Mhlawumbi wena okanye umntu osapho lwakho uxelelwe ngugqirha wakho malunga neyeza elitsha nelingaziwayo. Lingabizwa ngokuba yi-Olipudase Alfa (Xenpozyme). Eli asiloyeza eliqhelekileyo nelisetyenziswa rhoqo esiliva rhoqo. Eli liyeza elinikwa imeko ethile yezonyango. Yiyo loo nto kuqhelekile ukuba ube nemibuzo emininzi ngalo. Usenokuba nemibuzo efana nokuthi "Kuza kwenzeka ntoni ngale nto?", "Ingaba oku kukhuselekile?", "Zithini izinto ekufuneka uzilumkele?" Ungakhathazeki, siza kuthetha ngokucacileyo nangokulula ngale nto, into eyenzayo, kunye nezinto ekufuneka uzilumkele.
Kwenzeka ntoni ngokwenene ngale mithi?
Eli yeza lisetyenziselwa ukunyanga isifo esingaqhelekanga kakhulu semfuza. Ngokwezonyango, libizwa ngokuba yi-Acid Sphingomyelinase Deficiency , okanye (ASMD) ngamafutshane.
Ngamafutshane, abantu abane-ASMD abayivelisi i-enzyme eveliswa ngokwemvelo emizimbeni yabo. I-enzyme luhlobo lweproteni enceda kwiinkqubo ezahlukeneyo zeekhemikhali emizimbeni yethu. Xa le enzyme ingekho, uhlobo oluthile lwe-lipid olubizwa ngokuba yi-sphingomyelin luqala ukuqokelelana kwizitho ezibalulekileyo ezifana nesibindi sethu, i-spleen, kunye nemiphunga. Cinga ngayo njengombhobho wamanzi ovalwa ngumhlaba uze ekugqibeleni uvaleke ngokupheleleyo.
Kulapho ke iyeza elibizwa ngokuba yi-Olipudase Alfa linceda khona. Eli yeza linceda ukubonelela nge-enzyme engekhoyo emzimbeni evela ngaphandle. Oku kubizwa ngokuba yi -enzyme replacement therapy . Emva koko inani lamafutha aqokelelwa ngokungeyomfuneko liyehla kancinci kancinci, umonakalo kwizitho zomzimba uyalawuleka, kwaye iimpawu ziyaphela.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokusebenzisa eli yeza
Ngaphambi kokuba uqale ukusebenzisa eli yeza, kubalulekile ukwazisa ugqirha wakho ngezi zinto zilandelayo. Musa ukuzifihla ezi zinto, kuba zibaluleke kakhulu kukhuseleko lwakho.
- Ukuba une -allergy kule yeza, i-Olipudase alfa, naluphi na olunye unyango, ukutya, iidayi okanye izithinteli ezongeziweyo ekutyeni.
- Ukuba ukhulelwe, okanye ulindele umntwana kungekudala , oku kubaluleke kakhulu. Masithethe ngako ngakumbi.
- Ukuba ungumama oncancisayo .
Indlela yokunika amayeza kunye noko kufuneka ukwazi
Eli yeza linikwa njengenaliti emthanjeni. Ngokuchanekileyo, lifakwa emzimbeni ngemithambo, njengesisombululo setyuwa. Le nkqubo idla ngokwenziwa esibhedlele okanye eklinikhi, phantsi kweliso likagqirha okanye abasebenzi abaqeqeshiweyo bobuhlengikazi.
Nangona kunjalo, kwezinye iimeko, unokukwazi ukuyifumana ekhaya. Ukuba kunjalo, uya kunikwa uqeqesho olupheleleyo malunga nendlela yokuyilungiselela ngokufanelekileyo kunye nendlela yokufaka inaliti. Kufuneka ulandele imiyalelo kanye njengoko ugqirha ekuxelela.
Ukulahla iinaliti kunye neesirinji
Ungaze ulahle iinaliti kunye neesirinji ozisebenzisa ekhaya kwinkunkuma eqhelekileyo . Kukho isitya esikhethekileyo see-sharps. Ukuba awunaso, buza ugqirha wakho okanye isibhedlele ngaso.
Ingaba ninika abantwana abancinci oku?
Ewe, eli yeza lingamiselwa iintsana ezisandul’ ukuzalwa kunye nabantwana kwiimeko ezithile zonyango. Nangona kunjalo, kukho izinto ezimbalwa ekufuneka uzilumkele. Ngoko ke, ukuba unika umntwana eli yeza, thetha nogqirha ngalo kakuhle uze umchazele yonke into.
Yintoni omawuyenze ukuba umthamo weyeza unyusiwe?
Ukuba ucinga ukuba usele kakhulu, ungoyiki kwaye ngoko nangoko fowunela iZiko loLwazi lweePoison kwiSibhedlele sikaZwelonke , okanye uye kwiYunithi yoNyango oluNgxamisekileyo (ETU) yesibhedlele esikufutshane.
