Ingabe uhlala ukhathele? Uzizwa uvilapha? Kungaba yi-'Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)'!

Ingabe nawe uzizwa ukhathele kakhulu futhi ukhathele kakhulu usuku lonke? Ingabe ngezinye izikhathi uzizwa ubuthakathaka kakhulu ukuba uvuke embhedeni? Ngisho noma ulala kahle futhi uphumule usuku lonke, lokhu kukhathala akupheli? Lokhu kungaba yinto ebalulekile kuwe. Namuhla sizokhuluma ngesimo esibizwa ngokuthi i-'Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), abanye abasibiza ngokuthi i-'Chronic Fatigue Syndrome (CFS)'.

Kuyini lokhu 'ME/CFS'? Kalula nje...

Kalula nje, i-ME/CFS yisimo lapho uzizwa ukhathele kakhulu futhi ukhathele, kuze kube yilapho kukuvimbela ukwenza imisebenzi yakho yansuku zonke, ngezinye izikhathi ngisho nokuvuka embhedeni ukuze wenze imisebenzi emincane. Into ebalulekile ukuthi lokhu kukhathala akupheli kungakhathaliseki ukuthi uthola ukuphumula noma ubuthongo obungakanani. Futhi, lokhu kukhathala kuba kubi kakhulu uma wenza ngisho nomsebenzi omncane kakhulu womzimba, noma uma ucindezelekile engqondweni (isibonelo, uma ucabanga kakhulu ngento ethile). Lezi zimpawu zivame ukuhlala izinyanga eziyisithupha noma ngaphezulu.

Odokotela ngezinye izikhathi banikeza lesi simo amanye amagama, okuyilawa:

• ``I-Myalgic Encephalomyelitis (ME)''
• "Isifo Sokungabekezeleli Ukuzikhandla Okuhlelekile (SEID)"

Ungakhathazeki uma uzwa lokhu, lokhu kufana nesimo esifanayo.

Sivame kangakanani lesi simo esibizwa ngokuthi `ME/CFS`?

Empeleni lesi yisimo esivame kakhulu kunalokho ongakucabanga. Izigidi zabantu emhlabeni wonke zihlushwa yilesi simo. Kodwa into edabukisayo ukuthi, abantu abaningi bahlushwa yilesi simo, kodwa asihlolwa kahle. Esinye isizathu ukuntuleka kolwazi ngaso. Esinye ubunzima abanye abantu abanabo ekufinyeleleni izikhungo zezokwelapha.

Ziyini izimpawu ze-'ME/CFS'? Bheka ukuthi unazo yini lezi...

Uphawu oluyinhloko lwe-ME/CFS ukukhathala okukhulu, okuqhubekayo . Okusho ukuthi, ukukhathala okuhlala isikhathi esingaphezu kwezinyanga eziyisithupha futhi okungaqedwa ukuphumula noma ukulala.

Ngaphezu kwalokho, ungabona nezimpawu ezifana nalezi:

• Izinkinga zokulala: Ukungakwazi ukulala kahle, ukuvuka ngisho nalapho uvuka, noma ukuzizwa ukhathele kungakhathaliseki ukuthi ulele kangakanani.
• Ikhanda elibuhlungu: Ikhanda elibuhlungu elivame ukwenzeka, ngezinye izikhathi elibi kakhulu.
• Ubuhlungu bamalunga: Ubuhlungu emalungeni omzimba.
• Ubuhlungu bemisipha: Ubuhlungu bemisipha, ubuhlungu bomzimba.
• Ubunzima bokucabanga: Ubunzima bokucabanga ngokucacile, ubunzima bokugxilisa ingqondo, ukulahlekelwa yinkumbulo. Abanye abantu bakubiza nangokuthi "inkungu yobuchopho."

Ngaphezu kwalokhu, kungase kube nezinye izimpawu:

• Izinkinga zokubona.
• Ukuzizwa ubanda, mhlawumbe ujuluka ebusuku.
• Ama-lymph node avuvukele.
• Ukungakhululeki esiswini: Izimpawu ezifana ne-Irritable Bowel Syndrome (IBS), njengokuqunjelwa, ukuzizwa ugcwele, izinhlungu zesisu, ukuqunjelwa noma uhudo.
• Ukucindezeleka, ukucasuka, ukwesaba, nokukhathazeka.
• Ukungazweli emilenzeni, ukungazweli emlonyeni.
• Ukuzungeza, ukuba nekhanda elikhanyayo, futhi ngezinye izikhathi ukuquleka.

