Ingabe ukhathazekile kancane ngesimo sekhanda lengane yakho? Ake sixoxe nge-Craniosynostosis

Wake wakhathazeka kancane noma wazibuza ngesimo sekhanda lomntwana wakho? Mhlawumbe ikhanda lakho libukeka lingavamile, noma uhlangothi olulodwa luyisicaba, noma ibunzi lakho liphumile? Kuvamile ukuthi umama noma ubaba azizwe esaba kancane uma ebona into efana naleyo. Namuhla sizokhuluma ngesimo esikhethekile esingabangela izinguquko ezinjalo esimweni sekhanda. Leso yisimo odokotela abasibiza ngokuthi i-craniosynostosis . Ungakhathazeki, sizokhuluma ngalokhu kalula nangendlela ongayiqonda.

Kuyini i-Craniosynostosis?

Kalula nje, i-craniosynostosis yisimo lapho amathambo ekhanda lomntwana wakho, abizwa ngokuthi ama-suture, evaleka ngaphambi kwesikhathi bese ehlangana ndawonye. Lokhu kuyiphutha lokuzalwa, okusho ukuthi likhona lapho ezalwa.

Manje cabanga ukuthi ikhanda lomntwana osanda kuzalwa lakhiwe ngamathambo amaningana ahlangana ndawonye njengezingcezu zephazili. Kunezikhala ezincane phakathi kwala mathambo. Kwezokwelapha, sibiza lezi zikhala ngokuthi "izimbobo." Lezi zimbobo zibaluleke kakhulu. Ngoba, njengoba ubuchopho bomntwana bukhula, lezi zimbobo zivumela ikhanda ukuba likhule nalo. Kungenzeka ukuthi uke wezwa ngendawo ethambile phezulu kwekhanda lomntwana ebizwa ngokuthi "i-fontanelle" (noma indawo ethambile) . La mabala akheka ngoba la mathambo awazange ahlangane kahle. Ngokuvamile, lezi zimbobo zivala ngokuphelele lapho eneminyaka engu-2 noma engu-3, ​​futhi amathambo ekhanda aqina ndawonye.

Kodwa-ke, enganeni ene-craniosynostosis, eyodwa noma ngaphezulu yalezi zithungo ivala ngokushesha kakhulu, ihlanganisa amathambo ndawonye ngaphambi kokuba ubuchopho bukhule ngokugcwele. Kwenzekani-ke? Ikhanda liyayeka ukukhula ezindaweni lapho izithungo zivala khona ngokushesha kakhulu. Kodwa-ke, ikhanda liyaqhubeka nokukhula ezindaweni lapho izithungo zisavulekile. Yingakho izingane ezine-craniosynostosis zinesimo sekhanda esingavamile, zithatha izinhlobo ezahlukene zezimo.

Inkinga enkulu engaba khona kulokhu ukwanda kwengcindezi yangaphakathi kwekhanda. Cabanga nje, ubuchopho bomntwana buyaqhubeka nokukhula, kodwa akukho ndawo eyanele ngaphakathi kwekhanda ukuze bukhule. Bese ubuchopho bucindezelwa. Lokhu kucindezela okwandisiwe kunganciphisa ukukhula kobuchopho, kulimaze izicubu zobuchopho, ngaleyo ndlela kuthinte ukukhula komntwana. Yingakho kubaluleke kakhulu ukwelapha lesi simo ngokushesha.

Yiziphi izinhlobo ze-craniosynostosis?

Kunezinhlobo eziningana ze-craniosynostosis. Zinqunywa ngokuthi iyiphi i-suture ekhanda evala ngokushesha. Isimo sekhanda lomntwana siyashintsha ngokufanele.

• I-Sagittal craniosynostosis: Lolu uhlobo oluvame kakhulu.Lokhu kuthinta umthungo ophakathi phezulu ekhanda, oqala phambili uye emuva. Uma lo mthungo uvala ngokushesha kakhulu, ikhanda lomntwana liba nesimo eside nesincane (`scaphocephaly`) . Ibunzi lingase libonakale libanzi.
• I-Coronal craniosynostosis: Lokhu kuthinta enye yezicubu ezisuka ezindlebeni ziye phezulu ekhanda (kolunye uhlangothi noma zombili). Kulolu hlobo, ibunzi lomntwana lingase libe yisicaba ohlangothini olulodwa futhi ikhanda lingase libe nesimo esibanzi .
• I-Lambdoid craniosynostosis: Lokhu kuthinta umthungo ngemuva kwekhanda. Kulolu hlobo , ingemuva lekhanda lomntwana liba nesimo esiyisicaba (plagiocephaly) .
• I-Metopic craniosynostosis: Lokhu kuthinta umthungo osuka phezulu ekhaleni uye phezulu ebunzini. Kulolu hlobo, ikhanda lomntwana lingase libe nesimo esingunxantathu . Lingase libukeke njengomugqa ophakamayo phakathi ebunzini.

