Ingabe uhlala ukhathele? Ake sixoxe nge-Idiopathic Hypersomnia?

Kuvamile ukuthi sonke sizizwe sikhathele futhi silele ngezinye izikhathi. Kodwa, ingabe uzizwa ulele futhi ukhathele kakhulu usuku lonke, ngisho nangemva kokulala amahora amaningi ebusuku? Ingabe ukuthola kunzima ukuvuka ekuseni? Ingabe uzizwa sengathi awutholi ubuthongo obanele ngisho nangemva kokusetha ama-alamu amaningi? Khona-ke lokhu kungaba yinto ebalulekile kuwe. Namuhla, sizokhuluma ngalesi simo esibizwa ngokuthi "idiopathic hypersomnia," noma njengoba odokotela besibiza kanjalo.

Kuyini i-Idiopathic Hypersomnia?

Kalula nje, `(Idiopathic Hypersomnia)` yisifo sokulala lapho uzizwa udinga ukulala ngokweqile. Okwenzekayo ukuthi, noma ulala isikhathi eside ngangokunokwenzeka ebusuku, okungukuthi, amahora angaphezu kwayisishiyagalolunye, awuzizwa uphumule noma uqabulekile lapho uvuka ekuseni. Igama elithi "idiopathic" lisho ukuthi imbangela eqondile yalesi simo ayaziwa .

Uma unalesi simo, ungase uvuke ekuseni uzizwa ungakhululekile futhi ungakhululekile. Kungase kudingeke usethe ama-alamu amaningi futhi uzabalaze ukuvuka embhedeni. Ungase futhi uzizwe ukhathele ngisho nangemva kokulala. Ukuzizwa ukhathele usuku lonke kungaba yisithiyo esikhulu emisebenzini yakho yansuku zonke.

Kodwa ungakhathazeki, ungacela usizo kudokotela ukuze ulawule lezi zimpawu.

Kungavamile kangakanani lesi simo?

Ngokusho kocwaningo olwenziwe e-United States, lesi simo (i-Idiopathic Hypersomnia) sithinta abantu abacishe babe yishumi kwabayikhulu lezinkulungwane. Lokho kusho ukuthi yisimo esingavamile.

Ziyini izimpawu zalokhu?

Izimpawu eziyinhloko zesimo esithi ``Idiopathic Hypersomnia`` yilezi:

• Ukulala ngokweqile emini: Ungalala nganoma yisiphi isikhathi sosuku.
• Ukulala amahora angaphezu kwe-11 esikhathini samahora angama-24: Lokhu kuhlanganisa ukulala emini. Noma ukulala amahora angaphezu kwe-9 ebusuku.
• Ubunzima bokuvuka: Ngisho nangemva kokulala kahle ebusuku, kunzima ukuvuka ekuseni. Uzizwa ungaphefumulelwe futhi udidekile uma uvuka ('sleep inertia').

Lezi zimpawu zingenza kube nzima kakhulu ukwenza imisebenzi yansuku zonke. Ngokuvamile, udokotela uzoqinisekisa lokhu kutholakala uma lezi zimpawu zikhona izinsuku eziningana ngesonto, noma cishe nsuku zonke, okungenani izinyanga ezintathu. Ngezinye izikhathi, lezi zimpawu zingase zibe khona iminyaka eminingi, futhi kungase kungabi khona ukuxilongwa okuqondile.

Ngisho noma uvukile, ngaphezu kokuzizwa ukhathele, ungase uzizwe izinto ezifana nalezi:

• Inkungu yobuchopho: Ubunzima bokucabanga kahle.
• Ukudideka: Kufana nokuthi awukwazi ukuthola ukuthi kwenzekani.
• Ukucindezeleka: Ukuzizwa ungajabule, sengathi unesithukuthezi ngakho konke.
• Isiyezi.
• Ubuhlungu bekhanda.
• Ukucasuka.

Iyini imbangela yalokhu?

Imbangela eqondile ye-Idiopathic Hypersomnia ayikaziwa . Ucwaningo luyaqhubeka, kodwa ezinye izifundo ziphakamisa ukuthi izici ezilandelayo zingadlala indima:

• Izinhlobo/izinguquko zofuzo: Izinguquko kwezinye izakhi zofuzo zingaphazamisa indlela amangqamuzana akho obuchopho axhumana ngayo futhi zilawule umjikelezo wakho wokulala nokuvuka.
• Impendulo engavamile yesistimu yokuzivikela komzimba: Isistimu yakho yokuzivikela yomzimba ingase ihlasele ngephutha amaseli anempilo ohlelweni lwezinzwa, iwabone njengosongo.