Cabanga nje, kuthiwani uma ubunezinhlungu ezifanayo ozizwayo uma unomkhuhlane bese uzizwa ukhathele izinyanga, mhlawumbe ngisho neminyaka? Yilokho umuntu one-ME/CFS azizwa ngakho.

Into ebalulekile ukuthi lezi zimpawu zingahluka kumuntu nomuntu. Abanye abantu bangase babe nazo ezincane kancane, abanye abantu bangase babe nazo eziningi kakhulu. Futhi, lezi zimpawu zingase zibe zincane kwezinye izinsuku zibe ziningi nakwezinye izinsuku.

Okuphawulekayo kakhulu yisimo esibizwa ngokuthi 'i-Post-Exertional Malaise (PEM).' Lokhu kusho ukuthi uma wenza ngisho nomsebenzi omncane womzimba (isib. ukuhamba ibanga elifushane, ukwenza umsebenzi omncane wasekhaya) noma ukuzikhandla kwengqondo (isib., ukufundela ukuhlolwa, ukwenza isinqumo esibalulekile), izimpawu zakho (ikakhulukazi ukukhathala) ziba zimbi kakhulu amahora, noma ngisho nezinsuku, ngemva kwalokho. Lesi yisici esibalulekile se-'ME/CFS'.

Kungani lokhu 'ME/CFS' kuvela? Iyini imbangela?

Odokotela abakakazi kahle ukuthi yini ebangela i-ME/CFS. Kodwa-ke, ucwaningo seluthole izimbangela eziningana ezingaba khona:

• Umfutho wegazi ophansi .
• Ukucindezeleka .
• Ngemva kokutheleleka (isib. ukutheleleka ngegciwane).
• Izinguquko zesimiso somzimba sokuzivikela : Lezi izinguquko ohlelweni ezivikela imizimba yethu ezifweni nasekucindezelekeni.
• Izinguquko endleleni imizimba yethu ekhiqiza futhi isebenzisa ngayo amandla .

Lawa amaphuzu ayinhloko okucatshangwa ngawo njengamanje, kodwa ucwaningo olwengeziwe luyaqhubeka.

Ubani osengozini enkulu yokuthola i-ME/CFS?

Nakuba lesi simo singakhula kunoma ubani, abanye abantu basengozini enkulu:

• Abesifazane banamathuba amaningi okubona lesi simo kunabesilisa.
• Nakuba ingakhula ezinganeni nakubantu abadala abasebasha, ivame kakhulu kubantu abadala abaneminyaka ephakathi kuka-40 no-60 .
• Kutholakale ukuthi kungase kube nokuxhumana kwezakhi zofuzo. Lokhu kusho ukuthi uma othile emndenini wakho enalesi simo, ungase ube nethuba elikhulu lokuba naso. Kodwa-ke, izakhi zofuzo ezithinta lesi sifo azikatholakali.

Yiziphi ezinye izinkinga ezingase zivele ngenxa ye-ME/CFS?

Ukukhathala okukhulu okubangelwa yilesi simo kungenza kube nzima kakhulu, noma kungenzeki nhlobo, kwabanye abantu ukwenza imisebenzi yansuku zonke. Ucwaningo lubonise ukuthi cishe ingxenye yabantu abane-ME/CFS abakwazi ukwenza umsebenzi wesikhathi esigcwele noma wesikhashana.

Cabanga nje, impilo ingaba nzima kangakanani ukube ubungenakukwazi ngisho nokuvuka ekuseni wenze inkomishi yetiye, ukube ubungenakukwazi ukunakekela izingane zakho, ukube ubungenakukwazi ukuya emsebenzini?