Sivame kangakanani lesi simo?

I-craniosynostosis akuyona into evamile kakhulu. Ngokwezibalo e-United States, lesi simo sithinta cishe ingane eyodwa kwezingu-2,500 . Lesi simo siyabonakala naseSri Lanka.

Ziyini izimpawu ze-craniosynostosis?

Uphawu oluyinhloko nolusobala kakhulu lwalesi simo ukuma okungavamile kogebhezi lomntwana. Ngokuvamile, amakhanda ethu ayindilinga. Kulesi simo, ezinye izingxenye zekhanda lomntwana zingase zibukeke kanje:

• Ukwelulwa
• Ukuba ngunxantathu
• Ukunciphisa
• Ukuthopha

Ngaphezu kwalokho, ezinye izici zingabonakala:

• Indawo ethambile yomntwana (i-fontanelle) ayikho noma incane kakhulu.
• Uma uthinta ikhanda lomntwana , kuzwakala sengathi umugqa oqinile, ophakanyisiwe lapho kukhona khona izithungo.
• Ukulahlekelwa ukulingana kwezici zobuso (isib., iso elilodwa libekwe phezulu noma phansi kunelinye).
• Ububanzi bekhanda lomntwana buncane kunobujwayelekile ngokweminyaka yakhe.

Ngezinye izikhathi, i-craniosynostosis ingahlotshaniswa nesinye isimo sempilo esiyisisekelo. Kulesi simo, ungase ube nezimpawu ezifana nalezi:

• Izimpawu zesifo sokuwa (`Ukuquleka`).
• Izinkinga ngentuthuko yobuchopho.
• Ukukhubazeka kokubona noma ubumpumputhe.

Yiziphi izimbangela ze-craniosynostosis?

Eqinisweni, abacwaningi abakazi kahle ukuthi yini ebangela lokhu. Ngezinye izikhathi kubangelwa ushintsho lwezakhi zofuzo olungahleliwe (ushintsho lwezakhi zofuzo noma ukushintshashintsha kwazo) . Akuvamile ukuthi lolu shintsho lwezakhi zofuzo luhlotshaniswe nomlando womndeni.

Odokotela bathole ukuthi lezi zinto zingaba nomthelela ekuthuthukisweni kwe-craniosynostosis:

• Ukucindezela okuvela ngaphandle kwekhanda ngesikhathi umntwana esesibelethweni.
• Ukukhubazeka ekukhuleni kwama-membrane azungeze isikhumba sekhanda kanye nesisekelo sekhanda.
• Isifo esiyisisekelo sezakhi zofuzo.

Yiziphi izimo zofuzo ezibangela i-craniosynostosis?

I-craniosynostosis ingenzeka njengophawu lwezimo ezithile zofuzo. Ezinye izibonelo yilezi:

• I-Apert syndrome
• I-Carpenter syndrome
• I-Crouzon syndrome
• I-Pfeiffer syndrome
• I-Saethre-Chotzen syndrome

Lawa amagama ezokwelapha ayinkimbinkimbi kancane, kodwa udokotela wakho uzowachaza ngokuningiliziwe.

Ingabe zikhona izinto eziyingozi?

Ucwaningo luthole ukuthi okulandelayo kungandisa ingozi yokuba nomntwana one-craniosynostosis:

• Isifo se-thyroid: Kwabomama abathola ukwelashwa kwesifo se-thyroid ngesikhathi sokukhulelwa.
• Imithi ethile: Kwabomama abaphuza imithi yokuzala efana ne -clomiphene citrate ngaphambi noma ngesikhathi sokukhulelwa kokuqala.

Kungakhathaliseki ukuthi ukhulelwe noma uhlela ukukhulelwa, kubaluleke kakhulu ukukhuluma nodokotela wakho mayelana nendlela yokugcina impilo enhle ngesikhathi sokukhulelwa.

Yiziphi izinkinga ezingaba khona ze-craniosynostosis?

Lesi simo singadala izinkinga ezithile, yingakho ukwelashwa okusheshayo kubalulekile.

