Wan ol pɔsin de na yu famili, sɔntɛm yu mama, papa, ɔ grani, we kin fɔgɛt tin wantɛm wantɛm, chenj in abit we i tinap, sɔntɛnde i kin tɔk bɔt tin dɛn we nɔ de, lɛk “Udat de?” Yu tink se i kin ivin at fɔ waka smɔl? If yu gɛt sɔm kayn sik lɛk dis, i nɔr kin bi nɔrmal fɔ ol lɛk aw wi kin tink. Tide wi de tɔk bɔt wan spɛshal sik wae kin kam wit dis kayn sik, wae dɛn kɔl ‘ Dementia ’ ɔr Lewy Body Dementia , wae de pan di kategori wae de kɔl ‘Memory Loss Diseases’.
Wetin na Lewy Body Dementia (LBD) simpul wan?
Fɔ tɔk am simpul wan, LBD na di sɛkɔn kayn dis maynia sik afta Alzaima ’s sik. Bɔrku tɛm, e kin afɛkt pipul dɛm wae dɔn pas 50 ia.
dis na biכs di protin kכlכm dεm we dεn kכl “Lewy bodies” de fכm insay wi bren sεl dεm. dis kayn protin dεm dεn kכl am alfa-synuclein. We dɛn grup ya gɛda na di bren, dɛn kin ambɔg di nɔmal we aw wi bren de wok, mɔ wi mɛmori, muvmɛnt, tink, di we aw wi de fil, ɛn di we aw wi de biev .
Dɛn Lewy bɔdi ya de ambɔg di we aw dɛn de mek tu impɔtant kemikal dɛn na di bren.
1. Acetylcholine: Dis na impɔtant tin fɔ wi mɛmori ɛn lan.
2. Dopamine : Dis de kɔntrol aw wi bɔdi de muv, aw wi de fil , ɛn aw wi de slip.
Tu men kayn LBD de. Wan na ‘ Dimɛns wit Lewy bɔdi’ ɛn di ɔda wan na ‘ Parkinson ’s disease dementia’. Smɔl difrɛns de pan di ɔda we aw di sayn dɛn de sho.
Aw dis difrɛn frɔm Alzaima ɛn Pakinsin sik?
Bɔrku pipul kin kɔnfyus dɛn tri tin ya bikɔs dɛn sik kin rili fiba. Bɔt, klia difrɛns de bitwin dɛn. Fɔ no dis impɔtant fɔ no di sik ɛn fɔ gɛt di rayt tritmɛnt.
| Mɛdikal kɔndishɔn | Di ɔda we aw mɛmori prɔblɛm ɛn muvmɛnt prɔblɛm kin apin | Ɔda spɛshal tin dɛn |
|---|---|---|
| Lewy Bɔdi Dimɛnshɔn (LBD) . | Bɔrku tɛm, prɔblɛm wit muvmɛnt (i nɔ kin izi fɔ waka, shek shek) ɛn prɔblɛm wit mɛmori (fɔgɛt fɔgɛt) kin apin di sem tɛm ɔ insay wan ia. | Hallucinations kin apin ali na di sik. REM slip bihayvya dizayd na kɔmɔn tin. Atɛnshɔn ɛn tink skil kin chenj ɔl di de (sɔntɛnde i kin rili fayn, ɔda tɛm dɛn kin rili kɔnfyus). |
| Di sik we dɛn kɔl Alzaima | I kin stat wit prɔblɛm wit mɛmori (espɛshali mɛmori fɔ shɔt tɛm). Prɔblɛm fɔ muv kin apin na di leta stej dɛm fɔ di sik. | Dɛn kin si tin dɛn we pɔsin kin si we di sik dɔn go bifo bad bad wan, dat na we i de let. |
| Dis sik we dɛn kɔl Parkinson | I kin stat wit prɔblɛm wit muvmɛnt (tremor, mɔsul stiffness). Prɔblɛm fɔ mɛmba (dimɛnshɔn) kin apun bɔrku leta pan de sik, ɔr kin nɔr kin ɛva apin. | I kin mɔs afɛkt di we aw pɔsin de muv. If dis maynia sik kam, dɛn kin kɔl am ‘Parkinson’s disease dementia’. |
Di tin we impɔtant pas ɔl na dat, di mɛrɛsin dɛn we dɛn kin gi fɔ dɛn sik ya difrɛn bak, so fɔ no di sik kɔrɛkt wan rili impɔtant.
Wetin na di risk factor dɛm fɔ divɛlɔp LBD?
