Ingabe ingane yakho ivame ukukhononda ngokuthi umlenze, ingalo, noma umhlane wayo kuyabuhlungu? Ngezinye izikhathi sicabanga ukuthi kuyindaba nje yokugijima noma "izinhlungu zokukhula." Kodwa uma lobu buhlungu buhlala izinsuku noma amasonto, buphela ngemva kwezinsuku ezimbalwa, bese bubuya, kufanele sikhathazeke kancane. Namuhla sizokhuluma ngesimo esingavamile kodwa esibalulekile esingabangela ubuhlungu obuphindaphindayo emathanjeni.
Kalula nje, iyini i-CRMO?
I-Chronic Recurrent Multifocal Osteomyelitis, eyaziwa nangokuthi i-CRMO, iyisifo sokuzivikela komzimba . Manje ungase uzibuze ukuthi siyini. Cabanga ngesimiso somzimba wethu sokuzivikela njengebutho elivikela izwe. Umsebenzi waleli butho ukusivikela ezifweni ngokulwa nezitha zakwamanye amazwe, njengama-virus namagciwane.
Kodwa esifweni esibangelwa ukuzivikela komzimba, isimiso sethu somzimba sokuzivikela senza iphutha futhi sihlasele izingxenye zomzimba wethu ezinempilo esikhundleni sabahlaseli bangaphandle. Ku-CRMO, lokhu "kuhlasela okungalungile" kuqondiswe emathanjeni ethu. Isimiso somzimba sokuzivikela, ngaphandle kwesizathu esicacile, sihlasela ithambo elilodwa noma ngaphezulu emzimbeni, okubangela ukuvuvukala, okuwukuvuvukala nobuhlungu.
Into ebalulekile ukuthi lesi simo asibangelwa yinoma yikuphi ukutheleleka ngamagciwane. Yingakho sibizwa nangokuthi i-Chronic Nonbacterial Osteomyelitis (CNO) . I-CRMO uhlobo olubi kakhulu lwe-CNO.
Ingabe kukhona isizathu esithile sokwakheka kwe-CRMO?
Eqinisweni, odokotela abakakazi kahle ukuthi yini ebangela i-CRMO. Ayibangelwa ukutheleleka ngamagciwane noma ngegciwane. Yisimiso somzimba sokuzivikela esisebenza ngaphandle kwesizathu esibonakalayo.
Kodwa-ke, kukhona ukusola ukuthi kungase kube nokuxhumana kwezakhi zofuzo nalokhu. Ngezinye izikhathi, amalungu amaningana omndeni ofanayo abikwa ukuthi analesi simo. Kodwa-ke, kudingeka ucwaningo olwengeziwe ngalokhu.
Njengabazali, okunye kokwesaba okukhulu eningase nibe nakho ukuthi lezi zimpawu zihlobene yini nomdlavuza. I-CRMO ayiwona umdlavuza . Kodwa-ke, ingaba nezimpawu ezifanayo nezeminye imidlavuza yamathambo, ngakho-ke kubalulekile ukubona udokotela ukuze uthole ukuxilongwa okunembile.
Ubani onamathuba amaningi okuthola lesi sifo?
I-CRMO ivame ukubonakala ezinganeni nakubantu abadala abasebasha.Lesi sifo sivame ukutholakala sineminyaka ephakathi kuka-9-10. Lesi simo sivame kakhulu emantombazaneni kunabafana.
Lesi akusona isifo esivame kakhulu, kodwa njengoba odokotela kanye nomphakathi jikelele beqaphela kakhulu lesi sifo, inani labantu abatholakala benaso liye landa kancane.
Yiziphi izimpawu eziyinhloko ze-CRMO?
I-CRMO ingathinta noma yiliphi ithambo emzimbeni. Kodwa ngokuvamile ithinta amathambo amade emilenzeni yezingane, ezinqeni, nasemgogodleni . Izimpawu zingase zivele ngokuzumayo, ziphele ngemva kwezinsuku ezimbalwa, bese zibuya. Lokhu kubizwa ngokuthi ukuqubuka kanye nokukhululwa.
Ake sibheke izimpawu eziyinhloko ezinjengalezi.
| Isibonakaliso | Incazelo Elula |
|---|---|
| Ubuhlungu | Lolu uphawu oluvame kakhulu noluyinhloko. Ubuhlungu buvela ethanjeni elithintekile noma endaweni ezungezile. |
| Ukuvuvukala kwamalunga | Amalunga aseduze nethambo elithintekile ayavuvukala futhi abe buhlungu, okufana nesifo samathambo. |
| Ukukhubazeka kwamathambo | Lesi sifo singathinta ama-growth plate engane. Ama-growth plate yizindawo lapho amathambo ekhula khona njengoba ingane ikhula. Uma lokhu kulimele, amathambo angakhula ngendlela engavamile (isibonelo, umlenze owodwa ungase ube mfushane kunomunye). |
| Ukukhula okunciphile | Ngezinye izikhathi, noma kungekho buhlungu, ukukhula kwengane kungase kungabi ngokushesha njengoba kulindelekile. |
| Ukukhathala okuvamile | Ngesikhathi sokukhula kwezimpawu, ingane ingase izizwe ikhathele futhi ikhathele njalo. |
| Ingozi eyengeziwe yokuphuka | Amathambo abuthakathaka ngenxa yokuvuvukala cishe azophuka ngisho noma ehlukunyezwe kancane, ikakhulukazi uma umgogodla uthintekile. |
Ungasithola kanjani ngokunembile isifo se-CRMO?
Ngenxa yokuthi lesi yisifo esingavamile, ukusithola kungaba nzima ngezinye izikhathi. Udokotela uzohlola ingane yakho kahle futhi akubuze ngezimpawu zakho. Ngokuvamile kungathatha izinyanga eziningana noma ngisho nangaphezulu konyaka ukuthola lesi sifo.
