We wi tink bɔt Alzaima , wi kin tink bɔt wan sik we kin kam we pɔsin de ol ɛn smɔl smɔl i nɔ kin ebul fɔ mɛmba tin, nɔto so? Na tru dat. Bɔrku pipul dɛn kin gɛt Alzaima afta dɛn dɔn ol 65. Bɔt yu no se, nɔr kin bɔrku, wan kayn Alzaima de bak wae kin gɛt am wae dɛn yɔŋ, dat na, ivin wae dɛn dɔn pas 30, 40, ɔr 50 ia? Dis kin apin bikɔs ɔf wan jɛnɛtik inflɔwɛns we kin pas frɔm wan jɛnɛreshɔn to jɛnɛreshɔn . Tide wi de tɔk bɔt dis tɔpik wae nɔr kin bɔrku, bɔt wae rili impɔtant, dat na famili Alzheimer’s disease, ɔr FAD.
Aw dis difrɛn frɔm di sik we dɛn kin gɛt ɔltɛm na Alzaima?
Tu men kayn Alzaima sik de. We yu ɔndastand di difrɛns bitwin dɛn tu, dat go ɛp yu fɔ ɔndastand wetin na FAD.
| Di kayn sik we dɛn kɔl Alzaima | Men tin dɛn ɛn difrɛns dɛn |
|---|---|
| Famili Alzaima (FAD) we gɛt dis sik . | Dis nɔ kin apin so ɔltɛm. Nɔr kin rich 5% pan di wan dɛm wae gɛt Alzaima gɛt dis kayn. Na wan jenɛtik muteshɔn we kin pas to jɛnɛreshɔn dɛn kin mek am. Di sayn dɛm kin bigin bifo yu rich 65 ia , sɔmtɛm ivin na di 30 ia. |
| Wan sik we dɛn kɔl Alzaima we kin apin wan wan tɛm | Dis na di kayn we we pipul dɛn kin gɛt mɔ. Na lɛk 95% pan di pipul dɛm wae gɛt Alzaima kin fɔdɔm pan dis kategori. Bɔrku tɛm, de sik kin kam afta pɔrsin dɔn ol 65. Dɛn nɔr no di rayt kɔz fɔ dis yet. Dɛn biliv se na tin dɛn lɛk di jin dɛn, di tin dɛn we de apin na di say we dɛn de, ɛn di we aw dɛn de liv dɛn layf. |
Wetin mek dis sik we dɛn kɔl FAD kin apin?
Fɔ tɔk am simpul wan, FAD de kɔmɔt frɔm wan jin muteshon we de pas frɔm jɛnɛreshɔn to jɛnɛreshɔn insay wan famili. Dɛn muteshon yadi jin de mek di protin dεm we nכ nכmal de bכku na di bren. As tɛm de go, dɛn tin ya kin pwɛl di bren sɛl dɛn, ɛn dis kin mek i nɔ ebul fɔ mɛmba ɛn ɔda tin dɛn we de apin na di maynd.
Dɛn dɔn no tri men jin dɛn we de afɛkt dis:
- Prɛsɛnilin 1 (PSEN1) .
- Prɛsɛnilin 2 (PSEN2) .
- Amyloid prεkursכr protin (APP) .
di imכtant tin na dat, if yu mama כ papa gεt dis jin mכtεshכn, yu gεt 50% chans fכ inhεrit am tu. Dis nɔ de skip wan jɛnɛreshɔn.
wan mכtεshכn na wan pan dεn tri jin dεm ya na infεkt fכ mek FAD. pan dεn wan ya, di mכst kכmכn na wan mכtεshכn na di jin we dεn kכl `PSEN1`.
Udat de pan denja fɔ gɛt dis sik?
Dis na tin we rili klia. Di wan tin we impɔtant pas ɔl we kin mek pɔsin gɛt FAD na in famili istri . If wan pan yu mama ɛn papa gɛt jin muteshon we de mek yu gɛt FAD, yu gɛt 50% chans fɔ gɛt am ɛn gɛt di sik.
Dis min se if yu mama in sayd gɛt di sik, yu anti, ɔnkul, grani ɛn granpa, ɛn grani ɛn granpa dɛn we de na da say de sɛf go gɛt di sik. Sɔntɛnde, if yu mama ɛn papa day yɔŋ bikɔs ɔf ɔda tin, yu nɔ go no if dɛn gɛt dis sik ɔ nɔ gɛt am. Insay dɛn kayn tin ya, i kin tranga fɔ no di prɔblɛm we yu famili gɛt.
