Imajin, yu kin fil wantɛm wantɛm lɛk se yu gɛt sik, yu bɔdi de shek, ɛn sɔntɛm yu nɔ de tink... jɔs lɛk aw yu gɛt ɛpilepsi. Bɔt yu no, dis nɔ kin apin ɔltɛm bikɔs ɔf sɔm chenj na di ilɛktrik aktiviti insay di bren. Sɔntɛnde, i kin bi sɔntin we difrɛn, bɔt i kin tan lɛk dat bak. Tide wi go tɔk bɔt wan kɔndishɔn lɛk dat, we dɔktɔ dɛn kin kɔl `(Psychogenic Nonepileptic Seizure - PNES)`, ɔ `(Functional Seizures - FS)`. Pan ɔl we dis kin tan lɛk se i kɔmplikt smɔl, lɛ wi ɔndastand am simpul wan.
Wetin na dis `(PNES)` ɛksaktɔli?
Fɔ tɔk am simpul wan, PNES na sɔm tin dɛm wae kin apin wae rili fiba di sayn dɛm wae de sho se yu gɛt ɛpilepshi, dat na, sɔm tin dɛm wae kin kam ɛn go lɛk "fit." Bɔt di impɔtant tin na dat nɔto bikɔs di ilɛktrik we nɔ de wok fayn na di bren de mek dɛn tin ya . Epilepsy kin kam bikɔs di bren de ambɔg di ilɛktrik wok. Bɔt na PNES, nɔto so i bi.
So wetin mek dɛn tin ya kin apin? Dɛn kin rili apin as di ansa to sɔm tin dɛn na wi nervɔs sistɛm, dat na wi bɔdi in sɛns sistɛm . Wetin na dɛn tin dɛn de?
- Rizin dɛm na yu bɔdi: Sɔntɛm na injury, sɔntin lɛk pen we de kɔntinyu fɔ de.
- Di tin dɛm we de ambɔg di envayrɔmɛnt: Na bad bad saykilɔjik prɛshɔn frɔm di tin dɛm we de arawnd yu, dat na, strɛs.
- Traumatic events from the past: Sɔntɛm wan tin bin de we yu nɔ go fɔgɛt ɛn we bin rili afɛkt yu maynd.
Di impɔtant tin na dat if yu gɛt dis kɔndishɔn, di "fit" we yu de gɛt na rial tin. I nɔto sɔntin we yu de du bay wilful ɔ we yu de mek lɛk se yu de du am. Yu nɔ gɛt kɔntrol pan am we i apin, na sɔntin we de apin we yu nɔ ebul fɔ kɔntrol. I rili impɔtant fɔ ɔndastand dis fɔs. Dis sik kin rili ambɔg yu layf, bɔt i pɔsibul fɔ gɛt ɛp.
Sɔmtɛm dɔktɔ dɛn kin kɔl dis kɔndishɔn `(Functional Neurological Disorder - FND)`. di rizin fכ dis na biכs dεn kin εksplen dεn simptom dεm ya as disrupshכn pan di fכnshכn na di bren in kכmyunikeshn sistεm. Sɔm kin ɛksplen dis as sɔntin lɛk prɔblɛm wit di ``sɔftwɛl'' na kɔmpyuta, dat na wit di program dɛm. Dɛn kin kɔl dis bak ``saykojɛnik nɔ-pileptik atak``, ``ɛpisod`` ɔ ``spɛl``.
Wetin na di simptom dɛm fɔ `(PNES)`?
di men sayn fכ dis kכndyushכn na di wan we dεn kכl "fit." Bɔt dis kin difrɛn frɔm wan pɔsin to ɔda pɔsin.
