Ingaba umzimba wakho uziva uphelelwe ngamanzi emzimbeni? Isenokuba yiSjögren's Syndrome!

Ngaba ngamanye amaxesha ukhe uzive ngathi amehlo akho omile kwaye umlomo wakho womile? Mhlawumbi kungenxa yokuba ukuba udiniwe kwaye usoloko unazo ezi zinto, aqhelekanga. Namhlanje siza kuthetha ngemeko ebizwa ngokuba yi -'Sjögren's Syndrome', enegama elingaqhelekanga, kodwa lichaphazela abanye abantu. Usenokuba awuqhelananga neli gama, kodwa iimpawu zalo zisenokuba ziyazi.

Yintoni i-'Sjögren's Syndrome'?

Ngamafutshane, 'iSjogren's Syndrome' sisifo sokuzikhusela komzimba esichaphazela amadlala avelisa umswakama emzimbeni wethu. Ngoku usenokuba uyazibuza ukuba oku kuthetha ukuthini 'ukuzikhusela komzimba'. Khawuthelekelele, umzimba wethu unenkqubo esikhusela kwizifo, ibizwa ngokuba yinkqubo yokuzikhusela komzimba. Ifana nomkhosi okhusela ilizwe lethu. Kodwa kwesi sifo 'sokuzikhusela komzimba', okwenzekayo kukuba abakhuseli bethu, oko kukuthi, inkqubo yokuzikhusela komzimba, bahlasela ngempazamo iiseli zethu ezilungileyo, kwimeko enjalo amadlala avelisa umswakama. Oku kufana nonogada endlwini yethu ocinga ukuba singamasela aze asihlasele.

Ngenxa yoko, amadlala avelisa umswakama emzimbeni wakho ayayeka ukusebenza kakuhle. Oku kuchaphazela kakhulu:

• Inkqubo yokukrazula: Oku kubangela amehlo omileyo.
• Amathe emlonyeni: Oku kubangela ukuba umlomo wome.
• Impumlo: Impumlo isenokuba yomile.
• Umphimbo: Umphimbo ungomile uze ubangele ukukhohlela.
• Inkqubo yokwetyisa isenokuchaphazeleka ngandlela ithile.
• Kwizitho zangasese zabasetyhini: Izitho zangasese zisenokuba zomile.

Eli gama libizwa ngokuba yi "Shaw-Granz syndrome." Ukuba uneempawu ezintsha zamehlo okanye umlomo owomileyo, ingakumbi ukuba zihamba nezinye iimpawu (ezifana nentlungu), kubaluleke kakhulu ukubona ugqirha.

Ngaba kukho iintlobo zeSjögren's Syndrome?

Ewe, oogqirha bayahlulahlula oku kwiindidi ezimbini eziphambili:

1. I-Primary Sjögren's syndrome: Oku akubangelwa nayinye imeko yezonyango. Oko kukuthi, izenzekela yodwa.

2. Isifo sikaSjögren sesibini: Oku kubangelwa yenye imeko okanye ingxaki. Oko kukuthi, esinye isifo sisizathu esiyintloko.

Ixhaphake kangakanani le meko?

Kubikwa ukuba inani elikhulu labantu kwihlabathi liphela linale meko ibizwa ngokuba yi-'Sjögren's Syndrome'. Kwilizwe elifana neMelika, kuthiwa malunga nezigidi ezibini zabantu abanengxaki yale meko. Kusenokubakho abantu abanale meko nakwilizwe lethu.

Zithini iimpawu zeSjögren's Syndrome?

Uphawu oluphambili noluqhelekileyo lwale nto kukoma okungaqhelekanga kwiindawo zomzimba.

