Nyu op fɔ di wan dɛn we gɛt Friedreich Ataxia: Lɛ wi lan bɔt di Skyclarys drɔg!

Friedreich Ataxia na wan sik wae nɔr kin bɔrku, wae wi kin gɛt frɔm wi mama ɛn papa, wae kin afɛkt wi nervɔs sistɛm mɔ. Pan ɔl we di sik kin apin we wi yɔŋ, wi no aw i nɔ kin izi fɔ liv wit am. I nɔ kin izi fɔ mek wi tɔk bɔt di sɔri-at ɛn wɔri we wi kin gɛt we wi nɔ ebul fɔ kɔntrol wi bɔdi smɔl smɔl. Bɔt we sayɛns de go bifo, wi de gɛt nyu op fɔ dil wit dɛn kayn sik dɛn de. Na da kayn nyu op de wi de tɔk bɔt tide.

Fɔs, lɛ wi si wetin na Friedreich Ataxia.

Fɔ tɔk am simpul wan, Friedreich in ataxia (FA) na wan sik we de kɔmɔt frɔm wi jɛnɛtiks ɛn we kin pwɛl wi nervɔs sistɛm. Dis kin mek wi nɔ ebul fɔ kɔntrol wi mɔsul dɛn smɔl smɔl. As de sik de go bifo, de sik kin wɔs.

Lɛ wi tek wan luk pan us sayn dɛm wae dɛn kin si.

Wetin na dis nyu drɔg we dɛn kɔl Skyclarys?

Skyclarys na Friedrich insay 2023Di fɔs tritmɛnt we dɛn gri fɔ tek ataxia (FA). I gɛt di aktiv ingridiɛnt `omaveloxolone`.

Stɔdi dɔn sho se Skyclarys kin mek di nerve wok fayn ɛn slo di sik fɔ go bifo.

Aw dis mɛrɛsin kin afɛkt di bɔdi?

Pan ɔl we dis na sayɛns tin smɔl, lɛ wi ɔndastand am simpul wan. wan protin de we dεn kכl `Nrf2` we de protεkt di sεl dεm na wi bכdi. Tink bɔt am lɛk difens sistɛm na wi bɔdi. pan pɔsin we gɛt FA, dis `Nrf2` difɛns sistɛm nɔ de wok fayn. So, strεs we nכ nid εn inflameshn kin apin insay di sεl dεm, we kin pwεl di sεl dεm.

Skyclarys de wok bay we i de riaktiv di wikɛd `Nrf2` difɛns sistɛm. Dat min se, i de "pawa" am. dis kin mek di maytochכndria dεm we lεk pawa plant dεm we de gi εnεji to di sεl dεm, kin bigin fכ wok nכmal wan. Dis kin mek di sɛl dɛn nɔ pwɛl.

Aw a fɔ yuz di mɛrɛsin?

Skyclarys na wan kapsul we dɛn kin yuz fɔ it. Yu fɔ no dɛn tin ya we yu de yuz am.

• Yu fɔ tek tri 50 miligram kapsul dɛn wan de di sem tɛm.
• Dɛn fɔ tek dis we yu ɛmti bɛlɛ , dat na fɔ lɛk wan awa bifo yu it.
• Di kapsul fɔ swɛla ɔl . I nɔ fɔ krɔs ɔ chew am.
• If i nɔ izi fɔ yu fɔ swɛla di kapsul wantɛm wantɛm, yu kin tek tɛm opin di kapsul, ad di paoda mɛrɛsin insay to tu tebul spɔnj apul sos, miks am fayn fayn wan, ɛn swɛla am wan tɛm.
• Nɔ ɛva miks dis mɛrɛsin wit milk ɔ ɔrɛnj jus.
• Dɔn bak, yu nɔ go ebul fɔ opin di kapsul ɛn gi di mɛrɛsin to pɔsin we de gɛt it tru wan ɛntaral fidin tyub.
• If yu mis wan doz, skip da doz de ɛn tek yu nɛks doz di tɛm we yu dɔn sɛtul. Nɔ tek dabl doz fɔ mek di doz we yu mis.

