Ngaba uyayazi iLupus (Systemic Lupus Erythematosus - SLE)? Makhe sithethe ngayo!

Ngaba ngamanye amaxesha uziva udiniwe ngendlela engenakucingelwa, iintlungu zomzimba, iintlungu zamalungu, okanye irhashalala eluswini lwakho? Ukuba uhlangabezana nezi zinto kungekuphela nje kube kanye okanye kabini, kodwa izihlandlo ezininzi ngaxeshanye, unobangela usenokuba sisifo esibizwa ngokuba yi-lupus. Ungakhathazeki, nangona eli gama lisenokuvakala ngathi yinto enkulu, yimeko enokulawulwa kakhulu ukuba unolwazi olufanelekileyo kwaye ufumana unyango olufanelekileyo. Namhlanje, siza kuthetha nge-lupus ngendlela elula onokuyiqonda.

Yintoni iLupus? Masiyiqonde ngokulula.

Ngamafutshane, i-lupus sisifo esibangelwa kukungasebenzi kakuhle kwenkqubo yomzimba yethu yokuzikhusela . Ngokwesiqhelo, inkqubo yethu yokuzikhusela iyasikhusela kwizifo kunye neentsholongwane. Kodwa okwenzekayo emzimbeni womntu one-lupus kukuba le nkqubo yokuzikhusela ihlasela ngempazamo iiseli eziphilileyo kunye nezicubu zomzimba wakhe. Khawucinge nje, okwenzekayo apha kufana nomkhosi okhusela ilizwe lethu, ngempazamo uhlasela abantu belizwe lethu. Oogqirha bakubiza oku ngokuthi 'sisifo sokuzikhusela '.

Xa inkqubo yomzimba yokuzikhusela ihlasela ngolu hlobo, ukudumba , okuthetha ukudumba, ukuba bomvu, kunye nentlungu, kunokuvela kwiindawo ezahlukeneyo zomzimba. Oku kunokuchaphazela naliphi na ilungu lomzimba. Umzekelo:

• Ulusu lwakho
• Igazi
• Iindibano
• Izintso
• Ingqondo
• Intliziyo
• Imiphunga

Kubaluleke kakhulu ukubona ugqirha ukuba ubona nayiphi na intlungu entsha, irhashalala lolusu, okanye utshintsho kulusu lwakho, iinwele, okanye amehlo.

Ziziphi iintlobo eziphambili ze-lupus?

Xa oogqirha bethetha nge-lupus, badla ngokuyibiza ngokuba yi-"Systemic Lupus Erythematosus (SLE)". Olu lolona hlobo luqhelekileyo lwe-lupus. I-"SLE" ithetha ukuba le meko ichaphazela umzimba wakho wonke. Kukwakho nezinye iintlobo ezininzi:

• I-lupus erythematosus yesikhumba: Kolu hlobo lwe-lupus, le meko ichaphazela ulusu lwakho kuphela .
• I-lupus ebangelwa ngamayeza: Amanye amayeza anokubangela iimpawu ze-lupus njengesiphumo esingesihle. Nangona kunjalo, oku kudla ngokuba yinto yexeshana . Oku kuthetha ukuba iimpawu zinokuphela emva kokuba iyekile iyeza.
• I-lupus yosana olusandul’ ukuzalwa: Oku kunqabile kakhulu. Ngamanye amaxesha iintsana ezisandul’ ukuzalwa zinokuba ne-lupus. Ayizizo zonke iintsana ezizelwe ngoomama abane-lupus eziza kuba ne-lupus, kodwa kunokubakho umngcipheko omncinci.

Zithini iimpawu ze-lupus?

I-Lupus sisifo esizibonakalisa ngeendlela ezahlukeneyo. Oku kuthetha ukuba iimpawu zinokwahluka kumntu nomntu , kwaye nobunzima besifo nabo buyahluka. Abanye abantu baneempawu ezinzima kakhulu, ngelixa abanye beneempawu ezingembi kangako.