• Amehlo omileyo okanye arhawuzelelayo: Kungathi kukho isanti emehlweni akho. Ngamanye amaxesha amehlo akho anokuba bomvu.
• Umlomo owomileyo (xerostomia): Umlomo ungomile kangangokuba kube nzima ukuthetha okanye ukuginya ukutya. Izilonda zomlomo zinokuvela. Amathe nawo anokuba makhulu.
• Ukoma kwesini kwabasetyhini: Oku kunokubangela iintlungu ngexesha lokwabelana ngesondo.
• Ulusu olomileyo: Ulusu lunokoma kwaye lurhawuzelele.
• Impumlo eyomileyo kunye nokopha rhoqo kwempumlo.
• Umphimbo owomileyo: Usenokuba nokukhwehlela okomileyo rhoqo.

Ukongeza kolu hlobo lokoma, isifo sikaSjögren sinokubangela ezinye iimpawu:

• Intlungu yamalungu: Njengesifo samathambo.
• Intlungu okanye ubuthathaka bemisipha.
• Ii-lymph nodes ezivuvukileyo.
• Ukudinwa: Ukuziva udiniwe rhoqo kodwa ungaphezi nokuba ulala kangakanani na.
• Ubunzima bokuginya (dysphagia) okanye ubunzima bokuthetha.
• Inkungu yobuchopho: Ubunzima bokucinga ngokucacileyo nokuziva ngathi awukwazi ukugxila.
• Ukulahlekelwa yincasa.
• Ukubola kwamazinyo okanye ukulahleka kwamazinyo: Njengoko ukuveliswa kwamathe emlonyeni kuncipha, ukhuseleko lwamazinyo luyehla.
• Iimpundu zesikhumba.
• I-Neuropathy: Izinto ezinje ngokuba ndindisholo nokurhawuzelela kwamalungu omzimba.
• Ukudumba kwesisu okanye ezinye iingxaki zokugaya ukutya.
• Uvakalelo lokukhanya: Amehlo abonakala eba luhlaza okwesibhakabhaka xa uphuma ngaphandle.

Zithini izizathu zeSjögren's Syndrome?

Sele sitshilo ukuba esi sisifo 'esihlasela amajoni omzimba' . Oko kuthetha ukuba inkqubo yethu yokuzikhusela komzimba ihlasela amadlala ethu. Nangona kunjalo, oogqirha abakafumani isizathu sokuba oku kwenzeke.

• Akukho sizathu saziwayo sokuba ne -primary Sjögren's syndrome .
• Isifo sikaSjögren sesibini sibangelwa zezinye iimeko zempilo, ingakumbi ezinye izifo ezihlasela amajoni omzimba kunye nezinye izifo ezibangelwa ziintsholongwane.

Iintsholongwane ezininzi ezinokubangela isifo sesibini seSjögren ziquka:

• I-Hepatitis C
• `I-Cytomegalovirus (CMV)`
• Intsholongwane ka-Epstein-Barr
• `Intsholongwane ye-T-lymphotropic yomntu 1 (HTLV)`
• `I-COVID-19`

Ezinye izifo ze-autoimmune ezinxulumene ne-Sjögren's syndrome zezi:

• Irheumatoid arthritis
• Isifo samathambo se-Psoriatic
• `Lupus`

Kubalulekile:Ayinguye wonke umntu onezi meko oza kuba ne-Sjögren's syndrome. Kwaye akukho siqinisekiso sokuba umntu one-Sjögren's syndrome uza kuba nezinye ezi meko. Nangona kunjalo, uphando lubonisa ukuba kukho unxibelelwano.

Ngubani osengozini enkulu yokufumana iSjögren's Syndrome?

Nangona nabani na enokuba nale meko, amaqela athile asengozini enkulu:

• Abafazi: Abantu abangaphezu kwama-90% abane-Sjögren's syndrome ngabafazi. Amadoda nawo anokuba nayo, kodwa ayiqhelekanga.
• Abantu abanezinye izifo ezibangelwa kukuzikhusela komzimba: Malunga nesiqingatha sabantu abane-Sjögren's syndrome banesifo esinye ubuncinane esibangelwa kukuzimela komzimba.
• Abantu abaphakathi kweminyaka engama-45 ukuya kwengama-55 ubudala: Nangona inokukhula ebantwaneni, kubantu abaselula, nakubantu abangaphezu kweminyaka engama-55 ubudala, ngokuqhelekileyo ikhula kakhulu kweli qela leminyaka.
• Abantu abanembali yentsapho ye-Sjögren's syndrome: Malunga ne-10% yabantu abane-Sjögren's syndrome banesalamane esisondeleyo (umzali okanye umntakwenu) esinale meko.