Izinto ezikhethekileyo ekufuneka uziqaphele kunye nemiphumo emibi
Ngelixa usela eli yeza, ugqirha wakho uza kukucela ukuba uze kuhlolwa rhoqo ukuze ajonge imeko yakho. Kuya kufuneka benze izinto ezifana nokuhlola igazi. Kungathatha ixesha ukuba uzive zonke iingenelo zalo yeza, ngoko ke kubalulekile ukuba nomonde ngonyango lwakho.
Abanye abantu banokuba neempendulo ezibi kakhulu ze-allergy okanye ii-infusion reactions xa benikwa eli yeza. Ukunciphisa lo mngcipheko, ugqirha wakho unokukunika amanye amayeza (afana ne-piritan) ngaphambi kokuba akunike eli yeza. Landela imiyalelo ngqo.
Ukukhulelwa nokulawula ukuzala: Eli linqaku elibaluleke kakhulu. Ukusela eli yeza ngexesha lokukhulelwa kunokubangela iziphene ezinkulu zokuzala kumntwana. Ke ngoko, kubalulekile ukusebenzisa uhlobo olufanelekileyo lokulawula ukuzala ngelixa usela eli yeza kwaye emva kweentsuku ezili-14 emva kokuyeka iyeza. Thetha nogqirha wakho ngale nto kwaye ukhethe indlela efanelekileyo kuwe.
Itheyibhile engezantsi ibonisa iintlobo eziphambili zeziphumo ebezingalindelekanga ezinokubakho ngeli yeza.
| Iziphumo Ezingalindelekanga Ze-Olipudase Alfa Vaccine | |
|---|---|
| Iziphumo ebezingalindelekanga ezinzulu ekufuneka uzixele kugqirha wakho ngoko nangoko | |
| Iimpendulo ze-allergic okanye i-Angioedema | Ukurhawuzelela kwesikhumba, ukurhawuzelela, ukudumba kobuso, amehlo, imilebe, ulwimi, izandla okanye iinyawo, ubunzima bokuginya okanye ukuphefumla. |
| Iimpendulo zokufakwa | Intlungu esifubeni, ubunzima bokuphefumla, ukuquleka, ukuziva unesizungu. |
| Iimpawu zokulimala kwesibindi | Intlungu kwicala eliphezulu lasekunene lesisu, ukuphelelwa ngumdla wokutya, isicaphucaphu, indle ekhanyayo, umchamo otyheli okanye omdaka omnyama, ukutyheli kwamehlo okanye ulusu, ukudinwa okungaqhelekanga. |
| Iziphumo ebezingalindelekanga ezingaqhelekanga, kodwa kufuneka zixelwe kugqirha ukuba ziyaqhubeka | |
| Ezinye iimpawu | Ukukhwehlela, urhudo (ukudumba), umkhuhlane, intloko ebuhlungu, iintlungu zamalungu, isicaphucaphu, ukuhlanza. |
Ngaba kukho naziphi na iingxaki ngamanye amayeza?
Ngokwazi kwethu, eli yeza alikabikwa ukuba libangela nayiphi na intsebenziswano enkulu namanye amayeza. Nangona kunjalo, ungacingi ukuba kunjalo. Nika ugqirha wakho uluhlu olupheleleyo lwamayeza owasebenzisayo (kuquka iivithamini, amayeza emifuno, kunye nezongezo). Kwakhona, qiniseka ukuba uxelele ugqirha wakho ukuba utshaya okanye usela utywala.
Umyalezo Wokuya Ekhaya
- I-Olipudase Alfa lunyango oluthile lokutshintsha ii-enzyme kwisifo esingaqhelekanga semfuza esibizwa ngokuba yi-ASMD.
- Oku kunikwa njengenaliti emthanjeni, ngesiqhelo esibhedlele.
- Ngaphambi kokuba uqale unyango, xelela ugqirha wakho ngazo zonke izinto ezikubangela ukuba ungabi namdla, izicwangciso zokukhulelwa, kunye nazo zonke ezinye iziyobisi ozisebenzisayo.
- Ngelixa usebenzisa eli yeza, lumka iimpawu ze-allergy enzima, iziphumo ze-injection, okanye umonakalo wesibindi (umz., ukutyheli kwesikhumba, umchamo omnyama). Xelela ugqirha wakho ngokukhawuleza ukuba ubona nayiphi na kwezi mpawu.
- Kuphephe ukukhulelwa ngelixa usebenzisa eli yeza. Thetha nogqirha wakho malunga nolawulo lokuzala olufanelekileyo.
- Landela imiyalelo kagqirha wakho ngokuchanekileyo kwaye uye kuzo zonke iintlanganiso zeklinikhi ezicwangcisiweyo.
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