Ingaba intamo yakho iyatsalwa ngendlela engafunekiyo? Masifunde nge (Cervical Dystonia)!

Ngaba ngamanye amaxesha uziva ukuqina okungaqhelekanga entanyeni yakho, intlungu, kwaye intloko yakho itsalwa ecaleni? Okanye ngaba izihlunu entanyeni yakho ziyaqhaqhazela ngequbuliso, zibangele ukuba ushukumise intloko yakho ngokungalawulekiyo? Oku kusenokungabi kukukruneka nje kwentamo. Namhlanje siza kuthetha ngemeko yemithambo-luvo enxulumene nentamo osenokuba awuzange uve ngayo, kodwa inokuchaphazela abanye abantu. Oku kubizwa ngoogqirha ngokuba yi-'(Cervical Dystonia)'.

Yintoni i-Cervical Dystonia?

Ngamafutshane, i-cervical dystonia yimeko yemithambo-luvo apho izihlunu entanyeni zincipha ngokungalawulekiyo ngenxa yengxaki engqondweni yethu nakwinkqubo yemithambo-luvo. Kufana nokuba izihlunu entanyeni ziya zisiba mbi kwaye zidanisa ngendlela yazo.

Xa ezi zihlunu zifinyela, ziyaqina endaweni yokuphumla. Oku kunokutshintsha nendlela oma ngayo. Intloko nentamo yakho zisenokuqala ukuhamba ngendlela engaqhelekanga, ngokungathi zisuka ziqine okanye zixhuzule ngequbuliso. Oku kunokuba ngamava abuhlungu kakhulu kwaye kunokuphazamisana nokukwazi kwakho ukwenza imisebenzi yemihla ngemihla.

I-Cervical dystonia yenye yeqela elikhulu leemeko ezibizwa ngokuba yi-"Focal Dystonia." I-Focal Dystonia ibhekisa kwiimeko ezibangela ukuqaqamba kwemisipha kwinxalenye enye yomzimba. Ngamanye amaxesha ugqirha wakho unokubiza ngokuba yi-"Spasmodic Torticollis." Nangona ibizwa ngamagama amabini okanye amathathu, yimeko efanayo.

Ngaba kukho iintlobo eziphambili ze-cervical dystonia?

Ewe, zimbini iintlobo eziphambili ezinokuchongwa. Ezi ntlobo zimbini zahlulwe ngokwesizathu soku:

1. I-Primary cervical dystonia: Kule meko , imbangela echanekileyo yesifo ayaziwa. Yimeko eyenzeka nje.

2. I-Secondary cervical dystonia: Kule meko, unobangela unokuchongwa. Oku kuthetha ukuba inokubangelwa yenye imeko yezonyango, isiphumo esibi seyeza, okanye ingozi.

Ixhaphake kangakanani le meko?

I-Cervical dystonia yenye yezona zifo zixhaphakileyo kudidi lwe-"Focal Dystonia". Kuqikelelwa ukuba phantse abantu abangama-60,000 eMelika kuphela banesifo esinjalo. Kusenokuba kukho izigulana ezinjalo eSri Lanka, kwaye mhlawumbi izibalo zisenokuba ziphantsi ngenxa yokungafumani unyango olufanelekileyo.

Ziziphi iimpawu ze-cervical dystonia?

Le meko ibangela iintshukumo ongenakukwazi ukuzilawula. Iimpawu eziphambili ziquka:

• Ukuqaqamba kwemisipha: Imisipha entanyeni iqina ngequbuliso, njengamatye, kwaye ayikwazi ukukhululeka. Ngamanye amaxesha imisipha ingavakala ngathi iyashukuma okanye iyashukuma.
• Ukungcangcazela: Ukungcangcazela okungalawulekiyo kwamalungu omzimba, njengezandla nemilenze. Oku kungcangcazela kunokwenzeka nakwindawo yentamo.

