Ukuba wena okanye umntu omthandayo une-Beta Thalassemia, mhlawumbi uyazi ukuba kudinisa kangakanani ukufakelwa igazi rhoqo. Nangona kunjalo, ngokuhambela phambili kwesayensi yezonyango, kuye kongezwa ithemba elitsha kule meko. Namhlanje, siza kuthetha ngolunye unyango olutsha noluphucukileyo. Igama lalo yiBetibeglogene Autotemcel. Yaziwa kakhulu ngegama lophawu lwe-ZYNTEGLO.
Kalula nje, yintoni le Betibeglogene Autotemcel?
Le ayisiyopilisi okanye ikhaphu eqhelekileyo. Le yindlela ethile yonyango lwezakhi zofuzo ephucukileyo. Injongo ephambili yoku kukunceda umzimba womntu one-beta thalassemia uvelise iiseli zegazi ezibomvu ezisempilweni nezisebenza kakuhle.
Khawucinge ukuba kukho isiphene esincinci kumzi-mveliso esenza iiseli ezibomvu zegazi emzimbeni wethu. Yiloo nto eyenzekayo kwi-thalassemia. Olu nyango lutsha lunceda ekulungiseni eso siphene. Ukuba luphumelele, lunokunciphisa kakhulu isidingo sokutofelwa igazi rhoqo. Hayi indlela ebekuya kuba luncedo ngayo oko, akunjalo?
Lunikwa njani olu nyango?
Le ndlela yonyango iyinkimbinkimbi kancinci. Ngoko ke, le asinto inokwenziwa ekhaya. Oku kufuneka kwenziwe esibhedlele, phantsi kweliso leqela loogqirha abaziingcali.
Eyona nto ibalulekileyo kukuba olu nyango lwenziwe ngeeseli zakho . Ewe, iiseli zomzimba ezithathwe kuwe ziguqulwa kwilebhu kusetyenziswa inkqubo ekhethekileyo, zinikwe amandla okuvelisa iiseli ezibomvu zegazi ezisempilweni, zize ziphinde zifakwe emzimbeni wakho ngemithambo yegazi. Le yiteknoloji emangalisayo ngokwenene.
Olu nyango lunokunikwa abantwana abaneminyaka engaphezu kwemi-4 ubudala. Nangona kunjalo, lufuna amalungiselelo akhethekileyo kunye nokhuseleko. Ugqirha wakho uza kukuchazela oku.
Okubaluleke kakhulu: Olu lunyango olulungiselelwe wena ngokukodwa. Ngoko ke, alunakwabelwana ngalo nabani na okanye lunikwe nabani na nangasiphi na isizathu.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba uqale unyango
Ngaphambi kokuba uqale unyango oluphezulu kangaka, kubaluleke kakhulu ukuba ugqirha wakho azi imbali yakho epheleleyo yempilo. Ukuba kukho nayiphi na kwezi zilandelayo ezikukhathazayo, qiniseka ukuba umxelele ngayo.
- Ukuba unesifo esifana ne -HIV okanye i-AIDS .
- Ukuba usandul’ ukufumana ugonyo , okanye uza kulufumana kungekudala (ingakumbi ugonyo oluneentsholongwane eziphilayo).
- Ukuba une -allergy kule yeza, thatha amanye amayeza, ukutya, iidayi, okanye izithinteli.
- Ukuba ukhulelwe okanye uzama ukukhulelwa . (Oku kubaluleke kakhulu!)
- Ukuba ungumama oncancisayo .
Izinto ekufuneka ziqwalaselwe ngakumbi ngexesha lonyango
Iqela lakho lezonyango liza kukubeka esweni ngokusondeleyo ngelixa usela eli yeza nasemva koko, kwaye kubalulekile ukuba uzazi ezi zinto.
Ukukhulelwa kunye nolawulo lokuzalwa
Le yingxaki efuna unonophelo olukhulu.
- Kwabasetyhini: Ukukhulelwa ngelixa usebenzisa olu nyango kunokubangela iziphene ezinkulu zokuzalwa. Ke ngoko, kuya kwenziwa uvavanyo ukuqinisekisa ukuba awukhulelwanga ngaphambi kokuba uqale unyango. Kufuneka usebenzise uhlobo lolawulo lokuzalwa, olufana nekhondom okanye i-diaphragm, ngexesha lonyango kwaye kangangeenyanga ezi-6 emva kokuyeka unyango.