Nɔ lɛk di tipik Alzaima sik, di we aw pɔsin de liv in layf ɛn di tin dɛn we de apin na di say we i de, nɔ kin afɛkt di we aw FAD de gro dairekt wan. Di men tin we kin mek i apin na di jɛnɛtik inhɛritɛshɔn.
Wetin na di sayn dɛm fɔ dis sik? Aw yu no am?
Bɔku tɛm, di sayn dɛm fɔ FAD kin bigin we yu ol 30, 40, ɔ 50 ia . I kin at fɔ no dɛn fɔs. Yu kin notis dɛn chenj ya bifo yu famili ɔ padi dɛn notis.
Di men sayn dɛm kin bi:
- Memori lɔs: Dis nɔto nɔmal tin fɔ ol. Yu kin bigin fɔ fɔgɛt di tin dɛn we dɔn apin ɛn di tɔk dɛn we yu dɔn tɔk bɔt dis biɛn tɛm . Dis sik kin wɔs as tɛm de go.
- Nɔ bisin bɔt ɔda pipul dɛn: Yu nɔ go lɛk fɔ du tin dɛn ɔ tin dɛn we yu bin de ɛnjɔy fɔ du. Dis kin tan lɛk pwɛl hat .
- Di chenj dɛn we de apin na di we aw pɔsin de biev ɛn di pɔsin we i bi:Yu kin notis chenj dɛn lɛk fɔ vɛks we yu nɔ ebul fɔ kɔntrol, fɔ vɛks, ɔ fɔ dawt we yu nɔ nid.
- I nɔ kin izi fɔ muv: Yu kin gɛt stiff na yu bɔdi, yu kin stɔp we yu de waka, ɛn yu kin muv sloslo.
- Tremor : Shek we yu nɔ kin kɔntrol (jɛk muvmɛnt) kin apin, i kin bigin na di finga dɛn ɛn i kin go na di an ɛn leg.
- Seizures : Sɔm sik pipul dɛn kin gɛt sik bak.
- I nɔ kin izi fɔ tɔk: Dis kin min se i nɔ kin izi fɔ fɛn wɔd ɛn i kin mek i nɔ tɔk fayn.
De impɔtant tin na dat, yu go bigin fɔ gɛt dɛn kayn sik ya we yu ol lɛk di sem ej we yu mama ɔ papa ol.
Aw fɔ kɔnfɔm di sik kɔrɛkt wan?
If yu gɛt dɛn sik ya, di fɔs tin we yu fɔ du na fɔ go to dɔktɔ we sabi du di wok . De dɔktɔ go aks bɔt yu sik, yu wɛl bɔdi istri, ɛn mɔr yu famili in wɛl bɔdi istri.
Dɛn kin du sɔm tɛst fɔ kɔnfirm di diagnosis:
1. Kɔgnitiv tɛst: Dɛn go gi yu sɔm simpul kwɛstyɔn ɛn aktiviti dɛm we de mɛzhɔ tin dɛm lɛk yu mɛmori, atɛnshɔn, ɛn aw yu ebul fɔ sɔlv prɔblɛm.
2. Bren skan: Dɛn kin se yu fɔ du CT skan ɔ MRI skan fɔ chɛk fɔ si if yu bren dɔn pwɛl ɔ shrinkage.
3. Jɛnɛtik tɛst: If yu gɛt strɔng saspek fɔ FAD, mɔ if yu yɔŋ ɛn yu gɛt di sik na yu famili, yu dɔktɔ kin tɛl yu fɔ du jenɛtik tɛst. Dis na simpul blɔd tɛst. dis kin no if yu gεt mכtεshכn na di jin dεm `APP`, `PSEN1`, כ `PSEN2`.
Bifo yu du dis kayn jenɛtik tɛst, dɛn go rifer yu to wan jenɛtik kɔlnɔ ɔ spɛshal pɔsin we go ɛksplen wetin di tɛst rizɔlt kin du ɛn aw dɛn go afɛkt yu ɛn yu famili.
Wetin na di tritmɛnt dɛm fɔ dis?
I sɔri fɔ no se, no mɛrɛsin ɔ tritmɛnt nɔ de fɔ FAD yet. Bɔt sɔm mɛrɛsin dɛn de we kin ɛp fɔ kɔntrol di sik dɛn ɛn mek yu layf bɛtɛ.