Ezi ntshukumo zingalawulekiyo zinokubangela utshintsho kwindlela oma ngayo. Indlela oma ngayo yindlela obamba ngayo umzimba wakho xa umi okanye uhleli. I-cervical dystonia ingabangela olu tshintsho kwindlela oma ngayo:

• Ukujika intloko yakho: Usenokujika intloko yakho ijonge ecaleni ungaqondanga.
• Ukujika intloko iye phambili, ngasemva, okanye ecaleni: Ngokungathi intloko ijikelwe kwelinye icala.
• Ukugoba intamo nentloko phambili, ngasemva, okanye emacaleni: Kuba nzima ukugcina intamo ithe tye.

Ezi ntshukumo zinokubangela iintlungu emagxeni nasentanyeni, ezinokuhamba nokuvuvukala . Abanye abantu baneentloko ezibuhlungu . Khawuthelekelele ukuba kunzima kangakanani ukwenza umsebenzi wakho wemihla ngemihla ngento efana nale.

Kutheni kukho i-dystonia yomlomo wesibeleko?

Enyanisweni, oogqirha abakayazi eyona nto ibangela i-cervical dystonia kubo bonke abaguli. Kodwa uphando lubonisa ukuba ibangelwa kukungasebenzi kakuhle kwenxalenye yengqondo yethu ebizwa ngokuba yi-"Basal Ganglia" . Le nxalenye ye-"Basal Ganglia" ilawula intshukumo yemisipha yethu. Xa kukho ingxaki apho, imiqondiso engalunganga ithunyelwa kwimisipha entanyeni, nto leyo ebangela ukuba ingasebenzi kakuhle.

I-dystonia yesibeleko yesibini inokubangelwa zezi zinto zilandelayo:

• Njengesiphumo esingesihle sezinye iziyobisi zengqondo .
• Ngenxa yokwenzakala kakhulu engqondweni (ukulimala kwengqondo okubuhlungu) .
• Nezinye iimeko ze-neurological, ezifana nesifo sikaParkinson .
• Utshintsho lwezakhi zofuzo kwiijini ezibizwa ngokuba yi-`GNAL`, `THAP1`, `CIZ1` okanye `ANO3`. Ezi ziyinkimbinkimbi kancinci, kodwa zinokwenzeka.

Ngubani osengozini enkulu yokuhlaselwa sesi sifo?

Nangona le meko inokukhula nakubani na ubudala, abanye abantu basengozini enkulu:

• Ukuba kukho umntu kusapho lwakho okhe waba nesi sifo ngaphambili (kusenokubakho ikhonkco lemfuza).
• Ukuba uthatha amayeza abizwa ngokuba yi-`(Dopamine antagonists)` okanye `(Antipsychotics)`.
• Ukuba ukhe wenzakala engqondweni.

Esi sifo sixhaphake kakhulu kubafazi nakubantu abaphakathi kweminyaka engama-30 ukuya kwengama-60 ubudala. Kodwa oko akuthethi ukuba abanye abanakuyifumana.

Ziziphi iingxaki ezinokubakho ze-cervical dystonia?

Ezi mpawu zinokuba nefuthe elikhulu kubomi bakho bemihla ngemihla. Zinokwenza kube nzima nokwenza eminye imisebenzi. Iintlungu, ukungcangcazela, kunye nokushukuma kwemisipha kunokwenza kube nzima ukushukumisa intamo yakho, umhlathi, iingalo, kunye nomzimba wakho ngokufanelekileyo. Zingenza izinto ezifana nokuthetha, ukuginya, kunye nokulungelelanisa umzimba kube nzima.

Kwezinye iimeko ezinzima, ungazifumana ungakwazi nokwenza imisebenzi elula obukade unokuyenza ngokulula, njengokukama iinwele zakho okanye ukuxukuxa amazinyo. Oku kunokuba buhlungu kakhulu.