Yiziphi izinto ezibangela lesi simo?

Izinto ezibangela lokhu yizinto ezingabangela noma zibhebhethekise izimpawu. Idiopathic Hypersomnia ingabangelwa yilokhu okulandelayo:

• Izinguquko ezisheshayo emjikelezweni wakho wokulala nokuvuka.
• Ukuzikhandla ngokweqile.
• Ukubulala izinzwa okuvamile kwento efana nokuhlinzwa.
• Ukutheleleka ngegciwane.
• Ukulimala ekhanda.

Ubani osengozini enkulu yalokhu?

Ungase ube nokuthambekela kwezakhi zofuzo ku-Idiopathic Hypersomnia. Lokhu kusho ukuthi uma othile emndenini wakho enalesi simo noma esinye isifo esihlobene nokulala, unethuba elincane lokuba naso.

Yiziphi izinkinga ezingabangelwa yilokhu?

Uma uhlala ukhathele, kuyinto evamile ukuzizwa sengathi awukwazi ukwenza konke okusemandleni akho. Izinto ezinjengalezi zingaba yinselele kuwe:

• Ukwenza imisebenzi njengoba kulindelekile emini (njengemisebenzi yansuku zonke, ukuhlala ugxile entweni eyodwa).
• Ukugcina ubudlelwano nabantu obathandayo.
• Ukufeza imithwalo yemfanelo emsebenzini, esikoleni, kanye nasempilweni yomuntu siqu.
• Ukugcina impilo yakho yengqondo kanye nokulinganisela ngokomzwelo.

Cabanga ngakho, ukushayela imoto noma ukusebenzisa imishini esindayo kudinga ukunaka kwakho okugcwele. Uma ulala ngesikhathi esinjengalesi, kungaba yingozi kuwe nakwabanye.

Kutholakala kanjani lokhu?

Udokotela uzokuxilonga futhi enze izivivinyo ezidingekayo ukuze anqume ukuthi une-Idiopathic Hypersomnia. Ngesikhathi sokuhlolwa, udokotela uzolalela ngokucophelela izimpawu zakho futhi angase akucele ukuthi uphendule imibuzo ebizwa ngokuthi i-Epworth Sleepiness Scale, elinganisa ukuthi uzizwa ulele kangakanani.

Ungase futhi ucelwe ukuthi ugcine ijenali yokulala amasonto ambalwa. Lokhu kuzokusiza ukuthi ulandelele izikhathi olala ngazo nokuvuka ngazo. Udokotela wakho angakunikeza nedivayisi encane ebizwa ngokuthi i-actigraph ukuze uyigqoke engalweni yakho. Lokhu kuzokusiza ukuthi ulandelele amaphethini akho okulala.

Ngaphezu kwalokho, izifundo zokulala ezithileIsibonelo, i-polysomnography noma i-multiple sleep latency test (MSLT) ingenziwa. Udokotela uzobuyekeza imiphumela yalezi zivivinyo futhi enze ezinye izivivinyo ukuze akhiphe ezinye izimo ezingase zibangele izimpawu ezifanayo.

Ingabe ikhona ikhambi eliphelele lalokhu?

Okwamanje akukho ukwelashwa kwesimo esithi "Idiopathic Hypersomnia." Kodwa-ke, kunezindlela zokwelapha ezingasiza ekulawuleni izimpawu.

Kuphathwa kanjani lokhu?

Imithi ivame ukusetshenziswa ngempumelelo ukulawula izimpawu ze-"Idiopathic Hypersomnia."

Ngaphezu kwalokho, kukhona ukwelashwa kwengqondo okubizwa ngokuthi "Cognitive Behavioral Therapy for Hypersomnia (CBT-H)". Lokhu kwenzelwe ukusiza ngesimo esithi "Idiopathic Hypersomnia". Uma kusetshenziswa kanye nemithi, lokhu kwelashwa kungathuthukisa ikhwalithi yokulala iyonke kanye nokusebenza kwansuku zonke.

Imithi yokwelapha i-idiopathic hypersomnia

Kunezinhlobo eziningana zemithi engasetshenziswa ukwelapha lesi simo:

• Izidakamizwa ezivuselela uhlelo lwezinzwa oluphakathi (`izikhuthazi zesistimu yezinzwa ephakathi`) - isibonelo, izidakamizwa ezifana `(ama-amphetamine)`.
• Izidakamizwa ezivuselela isimiso sezinzwa esiyinhloko ezingezona ezeqembu le-amphetamine - isibonelo, `(modafinil)`.
• Izidambisi-ndlela zesimiso sezinzwa esiphakathi - isibonelo, i-sodium oxybate (lesi yisidakamizwa esivunyelwe yi-FDA).
• Abaphikisi be-GABA receptor - isibonelo, i-flumazenil.