Sɔm pipul dɛn kin gɛt jɔk ɛn shek na dɛn ɔl bɔdi, lɛk ``Tonic-clonic seizures,`` we na di kayn epilepsy we kin rili bad. Ɔda wan dɛn kin gɛt di an ɛn fut dɛn we de jɔk ɛn twis. sכmtεm, i kin tan lεk se dεn kin lכs kכnsεns fכ sכm tεm, lεk na ``Absence seizures,`` כ i kin tan lεk se dεn fכl na grכn wan wan, lεk na ``Drop attacks.`` Di difrεns na dat nכn pan dεn ya nכ de kכz fכ abnכmal ilektrikal wev dεm na di bren.
Dis na sɔm pan di kɔmɔn sayn dɛm fɔ PNES:
- di chenj we di bכdi de muv: di limb dεm de twit εn twist difrεn we dεm.
- Bɔdi de shek shek we yu de no: Sɔntɛnde, pan ɔl we di bɔdi de shek, yu kin stil fil tin dɛn we de apin rawnd yu te to sɔm mak.
- Klos yu yay ɛn nɔ ansa.
- di wכl bכdi kכnvכlshכn we de te pas 10 minit: Epileptic "fits" nכ kin las dis lכng.
- Nɔbɔdi nɔ kin no natin.
- di limb dεm we de muv di we aw dεn nכ de muv.
- di muvmεnt dεm we di pεlvik de muv.
- Ɛd de shek kwik kwik wan frɔm wan say to di ɔda say.
Apat frɔm dis "fit", yu kin gɛt ɔda sayn dɛm bikɔs ɔf di ɔndalayn mɛntɛl hεlth prɔblɛm dɛm. Fɔ ɛgzampul:
- Wɔri
- Pwɛl at
- Panik atak dɛn
- Pɔst-traumatik strɛs disɔda (PTSD) .
Wetin na di tin dɛm we de mek `(PNES)`?
Risach pipul dɛm biliv se FS simptom kin kam bikɔs ɔf difrɛn tin dɛm wae kin mek yu strɛs wae kin afɛkt yu bɔdi, maynd, ɛn aw yu de wit ɔda pipul dɛm. Dɛn kin kɔl dis bak di biopsychosocial model. Dis min se i kin bi bikɔs ɔf inflɔwɛns frɔm ɔl di tri eria dɛm: bayolojikal, saykilɔjik, ɛn sɔshal.
Apat frɔm dat, dɛn tin ya kin mek pɔsin gɛt dis sik:
- I nɔ kin izi fɔ ɔndastand ɛn sho aw dɛn de fil: Sɔm pipul dɛn nɔ kin ebul fɔ tɔk di rayt tin we dɛn de fil.
- Sεnsrimotכr prכsεsin prכblεm dεm: Dis min se di bren gεt difrεnt fכ kכnvכlt mεsej dεm frכm wi sεns dεm lεk wi yay εn yes dεm to akshכn.
- Nɔr kɔrɛkt ansa to strɛs na yu bɔdi ɛn maynd: Na tin wae kin mek yu vɛks bad bad wan ɛn nɔr kin ebul fɔ bia ivin smɔl prɔblɛm.
Dɛn biliv bak se di jɛnɛtik inflɔwɛns kin ple wan rol fɔ mek dis sik apin to sɔm mak.
Bɔrku tɛm, wan ɔndalayn mɛntɛl hεlth kכndishכn kin bi di kכz fכ dεn "fit dεm." Di tin dɛm wae kin mɔna pipul dɛm wae dɛn kin si na:
- Anxiety disorder wit panik atak
- Di prɔblɛm dɛn we kin mek pɔsin fil bad
- Dissosiativ dizayd
- Dizayd we pɔsin kin gɛt we i de fil
- Di prɔblɛm dɛn we kin apin to pɔsin in pasɔnaliti
- Pɔst-traumatik strɛs disɔda (PTSD) .
- Somatik simptom dizayd
- Dizayd fɔ yuz sɔbstans
Risk factors fכ divεlכp `(PNES)`
Yu kin gɛt bɔrku risk fɔ gɛt dis sik if yu:
- If dɛn dɔn du bad to yu bɔdi, mami ɛn dadi biznɛs, ɔ we yu de fil ɔ we dɛn nɔ de kia fɔ yu we yu bin smɔl.