Sayɛnsman dɛn stil nɔ no bɛtɛ bɛtɛ wan wetin mek sɔm pipul dɛn kin gɛt Lewy bɔdi na dɛn bren, bɔt dɛn dɔn no bɔku tin dɛn we kin mek dɛn gɛt dis sik.
- Ej: Fɔ dɔn pas 50 ia na big tin we kin mek pɔsin gɛt dis sik.
- Ɔda sik dɛn we pɔsin kin gɛt:Fɔ gɛt kɔndishɔn lɛk Pakinsin sik ɔr REM slip bihayvya disɔda.
- Famili histri: Pan ɔl we dɛn nɔ kin tek dis as sik we pɔsin kin gɛt frɔm in mama ɛn papa, if pɔsin na yu famili dɔn gɛt LBD, yu risk fɔ gɛt am kin go ɔp smɔl.
- Jɛnda: Man dɛn kin gɛt dis sik pas uman dɛn.
Wetin na di men sayn dɛm fɔ LBD?
Nɔto ɔl di sik pipul dɛn kin gɛt di sem kayn sik. Sɔm sayn dɛm kin nɔr kin so, ɔda wan kin tranga. Dɛn kin sheb di sayn dɛm to 4 kategori.
| Karakteristik kategori | Ɛgzampul dɛn |
|---|---|
| Ifɛkt pan di Skil fɔ Tink | I nɔ kin izi fɔ disayd fɔ du sɔntin, i nɔ kin izi fɔ jɔj distans, i kin at fɔ pe atɛnshɔn, i nɔ kin mɛmba tin, i kin luk wan ples, i kin si tin dɛn we nɔ de (hallucinations), i kin kɔnfyus bɔt tɛm ɛn ples. |
| Fɔ muv | Fɔ shuf di fut dɛn we yu de waka, di bɔdi kin stif, yu nɔ kin balans ɛn fɔdɔm, yu kin shek, yu kin bɛn fɔ go bifo, yu nɔ kin ebul fɔ swɛla, yu fes nɔ kin chenj, ɛn yu vɔys kin wik. |
| Di ifɛkt dɛn we i kin gɛt pan slip | Fɔ akt drim we yu de slip (e.g., fɔ ala, fɔ flay yu an ɛn fut, fɔ fɔdɔm na bed), fɔ slip pasmak na de, nɔ de slip, ɛn fɔ nid fɔ muv di leg (Restless legs syndrome). |
| Ifɛkt pan di we aw pɔsin de fil ɛn di we aw i de biev | Pwɛl hat, wɔri, nɔr de rεst, paranoia, wae yu de vɛks kwik kwik wan, yu de laf ɔr kray wae yu nɔr ebul fɔ kɔntrol (pseudobulbar affect). |
Wetin na di fɔs sayn dɛm fɔ LBD?
Bɔku tɛm fɔ si tin dɛn we nɔ de (Hallucinations) .Hallucinations na di fכs simptom we de apin pan lεk 80% pan di LBD pasεnshכn dεm. Dis min se dɛn de si tin dɛn lɛk animal, pipul dɛn, ɛn shep dɛn we nɔ de. Apat frɔm dat, yu kin si bak di chenj we yu de tink, fɔgɛt, ɛn prɔblɛm wit slip we yu bigin.
Aw dɔktɔ kin no se i gɛt LBD?
Dɛn nɔ kin ebul fɔ no LBD wit wan tɛst. Bikɔs in sayn dɛm kin tan lɛk ɔda kayn dis maynia sik, kin tranga fɔ no bɔt am, mɔr lɛk di fɔs tɛm. So dɔktɔ go pul ɔda tin dɛn we kin mek pɔsin gɛt di sem kayn sik.
Yu dɔktɔ kin du bɔku tɛst dɛn, lɛk:
- Fɔ chɛk yu bɔdi ɛn tɔk gud wan bɔt di sayn dɛm we yu gɛt.
- Nyurolɔjik ɛgzam: Fɔ chɛk yu riflɛs, trɛnk, balans, waka, ɛn yu yay muvmɛnt.
- Blɔd tɛst: Chɛk fɔ si if di ɔmon ɔ vaytamɛn lɛvɛl nɔ de.
- Bren skan: CT skan ɔ MRI skan kin luk fɔ chenj dɛm wae gɛt fɔ du wit ɔda kayn dis maynia sik. Dɛn kin du spɛshal skan dɛn lɛk PET ɔ SPECT bak.
