Yu kin fil bak se yu kin stif, yu kin fil pen jɔs afta yu grap na bed na mɔnin? Bɔt yu tink se dis pen kin stɔp smɔl smɔl afta yu dɔn waka smɔl ɛn bigin yu de wok? Pan ɔl we bɔku pipul dɛn kin tink se dis na jɔs wan simpul bak prɔblɛm, sɔntɛnde dis kin bi wan sik we kin mek dɛn pe atɛnshɔn to am smɔl. Tide wi de tɔk bɔt pɔsin we pan ɔl we i bin gɛt dis kayn sik, i bin ebul fɔ bia wit am ɛn liv aktif layf.
Chad Baker - Di atlet we chalenj di sik
Chad Baker na papa we gɛt 4 pikin dɛn we kɔmɔt na Kolorado, Amɛrika. I na skul administreta ɛn i dɔn lɛk spɔt fɔ ɔl in layf. I dɔn wok bak as kɔch fɔ bɔku spɔt dɛn, lɛk baskɛtbɔl, trak, ɛn sɔk.
Chad in stori spɛshal bikɔs dɛn bin no se i gɛt Ankylosing Spondylitis we i ol 20 ia. Pan ɔl we nɔmal wan i go at fɔ de aktif wit sik lɛk dis, Chad dɔn pas 40 ia naw ɛn i de liv rili wɛlbɔdi, nɔmal layf. I se di big rizin fɔ dis na bikɔs i nɔ bin de du in bɔdi bikɔs ɔf di sik, bɔt i kɔntinyu fɔ du ɛksɛsayz ɛn kip in bɔdi strɔng. In stori gi wi fayn ɛgzampul fɔ tɔk bɔt dis sik.
Fɔ tɔk am simpul wan, wetin na Ankylosing Spondylitis (AS)?
Dis nem kin tan lɛk se i lɔng smɔl ɛn i strenj, bɔt di pɔynt simpul. Lɛ wi sheb am to tu wɔd dɛn ɛn ɔndastand am.
- Spondylitis: Dis de tכn to inflameshn na di joyn dεm bitwin di vεrbra dεm na di spayna.
- Ankylosing: Dis de min se as tεm de go, di jכint dεm we inflamed kin fכs tכgeda, stif, εn stif.
Dat min se, Ankylosing Spondylitis na wan krεse inflammatory arthritis kכndyushכn we de mεntal afekt di spayna.
Dis na sik we pɔsin kin gɛt we i de fɛt insɛf. dis min se di imyun sistεm we dεn se de protεkt wi bכdi, de mistek bigin fכ atak di hεlty pat dεm na wi כwn bכdi, spεshal wan di jכint dεm na di spayna εn di bכdi. Dis kin mek di jɔyn dɛn swel ɛn dɛn kin fil pen.
Wetin na di kɔmɔn sayn dɛm fɔ dis sik?
De sayn dɛm fɔ AS kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin, bɔt sɔm kɔmɔn sayn dɛm de wae impɔtant fɔ no bɔt.
| Di sayn we de sho se di sik de | Tɔk bɔt |
|---|---|
| Pen ɛn stiffness na di bak ɛn buttocks eria | Dis na di men sayn we de sho se yu gɛt dis sik. dis pen εn stiffness kin bכku bכku wan na mכnin כ afta yu de na di sem posishכn fכ lכng tεm (e.g., we yu grap frכm sidon posishכn). |
| Di pen we de go dɔŋ we yu de du ɛksɛsayz | Nɔr lɛk ɔda bak prɔblɛm, de pen ɛn stiffness kin dɔŋ wae yu de du yu bɔdi ɛn ɛksesaiz, ɛn i kin go ɔp wae yu de rɛst. |
| Pen na ɔda jɔyn dɛn | Apat frɔm di bak, pen ɛn swel kin apin na say dɛn lɛk di hip jɔyn dɛn, di sholda dɛn, di ni dɛn, ɛn di il dɛn. |
| Taya ɛn taya | Fɔ fil taya pasmak ɛn taya fɔ natin na kɔmɔn sayn bak. |
| Inflameshɔn na di yay (Uveitis) . | Sɔm pipul kin gɛt sɔm kayn sik lɛk aw dɛn yay kin rɛd, pen, ɛn i nɔ kin izi fɔ si layt. Dis na wan sik we dɛn kɔl uveitis. |
Udat dɛn kin gɛt dis sik?
Dɛn kin no dis sik we dɛn yɔŋ, bitwin 17 ɛn 45. Dis sik kin kam pan man dɛn pas uman dɛn. Dɔn bak, i gɛt sɔntin we gɛt fɔ du wit in jɛnɛtiks . Pipul dεm wae gεt di jin HLA-B27 kin gεt hכy risk fכ gεt dis sik. Bɔt i impɔtant fɔ mɛmba se nɔto ɔlman we gɛt dis jin go gɛt dis sik.
Wetin kin apin if di sik wɔs?
If dɛn nɔ trit AS fayn ɔ if dɛn nɔ kɔntrol am, kɔmplikeshɔn kin kam as tɛm de go.