- Kwabesilisa: Indoda ethatha olu nyango kufuneka isebenzise ikhondom ukuba ilala nomfazi onokukwazi ukukhulelwa umntwana. Kufuneka uqhubeke nokusebenzisa olu hlobo lokhuseleko kangangeenyanga ezi-6 emva kokuyeka unyango. Oku kungenxa yokuba ukuba iqabane lakho liyakhulelwa, kukho umngcipheko wokwenzakala komntwana ongakazalwa. Ukuba unesikrokro sokuba iqabane lakho likhulelwe, xelela ugqirha wakho ngoko nangoko.
Amanye amanqaku abalulekileyo
- Kuphephe ukunikela ngegazi: Musa ukunikela ngegazi ngelixa usebenzisa olu nyango okanye nangaliphi na ixesha emva kokuba uyekile.
- Umngcipheko womhlaza: Olu nyango lunokunyusa kancinci umngcipheko wakho wokuba neentlobo ezithile zomhlaza. Musa ukoyika oku, kodwa vula kwaye uqaphele lo mngcipheko ngokuthetha neqela lakho lezonyango.
- Amanye amayeza: Xelela ugqirha wakho ngawo onke amayeza owasebenzisayo (kuquka iivithamini kunye namayeza esintu). Ngokukodwa, la mayeza alandelayo anokuthi asebenzisane nolu nyango.
- Into ekhuthaza i-granulocyte-colony
- Amayeza e-iron chelator
- Izitofu zokugonya iintsholongwane eziphilayo
Zithini iziphumo ebezingalindelekanga ezinokubakho?
Njengakweminye imithi, iziphumo ebezingalindelekanga zinokubakho. Ezinye zazo kufuneka zixelwe ngoko nangoko, ngelixa ezinye zihlala zingekho mbi kakhulu. Ezi zinokuqondwa ngokucacileyo kwitheyibhile engezantsi.
| Uhlu lweziphumo ebezingalindelekanga | |
|---|---|
| 🚨 Izinto ekufuneka uzixelele iqela lakho lezonyango ngoko nangoko | |
| Iimpawu ze-aleji | Ukurhawuzelela kwesikhumba, ukurhawuzelela, ukudumba kobuso, imilebe, ulwimi okanye umqala. |
| Iimpawu zokopha | Indle emnyama okanye enegazi, ukuhlanza igazi elifana nekofu egayiweyo, umchamo obomvu/omdaka omnyama, amabala amancinci abomvu/omfusa eluswini, kunye nokudumba okanye ukopha okungachazwanga. |
| Iimpawu zosulelo | Umkhuhlane, ukubanda, ukukhohlela, umphimbo obuhlungu. |
| 🙂 Izinto onokuzixelela ugqirha wakho ukuba azisoloko zinzulu, kodwa ziyaqhubeka | |
| Ezinye iziphumo ebezingalindelekanga |
|
Ukuba ukrokrela ukuba uthathe amayeza ngempazamo, yixele ngoko nangoko kwiCandelo loNyango oluNgxamisekileyo (ETU) lesibhedlele. Ungaqhagamshelana neZiko loLwazi lwePoisons kwiSibhedlele sikaZwelonke saseColombo ukuze ufumane iingcebiso kwiimeko ezinjalo.
Umyalezo Wokuya Ekhaya
- I-Betibeglogene Autotemcel lunyango oluphambili kakhulu lwe-beta thalassemia olunokunciphisa imfuneko yotofelo-gazi rhoqo.
- Olu nyango lwenziwa ngeeseli zakho kwaye lunikwa liqela loogqirha abaziingcali esibhedlele.
- Ngaphambi kokuba uqale unyango, kufuneka uxelele ugqirha wakho ngalo lonke ulwazi lwakho lwempilo, amayeza owasebenzisayo, kunye nee-allergies.
- Kubalulekile ukuba abafazi namadoda balandele iindlela zokulawula ukuzala ezingqongqo kakhulu ngexesha lonyango nakwinyanga ezi-6 emva koko.
- Ungaze unikele ngegazi emva kokufumana olu nyango.
- Musa ukoyika ukuthetha ngokukhululekileyo nogqirha wakho malunga naziphi na iziphumo okanye iingxaki ebezingalindelekanga.
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