- If yu dɔn gɛt sɔntin we rili at fɔ du ɔ we kin mek yu fil bad.
- If yu de sɔfa wit wan sik we nɔr de dɔn lɛk pen wae nɔr de dɔn ɔr fibromyalgia.
Bɔku tɛm, PNES kin bigin we pɔsin yɔŋ, bɔt i kin bigin pan ɛni ej.
Posisibul komplikashɔn dɛn bikɔs ɔf `(PNES)`
We dis "fit" de apin, yu kin lɔs ɔl di awareness ɔr kɔnshɛns. So, i kin rili izi fɔ mek aksidɛnt ɛn wund. Sɔntɛnde, dis kin ivin mek pɔsin in layf de pan denja. Imajin wetin go apin if dis apin we yu de drayv motoka ɔ we yu de na ay ples.
Yusɛf kin bigin fɔ lɛf ɔda pipul dɛn ɛn nɔ de nia ɔda pipul dɛn, bikɔs yu nɔ no natin, yu de shem, ɔ yu de fred. Dis kin mek yu de fa frɔm di wan dɛn we yu lɛk, padi dɛn, ɛn di tin dɛn we yu bin de ɛnjɔy trade.
Fɔ gɛt fit lɛk dis kin gɛt big impak bak pan yu maynd wɛl bɔdi. If yu gɛt fit (FS) kin mek yu gɛt mɔ chans fɔ tink bɔt fɔ kil yusɛf. If yu de tink bɔt dɛn tin ya, duya mek ɛp yu. Nɔto yu wan de. Tɔk to pɔsin we yu trɔst, ɔ go to dɔktɔ ɔ pɔsin we sabi gi advays. Yu nɔ go ɛva nid fɔ wet te yu gɛt prɔblɛm fɔ gɛt ɛp.
Aw dɔktɔ dɛn kin no se pɔsin gɛt PNES?
PNES kin tranga fɔ no bikɔs di sayn dɛm kin rili fiba epilepsy. Yu dɔktɔ kin no am bay we i yuz vidio (EEG - electroencephalogram) tɛst fɔ rikodɔ if yu sik.
EEG de mכsu εn rεkכd di ilektrikal signal dεm na yu bren. We yu du EEG, wan tɛknishian kin put smɔl smɔl mɛtal plet dɛn (ilɛktrod) na di skin na yu skel. Dɛn ilɛktrɔd ya kin kɔnɛkt to wan mashin we de gi di dɔktɔ infɔmeshɔn bɔt aw yu bren de wok.
if di "fit" we yu de gεt na `(PNES)`, we min se na fכnshכnal prכblεm, di `(EEG)` tεst go sho se di ilektrikal aktiviti na di bren nכmal ivin we di "fit" de apin. Bɔt pan pɔsin we gɛt ɛpilepshi, di `(EEG)` go sho abnɔmal ilɛktrik aktiviti we di "fit" apin.
Bɔrku pipul dɛm wae gɛt dis sik nɔr kin no fɔs se dɛn gɛt epilepsy. Dɔn bak, na smɔl tɛm nɔmɔ, pɔsin kin gɛt ɔl tu di epileptic "fit" ɛn ``PNES''.
Aw dɛn kin trit `(PNES)`?
Risach dɔn sho se wan kayn saykotɛrapi we dɛn kɔl Cognitive Behavioral Therapy (CBT) na di tritmɛnt we go wok pas ɔl fɔ PNES .
Yu dɔktɔ go ɛp yu bak fɔ kɔntrol ɛni ɔndalayn kɔndishɔn (lɛk pwɛl hat) wae kin de mek yu gɛt fit. Dis kin inklud fɔ tek wan mɛrɛsin wae de mek yu nɔr gɛt pwɛl hat, lɛk aw yu dɔktɔ tɛl yu fɔ tek, apat frɔm CBT.
Di tin we impɔtant pas ɔl na dat, di mɛrɛsin dɛn we de mek pɔsin nɔ gɛt sik nɔ kin wok fayn fɔ trit dis sik (PNES).