- Spinal Fusion: 1.Dis na di stej wae de sik pasmak. biכs fכ di inflameshn we de kכntinyu, di bכdi de mek nyu bon, we de fulכp di gap dεm bitwin di vεrbra dεm na di spayna. Dis kin mek di spayna kin stif lɛk wan stik, ɛn i nɔ kin ebul fɔ chenj igen. Dɛn kin kɔl dis bak "bambu spine."
- Hunched Posture: Na fכd-bεnd, hunched posture kin apin bikoz fכ bak strεn.
- i at fכ brith: If di rib dεm εn di jכint dεm we de kכnekt di chεst to di spayna inflamed εn kכnstrikt, i kin mek di chεst εkspכn εn i kin mek i at fכ brith.
- Ɔstioporosis: Di bon dɛn kin wik ɛn di risk fɔ brok kin go ɔp izi wan.
Aw dɛn kin trit am ɛn manej am?
Di impɔtant tin fɔ tɔk fɔs na dat, nɔr mɛrɛsin nɔr de fɔ Ankylosing Spondylitis yet. Bɔt nɔ wɔri. Tritmɛnt dɛn de we rili fayn fɔ kɔntrol di sik, kɔntrol aw di sik de go bifo, ɛn liv nɔmal layf.
Di tin we impɔtant pas ɔl na fɔ no di sik ɛn bigin fɔ trit am kwik kwik wan. Di kwik we dɛn bigin fɔ trit bifo di jɔyn dɛn pwɛl fɔ ɔltɛm, na di mɔ di rizɔlt go bɛtɛ.
If yu gɛt ɛni wan pan dɛn sayn ya we wi dɔn tɔk bɔt, di bɛst tin fɔ du na fɔ go to yu dɔktɔ wantɛm wantɛm. I go chɛk yu ɛn if nid de, i go rifer yu fɔ go tek ɛkstrem rayt, MRI skan, ɛn blɔd tɛst fɔ no di sik kɔrɛkt wan.
Dɛn kin sheb di we aw dɛn kin trit am to sɔm men kategori dɛn:
1. Fizik Tεrapi εn εksεsayz: Dis na di fawndeshכn fכ AS mεnejmεnt. Spɛshal ɛksesaiz ɛn ɛksesaiz dɛn de fɔ strɛch fɔ mek yu ebul fɔ chenj, fɔ mek yu spɛnal alaynɛshɔn fayn, ɛn fɔ mek yu nɔ fil pen. I impɔtant fɔ du dɛn tin ya ɔnda di gayd we pɔsin we de mɛn yu bɔdi de gayd.
2. Di mɛrɛsin dɛn we dɛn kin yuz:
- NSAID (Nonsteroidal Anti-inflammatory Drugs): Dɛn wan ya na di fɔs layn fɔ tritmɛnt. Di mɛrɛsin dɛn we de mɛn pen ɛn anti-inflammatory drɔgs lɛk Ibuprofen ɛn Naproxen kin ɛp fɔ kɔntrol pen ɛn stiffness.
- Bayolojikal Mɛdikeshɔn: If NSAID nɔ de gi yu di rayt kɔntrol, yu dɔktɔ kin tɛl yu fɔ tek dɛn mɛrɛsin ya we gɛt mɔ advans. dis dεm de wok bay we dεn de tכk bכt spεshal kεmikכl dεm na di imyun sistεm we de mek inflameshn. εgzampl dεm na di Tumor Nεkrכsis Fכktכr (TNF) blכk dεm εn di Intalyukin 17 (IL-17) inhibito dεm.
3. Ɔpreshɔn: Dis na las tin fɔ du. If di jɔyn dɛn dɔn pwɛl bad bad wan ɛn dɛn nɔ go ebul fɔ bia di pen, dɛn kin tink bɔt ɔpreshɔn lɛk fɔ chenj di hip.
Chad Baker in stori mɛmba wi bak se fɔ liv aktif layf impɔtant lɛk, ɛn sɔntɛm i impɔtant pas fɔ tek mɛrɛsin.Ɛn aw impɔtant fɔ gɛt gud maynd fɔ liv gladi wit dis sik.
Mɛsej we dɛn kin kɛr go na os
- Ankylosing Spondylitis (AS) na wan kayn at at sik we kin mɔs afɛkt di spayna.
- Bak pen ɛn stif we kin apin na mɔnin ɛn we kin go dɔŋ we yu de du ɛksɛsayz na di men sayn dɛm.
- If yu gɛt dɛn sik ya, nɔ ignore dɛn ɛn go to yu dɔktɔ kwik kwik wan.
- Pan ɔl we dɛn nɔ go ebul fɔ mɛn dis ɔl, if dɛn trit am fayn, dɛn go ebul fɔ kɔntrol di sik ɛn liv nɔmal layf.
- Fizik tɛrapi ɛn ɛksɛsayz ɛvride rili impɔtant fɔ di mɛnejɛmɛnt fɔ AS. Na tritmɛnt we gɛt pawa lɛk mɛrɛsin.
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