Futhi, ukucindezeleka okubangelwa yi-ME/CFSUkucindezeleka kungaba khona. Kuvamile ukuzizwa uphansi uma ukhathele njalo, usezinhlungwini, futhi ungakwazi ukwenza izinto ozifunayo. Uma uzizwa uphansi, khuluma nodokotela wakho ngakho. Kunezindlela ezinhle zokwelapha lokhu.

Odokotela baluthola kanjani lolu hlobo lwesifo olubizwa ngokuthi `ME/CFS`?

Akukho ukuhlolwa okuqondile kokuxilongwa kwe-ME/CFS. Udokotela uzohlonza lesi simo ngokukuhlola, ukulalela ngokucophelela izimpawu zakho, nokuhlola impilo yakho yengqondo.

Udokotela angase futhi enze ukuhlolwa kwegazi kanye nokuhlolwa komchamo ukuqinisekisa ukuthi azikho ezinye izimo ezibangela izimpawu ezifanayo.

Kunezinto eziningana ezibalulekile odokotela abazibhekayo uma besola ukuthi une-ME/CFS (izindlela zokuxilonga). Lezi yizi:

• Kumelwe ukuba kukhona ukukhathala okukhulu okuhlale okungenani izinyanga eziyisithupha .
• Lokhu kukhathala akunciphi ngisho nangemva kokuphumula noma ukulala .
• Ubunzima bokulala kahle nokuphumula .
• Ukukhathala kuyanda ngokuzikhandla ngokomzimba noma ngokwengqondo (lena yi-'Post-Exertional Malaise - PEM' esikhulume ngayo ngaphambili).
• Ngezinye izikhathi, kungase kube nokungakhululeki lapho umi noma uhleli (`ukungabekezelelani kwamalunga`) kanye/noma izinkinga zokucabanga kanye nenkumbulo (`umsebenzi wokuqonda`).

Kungemva kokucabangela zonke lezi zici lapho udokotela enquma khona ukuthi une-ME/CFS noma cha.

Yiziphi izindlela zokwelapha i-ME/CFS?

Umgomo oyinhloko wokwelapha i-ME/CFS ukunciphisa izimpawu zakho nokukusiza uphile ngendlela evamile ngangokunokwenzeka. Abanye abantu bangase bangakwazi ukubuyela empilweni yabo ephelele ngaphambi kokuba babe nesifo. Kodwa-ke, ukwelashwa kunganikeza impumuzo ebalulekile.

Kunezindlela eziningana zokwelapha eziyinhloko:

1. Ukushintsha imikhuba yokulala ('Izinguquko zesimiso sokulala')

2. Imithi

3. Ukuphathwa kwemisebenzi (okubizwa nangokuthi 'ijubane')

Ake sixoxe ngemininingwane eminingi ngalezi zinto.

1. Ukushintsha imikhuba yokulala (ukujwayela ukulala kahle - `Ukuhlanzeka Kokulala`)

Ngaphambi kokuba udokotela wakho akunike imithi, angase akucebise ukuthi wenze izinto ezilula ezizokusiza ulale kangcono, njengokuthi:

• Lala ngesikhathi esibekiwe, uvuke ngesikhathi esibekiwe. Ukwenza lokhu ngesikhathi esifanayo nsuku zonke kuzosiza iwashi lakho lomzimba ukuthi liqale ukusebenza kahle.
• Uma ulala emini, ungalali isikhathi esingaphezu kwemizuzu engama-30. Ukulala isikhathi eside emini kungenza kube nzima ukulala ebusuku.
• Sebenzisa umbhede wakho nekamelo lakho lokulala kuphela uma ulala futhi wenza imisebenzi yocansi. Gwema ukubuka i-TV, ukusebenzisa ifoni yakho, noma ukusebenza uhleli embhedeni. Kungumqondo omuhle ukususa izinto zikagesi ekamelweni lokulala.
• Gwema ukudla ukudla okuningi ngaphambi kokulala.Futhi, gwema utshwala kanye ne-caffeine (etholakala etiyeni nasekhofini) ngaphambi kokulala.

Yilokhu esikubiza ngokuthi 'ukuhlanzeka kokulala' noma 'imikhuba emihle yokulala'.