Smɔl mɔ bɔt `(CBT)` tritmɛnt fɔ `(PNES)`
Cognitive Behavioral Therapy (CBT) na wan kayn advays wae de ɛp yu fɔ lan bɔt aw yu maynd ɛn bɔdi de ansa difrɛn tin dɛm wae kin mek yu fil fayn. I de ɛp yu bak fɔ ɔndastand aw di tin dɛn we yu de tink bɔt de afɛkt di we aw yu de fil ɛn di we aw yu de biev. Wan pɔsin we de advays yu bɔt mɛntɛl hεlth kin ɛp yu fɔ no ɛn chenj yu maynd, filin, ɛn bihayvya wae nɔr fayn, ɛn ɛp yu fɔ bia wit tin dɛm wae kin mek yu strɛs fayn fayn wan.
If yu fil se CBT nɔr fayn fɔ yu, yu dɔktɔ kin tɛl yu fɔ gi yu "FIT" ɔr ɔda kayn advays fɔ ɛp yu fɔ kɔntrol yu maynd prɔblɛm.
We yu de gi yu advays, yu go mit wit yu advaysa ɔltɛm. Tugeda, una go lan mכr bכt aw yu tinkin de afekt yu filin εn yu "fit." Dɔn, una ɔl tu go sɛt gol dɛn ɛn wok fɔ du dɛn. We yu de manej PNES, yu kin gɛt gol dɛn lɛk:
- Lan mɔ bɔt aw yu gɛt di sik.
- Fɔ no di tin dɛn we kin mek pɔsin strɛs trade ɔ we de naw ɛn fɔ fɛn we fɔ lɛf dɛn.
- Fɔ no di kɔmɔn trig dɛm fɔ wan "fit" ɛn fɔ manej dɛn.
- divεlכp di imכshכnal mεnejmεnt skil dεm (e.g. rilaks tεknik dεm).
- Fɔ bil bak di kwaliti fɔ yu layf (rileshɔnship, ɛdyukeshɔn, wok, ɛn ɔda tin dɛn).
I nɔ bad if yu gol dɛn nɔ jɔs tan lɛk dis. Ɔlman in gol difrɛn difrɛn wan bay wetin i nid.
Fɔ big pipul, yu dɔktɔ kin gi yu wan program wae dɛn kɔl ``Neurobehavioral therapy.'' Dis na wan kayn tritmɛnt wae de yuse wokbuk, wae fiba fɔ tek klas. Yu kin atɛnd mitin dɛn ɛvri wik, ɛn dɛn kin tek lɛk 45 minit so fɔ mɛn yu. Dɛn kin gi yu bak ``prɛktis asaynmɛnt'' fɔ du na os. Dis kin inklud tin dɛn lɛk fɔ kip wan jɔnal ɔ fɔ atɛnd sɔshal ivent. Ɛvri wik, yu kin bil pan wetin yu dɔn lan ɛn kɔntinyu fɔ du dis te yu sabi sɔm tin dɛn.
Ustɛm a fɔ go to mi dɔktɔ?
We dɛn gi yu advays, dat kin mek yu fil bɔku tin dɛn we yu go dɔn de kip ɔ yu nɔ bin ivin de tink bɔt. If yu fil se yu filin nɔr de kɔntrol, ɔr if yu fil se yu nɔr sef, mɛmba se yu advaysa de fɔ ɛp yu pan dis joyn. I rili impɔtant fɔ kɔntakt yu dɔktɔ dɛn fɔ tɔk bɔt ɛni kwɛstyɔn we yu gɛt bɔt yu tritmɛnt ɔ fɔ ɛp yu.
Wetin a kin ɛkspɛkt afta tritmɛnt fɔ `(PNES)`?