Iimpawu zeLupus azihlali ziqhubeka.. Ziyafika zidlule. Sibiza amaxesha okwanda kweempawu ngokuthi "kukuqhambuka." Ngeli xesha, iimpawu zinokuba nzima kangangokuba awukwazi nokwenza imisebenzi yakho yemihla ngemihla. Kukwakho namaxesha okuncipha kweempawu okanye ukungabikho kwazo. Ezi zibizwa ngokuba "kukukhululwa."

Iimpawu zihlala zikhula kancinci kancinci . Ekuqaleni, kusenokuvela uphawu olunye okanye ezimbini kuphela, kodwa kamva kusenokuvela ezinye iimpawu okanye ezikhona zitshintshe.

Nazi ezinye zezona mpawu zixhaphakileyo:

• Intlungu yamalungu, iintlungu zemisipha, iintlungu zesifuba (ingakumbi xa uphefumla nzulu)
• Intloko ebuhlungu
• Irhashalala lolusu (idla ngokuba lirhashalala elimile okwebhabhathane elidlula ezidleleni nasempumlweni kumacala omabini obuso - ``irhashalala lebhabhathane`` - linokubonwa)
• Ifiva
• Ukulahleka kweenwele
• Izilonda zomlomo
• Ukudinwa okungapheliyo (ukuziva udiniwe ngalo lonke ixesha)
• Ubunzima bokuphefumla (`(Dyspnea)`)
• Iindlala ezidumbileyo
• Ukudumba kwezandla, iinyawo, okanye ubuso
• Ukudideka
• Amahlwili egazi

I-Lupus ngamanye amaxesha inokubangela ezinye iingxaki zempilo, ezifana nezi:

• Ukuvaleka kwefoto ( ukuvaleka kwelanga)
• Iliso elomileyo
• Ukudakumba okanye ezinye iingxaki zempilo yengqondo
• Iimeko zesifo sokuwa (`Ukuxhuzula`)
• Ukwehla kwe-hemoglobin egazini (i-anemia)
• Isifo sikaRaynaud (ubumhlophe, ukuba luhlaza okwesibhakabhaka kweminwe neenzwane xa kubanda)
• I-Osteoporosis (ukuncitshiswa kwamathambo)
• Isifo sentliziyo
• Isifo sezintso

Yintoni ebangela i-lupus?

Iingcali azikayazi eyona nto ibangela i-lupus , kodwa uphando lufumanise ukuba kukho izinto ezithile ezinokubangela ukuba i-lupus ikhule.

• Izinto ezibangela imfuza: Usethubeni lokuba ne-lupus ukuba unezitshintsho ezithile (iinguqu zemfuza) kwiimfuza zakho. Oku kuthetha ukuba ukuba kukho umntu kusapho lwakho onalo, nawe unethuba elincinci lokuba nalo.
• IiHormone: Indlela umzimba osabela ngayo kwiihomoni ezithile, ingakumbi i-estrogen, kucingelwa ukuba idlala indima ekuphuhlisweni kwe-lupus. Yiyo loo nto i-lupus ixhaphake kakhulu kwabasetyhini.
• Izinto ezikwindawo ohlala kuyo: Izinto ezikwindawo ohlala kuyo, umzekelo, ungcoliseko lomoya kunye nokuchatshazelwa lilanga, zinokuchaphazela umngcipheko wakho we-lupus.
• Imbali yakho yempilo: Ukuba utshaya, unexinzelelo olukhulu, okanye unezinye izifo ezichaphazela amasosha omzimba, umngcipheko wakho wokuba ne-lupus unokwanda.

Ngubani osengozini enkulu yokuba ne-lupus?

Nabani na unokuba ne-lupus, kodwa amanye amaqela asengozini enkulu:

• Abafazi: Ingakumbi abafazi abaphakathi kweminyaka eli-15 nengama-44 ubudala.
• Abantu abamnyama.
• AmaHispanic.
• Ama-Asia (nathi singamalungu eli qela).
• AmaMerika Omthonyama, ama-Alaska Natives, kunye nabantu be-First Nations.
• Abemi beZiqithi zePacific.
• Abantu abanomzali omnye one-lupus.