Ungazi njani ngokuqinisekileyo ukuba uneSjögren's Syndrome? (Ukuxilongwa)

Ugqirha uza kwenza uvavanyo lomzimba aze enze uvavanyo oluthile ukuze abone ukuba unayo na i-Sjögren's syndrome. Ugqirha uza kukuhlola aze akubuze ngeempawu zakho. Mxelele ugqirha ukuba uqale nini ukuqaphela olu tshintsho, kwaye nokuba iimpawu zakho ziba mandundu na ngamaxesha athile osuku okanye ngexesha lemisebenzi ethile.

Ukuchonga isifo sikaSjögren kudla ngokuba yinxalenye yenkqubo ebizwa ngokuba yi- differential diagnosis . Oku kuthetha ukuba ngaphambi kokuba ugqirha wakho aqinisekise ukuba une-Sjögren's syndrome, uya kwenza uvavanyo oluninzi ukuze aqinisekise ezinye iimeko ezinokubangela iimpawu zakho. Ezinye zeemvavanyo onokuba nazo zezi:

• Uvavanyo lwegazi: Ngokukodwa, ukujonga iintlobo ezithile zee-antibodies.
• Uvavanyo lwamehlo: Kukho iimvavanyo ezikhethekileyo zokujonga inqanaba lokufuma emehlweni.
• Ukuhlolwa kwamazinyo: Umsebenzi wee-salivary glands emlonyeni unokubonwa.
• Uhlalutyo lomchamo.
• Iibhayopsy: Ngamanye amaxesha iqhekeza elincinci lesicwili, njengakwingaphakathi lomlomo, liyathathwa lize lihlolwe ukuze kukhangelwe utshintsho kwimisonto yamathe.
• Ii-X-reyi: Usenokucelwa ukuba uthathe i-X-reyi yesifuba ukuze ubone ukuba kukho nayiphi na impembelelo kwimiphunga yakho.

Kusenokufuneka ubone iingcali ezininzi:

• Ingcali yeRheumatology: Ugqirha ogxile kwizifo zamalungu kunye nezifo zokuzikhusela komzimba.
• Iingcali zokhathalelo lwamehlo.
• Ugqirha wamazinyo.
• Ingcali ye-Otolaryngologist (ingcali ye-ENT) ngugqirha ogxile kwiindlebe, impumlo, nomqala.

Ziziphi iingxaki ezinokubakho zeSjögren's Syndrome?

Isifo sikaSjögren sinokubangela iingxaki ezithile. Kodwa ungakhathazeki , uninzi lwabantu alubi neengxaki ezinkulu.

• Ukwanda komngcipheko wokosuleleka emlonyeni namehlo: Ngenxa yokufuma okuphantsi, iintsholongwane zinokubangela ukosuleleka ngokulula.
• Ukungasebenzi kakuhle kwesibindi okanye izintso.
• I-Lymphomas: Uhlobo lomhlaza oluvela kwii-lymph nodes. Umngcipheko wokuba oku kwenzeke uphantsi kakhulu, kodwa asinto yokungayinaki.
• Iingxaki zemiphunga: Ngamanye amaxesha ingaphazanyiswa ne-pneumonia.
• Iingxaki ze-neurological: Izinto ezifana nobuthathaka, ukungaziva mnandi.

Uninzi lwabantu abane-Sjögren's syndrome baphila ngaphandle kweengxaki ezinkulu. Ukuba une-Sjögren's syndrome yesibini, imeko engaphantsi kwayo inokunyusa umngcipheko weengxaki. Thetha nogqirha wakho ngale nto.

Inyangwa njani iSjögren's Syndrome?