PNES na wan sik wae kin gɛt bɔrku impak pan yu layf. Bɔt if dɛn no di sik ɛn trit am fayn, di sayn dɛn kin bɛtɛ.Sɔm pipul dɛn kin ripɔt se dɛn "fit" dɔn dɔn ɔlrɛdi ɔ dɛn dɔn ridyus am bad bad wan bay we dɛn fala dɛn dɔktɔ in advays ɛn tek pat tranga wan pan advays. Yu dɔktɔ kin gi yu di bɛst infɔmeshɔn bɔt wetin fɔ ɛkspɛkt bay aw yu de si yu.
Fɔ no se strɛs de mek yu gɛt PNES kin mek yu strɛs mɔ! Bɔt i nɔ nid fɔ bi so. Yu wɛlbɔdi tim de fɔ ɛp yu fɔ ɔndastand yu diagnosis witout jɔjmɛnt. Tugeda, una kin mek wan plan fɔ ridyus yu sik ɛn trit ɛni ɔndalayn mɛntɛl hεlth kɔndishɔn.
Yu dɔktɔ dɛn go ɛnkɔrej yu fɔ praktis di skil dɛn we yu lan we yu de gi yu advays. Lɛk ɛnitin na layf, di mɔ yu de tray tranga wan, na di mɔ yu go gɛt bɛtɛ tin fɔ du. I kin tek tɛm fɔ mek yu lan nyu tin dɛn, so nɔ pwɛl at if yu nɔ gɛt am wantɛm wantɛm. Yu dɔktɔ dɛn go sɔpɔt yu ɛvri step we yu de du.
Fɔ dɔn, wetin fɔ mɛmba (Take-Home Message) .
PNES na rial kɔndishɔn, nɔto sɔntin we yu de du bay wilful. Pan ɔl we i kin at fɔ no di sik, dɛn kin ebul fɔ mɛn am bɔku bɔku wan if dɛn no di sik ɛn trit am fayn, mɔ wit CBT. If yu gɛt dɛn kayn sik ya, nɔr shem ɔr frayd fɔ go to dɔktɔ. Mɛmba se nɔto yu wangren de, ɛn ɛp de. Yu maynd wɛlbɔdi impɔtant jɔs lɛk aw yu bɔdi impɔtant. So tek kia ɔf dat bak.
👩🏽 ⚕️ Ɔda kwɛstyɔn dɛn (FAQ dɛn)
💬 Na we yu tu leg de swel na di limfedema?
Dat na jɔs wan pat pan di pazl! Limfεdima na wan kכndyushכn we wan an כ leg (bכku tεm na jכs wan sayd) kin swεla we nכ sכmtεm bikoz fכ blok כ damej pan di limfatik sistεm, we de kכri εksyכs fכs wata (anti-protein) frכm wi bכdi. Dis wata de gɛda ɔnda di skin instead fɔ pul am bak kɔmɔt.
💬 Ustɛm dɛn limf no dɛm ya kin blok?
Bɔrku tɛm na di wɔl, dis (Sɛkɔndari Limfɛdima) kin apin to pipul dɛm wae gɛt ‘kansa’. εspεshali we dεn pul di limf no dεm na di armpit we dεn de du כpεrayshכn fכ brεst kεnsar, di an we de na da say de kin swεla kכmplit (Arm lymphedema). Dɔn bak, na kɔntri dɛn lɛk wi yon, we ‘filariasis’ we mɔskito kin pas, blok dɛn vessel ya, di leg dɛn kin swel.
💬 Yu tink se yu kin mek yu an/leg we dɔn swel kam bak to nɔmal?
Bɔt i sɔri fɔ no se, no mɛrɛsin nɔ de fɔ dis fɔ ɔltɛm. Bɔt i pɔsibul fɔ kɔntrol aw i siriɔs. dis nid fכ mek yu drenaj di limfatik wit yu an, tayt kכmpreshכn stכkin/garmεnt dεm, εn kכntinyu fכ du spεsifi k εksεsayz.
`PNES, funkshɔnal sik, nɔ-pileptik sik, saykojɛnik sik, sik, strɛs, nɔ-ɛpileptik sik, mental wɛlbɔdi, fit
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