Ukuba le meko ayinyangwa, inokubangela iintlungu kunye nokuqaqamba kwemisipha (i-dystonia) kwezinye iindawo zomzimba ngaphandle kwentamo . Kungoko ke, kubaluleke kakhulu ukufuna iingcebiso zonyango ngokukhawuleza ukuba uneempawu.

Sifunyaniswa njani esi sifo?

Ugqirha uza kukuxilonga aze akubuze ngeempawu zakho ukuze abone ukuba unaso na esi sifo. Baza kukubuza nangembali yakho yezonyango kunye nembali yakho yezonyango yosapho . Oku kuthetha ukufumanisa ukuba kukho umntu kusapho lwakho okhe waba naso esi sifo.

Ayinguye wonke umntu odla ngokufuna iimvavanyo ezifana ne-MRI scan okanye i-electromyography (elinganisa umsebenzi wombane weefayibha zemisipha). Nangona kunjalo, ugqirha unokuyalela ezi mvavanyo kuphela ukuba ukrokrela ukuba uxinzelelwe okanye umonakalo wemithambo-luvo .

Ziziphi iindlela zonyango lwe-cervical dystonia?

Kukho iindlela ezahlukeneyo zonyango zoku. Ayizizo zonke iindlela zonyango ezisebenzela wonke umntu. Kusenokufuneka uzame iindlela ezahlukeneyo zonyango ukuze ufumane ezona zilungele wena.

Kukho olu hlobo lonyango:

• Iinaliti zetyhefu yeBotulinum: Ezi ziinaliti ezinikwa izihlunu zentamo ezichaphazelekayo.
• Amayeza omlomo: Amayeza anikwa ukunciphisa iintlungu nokunciphisa ukuqaqamba kwemisipha.
• Unyango lomzimba: Yomeleza izihlunu entanyeni kwaye uphucule intshukumo ngokusebenzisa imithambo kunye nezinye iindlela.
• Utyando lokuvuselela ingqondo nzulu: Olu lutyando oluntsonkothileyo olungafunekiyo kuwo wonke umntu kwaye lwenziwa kwiimeko ezikhethekileyo.

Abanye abantu bafumanisa ukuba ukubamba isilevu okanye ukunxiba i-brace yentamo okanye ikhola yomlomo wesibeleko kuyanceda ekunciphiseni iimpawu zabo . Ezi zibizwa ngokuba zii-sensory tricks.

Eyona nto ibalulekileyo kukusebenzisana nogqirha wakho ukuze ufumane unyango olukufaneleyo.

Unyango lwe-botulinum toxin lusebenza njani?

Abantu abaninzi baye beva ngegama elithi `(Botox®)`. Ligama lophawu lwe `(Botulinum toxin serotype A)`. Ngokufanayo, `(Botulinum toxin type B)` ikwasetyenziswa ukunyanga i-cervical dystonia.

Oko kwenziwa yile `(ityhefu yeBotulinum) kukwenza buthathaka ukusebenza kwezihlunu zentamo ezichaphazelekayo (izihlunu zentamo eziguquguqukayo). Emva koko, ezo zihlunu ziyeka ukufinyela ngokungeyomfuneko.

Ugqirha ufaka eli yeza kwimisipha efanelekileyo entanyeni yakho. Kungathatha malunga neveki ukubona iziphumo zeyeza. Nangona kunjalo, iziphumo zeli yeza zihlala malunga neenyanga ezimbini ukuya kwezintathu.Emva kwelo xesha, iimpawu zinokuphinda zivele, ngoko ke kunokufuneka ugonyo oluphindaphindwayo ukulawula iimpawu.

Iziphumo ebezingalindelekanga zale gonyo zingabandakanya:

• Ubunzima bokuginya
• Intlungu kwindawo yokutofa
• Ukuziva ubuthathaka entanyeni

Ezi zinto azenzeki kubo bonke abantu, kodwa kulungile ukwazi ukuba zinokwenzeka.

Ngawaphi amanye amayeza anikwayo kwi-cervical dystonia?