Ugqirha wakho uza kucebisa unyango oluza kunceda ukulawula iimpawu zakho. Okwangoku akukho nyango lweSjögren's syndrome. Nangona kunjalo, ugqirha wakho unokukunceda ufumane isicwangciso sonyango esiya kunciphisa impembelelo yaso kubomi bakho bemihla ngemihla kunye nomgangatho wobomi.

Unyango olufunekayo luxhomekeke ekubeni zeziphi iindawo zomzimba wakho ezichaphazelekileyo yiSjögren's syndrome.

Ezinye iindlela eziqhelekileyo zonyango lwamehlo omileyo, umlomo, okanye isini ziquka:

• Iinyembezi ezingezizo ezendalo: Ingcali yakho yamehlo inokucebisa amathontsi eliso athengiswa ngaphandle kwekhawuntara (OTC), amathontsi abhalwe ngugqirha, okanye izinto zokuthambisa ezithambisa amehlo.
• Utyando lwamehlo omileyo (ii-punctal plugs): Ugqirha wamehlo (ophthalmologist) unokuvala ezinye okanye zonke ii-drains zakho zokukrazula. Oku kunceda ukugcina iinyembezi zakho zendalo emehlweni akho ixesha elide.
• Abavelisi bamathe: Ugqirha wakho wamazinyo unokucebisa izongezo zamathe ezithengiswa ngaphandle kwemvume okanye amayeza anceda umzimba wakho uvelise amathe amaninzi. Ukuhlafuna itshungama, ukusela amanzi, kunye nokufunxa iityhubhu zomkhenkce imini yonke kunokunceda ukugcina umlomo wakho umanzi.
• Iimveliso ezikhethekileyo zokuhlamba umlomo okanye zokhathalelo lwamazinyo: Abantu abane-Sjögren's syndrome basengozini enkulu yokuba neengxaki zamazinyo. Ngenxa yoko, ukucoca amazinyo rhoqo, unyango olukhethekileyo lwe-fluoride, okanye i-toothpaste ebhalwe ngugqirha kunye ne-mouthwash kunokufuneka.
• Izinto zokuthambisa okanye zokuthambisa zangasese:Ugqirha unokucebisa izithambiso ezithengiswa ngaphandle kwekhawuntara okanye ezibhalwe ngugqirha ezingasetyenziswa yonke imihla okanye ngexesha lokwabelana ngesondo.
• Unyango lweehomoni: Abanye abantu banokufuna unyango lweehomoni, olufana ne-estrogen, ukuze kunyangwe ukoma kwelungu lobufazi okubangelwa kukungalingani kweehomoni.

Unyango lweentlungu kunye nezinye iimpawu:

• Izithomalalisi zentlungu ezithengiswa ngaphandle kwemvume kagqirha: Amayeza anjenge-'NSAIDs (iziyobisi ezichasene nokuvuvukala ezingezizo ii-steroidal)' (umz. ibuprofen) okanye i-'acetaminophen' (umz. iPanadol) anokunceda ukunciphisa iintlungu nokudumba. Musa ukuthatha la mayeza ngaphezu kweentsuku ezili-10 ngexesha ngaphandle kwengcebiso kagqirha.
• IiCorticosteroids: La ngamayeza anciphisa ukudumba kwaye anikwa njengeepilisi okanye iinaliti ezichazwe ngugqirha.
• Amayeza okunciphisa amasosha omzimba: La mayeza azolisa inkqubo yakho yomzimba yokuzikhusela aze anciphise ukusebenza kwayo. Ugqirha wakho angacebisa amayeza anjenge-DMARD (iziyobisi eziguqula izifo ezilwa namathambo).

Luhlobo luni lwamava anokulindeleka umntu oneSjögren's Syndrome?

Kuya kufuneka ulawule iimpawu zakho ixesha elide, mhlawumbi ubomi bakho bonke. Nangona kunjalo, wakuba ufumene unyango olufanelekileyo kuwe, ubukhali beempawu zakho bufanele bunciphe. Abantu abane-Sjögren's syndrome badla ngokufunda ukulawula iimpawu zabo, ngoko ke ubukhali beempawu zabo buya kuncipha ngokuhamba kwexesha.