Imiphumela emibi yale mithi iyahlukahluka. Uma okwamanje uthatha eminye imithi, kubalulekile ukukhuluma nodokotela wakho ukuze ubone ukuthi ingase ihlangane yini nomuthi omusha. Ungashintshi uhlelo lwakho lwemithi ngaphandle kwemvume kadokotela wakho.

Udokotela angase akucele ukuthi uthathe i-Epworth Sleepiness Scale ngaphambi kokuqala ukwelashwa nangesikhathi sokwelashwa ukuze abone ukuthi ukwelashwa kusebenza kahle kangakanani.

Yini ongayilindela uma uphila nalesi simo?

Kuvamile ukuzizwa ukhungathekile uma uphila ne-Idiopathic Hypersomnia. Ngisho noma ulala amahora amaningi ubusuku ngabunye, usakhathele emini. Lokhu kungenza kube nzima ukwenza imisebenzi yansuku zonke, njengokufika esikoleni noma ukusebenza ngesikhathi.

Udokotela wakho angase akunike imithi yokukusiza uhlale uphapheme emini. Kungathatha isikhathi ukuthola imithi efanele kanye nomthamo wakho, futhi kungadingeka uzame imithi eminingana ehlukene. Udokotela wakho uzokubheka njalo ukuze abone ukuthi ukwelashwa kusebenza kanjani kuwe.

Kufanele ngimbone nini udokotela?

Uma ulala kahle ebusuku kodwa uzizwa ukhathele kakhulu noma ulele emini, kubalulekile ukubona udokotela . Isibonelo, uma uzithola ulala ekilasini, emsebenzini, noma ukhuluma nabangani, ungakushayi indiva lokho. Udokotela angakusiza ukuthi uphathe izimpawu zakho ngezindlela ezizokusiza ukuthi uhlale uphapheme.

Yimiphi imibuzo okufanele ngiyibuze udokotela?

Uma ubona udokotela wakho, ungabuza imibuzo efana nale:

• Kungani ngizizwa ngikhathele kangaka emini?
• Ingabe kufanele ngishintshe isimiso sami sokulala?
• Hlobo luni lokwelashwa olunconywayo?
• Ingabe ikhona imiphumela emibi yalokhu kwelashwa?
• Kufanele ngiyithathe nini imithi oyinikezile?

Ngisho noma ulala kahle ebusuku, kungaba nzima ukujabulela impilo lapho umzimba wakho ungakutholi ukuphumula okudingayo. I-Idiopathic Hypersomnia ingakwenza uphuthelwe yimihlangano, uhlale kuze kube sebusuku, ulahlekelwe ukugxila, futhi ngezinye izikhathi uzizwe sengathi uvuka embhedeni. Ungase uzizwe sengathi ugwema ukuxhumana nabantu ngenxa yokwesaba ukulala ngenkathi ukhuluma nabangani. Konke lokhu kungaba nomthelela omkhulu empilweni yakho yengqondo.

Ngenhlanhla, akudingeki uphile nalezi zimpawu. Udokotela angakusiza ukuthi uthole ukuthi kungani ungakutholi ukuphumula okudingayo futhi akunikeze ukwelashwa okungakusiza uhlale uphapheme.

Ekugcineni, umyalezo okufanele uwuthathe uye ekhaya:

Uma uzizwa ulele futhi ukhathele ngendlela engavamile usuku lonke, ungamane nje ukukubheka “njengokudinwa.” Kungaba uphawu lwesimo sezokwelapha esiyimfihlo. Idiopathic Hypersomnia ingenye yalezo zimo.

Khumbula, kunezindlela zokwelapha lokhu. Ukukhuluma nodokotela ngezimpawu zakho kuyisinyathelo sokuqala. Ngokuthola ukuxilongwa okufanele kanye nokwelashwa okufanele, izinga lempilo yakho lingathuthuka nakanjani (ngokuqinisekile). Awuwedwa, futhi ungesabi ukucela usizo!

Ukulala , ukozela, ukozela ngokweqile, ukozela okungachazeki, i-idiopathic hypersomnia, ukungakwazi ukulala, izimpawu