Sayd ɛfɛkt ɛn aw fɔ mɛn dɛn?

Lɛk ɛni mɛrɛsin, SkyclarysSɔm sayd ɛfɛkt dɛn kin apin. Di sayd ɛfɛkt dɛm we kin apin pas ɔl na:

• di εnzym dεm na di liva de inkrεs
• Ed de at
• Vɔmit
• Bɛlɛ de pen
• Taya
• Rɔnbɛlɛ

Fɔ dɛn tin ya, yu fɔ wɔri mɔ bɔt di bɔku bɔku ɛnzaym dɛn we de na di liva . Dis min se yu liva kin de ɔnda sɔm strɛs ɔ damej. Fɔ dis rizin, bɔku tɛm yu dɔktɔ go chɛk fɔ dis bay we i de du blɔd wok. If yu gɛt ɛni wan pan di sayn dɛn we de dɔŋ ya, tɛl yu dɔktɔ wantɛm wantɛm.

• Nɔs ɔ vɔmit
• Di skin ɔ di yay we de yɔlɔ
• Pen na di ɔp rayt say na di bɛlɛ

Tin dɛm lɛk dis kin ɛp fɔ kɔntrol ɔda sayd ɛfɛkt dɛm:

• Fɔ ed we de at: Drink bɔku wata, it tin dɛn we gɛt fayn fayn tin dɛn fɔ it, ɛn slip fayn. We yu ed pen, rɛst na kol ɛn dak rum.
• Nɔs, bɛlɛ pen, ɛn dayarɛa: It smɔl it pas fɔ it big it. It sloslo ɛn chew yu it fayn fayn wan. Nɔ drink kafin, rɔm, ɛn drink we gɛt kabon. If yu gɛt dayarɛa, yu fɔ gɛt wata. Drink wata, sup, ɛn ɔrɛnj jus fayn. It tin dɛn we nɔ fayn lɛk rays, pɔt, bred, ɛn banana. If yu dayarɛa bad bad wan, tɔk to yu dɔktɔ bɔt di rayt tritmɛnt.
• Taya: Nɔ drayv ɔ du ɛnitin we nid fɔ de wach te yu no gud gud wan aw dis mɛrɛsin de afɛkt yu.

Prɔblɛm kin de wit ɔda mɛrɛsin dɛn?

Yɛs, dis na pɔynt we rili impɔtant. Skyclarys kin intarakt wit ɔda mɛrɛsin dɛm.

• כda mεdikeshכn dεm: sכm mεdikeshכn dεm de intarakt wit wan εnzym na wi bכdi we dεn kכl `CYP3A4`. If yu de tek dis kayn mɛrɛsin, yu dɔktɔ go nid fɔ chenj di doz fɔ Skyclarys ɔ chenj yu to ɔda mɛrɛsin. So, tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek (inklud vaytamɛn ɛn ɛbul prɔdak dɛm).
• Pils fɔ kɔntrol bɔn pikin: Dis rili impɔtant. Ɔmon bɔn kɔntrol pils kin nɔ wok bɛtɛ we dɛn tek am wit Skyclarys. Dis min se risk de fɔ mek uman gɛt bɛlɛ. So, yu fɔ yuz wan we we nɔ gɛt ɔmon fɔ kɔntrol pikin, lɛk kɔndɔm, we yu de tek Skyclarys ɛn fɔ 28 dez afta yu dɔn stɔp di pil.
• Grep ɛn Grep Jus: Nɔ drink grep ɔ grep jus we yu de tek Skyclarys. Dɛn tin ya kin mek di mɛrɛsin gɛt mɔ ɛn mɔ ɛn mek di sayd ɛfɛkt dɛn bɔku.

Dɔn, yu ɛn yu dɔktɔ we de mɛn yu nyuro fɔ disayd togɛda if dis mɛrɛsin fayn fɔ yu. Dis na mɛrɛsin we dɛn kin gi pɔsin nɔmɔ, we dɛn kin gɛt na spɛshal famasi dɛn nɔmɔ. Yu dɔktɔ go mek di arenjmɛnt dɛn we yu nid.