• Ukwanda kwengcindezi ngaphakathi kwekhanda lomntwana (ingcindezi yangaphakathi kobuchopho).
• Ukubambezeleka kokukhula noma ukukhubazeka kwengqondo.
• Ubunzima bokuphefumula.

Ezinye izingane zingase zibe nezinkinga ngokuzethemba kanye nokubukeka komzimba , kungakhathaliseki ukuthi zinokungalingani kobuso noma isimo sekhanda esihlukile kunezinye izingane. Ezimweni ezinjalo, amaqembu okusekelana, ukwelulekwa, kanye nokwelashwa kwengqondo kungasiza ingane ukuba ibe nombono omuhle ngayo.

Odokotela bakuthola kanjani lokhu? (Ukuxilongwa)

Ngemva kokuzalwa kwengane yakho, udokotela uzokwenza ukuhlolwa ngokomzimba . Bazohlola izindawo ezithambile (ama-fontanelles) ekhanda lengane, kanye nanoma yiziphi izigaxa noma amaqhubu lapho izithungo zivaliwe khona. Bazolinganisa nobubanzi bekhanda lengane.

Uma kuvela ukungabaza kulezi zivivinyo, kungenziwa i-X-ray noma i-CT scan ukuqinisekisa ukuxilongwa.

Uma kungatholakali ekuzalweni, udokotela wakho angakuthola ngesikhathi sokuvakasha njalo kwengane ephilile njengoba ingane yakho ikhula. Ungase uqaphele ukuthi ikhanda lengane yakho alikhuli ngokushesha njengomzimba wayo wonke, noma ukuthi ayihlangabezani nezigaba zokukhula zeminyaka yayo.

Uma unenkinga ethile ngengane yakho, ungangabazi ukuyisho uma uya ehhovisi likadokotela. Udokotela uzokwenza izivivinyo ezidingekayo futhi anqume isimo esiqondile.

Yiziphi izindlela zokwelapha i-craniosynostosis?

Izindlela zokwelapha zincike ohlotsheni lwe-craniosynostosis, ubukhali besimo, kanye nezimpawu ezithinta ingane.

• Ukwelashwa Ngesigqoko Sokuzivikela: Ezinye izingane ezine-craniosynostosis encane zingafakwa isigqoko sokuzivikela esikhethekile sezokwelapha . Lesi sigqoko sicindezela kancane ekhanda, okusiza ukulungisa ukuma kwekhanda ngokuhamba kwesikhathi.
• Ukuhlinzwa: Ezimweni eziningi, ukwelashwa okuyinhloko kwalesi simo ukuhlinzwa. Ukuhlinzwa kwenziwa ukuze kulungiswe ukuma kwekhanda lomntwana, kuncishiswe ingcindezi ekhulayo ngaphakathi kwekhanda, futhi kuvunyelwe ubuchopho bomntwana ukuba bukhule. Uhlobo lokuhlinzwa kanye nesikhathi esingcono kakhulu sokukwenza kunqunywa udokotela ohlinzayo. Ukuhlinzwa kungenziwa phakathi nonyaka wokuqala womntwana .
• Ukwelashwa okusekelayo: Kungase kudingeke ezinye izindlela zokwelapha ezifana nokwelashwa ngokomzimba, ukwelashwa ngokomsebenzi, kanye nokwelashwa ngokukhuluma ukuze kusizwe ingane ifinyelele izigaba zokukhula ezifanele iminyaka yayo.

Ingabe ikhona imiphumela emibi yokuhlinzwa?

Imiphumela emibi evela ekuhlinzweni ayivamile. Kodwa-ke, ezimweni ezingavamile, lokhu kungenzeka:

• I-Air embolism (ibhamuza lomoya)
• Ukungalingani
• Ukopha okuvela enxebeni (`ukuphuma kwesilonda`), ukopha ngokweqile (kungadinga ukumpontshelwa igazi)
• Ihluli
• Ukukhubazeka kwamathambo noma ukungahleleki kahle
• Ukuvuza koketshezi lwe-cerebrospinal
• Ukushisa komzimba okuphezulu (i-hyperthermia)
• Ukutheleleka
• Isidingo sokuhlinzwa kwesibili
• Izimpawu zesifo sokuwa (`Ukuquleka`)

Nakuba lezi zinkinga zingavamile kakhulu, ngezinye izikhathi zingaba yingozi empilweni futhi ziholele ekufeni ngaphambi kwesikhathi.

