagulopathy (DIC).
• Uxinzelelo lwegazi oluphezulu lwemithambo yemiphunga.
• Ukuphuma kwegazi emzimbeni.
• Isifo semiphunga esingaphakathi kwesisu.
• I-Hemophagocytic lymphohistiocytosis (HLH).

Ngaba i-AOSD inganyangeka ngokupheleleyo?

Amayeza awanakunyanga i-AOSD, kodwa anokunceda ekucinezeleni iimpawu. Kwabanye abantu, iimpawu zinokuphela ngokupheleleyo ngokuhamba kwexesha zingaphinde zibuye. Oku kubizwa ngokuba kukungena kwi-"remission," okanye isifo siphela. Ukuba ungena kwi-"remission," ungayeka ukuthatha amayeza akho. Kodwa kwabanye abantu, i-AOSD ayipheli ngokwenene. Basenokufuna ukuthatha amayeza ngonaphakade ukulawula ukudumba.

Kunzima ukutsho ngqo ukuba loluphi uhlobo lwemeko onokululindela. Nangona kunjalo, abanye oogqirha bakholelwa ukuba iimpawu zakho zokuqala zinokukunika ingcaciso . Ukuba unentlungu kunye nokudumba kwamalungu akho kwasekuqaleni, kunokwenzeka ukuba kuhlale ixesha elide.

Sifanele sizinyamekele njani xa siphila ne-AOSD?

Abantu abaninzi abaphila ne-AOSD banokuphila ubomi obuqhelekileyo nobukhululekileyo ngamayeza afanelekileyo . Kwabanye, balwa neentlungu ezingapheliyo ngamanye amaxesha kunye nokudinwa okungapheliyo, okunokuchaphazela ubomi babo bemihla ngemihla. Nokuba iimpawu ze-AOSD ziyaqhubeka zikukhathaza okanye azikukhathazi, unokufumana iziphumo ebezingalindelekanga ezivela kumayeza owaselayo, njengokwanda kobunzima kunye nokutshintsha kweemvakalelo.

Xa ubomi buhlala buxinezelekile ngenxa yezinto ongenakukwazi ukuzilawula, kubaluleke ngakumbi ukunyamekela ukuzinyamekela okusisiseko . Ukulala kakuhle, ukutya okunesondlo, kunye nokuzilolonga rhoqo, okungenampembelelo ingako, kunokukunceda uzive ungcono ngokubanzi.

I-AOSD yimeko engaqondakaliyo efika ngequbuliso ngaphandle kwesizathu esaziwayo. Xa iqala ukwenzeka, ungaziva ugula ngendlela engaqhelekanga ixesha elide. Kungathatha ixesha nomgudu kugqirha wakho ukufumanisa ukuba kwenzeka ntoni. Ngethamsanqa, wakuba ufunyenwe unesifo, ungaqala unyango kwaye kancinci kancinci uqale ukuba ngcono.

Nangona kusenokuthatha uvavanyo neempazamo ezithile ukufumana unyango olusebenza kakuhle kuwe, uninzi lwabantu lunokulawula iimpawu zabo kwaye luthintele iingxaki ezinkulu ngamayeza . Nokuba une-AOSD ixesha elingakanani, ugqirha wakho uya kuba liqabane lakho elingcono ekulawuleni le meko.

Okokugqibela, umyalezo oya ekhaya

• I-AOSD sisifo esingaqhelekanga samalungu esidumbayo esichaphazela umzimba wonke kwaye siyenzeka nakubantu abadala.
• Umkhuhlane oqhelekileyo, ukurhawuzelela kolusu, kunye neentlungu zamalungu nezihlunu zezona mpawu ziphambili.
• Isizathu esichanekileyo soku asikaziwa, kodwa ngokuyintloko kungenxa yokudumba okubangelwa kukutshintsha kwendlela esebenza ngayo inkqubo yomzimba yokuzikhusela.
• Kungathatha ixesha ukuxilonga, kuba iimpawu ziyafana nezinye izifo.
• Amayeza anokunceda ukulawula iimpawu, kwaye kwabanye, ade anyange ngokupheleleyo esi sifo.
• Ngonyango olufanelekileyo nokuzinyamekela kakuhle, uninzi lwabantu lunokuphila ubomi obuqhelekileyo.
• Ukuba unale mpawu, qiniseka ukuba ubonana nogqirha kwaye ufumane ingcebiso . Ungakhathazeki, kukho izisombululo kuyo yonke into.

Ndikunqwenelela impilo entle!

Isifo sika - Adult Still, i-AOSD, isifo samathambo, umkhuhlane, ukurhawuzelela kolusu, izifo zokuzikhusela komzimba, unyango