Ngaba wena okanye umntu omaziyo unesifo somhlaza esibizwa ngokuba yi-multiple myeloma ? Ukuba kunjalo, oku kumalunga nonyango oluphambili kakhulu nolukhethekileyo. Ugqirha wakho usenokuba ukuxelele ngolu nyango. Alufani nepilisi eqhelekileyo. Lusebenzisa iiseli zakho ukuziqeqesha ukulwa nomhlaza. Masithethe ngayo ngokulula.
Ngamafutshane, yintoni le yeza ibizwa ngokuba yi-Idecabtagene Vicleucel?
Elinye igama lale nto yiABECMA. Le ayisiyopilisi eqhelekileyo okanye isitofu sokugonya. Le yindlela ekhethekileyo yonyango. Ngokuchanekileyo, le yindlela yonyango ethatha iiseli zakho zomzimba, izitshintshe kwilebhu ukuze zikwazi ukulwa neeseli zomhlaza , zize ziphinde zibuyiselwe emzimbeni wakho.
Cinga ngale ndlela. Sineeseli emizimbeni yethu ezifana namajoni aqondayo aze ahlasele iintshaba. Sizibiza ngokuba ziiseli zomzimba ezikhuselayo. Kodwa ngamanye amaxesha ezi seli zomhlaza zinobuqili kakhulu. Ziyazifihla kula majoni.
Ngoko ke olu nyango lusebenza, ukhupha amanye ala majoni (iiseli zokuzikhusela) emzimbeni wakho uze uwanike "uqeqesho" olukhethekileyo ukuze akwazi ukubona iiseli zomhlaza. Emva koko ubuyisela loo majoni aqeqeshiweyo emzimbeni wakho. Ngoku ayazi indlela yokuya ngqo kwiiseli zomhlaza aze azitshabalalise. Oku kuyayekisa ukusasazeka kweeseli zomhlaza, okanye ubuncinane kuyawucothisa kakhulu.
Isebenza njani inkqubo yokubonelela ngolu nyango?
Oku akuyonto inokwenziwa ngosuku olunye. Le yinkqubo eyenzeka ngamanyathelo aliqela.
1. Ukuqokelela iiseli zakho: Into yokuqala oza kuyenza kukuqokelela iiseli zomzimba egazini lakho. Oku kwenziwa ngomatshini okhethekileyo. Oku kwenziwa kwiiveki ezimbalwa ngaphambi koko.
2. Ukuguqulwa kweeseli (uqeqesho): Iiseli ezithathwe kuwe emva koko zithunyelwa kwilabhoratri ekhethekileyo. Apho, ezi seli ziguqulwa ngokwemfuza ukuze zikwazi ukubona nokuhlasela iiseli zomhlaza.
3. Ukulungiselela umzimba wakho: Kwiintsuku ezimbalwa ngaphambi kokuba iiseli zakho eziqeqeshweyo zibuyiselwe emzimbeni wakho, uza kunikwa ikhosi ye- chemotherapy esibhedlele. Oku kwenzelwa ukulungiselela umzimba wakho ukuba ufumane iiseli ezintsha eziqeqeshweyo.
4. Ukulawula unyango: Okokugqibela, iiseli eziqeqeshiweyo zinikwa ngomthambo ( ukufakwa) .) ifakwa emzimbeni wakho. Konke oku kwenzeka esibhedlele okanye ekliniki, phantsi kweliso elibukhali leqela lezonyango.
Uza kunikwa incwadana ekhethekileyo (iMedGuide) malunga nolu nyango. Kubaluleke kakhulu ukuyifunda nokuyiqonda ngononophelo. Ukuba kukho into ongayiqondiyo, ungoyiki ukubuza ugqirha.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba uqale unyango
Ukuze ukhuseleke, kubalulekile ukuba uxelele ugqirha wakho inkcazo epheleleyo yempilo yakho ngaphambi kokuba ufumane olu nyango. Qiniseka ukuba ubaxelela ngezi zinto ngokukodwa.
| Imeko yempilo okanye ingxaki | Kutheni oko kubalulekile? |
|---|---|
| Ukuba okwangoku unentsholongwane | Ngenxa yokuba unyango luchaphazela inkqubo yomzimba yokuzikhusela, usulelo olukhoyo lunokuba mandundu. |
| Ukuba unesifo sokudumba | Ngenxa yokuba olu nyango luvuselela inkqubo yomzimba yokuzikhusela, kukho umngcipheko wokuba iimeko ezinjalo zibe mandundu. |
| Ukuba usandul' ukufumana okanye uza kufumana isitofu sokugonya | Ezinye izitofu zokugonya (ingakumbi izitofu zentsholongwane ephilayo) zinokusebenzisana nale mithi. |
| Ukuba une-allergies kwamanye amayeza, ukutya okanye izinto | Ukuba unembali ye-allergies, kubalulekile ukuba iqela lezonyango liyazi ngayo. |
| Ukuba ukhulelwe okanye uzama ukukhulelwa | Akukho lwazi lwaneleyo malunga nokuba olu nyango lukhuselekile na ngexesha lokukhulelwa. Uvavanyo lokukhulelwa kufuneka lwenziwe ngaphambi kokuba uqale unyango ukuqinisekisa ukuba awukhulelwanga. |
| Ukuba umama uncancisa umntwana wakhe | Thetha nogqirha wakho malunga nokuba izithako ezikweli yeza zingadluliselwa na kumntwana wakho ngobisi lwebele. |
Izinto ekufuneka uzilumkele ngakumbi ngexesha nasemva konyango
Emva kokufumana olu nyango, kuya kufuneka uzinyamekele kakuhle. Iqela lezonyango liza kukujonga ngokusondeleyo.
