Ngaba ubusoloko uva iintlungu emqolo, esinqeni, nakwezinye iindawo ukususela kwiminyaka yakho yama-20 okanye yama-30? Xa uvuka kusasa, umzimba wakho uziva uqinile kwaye uqinile, kwaye awukwazi nokugoba okwethutyana? Unokucinga ukuba oku kubuhlungu nje okuqhelekileyo emqolo, into eyenzekayo xa ulele ngendlela engafanelekanga. Kodwa ukuba ezi mpawu ziyaqhubeka, kusenokuba sisiqalo semeko ebizwa ngokuba yi-Ankylosing Spondylitis (AS). Namhlanje, sithetha ngesi sifo kunye namava abantu ababini bokwenyani abaye batshintsha ubomi babo ngokuphila naso.
Ngamafutshane, yintoni i-Ankylosing Spondylitis (AS)?
Olu luhlobo lwesifo samathambo. Kodwa kule meko, luchaphazela kakhulu amalungu omqolo wethu . Ngamafutshane, esi sifo sibangela ukuba amalungu aphakathi kwamathambo omqolo adumbe. Ekuhambeni kwexesha, oku kudumba kubangela ukuba kubekho amathambo amatsha, kwaye amathambo anokudibana. Oku kunokunciphisa ukuguquguquka komqolo kwaye kubangele ukuma okugobileyo. Le ntlungu ayipheleli nje kumqolo, kodwa inokuchaphazela neendawo ezifana nezinqe, amahlombe, iimbambo, kunye nezithende.
Oku kubangelwa sisifo sokuzikhusela komzimba , nto leyo ethetha ukuba inkqubo yomzimba yokuzikhusela, ekufanele ukuba ikhusele imizimba yethu, ihlasela ngempazamo iiseli zethu eziphilileyo, kule meko amalungu.
Kulungile, ngoku makhe sijonge amabali kaLovaine noDeverell, abajongene nobomi ngenxa yesi sifo.
Ibali likaLoven: Ukusuka kwintlungu ukuya kumsebenzi omtsha
ULoven wafunyaniswa ukuba unale ngxaki eneminyaka engama-30 ubudala. Kodwa iimpawu zaqala kwangethuba, emva kokuba ebeleke umntwana wakhe wokuqala. Waqala enentlungu emqolo, waza kancinci kancinci wangakwazi ukuhamba. Ekugqibeleni, kwafuneka asebenzise intonga ukuze ahambe.
Wafunyaniswa ene-AS eneminyaka engama-31 ubudala, emva kokuba intlungu isasazeke emqolo wakhe ongasentla. Uvavanyo lwakhe lwegazi lukwabonise i-gene (HLA-B27) . Le gene ifumaneka phantse kuye wonke umntu one-AS.
"Kwandithuthuzela kakhulu xa ndafumana igama ngesigulo sam. Ubuncinane bendisazi ukuba kwenzeka ntoni emzimbeni wam," utshilo uLoven.
Kodwa ibali alizange liphelele apho. Xa wayesele esondele kwiminyaka engama-30, iintlungu zazingasenakunyamezeleka. Kwakufuneka asele amayeza okubulala iintlungu anzima aze ayeke umsebenzi wakhe. Ugqirha wakhe wamathambo wamthumela ukuba aye kuhlolwa i-X-ray. Kulapho wafumanisa khona ukuba uninzi lwe-cartilage esesinqeni sakhe sasekunene lwaluphelile, kwaye i-cartilage esesinqeni sakhe sasekhohlo yayiphelile ngokupheleleyo.
Utyando olutshintsha ubomi
Xa wayeneminyaka engama-39 ubudala, kwafuneka enze utyando lokutshintshwa kwesinqe sakhe sasekhohlo. Ugqirha wakhe wathi yayikukuvuvukala okubi kakhulu awakha wakubona.
"Ndathi ndakuvuka emva kotyando, kwenzeka into emangalisayo. Intlungu enganyamezelekiyo yayiphelile . Yatshintsha ubomi bam. Ndadandatheka iminyaka emi-4-5. Kodwa emva kotyando, yonke into yatshintsha."
Ixesha lokubuyela kwimeko yesiqhelo lalingekho lula. Kwakufuneka afunde ukuhamba kwakhona aze aqinise izihlunu zakhe. Kwakufuneka enze unyango lomzimba iintsuku ezintathu ngeveki kangangeenyanga ezisixhenxe. Emva konyaka, ilungu lakhe lesinqe lasekunene kwafuneka litshintshwe.