Kuvamile ukuzizwa wesaba uma uzwa ngengane encane, ikakhulukazi ingane, ehlinzwa. Kodwa khumbula, odokotela bengane yakho bahlala bezama ukwenza okungcono kakhulu enganeni yakho. Ithimba lezokwelapha, kuhlanganise nodokotela abahlinzayo, baqeqeshwe kakhulu futhi banolwazi kulezi zinhlobo zokuhlinzwa. Benza lokhu kuhlinzwa ngokucophelela okukhulu, benciphisa ingozi yezinkinga.

Kufanele ngimbone nini udokotela?

Bonana nodokotela ngokushesha uma ingane yakho ibonisa izimpawu ze-craniosynostosis:

• Uma ikhanda lingekho yindilinga, noma linesimo esihlukile kunokulindelekile .
• Uma izinyathelo zokuthuthukiswa zibambezeleka .
• Uma kunezinsika eziphakeme ekhanda.

Uma ingane yakho isivele itholakale ine-craniosynostosis, uma ithola izimpawu zesifo sokuwa noma ubunzima bokuphefumula , shayela ku-911 (1990 Suwaseriya eSri Lanka) ngokushesha noma uye ekamelweni lezimo eziphuthumayo eliseduze.

Yini okufanele ngiyibuze udokotela wami?

Ungabuza udokotela wengane yakho imibuzo efana nale:

• Yini okungenzeka kakhulu ukuthi iyimbangela yalesi simo esibizwa ngokuthi i-craniosynostosis?
• Yikuphi ukwelashwa okuncomayo?
• Ziyini izingozi zokuhlinzwa?
• Kwenzekani uma sinquma ukungahlinzwa?
• Ingabe ukuma kwekhanda lomntwana wami kuyawuthinta umsebenzi wobuchopho?
• Uma nginenye ingane, mangakanani amathuba okuthi leyo ngane nayo izoba nalesi simo?

Liyini ikusasa lalaba bantwana? (Isibikezelo)

Ukubikezela kwengane kungahluka kuye ngempilo yayo yonke kanye nokuthi zingaki izithungo ezivalekile ekhanda. Iningi lezingane lingalindela ukululama okuhle uma zixilongwa futhi zelashwa kusenesikhathi. Ukwelashwa, ikakhulukazi ngonyaka wokuqala wengane, kunganciphisa izinkinga zokukhula.

Uma i-craniosynostosis iyisibonakaliso sesimo sofuzo esingaphansi, ikusasa lomntwana lingase lihluke kancane. Udokotela wakho angakunikeza ulwazi olungcono kakhulu ngalokhu.

Iyini isikhathi sokuphila somuntu one-Craniosynostosis?

Iningi lezingane ezitholakale zine-craniosynostosis liphila isikhathi esijwayelekile , ikakhulukazi uma odokotela bethola futhi belapha lesi simo eminyakeni embalwa yokuqala yokuphila. Kodwa-ke, isikhathi sokuphila sengane ngayinye singahluka kuye ngokuthi lesi simo sibucayi kangakanani.

Ingabe i-Craniosynostosis ingavinjelwa?

Okwamanje ayikho indlela eyaziwayo yokuvimbela lesi simo. Ukuhlolwa kofuzo kwangaphambi kokubeletha okwenziwa ngesikhathi sokukhulelwa kungakhomba izinguquko zofuzo ezingaholela kulesi simo. Umeluleki wezakhi zofuzo angakufundisa ngezingozi zakho zofuzo ngaphambi kokuba ukhulelwe kanye nezinketho zokwelapha uma ingane yakho izalwa nalesi simo.

Okokugcina, izinto okufanele uzikhumbule (Umyalezo Wokuya Ekhaya)

Njengabazali abasha, kuvamile ukuzizwa ukhathazekile futhi wesaba lapho uthola ukuthi ingane yakho inesimo sempilo esifana ne-craniosynostosis. Kodwa-ke, ithimba lezokwelapha lengane yakho lizohlonza lesi simo futhi lenze uhlelo lokwelapha ukuvimbela izinkinga ezingathinta ukukhula kobuchopho bengane yakho. Ngokwelashwa okufika ngesikhathi, iningi lezingane ezine-craniosynostosis lizokhula liphilile futhi liphilile. Uma unemibuzo mayelana nokuthi ungayisiza kanjani ingane yakho, khuluma nodokotela wengane yakho. Awuwedwa, futhi odokotela, abahlengikazi, futhi, uma kudingeka, abeluleki bakhona ukukusiza.

I- Craniosynostosis, ugebhezi, ikhanda lomntwana, imithungo, ukukhula kobuchopho, ukuhlinzwa, ukukhubazeka kokuzalwa, ukuma kogebhezi, i-fontanelle