2. Imithi

Kuye ngezimpawu zakho, udokotela wakho angancoma imithi elandelayo:

• Kwezinhlungu: Iziqeda-buhlungu ezifana nemithi elwa nokuvuvukala engeyona eye-steroidal (ama-NSAID)`.
• Ngokulala, ubuhlungu, kanye nokukhathala: Amanye ama-antidepressant, njenge-antidepressants (ama-tricyclics).
• Ukuqeda ukucindezeleka nobuhlungu: Imithi efana ne-`Selective serotonin reuptake inhibitors (SSRI)` kanye ne-`Serotonin-norepinephrine reuptake inhibitors (SNRI)`.
• Uma kukhona ukutheleleka: Ama-Antiviral.
• Thuthukisa ukusebenza kwesimiso somzimba sokuzivikela: I-Intravenous immunoglobulin (IVIG).
• Uma ukhathele: `Ama-Corticosteroids` (lawa kufanele asetshenziswe ngokucophelela okukhulu futhi kuphela ngokweseluleko sikadokotela).

Akuyona yonke le mithi esebenzela wonke umuntu. Udokotela wakho uzonquma ukuthi yimuphi umuthi okulungele wena. Imithi emisha nayo iyacwaningwa.

3. Ukuphathwa kwemisebenzi (`Ukuphathwa kwemisebenzi` - 'isivinini')

Njengoba sishilo ngaphambili, izimpawu ze-ME/CFS ziyanda ngenxa yokuzikhandla ngokomzimba noma ngokwengqondo (Post-Exertional Malaise - PEM). Njengokwelapha lokhu, odokotela bafundisa indlela ebizwa ngokuthi "i-pacing." "I-Pacing" isho nje ukulinganisela amazinga akho okuphumula kanye nomsebenzi.

Njengoba uzijwayeza "ukuhamba ngesivinini," ufunda ukuthi "imikhawulo" yakho iyini. Cabanga ngale mikhawulo njengothango. Kufanele uzame ukuhlala ngaphakathi kwemingcele ephephile yalokho umzimba wakho ongakuthwala. Uma uphuma kule mingcele, okungukuthi, uma uzicindezela ngaphezu kwemingcele yakho, umzimba wakho ngeke usakwazi ukubhekana nayo. Lokhu kungenza izimpawu zakho zibe zimbi kakhulu.

Udokotela wakho angakusiza ukuthi uthole ukuthi imiphi imikhawulo yakho yomzimba neyengqondo. Kungaba usizo ukugcina idayari noma ijenali yemisebenzi oyenzayo nokuthi uzizwa kanjani ngemva kwayo. Uma usuyazi imikhawulo yakho, ungahlela imisebenzi yakho ukuze ihlale ngaphakathi kwaleyo mikhawulo.

Isibonelo, uma uthola ukuthi uzizwa ukhathele ngemva kokuhamba imizuzu eyi-15, kufanele uzame ukuhamba imizuzu eyi-10 kuphela ngosuku olulandelayo bese uthatha ikhefu. Isihluthulelo "sokuhamba ngesivinini" ukulalela umzimba wakho kancane kancane nokuqaphela imikhawulo yakho.

Ukuzivocavoca okunzima kakhulu, njengokuzivocavoca nge-aerobic, kungenza izimpawu ze-ME/CFS zibe zimbi kakhulu. Ngakho-ke, khuluma nodokotela wakho ngokuthi yikuphi ukuzivocavoca okuphephile nokufanelekile kuwe.

Ingabe i-ME/CFS ingavinjelwa?

Ngeshwa, okwamanje ayikho indlela eyaziwayo yokuvimbela i-ME/CFS.

Yini okufanele umuntu one-ME/CFS ayilindele?

Akukho ukwelashwa kwe-ME/CFS. Kodwa-ke, izimpawu zingalawulwa ngokushintsha ubuthongo, ukuphathwa komsebenzi (ijubane), kanye nemithi. Umgomo wokwelashwa ukusiza ukunciphisa izimpawu ngangokunokwenzeka nokuthuthukisa ikhwalithi yokuphila.