Ifunyanwa njani i-lupus?

Ukuchonga i-lupus ngamanye amaxesha kunokuba nzima kancinci. Ngenxa yokuba ichaphazela amalungu amaninzi omzimba, iimpawu zinokwahluka kakhulu. Ugqirha uza kuyichonga i-lupus ngokwenza uvavanyo lomzimba aze enze uvavanyo oluthile .

Ugqirha okanye umongikazi uza kumamela ngononophelo iimpawu zakho. Baxelele yonke into oyaziyo ngexesha owaqala ngalo ukuba neempawu, utshintsho oluye lwaphawulwa, kunye nazo naziphi na izifo oye wazifumana ngaphambili kunye namayeza owasebenzisayo ngoku.

Ungoyiki ukuxelela ugqirha wakho nantoni na engaqhelekanga kuwe, nokuba yinto encinci. Akukho mntu wazi umzimba wakho ngaphezu kwakho.

Ziziphi iimvavanyo ezenziwayo ukuze kufunyaniswe i-lupus?

Akukho vavanyo lunye olunokuqinisekisa ukuba une-lupus. Oogqirha badla ngokusebenzisa "uvavanyo oluhlukeneyo" ukuze baqinisekise ukuba akukho ezinye izifo . Oku kuthetha ukuba benza iimvavanyo ezininzi ukuze bafumane ukuba yintoni ebangela iimpawu zakho kwaye baqinisekise ukuba ezinye izifo azinatyala ngaphambi kokuba bagqibe kwelokuba une-lupus. Ezinye zeemvavanyo ezinokusetyenziswa koku zezi:

• Uvavanyo lwegazi: Olu vavanyo lujonga indlela amasosha omzimba wakho asebenza ngayo, nokuba unezifo, iimeko ezifana ne-anemia, okanye inani eliphantsi leeseli zegazi.
• Uvavanyo lomchamo: Oku kunceda ukujonga umchamo wakho ukuba awunazo iimpawu zosulelo okanye ezinye iimeko zempilo.
• Uvavanyo lwe-antinuclear antibody (ANA): Olu vavanyo lwee-antibodies. Ii-antibodies ziimpawu zeproteni ezibonisa imbali yomzimba wethu yokulwa nesifo. Abantu abaninzi abane-lupus banamanqanaba aphezulu ezi antibodies ze-ANA. Oku kubonisa ukuba inkqubo yomzimba yokuzikhusela isebenza kakhulu.
• I-biopsy yolusu okanye yezintso: Ngamanye amaxesha iqhekeza elincinci lesicubu lithathwa kulusu okanye kwizintso lize lihlolwe nge-microscope ukuze kubonwe ukuba lonakaliswe yinkqubo yokuzikhusela yomzimba.

Ziziphi iindlela zonyango lwe-lupus?

Ugqirha wakho uza kucebisa unyango lwe-lupus ukulawula nokulawula iimpawu zakho . Iinjongo eziphambili zezi:

• Ukunciphisa umonakalo kwizitho zomzimba.
• Ukunciphisa impembelelo ye-lupus kubomi bakho bemihla ngemihla.
• Ukuthintela ukuqhambuka kwezifo.
• Ukunciphisa ubukhali beempawu ngexesha lobunzima obukhulu.

Izigulane ezininzi ezine-lupus zifuna umxube wamayeza amaninzi.Usenokufuna amanye ala mayeza alandelayo:

• I-Hydroxychloroquine: Eli liyeza elikwiklasi ebizwa ngokuba yi-disease-modifying antirheumatic drug (DMARD). Linceda ekunciphiseni iimpawu ze-lupus kunye nokulawula ukuqhubela phambili kwesi sifo.
• Amayeza angengowe-steroidal anti-inflammatory (NSAIDs): La ngamayeza afumaneka ngaphandle kwe-counter (OTC) anciphisa iintlungu kunye nokudumba (ukudumba). Ugqirha wakho uza kukuxelela ukuba loluphi uhlobo lwe-NSAID olufanelekileyo kuwe kunye nexesha omele ulithathe. Musa ukuzithatha iintsuku ezingaphezu kwe-10 ngexesha ngaphandle kwengcebiso kagqirha wakho.
• IiCorticosteroids: La ngamayeza anamandla anikwe ngugqirha ukunciphisa ukudumba. I-Prednisone yi-corticosteroid esetyenziswa kakhulu kwi-lupus. Inganikwa njengeepilisi okanye njengenaliti ngqo kwilungu.
• Ii-immunosuppressants: La mayeza asebenza ngokunciphisa nokulawula ukusebenza kwenkqubo yakho yokuzikhusela, enceda ekuthinteleni umonakalo kunye nokudumba kwezicubu.

Ukongeza kwezi ntlobo ziphambili zamayeza, ungadinga unyango olwahlukileyo kwiimpawu ezithile onazo okanye ezinye iingxaki zempilo ezibangelwa yi-lupus (umz. i-anemia, uxinzelelo lwegazi oluphezulu, amathambo anciphileyo).

Yintoni onokuyilindela ukuba une-lupus?

I-Lupus yimeko ehlala ubomi bonke ('engapheliyo') . Oku kuthetha ukuba kuya kufuneka ujongane kwaye ulawule iimpawu ze-lupus ubomi bakho bonke.

I-Lupus ayichazeki . Oku kuthetha ukuba indlela ekuchaphazela ngayo inokutshintsha ngamanye amaxesha. Ngoko ke, kufuneka ubonane nogqirha wakho rhoqo ukuze ajonge utshintsho kwiimpawu zakho.

Njengoko ufunda ukuphila ne-lupus, kuya kufuneka usebenzisane neqela loogqirha . Ugqirha wakho wosapho (umboneleli wezempilo oyintloko) uya kucebisa iingcali ozifunayo. Rhoqo, uya kubona ingcali yamathambo — ugqirha ochwephesha ekuxilongeni nasekunyangeni izifo ezibangelwa kukuzikhusela komzimba. Ezinye iingcali ozifunayo ziya kuxhomekeka kwiimpawu zakho kunye nendlela ezichaphazela ngayo umzimba wakho.

Ngaba i-lupus inganyangeka ngokupheleleyo?

Ngelishwa, okwangoku akukho nyango lwe-lupus . Nangona kunjalo, ugqirha wakho unokukunceda ufumane indibaniselwano yonyango oluya kunceda ukulawula iimpawu zakho kwaye lukuncede ufikelele kwixesha lokuphumla - ixesha apho ungenazo okanye iimpawu zimbalwa kakhulu.

Ngaba i-lupus ingathintelwa?

Ngenxa yokuba iingcali azikayazi kakuhle into ebangela i-lupus, akukho ndlela yokuyithintela . Ukuba omnye wabazali bakho une-lupus, thetha nogqirha wakho malunga nomngcipheko wakho.

Indlela yokuthintela ukudumba kwe-lupus?

Nangona i-lupus ingenakuthintelwa, zininzi izinto onokuzenza ukunciphisa nokuthintela ukudumba kwesikhumba. Oku kuquka ukuphepha izinto ezenza iimpawu zakho zibe zimbi ngakumbi.