Ezi ntlobo zilandelayo zisetyenziswa kakhulu njengamayeza omlomo:

• `Iiarhente ze-Dopaminergic` (umz. `Levodopa`)
• Iiarhente ze-anticholinergic (umz. iBenztropine, iTrihexyphenidyl)
• `I-Baclofen`
• `I-Clonazepam`

La mayeza anokubangela iziphumo ebezingalindelekanga ezifana neengxaki zokukhumbula nokudinwa . Ngoko ke, kubalulekile ukuxoxa ngazo zonke ezi zinto nogqirha wakho uze ukhethe unyango olulungele wena.

Iyintoni imbonakalo ye-cervical dystonia?

I-Cervical dystonia yimeko ehlala ubomi bonke. Nangona kunjalo, ayichaphazeli ubomi bakho. Ngamanye amaxesha iimpawu zinokuba mandundu kancinci kancinci ngokuhamba kwexesha, okanye zinciphe.

Eyona nto ingcono kukuba, ngonyango olufanelekileyo, wena nogqirha wakho ninokulawula ezi mpawu, ukuze nikwazi ukubuyela ekwenzeni izinto enizithandayo ngaphandle kobunzima.

Ngaba i-cervical dystonia inganyangeka ngokupheleleyo nge-`(Botox)`?

Hayi. Akukho nyango lupheleleyo lwe-cervical dystonia okwangoku. I-Botulinum toxin (iBotox) inokulawula iimpawu okwethutyana kuphela, ayilonyango.

Ngaba ikho indlela yokuthintela i-cervical dystonia?

Ngelishwa, okwangoku akukho ndlela eyaziwayo yokuthintela uphuhliso lwesi sifo.

Ndifanele ndimbone nini ugqirha?

Bona ugqirha ukuba ubona nayiphi na kwezi zinto:

• Ukuba uziva ngathi inyama entanyeni yakho iyashukuma okanye iyaqina.
• Ukuba sele ufunyenwe une-cervical dystonia kwaye unyango lubangela iziphumo ebezingalindelekanga okanye ukuba iimpawu ziya zisiba mandundu.

Kubaluleke kakhulu ukufuna ingcebiso kagqirha ngokukhawuleza ngamaxesha anje.

Ndimele ndibuze ntoni kugqirha wam?

Xa usiya kugqirha, ungabuza imibuzo efana nale:

• Ukuba kukho umntu kusapho lwam okhe waba nesi sifo, ngaba nam ndisengozini yokuba naso?
• Loluphi unyango olundicebisayo?
• Ngaba kukho naziphi na iziphumo ebezingalindelekanga zonyango?
• Ngaba ndiza kufuna utyando?

Ukongeza kule mibuzo, buza ugqirha wakho nayiphi na imibuzo okanye amathandabuzo onokuba nawo.

Okokugqibela, izinto ekufuneka uzikhumbule (Umyalezo Wokuya Ekhaya)

I-Cervical dystonia inokuba yimeko engathandekiyo nebuhlungu kakhulu. Ngenxa yokuba izihlunu entanyeni yakho azikwazi ukuphumla, intloko yakho iyashukuma ngaphandle kokuzithandela. Oku kunokwenza kube nzima ukwenza izinto obuzithanda, kwaye kunokwenza kube nzima ukwenza imisebenzi yemihla ngemihla.

Kodwa khumbula, awuwedwa. Kukho unyango loku. Ugqirha wakho angakunceda ufumane unyango olufanelekileyo lweempawu zakho. Emva koko ungaphila kwakhona. Ngoko ke ukuba uneempawu, ungoyiki ukubona ugqirha.

Ndiyathemba ukuba olu lwazi luluncedo kuwe. Hlala usempilweni!

I- Cervical Dystonia, i-Spasmodic Torticollis, iintlungu zentamo, i-Neuropathy, ukudumba kwemisipha, i-Botox, unyango