Ekuhambeni kwexesha, waqonda ukuba wayengumfazi ophila namaqatha amabini okwenziwa. Waqala ukufunda ngendlela yokulawula iintlungu nokuphila nesi sifo. Wagxila kwizinto awayenokuzilawula. Oko kwakuthetha izinto ezifana nokutya, ukuzilolonga, kunye nokucinga kakuhle . Namhlanje, ungumcebisi wezempilo onceda abantu abanezifo ezifanayo.
Ibali likaDeverell: Intlungu Engazange Ikholelwe Noogqirha
UDeverell wayeneminyaka engama-22 ubudala xa ezi mpawu zaqala. Wayengakwazi nokwenza izinto ezilula njengokunyuka izinyuko okanye ukuphakamisa ibhokisi yobisi. Xa waxelela ugqirha wakhe ngentlungu enzulu kunye nokuvuvukala okuvela ngaphakathi emzimbeni wakhe, ugqirha akazange akuthathe nzulu oko.
"Xa oko kusenzeka, ulahlekelwa kukuzithemba. Ndiyazi ukuba umzimba wam uzive ngenye indlela, kodwa bekufuneka ndimamele oko kuthethwa ngugqirha wam."
Emva kweminyaka emibini, kungekho siqabu kwiyeza, ugqirha wathi kuye, "Konke oku kusengqondweni yakho, akukho nto ndinokuyenza."
Ukuxilongwa kufunyenwe ngaphandle kokunikezela
Kodwa uDeverell akazange anikezele. Wabonana nomnye ugqirha. Wabonana noogqirha abaliqela abangoochwephesha kumhlaza, isifo samathambo, kunye nezifo zesisu. Ezinye iimvavanyo zabonisa isifo esifana ne-muscular dystrophy, kodwa akukho nto iqinisekileyo eyafunyanwayo.
Ngeli xesha, ubomi bakhe bentlalo bama ngokupheleleyo. Wajoyina iqela lenkxaso kwi-intanethi waza wabelana ngamava akhe. Kulapho umntu othile wamcebisa ukuba aye kuvavanywa (HLA-B27) .
Xa uvavanyo lwabuya lusithi lukhona ngo-2010, uDeverell wavuya kakhulu. Ekugqibeleni wayefumene impendulo yombuzo awayejongene nawo kangangeminyaka emine. Kodwa uvuyo lwakhe lwalulolwexeshana. Ugqirha wakhe wamxelela ukuba akukho nyango kwaye yayisisigulo esibi.
Ukutshintsha indlela ojonga ngayo intlungu
Emva kwelo bali, uDeverell wenza isigqibo esimangalisayo. Wathengisa yonke into awayenayo waza wafudukela eKapa, eMzantsi Afrika. Apho wachitha ixesha lakhe ngovuyo, ejonge ulwandle, iintaba, ebukele abantu bencuma. Endaweni yokuba azive ngathi uyafa, waqala ukuziva ngathi ingqondo nomzimba wakhe ziyadibana .
Apho waqala ukwenza iHot Yoga kwakhona. Ukuzilolonga ngeyoga kwigumbi elifudumeleyo kwanciphisa iintlungu zakhe kwaza kwaqinisa umqolo wakhe. Wayeka ukusebenzisa igama elithi 'iintlungu'. Endaweni yoko, wathi 'kukungonwabi'.
"Unentlungu ezahlukeneyo. Ungasuka kwintlungu uye kwintuthuzelo."
Namhlanje, uDeveral ngumqeqeshi weHot Yoga. Akasebenzisi mayeza. Unyango lwakhe kuphela yiyoga kunye nokutya okunesondlo.