Ngaba iSjögren's Syndrome ingathintelwa?

Ngenxa yokuba unobangela ochanekileyo ungaziwa, akukho ndlela yokuthintela i-Sjögren's syndrome. Akunakwenzeka ukuqikelela ukuba ngubani oza kuyibangela okanye nini.

Ufanele uye nini kugqirha?

Bona ugqirha ukuba ubonakalisa iimpawu ezintsha, okanye ukuba iimpawu zakho ziya zisiba mandundu. Landelela iimpawu zakho kwaye uqaphele naluphi na utshintsho.

Ugqirha wakho uza kukuxelela ukuba kufuneka uye kangaphi ukuze ufumane amadinga okulandela, uvavanyo, okanye ezinye iindlela zokuhlolwa. Ukuba uvakalelwa kukuba unyango alusebenzi okanye alusebenzi kakuhle njengangaphambili, musa ukulibazisa ukubona ugqirha wakho. Iimpawu zesifo sikaSjögren ngamanye amaxesha zinokuba zingabonakali. Nguwe wedwa owaziyo xa kukho into engalunganga.

Ingxamiseko: Ukuba uziva ngathi unengxaki yokuphefumla okanye yokuginya, yiya esibhedlele ngoko nangoko okanye utsalele umnxeba ku-1990 (inkonzo ye-ambulensi yongxamiseko).

Yeyiphi imibuzo omele uyibuze ugqirha wakho?

Ungalibali ukubuza le mibuzo xa ubona ugqirha:

• Loluphi uhlobo lwesifo sikaSjögren endinaso? (Esiphambili okanye esesibini?)
• Zeziphi iimvavanyo ekufuneka ndizenze?
• Ngaba kuya kufuneka ndidibane nezinye iingcali?
• Loluphi unyango endiludingayo?
• Zeziphi iinguqu okanye iimpawu ekufuneka ndiziqaphele?

Ukulawula isifo sikaSjögren kunokuba yinto ecaphukisayo ngamanye amaxesha. Kunokuba yinto ecaphukisayo ukuba namehlo omileyo, umlomo owomileyo, okanye nokuba mdaka kwesitho sangasese sowesifazane okwenza isondo sibe buhlungu. Kodwa iindaba ezimnandi zezokuba uninzi lwabantu abane-Sjögren's syndrome banokukwazi ukulawula iimpawu zabo kakuhle xa befumene indibaniselwano yonyango olubasebenzelayo.

Okokugqibela, izinto ekufuneka uzikhumbule (Umyalezo Wokuya Ekhaya)

I-Sjögren's syndrome yimeko enokuba yingxaki kancinci, kodwa inokulawulwa ngokulawulwa ngokufanelekileyo .

• Awuwedwa: kukho abanye abantu abaphila nezi meko.
• Unyango olufanelekileyo lubalulekile: Thetha nogqirha wakho ukuze ufumane isicwangciso sonyango esifanelekileyo kuwe. Kusenokufuneka uzame unyango olwahlukileyo.
• Xelela ugqirha wakho ukuba iimpawu zakho ziyatshintsha: Ukuba iimpawu zakho ziyatshintsha, ziya ziba mandundu, okanye zibonakala zichaphazela kakhulu imisebenzi yakho yemihla ngemihla, xelela ugqirha wakho.
• Ukuhlolwa rhoqo: Buza ugqirha wakho ukuba kufuneka uhlolwe amehlo kangaphi kwaye uhlolwe amazinyo. Ukuhlolwa rhoqo okunje kunokunceda ukuthintela iingxaki.

Ndiyathemba ukuba olu lwazi luza kukunceda. Ukuba unemibuzo, ungathandabuzi ukubuza ugqirha.

Isifo sikaSjögren , amehlo omileyo, umlomo owomileyo, ukuzikhusela komzimba, inkqubo yomzimba yokuzikhusela, iintlungu zamalungu