- Slip tɛst: Chɛk fɔ slip prɔblɛm lɛk REM slip bihayvya disɔda.
Wetin na di tritmɛnt dɛm fɔ LBD?
Naw, no mɛrɛsin ɔ tritmɛnt nɔ de fɔ LBD. Bɔt sɔm tritmɛnt dɛn de we kin ɛp fɔ kɔntrol di sik dɛn ɛn mek layf izi .
- Di mɛrɛsin dɛn we dɛn kin yuz:
- Mεdikeshכn dεm lεk `donepezil (Aricept)` εn `rivastigmine (Exelon)`, we dεn kin gi to pipul dεm we gεt Alzaima fכ prכblεm dεm we dεn de tink εn mεmכri.
- Mεdisin dεm lεk levodopa fכ muvmεnt prכblεm (tremor, stiffness).
- Mεdikeshכn dεm lεk melatonin כ klonazepam (Klonopin) fכ slip prכblεm.
- Ɔda Tɛrapi dɛn:
- Fizik tɛrapi: Ɛksesaiz fɔ mek yu muv fayn ɛn balans.
- Occupational therapy: Fɔ lan aw fɔ du ɛvride wok izi wan.
- Kɔnsul: Fɔ mɛna yu maynd prɔblɛm lɛk pwɛl hat ɛn wɔri.
I rili impɔtant: Sɔm antisaykotik mɛrɛsin dɛm wae dɛn kin yuse fɔ trit mɛntɛl sik kin gɛt bad bad ifɛkt pan pipul dɛm wae gɛt LBD. Dɛn tin ya kin mek di sayn dɛm (especially wae yu si tin dɛm wae nɔr de ɛn wae yu gɛt prɔblɛm wit yu muvmɛnt) wɔs. So, nɔ yuz ɛni mɛrɛsin if yu dɔktɔ nɔ advays yu.
Advays fɔ pɔsin we de liv wit LBD ɛn di wan dɛn we de kia fɔ dɛn
Fɔ liv wit LBD na chalenj fɔ di pɔsin ɛn di wan dɛn we de kia fɔ dɛn, bɔt if dɛn plan ɛn sɔpɔt am fayn, dɛn kin mek di joyn izi.
- Tink bɔt sef: Rimov tin dɛn we go mek yu fɔdɔm insay di os. Instɔl grab bar dɛn na di bafa.
- Gɛt sɔpɔt: Tɔk to yu fambul ɛn padi dɛn bɔt dis. Gɛt dɛn ɛp. Di pɔsin we de kia fɔ am nid fɔ rɛst bak.
- Plan bifo tɛm: Plɛn di lɔ ɛn mɔni arenjmɛnt bifo tɛm akɔdin to wetin di pɔsin want.
- Gladi: Mek di pɔsin we sik tek pat pan tin dɛn we de mek i gladi ɛn ɛnjɔy (lɛk fɔ lisin to myuzik, drɔ, ɛn ɔda tin dɛn).
Di avrej layf we pɔsin kin liv fɔ LBD na 7-8 ia afta di sik bigin, bɔt dis kin difrɛn frɔm wan pɔsin to ɔda pɔsin. If dɛn kia ɛn trit sɔm sik pipul dɛn fayn, dɛn kin liv fɔ 20 ia.
Mɛsej we dɛn kin kɛr go na os
- Lewy body dementia (LBD) na wan sik wae de kam wae de protin wae de dכn na di bren wae de afekt mεmכri, muvmεnt, εn bihayvya.
- Dis difrɛn frɔm Alzaima ɛn Pakinsin sik pan di ɔda ɛn di kayn sayn dɛm. Visual disturbans ɛn slip prɔblɛm na kɔmɔn tin na LBD.
- Pan ɔl we no kɔmplit mɛrɛsin nɔ de fɔ dis, mɛrɛsin ɛn difrɛn we dɛn fɔ mɛn di sik kin kɔntrol di sik dɛn ɛn mek layf izi.
- If pɔsin we de nia yu de gɛt dɛn sik ya, nɔ panik ɛn go to dɔktɔ kwik kwik wan . Fɔ no di sik kɔrɛkt wan rili impɔtant.
- Di pɔsin we de kia fɔ di pɔsin in maynd ɛn bɔdi bak rili impɔtant. Nɔ shek fɔ aks fɔ sɔpɔt we nid de.
Lewy Bɔdi Dimɛnshɔn, LBD, Dimɛnshɔn, Mɛmori Lɔs, Alzaima, Pakinsin, Ɛlda Wɛlbɔdi
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