• Kuphephe ukuchatshazelwa lilanga: Kwabanye abantu, ukuchatshazelwa lilanga ixesha elide kunokwenza iimpawu ze-lupus zibe mandundu. Ngoko ke, nciphisa ixesha ochitha ngaphandle ngexesha lee-summer ezishushu kakhulu (ngesiqhelo phakathi kwe-10 kusasa ne-4 emva kwemini). Ukuba uyaphuma, nxiba iihempe ezinemikhono emide, umnqwazi, kunye nempahla yokukhusela ilanga. Sebenzisa i-sunscreen ene -SPF engama-50 ubuncinane .
• Hlala usebenza: Iintlungu zamalungu ngamanye amaxesha zinokwenza kube nzima ukushukuma okanye ukwenza umthambo. Nangona kunjalo, intshukumo ethambileyo kunye nomthambo zezona ndlela zilungileyo zokunciphisa iimpawu ezifana nentlungu nokuqina. Ukuhamba, ukukhwela ibhayisekile, ukudada, i-yoga, kunye ne-tai chi zonke ziindlela ezilungileyo zokushukumisa umzimba wakho ngaphandle kokubeka uxinzelelo olukhulu kumalungu akho. Buza ugqirha wakho malunga nemithambo ekhuselekileyo onokuyenza.
• Lala ngokwaneleyo kwaye ukhathalele impilo yakho yengqondo: Ukuphila ne-lupus kunokuba yingxaki ngamanye amaxesha. Ukulala ngokwaneleyo (iiyure eziyi-7-9 kumntu omdala) kunye nokunciphisa uxinzelelo kunokunceda abanye abantu baphephe ukudumba. Ingcali yezengqondo okanye omnye umcebisi wezempilo yengqondo unokukunceda uphuhlise iindlela zokumelana neengxaki.

Ndifanele ndimbone nini ugqirha?

Ukuba ufumanisa naziphi na iimpawu ezintsha, okanye ukuba uziva ngathi iimpawu zakho ziyatshintsha, bonana nogqirha ngoko nangoko. Nokuba utshintsho oluncinci kwiimpawu zakho lunokuba lubalulekile.

Ukuba uvakalelwa kukuba unyango lwakho lwangoku aluyilawuli iimpawu zakho ze-lupus, xelela ugqirha wakho . Ukuba uneentlungu ezingakumbi okanye ukuba iimpawu zakho ziya zisiba mandundu, xelela ugqirha wakho. Ugqirha wakho unokukunceda ulungise unyango lwakho njengoko kufuneka.

Kwimeko engxamisekileyo, oko kukuthi, ukuba ufumana iimpawu ezinje, yiya esibhedlele ngoko nangoko okanye utsalele umnxeba ku-1990:

• Ukuba awukwazi ukuphefumla.
• Ukuba kukho intlungu enzima.
• Ukuba ucinga ukuba uneempawu zokuhlaselwa yintliziyo.

Ndingayibuza yiphi imibuzo ugqirha wam?

Xa ubona ugqirha, kungcono ukubuza imibuzo efana nale:

• Ngaba ndine-lupus okanye esinye isifo sokuzikhusela komzimba?
• Luhlobo luni lwamayeza endiwadingayo?
• Ndifanele ndikubone kangaphi ('ii-aphoyintimenti zokulandelela')?
• Ngaba kuya kufuneka ndidibane nezinye iingcali?
• Ungandixelela ngamaqela enkxaso okanye ezinye iinkonzo zempilo yengqondo ezinokundinceda?

Okokugqibela, yintoni ekufuneka uyikhumbule (Umyalezo Wokuya Ekhaya)

I-Lupus inokuba yimeko ecaphukisayo neyenza umntu angakwazi ukuzibamba ngamanye amaxesha. Ukuphila neentlungu, ukudumba, kunye nokungonwabi emzimbeni wakho wonke akulula. Kodwa, ungalibali ukuzixabisa . Ukuphila nesifo esingapheliyo ngumsebenzi onzima, ngoko ke ufanele ukuqatshelwa ngomzamo owenzayo ekulawuleni iimpawu zakho yonke imihla.

Ukuba ucinga ukuba kuya kuba luncedo ukuthetha nomntu malunga neengcinga zakho kunye neemvakalelo zakho, buza ugqirha wakho malunga neenkonzo zempilo yengqondo kunye namaqela enkxaso.

Musa ukoyika ukuthetha nogqirha wakho ubuze imibuzo. Nokuba utshintsho oluncinci kwiimpawu zakho lunokuba luphawu lokuba i-lupus ikuchaphazela ngendlela eyahlukileyo. Khumbula, ukuba uvakalelwa kukuba kukho into engalunganga emzimbeni wakho, nguwe umgwebi ongcono.

I- Lupus, i-SLE, izifo zokuzikhusela komzimba, iintlungu zamalungu, amaqhuqhuva eluswini, unyango lwe-lupus, iimpawu ze-lupus