- Ukujonga esibhedlele: Emva konyango, uza kugcinwa esibhedlele ubuncinane iintsuku ezisi-7 kwaye iqela lezonyango liza kukujonga yonke imihla.
- Uvavanyo lwegazi : Kuya kufuneka wenze uvavanyo lwegazi rhoqo.
- Ukuqhuba nokusebenzisa oomatshini: Oku kubaluleke kakhulu. Kufuneka ukuphephe ukuqhuba okanye ukusebenzisa oomatshini abanzima ubuncinane iiveki ezi-8 (iinyanga ezi-2) emva konyango, njengoko eli yeza linokuchaphazela ukugxilisa ingqondo kwakho, amandla okwenza izigqibo, kunye nokulinganisela.
- Ikhadi leSipaji sesigulana: Uza kunikwa ikhadi elikhethekileyo. Ligcine kuwe ngamaxesha onke . Libonise ugqirha nomongikazi abakunyangayo. Liqulethe ulwazi malunga nemiphumo emibi enokuba nayo.
- Umngcipheko wokosuleleka: Olu nyango lonyusa umngcipheko wakho wokosuleleka. Ukuba ubonakalisa iimpawu ezifana nomkhuhlane, ukugodola, umphimbo obuhlungu, okanye ukukhwehlela , musa ukuzinyanga kwaye utsalele umnxeba ugqirha wakho ngoko nangoko . Nciphisa ukudibana kwakho nabantu abagulayo.
- Musa ukunikela nganto: Awunakuze unikele ngegazi, amalungu omzimba, izicubu zomzimba, okanye iiseli emva kokufumana olu nyango.
- Eminye ingozi yomhlaza: Eli yeza linomngcipheko omncinci wokufumana ezinye iintlobo zomhlaza. Thetha nogqirha wakho ngale nto.
Kuthekani ukuba ndithatha amayeza amaninzi kakhulu?
Ekubeni eli yeza linikwa liqela lezonyango esibhedlele, akukho thuba lokuba ufumane i-overdose. Ukuba kukho nayiphi na ingxaki, iqela lezonyango liza kwazisa ngoko nangoko i-ETU (iYunithi yoNyango oluNgxamisekileyo) okanye iZiko loLwazi lweePoisons kwiSibhedlele sikaZwelonke saseColombo .
Zithini iziphumo ebezingalindelekanga ezinokubakho?
Njengalo naliphi na iyeza elinamandla, eli linokuba nemiphumo emibi. Amanye afuna unyango olukhawulezileyo, ngelixa amanye eqhelekile.
| Imiphumela | Inkcazo |
|---|---|
| Ukuba ufumana ezi mpawu, xelela ugqirha wakho ngoko nangoko. | |
| Iimpendulo ze-allergy | Ukurhawuzelela kwesikhumba, ukurhawuzelela, ukudumba kobuso, imilebe, ulwimi okanye umqala. |
| I-Cytokine Release Syndrome (CRS) | Umkhuhlane, ukubanda, ukudinwa kakhulu, isicaphucaphu, intloko ebuhlungu, isiyezi, ubunzima bokuphefumla, ukubetha kwentliziyo ngokukhawuleza. (Oku kungenxa yokuba inkqubo yomzimba yokuzikhusela isebenza kakhulu) |
| Iingxaki zenkqubo yemithambo-luvo | Ukudideka, ubunzima bokuhamba, ukulahlekelwa kukulinganisela, ukuxhuzula, ubunzima bokuthetha, utshintsho ekuboneni. |
| Iimpawu zosulelo | Umkhuhlane, iintlungu zomzimba, umphimbo obuhlungu, ukukhohlela, amanxeba angapholiyo, iintlungu xa uchama. |
| Ukutyumza okanye ukopha okungaqhelekanga | Nokuba iqhuma elincinci linokubangela ukudumba okukhulu, ukopha empumlweni nasezintsinini. |
| Iiseli ezibomvu zegazi ezisezantsi | Ukudinwa okungaqhelekanga, isiyezi, intloko ebuhlungu, ubunzima bokuphefumla. |
| Ezi zihlandlo azibalulekanga kangako, kodwa ukuba ziyaqhubeka, xelela ugqirha wakho. | |
| Iziphumo ebezingalindelekanga eziqhelekileyo | Ukuphazamiseka kwesisu, ukudinwa, intloko ebuhlungu, ukungabi namdla wokutya, iintlungu zemisipha, isicaphucaphu, ukudumba kwamaqatha, izandla, okanye iinyawo. |
Umyalezo Wokuya Ekhaya
- I-Idecabtagene Vicleucel lunyango oluphucukileyo nolwenzelwe wena olusebenzisa iiseli zakho zomzimba ukulwa nomhlaza.
- Olu lunyango olunikezelwa ngamanyathelo aliqela, esibhedlele, phantsi kweliso elingqongqo lezonyango.
- Hlala uqaphela iziphumo ebezingalindelekanga ezinokubakho (i-CRS, iingxaki zemithambo-luvo) emva konyango. Ngoko ke, ukujongwa esibhedlele kubalulekile.
- Kuphephe ukuqhuba okanye ukusebenzisa oomatshini ngokupheleleyo ubuncinane iiveki ezi-8 emva konyango.
- Hlala ugcina i-'Patient Wallet Card' oyinikiweyo kwaye uyibonise oogqirha.
- Ukuba ubonakalisa naziphi na iimpawu zosulelo, ezinje ngomkhuhlane okanye ukukhwehlela, yazisa ugqirha wakho ngoko nangoko.
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