Ukwelashwa Kokuziphatha Kokuqonda (i-CBT) kuye kwabonakala kuwusizo kubantu abaningi abane-ME/CFS. Kubasiza ukuthi babhekane kangcono nezimpawu zabo kanye nemicabango kanye nokuziphatha okuholela kuzo.

Kudingeka uqaphele kakhulu ukuthi ungasebenzi ngaphezu kwamandla akho. Uma ukhathele ngokomzimba nangokwengqondo, "ijubane" - okungukuthi, ukuthatha ikhefu phakathi, ukushintshana ngomsebenzi womzimba nomsebenzi wengqondo - kungaba usizo kakhulu.

Udokotela wakho angase futhi asikisele ukuthi ujoyine iqembu lokusekelana nabanye abantu abane-ME/CFS. La maqembu angakunikeza isikhuthazo esiningi, ulwazi, kanye namathuba okwabelana ngolwazi kanye nokuhlangenwe nakho ngesimo sakho.

Iyini inhloso ye-ME/CFS?

Ngokwelashwa, izimpawu eziningi ze-ME/CFS ziyathuthuka ngezinga elithile. Kodwa-ke, abanye abantu bangase bangaphinde babuyele empilweni yabo yangaphambi kwezimpawu. Indlela lesi simo esithinta ngayo umuntu ngamunye ihlukile. Kungcono ukukhuluma nodokotela wakho ngesimo sakho kanye nesimo sakho.

Kufanele ubonane nini nodokotela?

Uma unezimpawu ze-ME/CFS (ikakhulukazi ukukhathala okuhlala isikhathi esingaphezu kwezinyanga eziyisithupha), qiniseka ukuthi ubona udokotela. Udokotela wakho uzohlola izimpawu zakho futhi athuthukise uhlelo lokwelashwa ukuze akusize uthole impumuzo.

Ngezinye izikhathi, uma ukhathele kakhulu ukuba uvuke embhedeni, ukubona udokotela kungaba yinto enkulu. Ezimweni ezinjalo, ungangabazi ukuchazela udokotela wakho ngocingo ukuthi izimpawu zakho zikuthinta kanjani. Udokotela wakho angase akwazi ngisho nokukunikeza 'i-aphoyintimenti ebonakalayo' ukuze ukwazi ukuxhumana usekhaya lakho.

Ngokuqaphela lesi simo kusenesikhathi bese uqala ukwelashwa, ungathola impumuzo ngokushesha.

Yimiphi imibuzo okufanele ngiyibuze udokotela wami?

Uma uya kudokotela, ungabuza imibuzo efana nale:

• Hlobo luni lokwelashwa olungincomayo?
• Ingabe ikhona imiphumela emibi yokwelashwa?
• Ngingayithola kanjani imikhawulo yomsebenzi wami?
• Uma ngizizwa ngiphilile ngokwanele, ngingasebenza ngaphezu kwemingcele yami?
• Ngingayithuthukisa kanjani imikhuba yami yokulala ('ukuhlanzeka kokulala')?

Buza imibuzo efana nalena ukuze uqonde kangcono isimo sakho.

Umyalezo Wokugcina Wokuya Nasekhaya

I-Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) iyisimo esisongela ukuphila futhi esinzima ngempela. Kodwa awuwedwa.Uma uqonda lesi simo futhi usiphatha kahle, ungakwazi ukulawula izimpawu futhi uphile impilo engcono.

• Uma ukhathala njalo okungapheli ngokuphumula , ungakushayi indiva. Funa iseluleko sezokwelapha.
• Funda indlela ebizwa ngokuthi "ijubane" bese usebenzisa amazinga akho amandla ngokucophelela.
• Zama ukulala kahle ebusuku .
• Uma udinga usizo, ungabi namahloni okucela usizo emndenini, kubangani nakodokotela .
• Amaqembu okusekelana angakunikeza amandla amakhulu engqondo.

Ngithemba ukuthi lolu lwazi luwusizo. Hlala uphilile!

I- Myalgic Encephalomyelitis, I-Chronic Fatigue Syndrome, i-ME/CFS, ukukhathala, ukukhathala okungapheli, i-post-exercise syndrome, ukungakwazi ukulala, izinhlungu zomzimba, impilo yeSinhala