| Uphawu | Amava ehlabathi | Amava kaDeverell |
|---|---|---|
| Iimpawu zokuqala | Intlungu yomqolo nesinqe, ubunzima bokuhamba. | Ubuthathaka bomzimba, ubunzima bokunyuka izinyuko, iintlungu eziqatha kunye nokudumba. |
| Uxilongo | Ndafunyaniswa ukuba ndinayo le ngxaki emva nje kokuba ndiqale iimpawu, ndineminyaka engama-31 ubudala. | Emva kwedabi elide leminyaka emi-4, phakathi kokungakholelwa koogqirha, ndafunyaniswa ukuba ndinesifo. |
| Umceli mngeni ophambili | Intlungu yomzimba enganyamezelekiyo kunye nokutshatyalaliswa kwamalungu. | Oogqirha abazithembi kwaye bawela kuxinzelelo. |
| Yintoni eyatshintsha ubomi bam | Utyando lokutshintshwa kwesinqe kunye nokucinga kakuhle. | Ukutshintsha indawo ohlala kuyo, iHot Yoga, kunye nokutshintsha indlela obona ngayo iintlungu. |
| Yintoni elandelayo ngoku | Amayeza (i-TNF-inhibitor), ukutya okunesondlo, umthambo olula, kunye neengcebiso. | Ukuzilolonga kakhulu ngeyoga, ulawulo lokutya (akukho mayeza). |
Yintoni esinokuyifunda kwezi bali zimbini?
Thetha nawe ngomzimba wakho.
Njengoko ibali likaDeverell libonisa, noogqirha banokuba nempazamo ngamanye amaxesha. Ukuba uqinisekile ngento eviwa ngumzimba wakho, ungoyiki ukuthetha ngayo. Ungayeki ude ufumane impendulo. Ungumhlobo wakho osenyongweni .
Ingqondo yinto enamandla.
Bobabini uLoven noDeverell bayitshintshile indlela ababeyijonga ngayo intlungu. Baqonda ukuba intlungu ayisosiphelo sobomi, kodwa inokuhlala nayo kwaye ilawulwe. Ukucinga kakuhle kufana nokuphumelela isiqingatha semfazwe.
Akukho sisombululo sifanelekileyo kubo bonke.
Utyando kunye namayeza kuncede uLoven. Utshintsho lweYoga kunye nendlela yokuphila luncede uDeverell. Ngoko ke ukuba unale meko, kubalulekile ukuthetha nogqirha wakho ukuze ufumane unyango kunye nendlela yokuphila efanelekileyo kuwe.
Ukutya kunye nokuzilolonga
Bobabini babeyikhathalele indlela abatya ngayo. ULowen uthi ukunciphisa iswekile, umgubo, kunye neentlobo ezithile zenyama kunokunceda ukunciphisa iintlungu kunye nokudumba. Kwakhona, ukwenza umthambo ongenampembelelo ingako, njengokuhamba kunye neyoga, yonke imihla kunokunceda ukugcina umqolo uqinile kwaye uguquguqukayo.
"Eyona ngxaki inkulu onayo xa ujongene nentlungu yakho engapheliyo kukufikelela engqondweni yakho kwindawo apho unokunyamezela khona intlungu noxinzelelo." - Loven
Ukuba unayo nayiphi na kwezi mpawu, nceda ungazityesheli. Bona ugqirha ofanelekileyo ngoko nangoko ukuze ufumane ukuxilongwa nonyango olufanelekileyo. Okukhona uqala unyango ngokukhawuleza, kokukhona unokunciphisa umonakalo emalungwini akho.
Umyalezo Wokuya Ekhaya
- I-Ankylosing Spondylitis (AS) yimeko ye-arthritis echaphazela umqolo, enokuqala ebuntwaneni. Musa ukuyityeshela intlungu yomqolo rhoqo kunye nokuqina kwasekuseni.
- Mamela umzimba wakho. Ukuba awuqinisekanga ngempawu, funa ingcebiso kagqirha de ufumane impendulo eqinisekileyo.
- Nangona kungekho ndlela ithile yonyango lwesi sifo, iintlungu zinokulawulwa kwaye ubomi obuhle bunokuphilwa ngamayeza, unyango lomzimba, umthambo, kunye nokutshintsha indlela yokuphila.
- Indlela ocinga ngayo ngentlungu ibaluleke kakhulu. Ukucinga ngendlela eyakhayo kunye nokulawula uxinzelelo kunokunyusa amandla akho okunyamezela intlungu.
- Fumana eyona ikulungeleyo. Nangona amayeza esebenza kakuhle kwabanye abantu, i-yoga okanye ezinye iindlela zokuzilolonga zinokuba luncedo ngakumbi kwabanye. Thetha nogqirha wakho kwaye wenze isicwangciso esikusebenzelayo.
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