Yu dɔktɔ kin tɛl yu fɔ du tritmɛnt dɛn lɛk:
- Mεdikeshכn dεm lεk cholinesterase inhibitors εn memantine kin εp fכ kכntrכl di mεmכri-rεlatεd simptom dεm.
- Kɔntrol di chenj wae de kam pan yu maynd ɛn prɔblɛm wae de kam pan yu bihayvya (vɛks, pwɛl hat) wit mɛrɛsin lɛk (SSRI).
- Separet mɛrɛsin fɔ di bɔdi simptom dɛm lɛk fɔ shek, fɔ stiff, ɛn fɔ gɛt sik.
- Saykotɛrapi kin ɛp yu bak fɔ kɔntinyu fɔ gɛt strɔng maynd.
Us kɔmplikɛshɔn kin apin we di sik kam tranga?
As di sik de go bifo as tɛm de go, difrɛn prɔblɛm dɛn kin apin. If yu nɔ ebul fɔ muv ɛn yu nɔ ebul fɔ waka i kin mek yu gɛt bɛd , yu gɛt infɛkshɔn na yu skin , ɛn yu blɔd kin rɔtin .
Wan pan di prɔblɛm dɛn we impɔtant ɛn we denja pas ɔl na we i nɔ kin izi fɔ swɛla it ɛn drink . dis kin mek di it dεm εn wata kin aksidεntli go insay di lכng dεm tru di trakya. dis kin mek baktri dεm go insay di lכng dεm εn mek yu gεt siriכs nyumonia (aspiration pneumonia). Dis na wan big tin wae kin mek pipul dɛm wae gɛt Alzaima day.
Aw fɔ liv wit dis sik?
Pan ɔl we dɛn nɔ go ebul fɔ stɔp FAD, bɔku tin dɛn de we yu ɛn yu famili kin du fɔ mek di tɛm we yu de liv wit di sik fayn ɛn gɛt kwaliti as yu ebul.
- Stay mental active as much as possible: Du tin dɛm we de ɛksesaiz yu bren, lɛk fɔ rid buk ɛn sɔlv simpul pazl dɛm.
- Stay actively active: Du simpul ɛksesaiz as yu ebul, lɛk aw yu dɔktɔ tɛl yu fɔ du.
- It tin dɛn we go mek yu gɛt wɛlbɔdi.
- Ridyus strɛs: Tin dɛn lɛk fɔ tink gud wan ɛn fɔ du ɛksasaiz fɔ blo dip dip wan kin ɛp.
- Aksept di ɛp we yu fambul ɛn padi dɛn de gi yu: I at fɔ go tru dis waka yu wan. Di sɔpɔt we di wan dɛn we wi lɛk de gi rili impɔtant.
- Join sɔpɔt grup dɛm: Gɛt sɔpɔt ɛn no frɔm ɔganayzeshɔn dɛm we de ɛp di sik pipul dɛm ɛn dɛn famili lɛk dis.
FAD na sik we nɔ izi, bɔt if yu no di rayt tin, yu gɛt di rayt tritmɛnt, ɛn yu famili lɛk ɛn sɔpɔt yu, yu go ebul fɔ mit dis prɔblɛm.
Mɛsej we dɛn kin kɛr go na os
- Famili Alzaima Disease (FAD) na wan kayn sik wae nɔr kin bɔrku, wae kin kam wit Alzaima wae kin kam pan pɔrsin wae yɔŋ.
- Dis kin apin bikɔs ɔf wan patikyula jɛnɛtik muteshɔn. If wan mama ɔ papa gɛt dis jin, 50% chans de fɔ mek pikin gɛt am.
- Di sayn dɛm na wae pɔrsin nɔr de mɛmba fayn, i kin chenj in bihayvya, ɛn i nɔ kin izi fɔ muv.
- Pan ɔl we dɛn nɔ go ebul fɔ wɛl di sik ɔl, tritmɛnt dɛn de fɔ kɔntrol di sayn dɛn we de sho se i sik ɛn mek in layf bɛtɛ.
- If yu ɔ sɔmbɔdi na yu famili gɛt ɛni dawt bɔt dis, i rili impɔtant fɔ aks fɔ advays frɔm dɔktɔ we sabi du di wok kwik kwik wan.
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