Kwenziwa izivivinyo eziningana ukuqinisekisa ukuxilongwa.
- Ukuhlolwa kwezithombe: Ukuhlolwa okufana ne-X-ray kanye ne-MRI scan kungabonisa ngokusobala ukuvuvukala kanye nezinye izinguquko emathanjeni.
- Ukuhlolwa kwegazi: Lokhu kusiza ukuhlola izinga lokuvuvukala emzimbeni (njenge-ESR, i-CRP) nokuvimbela ezinye izifo noma ukutheleleka.
- Ukuhlolwa kofuzo: Kwezinye izimo, lokhu kuhlolwa kungadingeka futhi ukuze kunqunywe ezinye izifo zofuzo.
Yiziphi izindlela zokwelapha i-CRMO?
Okwamanje, alikho ikhambi le- CRMO. Kodwa ungakhathazeki. Ukwelashwa okutholakalayo kungalawula izimpawu, kunciphise ukuvuvukala, futhi kusize ingane yakho iphile impilo ejwayelekile ngokuphelele .
Udokotela angase ancome izindlela zokwelapha ezilandelayo:
- Imithi elwa nokuvuvukala engeyona eye-steroidal (ama-NSAID): Lena imithi yokwelapha izinhlungu kanye nemithi yokulwa nokuvuvukala esiyaziyo sonke, njenge-ibuprofen. Lena yindlela yokuqala yokwelapha ongayizama. Cishe ama-50% ezingane asabela kahle kulokhu. Kodwa-ke, uma uthatha le mithi isikhathi eside, udokotela wakho uzohlola njalo ukusebenza kwezinso zakho kanye nesibindi.
- Imithi yokwelapha isifo samathambo eguqula izifo (i-DMARD): Uma ama-NSAID ewodwa engayilawuli lesi sifo, lolu hlobo lwemithi luyiqembu elilandelayo lemithi esetshenziswayo. Le mithi isebenza ngokucindezela amasosha omzimba ngezinga elithile, isize ekumiseni ukuhlaselwa okungalungile okubangela lesi sifo. Ngaphambi kokuqala le mithi, udokotela wakho uzokuchazela zonke izinzuzo nezingozi.
- Izinguquko zendlela yokuphila:Ngesikhathi sobuhlungu, ingane yakho kungadingeka inciphise imisebenzi yayo yokugijima nokugxuma. Udokotela wezokwelapha ngokomzimba noma uchwepheshe wezokwelapha osebenzayo angakusiza ukuthi ufunde ukwenza imisebenzi yansuku zonke ngobuhlungu, okuhlanganisa nokuzivocavoca.
Zikhona yini ezinye izifo ezingavela kanye ne-CRMO?
Yebo, izingane ezine-CRMO zisengozini ethile yokuthola ezinye izifo eziningana zokuzivikela komzimba.
- Isifo Sokuvuvukala Kwamathumbu (IBD): Lesi futhi yisimo esibangelwa amasosha omzimba ahlasela uhlelo lokugaya ukudla.
- I-Psoriasis: Lesi yisifo esihlasela amasosha omzimba esithinta isikhumba.
- Ubuhlungu bemisipha obukhulisiwe: Lesi yisimo esiyinkimbinkimbi kancane. Ngisho noma i-CRMO isiphelile, kungase kube nobuhlungu bemisipha obuqhubekayo ngesizathu esingachazeki. Lobuhlungu abuqedwa yimithi yokwelapha izinhlungu evamile.
Iyini inkomba yokubikezela lesi sifo?
Izindaba ezinhle ukuthi cishe ama-40% eziguli athola ukuphulukiswa okuphelele phakathi neminyaka eyi-1-5 yokuqala yokwelashwa. Lokhu kusho ukuthi ubuhlungu nezinye izimpawu ziphelile ngokuphelele, kungekho ukuvuvukala noma ukungasebenzi kahle kwesimiso somzimba sokuzivikela. Ingane ingabe isiphila impilo evamile, esebenzayo.
Kodwa-ke, noma ngabe lesi sifo selapheke ngokuphelele, ukubhekwa njalo kwezokwelapha kubaluleke kakhulu. Kuzodingeka uqhubeke uye emtholampilo ngaphansi kokuqondisa kukadokotela wamathambo. Kungase kudingeke futhi wenze izivivinyo ezifana ne-MRI scans ukuze ubone ukuthi lesi sifo sesiphinde sabuya yini. Lokhu kungenxa yokuthi cishe abantu abangu-50% baphinde babuye eminyakeni emibili yokuqala ngemva kokuyeka ukwelashwa. Uma lokho kwenzeka, kuzodingeka uqale ukwelashwa futhi.
Umlayezo Wokuya Nawe Ekhaya
- I-CRMO yisimo lapho amasosha omzimba ehlasela khona amathambo omzimba ngephutha. Akuyona igciwane noma umdlavuza.
- Uma ingane inobuhlungu obuphindaphindayo emathanjeni ayo, ikakhulukazi emilenzeni, ezinqeni, noma emhlane, ungakushayi indiva lokho "njengokujwayelekile."
- Nakuba kungekho ikhambi eliphelele lalesi sifo, kunezindlela zokwelapha eziphumelela kakhulu ezingalawula izimpawu futhi zivumele ingane ukuba iphile impilo evamile nesebenzayo.
- I-CRMO ingathatha isikhathi ukuxilonga, ngakho-ke kubalulekile ukuba nesineke nokusebenzisana eduze nodokotela wakho.
- Uma unokungabaza ngobuhlungu bengane yakho noma ezinye izimpawu, funa iseluleko sezokwelapha ngokushesha.
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