I ētahi wā ka puta ngā mea i roto i ō tātou tinana kāore tātou i te tumanako, tika? I tēnei rā ka kōrero tātou mō tētahi āhuatanga he āhua rerekē, engari he mea nui kia mōhiotia. Ko te ingoa o tēnei ko te cryoglobulinemia. Tērā pea he ahua uaua te ingoa, engari kaua e manukanuka, me whakamārama noa iho.

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He aha te cryoglobulinemia? He māmā noa iho...

He whakarāpopototanga noa iho, ko te cryoglobulinemia he āhuatanga e totoka ai ētahi pūmua rerekē i roto i ō toto, e kiia nei ko ngā cryoglobulin, ka piri tahi, ka hanga he pūtoto ina pāngia e te pāmahana makariri. Whakaarohia he rite ki te hukapapa o te hinu kokonati ina ringihia ki te wai matao. Engari ka puta tēnei i roto i ō tātou toto. He momo vasculitis tēnei āhuatanga. He mumura, he rite ki te pupuhi, o ō uaua toto, arā, ngā ngongo iti e kawe ana i te toto puta noa i tō tinana. Ina mumura ēnei uaua toto, ka taea te whakararuraru i te rere o te toto. Ka aha rā? Ka taea te pakaru o tō kiri, o ō io, o ō hononga, o ō uaua, me te mea nui, o ō whekau o roto pērā i ō whatukuhu. I ētahi wā ka kiia tēnei ko te cryoglobulinemia vasculitis.

He momo cryoglobulinemia anō kei reira?

Ae, ko ēnei pūmua e kiia nei ko ngā cryoglobulins he momo paturopi anō hoki. I runga i te momo paturopi i hangaia e tō tātou tinana, ka taea te wehewehe i te cryoglobulinemia kia toru ngā momo matua:

Momo I Cryoglobulinemia: Ko te nuinga o te wā ka puta mai i ngā mate pukupuku e pā ana ki ō toto, ki ngā mate pukupuku rānei e pā ana ki tō pūnaha ārai mate.
Momo II Cryoglobulinemia me te Momo III Cryoglobulinemia: Ko ēnei momo e rua ka kitea pinepinetia me ngā mate mumura mau tonu (arā, he roa). Hei tauira, ka kitea i roto i te hunga whai mate pūnaha ārai mate . Ina koa, he tino noa te Momo II Cryoglobulinemia i roto i te hunga kua pangia e te huaketo Hepatitis C (HCV). Ka honoa ēnei momo e rua, ā, ka kiia ko Mixed Cryoglobulinemia.

E hia te auau o tēnei āhuatanga?

He āhua onge te cryoglobulinemia.Engari kāore anō kia taea e ngā kairangahau te kī tika e hia ngā tāngata e pāngia ana e te mate. Nā te mea he iti pea te taumata o ēnei cryoglobulins i roto i te toto o ētahi tāngata engari kāore he tohu, e whakatau ana ngā kairangahau ka pāngia te kotahi i roto i te miriona tāngata puta noa i te ao e te mate.

He aha ngā tohu? Ka pāngia te katoa e ngā tohu?

Kāo, ehara i te mea ka pāngia te katoa e te cryoglobulinemia e ngā tohu. Tērā pea kāore ētahi e kite i tetahi mea. Engari ina puta mai ngā tohu, ko te tohu tino kitea ko te ponana kiri e kiia nei ko te purpura. Ka puta mai tēnei hei ira whero, hei marō papura rānei i ngā waewae o raro. Tērā pea ka ngenge koe, ka mamae hoki ō hononga. Tērā pea ka puta mai ētahi atu tohu. Kei roto i ēnei ko:

Ina pāngia e te makariri, ka whakawhāiti ngā uaua toto i roto i ngā ringaringa me/ngā waewae rānei, ka huri ki te kikorangi. Ka kiia tēnei ko te āhuatanga o Raynaud .
Te whakaheke taumaha .
Te toto toto tiketike (hypertension).
Te pupuhi, inā koa i ngā pona me ngā waewae (Edema).
Ngā mate pukupuku kiri, ā, i ētahi wā ka mate ngā kiko (gangrene).
Te ate nui (Hepatomegaly) te whēkau nui rānei (Splenomegaly).
Te ngenge , te mākūkū, te ngoikore rānei o ngā peka.
Te kino o te whatukuhu.

Whakaarohia, ehara i te mea ko te kikorangi o ō ringaringa me ō waewae anake i te makariri. He tohu pea tēnei nō tētahi raruraru nui ake i roto i tō tinana. Koia te mea nui kia mōhio koe ki ēnei mea.

He aha ngā take o te cryoglobulinemia?

Kāore anō kia tino mōhiotia e ngā kairangahau te take o te cryoglobulinemia. Engari e ai ki tā tātou i kōrero ai i mua ake nei, he momo mate pūnaha ārai mate tēnei e kiia nei ko te vasculitis, arā, he mumura o ngā oko toto. Ko te mate pūnaha ārai mate ko te whakaekenga hē a te pūnaha ārai mate o tō tinana, te pūnaha parepare o te tinana e tiaki ana i a koe i te mate, i ō kiko hauora. He maha ngā āhuatanga ka whai wāhi ki tēnei tauhohenga:

Ira: Mena kei tētahi o te whānau tēnei mate, ka pāngia pea.
Ētahi momo rongoā: Ehara i te mea ko ngā rongoā katoa, engari ko ētahi.
Ngā mate urutā me ngā huaketo: Ina koa ko ngā mate urutā.
Ngā āhuatanga taiao: Ko ētahi mea o te taiao e karapoti nei i a tātou.

Ka puta noa pea te cryoglobulinemia i ētahi wā, kāore he take mārama (e kiia ana tēnei ko te idiopathic), engari he maha ake ngā wā ka puta tahi me ētahi atu mate. Ko ētahi o ēnei mate ko:

Mate Hepatitis C: Koinei te hononga matua, ā, ko te hononga tino kitea.
Ngā āhuatanga rerekē o ngā pūtau toto: Hei tauira, ngā mate pukupuku pērā i te lymphoma me te myeloma maha.
Ngā mate hononga kiko: Hei tauira ko te lupus.

Ko wai te mea tino mōrearea mō tēnei?

Te āhua nei ko ngā wāhine te nuinga e pāngia ana e te cryoglobulinemia i ngā tāne, ā, he mea tino noa tēnei i roto i te hunga neke atu i te 50 tau te pakeke.

Ka puta pea ngā raruraru mēnā kāore e tika te rongoā?

Āe, tino tika. Ki te kore e rongoatia tika te cryoglobulinemia, ka pā he kino tuturu ki tō kiri, ki ō kiko, me ō whekau o roto. Ko ētahi o ngā raruraru nui ka puta ko:

Ngā mate kiri, ngā patunga kore e ora rānei.
Te mate kiri (necrosis).
Te ngoikore o te whatukuhu.
Te ngoikore o te ate.

He tino kino ēnei āhuatanga, koia te mea nui kia tere te tautuhi me te rongoā i te mate.

Me pēhea te tautuhi a ngā tākuta i tēnei mate?

Ina kite koe i tētahi tākuta, ka pātai tuatahi ia mō tō hītori hauora, ā, ka whakahaere i tētahi whakamātautau tinana. Kātahi ka whakahaua he whakamātautau toto motuhake hei tirotiro i ngā cryoglobulins i roto i ō toto. Ka taea hoki e tēnei whakamātautau toto te whakaatu ki a koe he aha te momo cryoglobulins kei a koe. I ētahi wā ka āwhina tēnei ki te whakatau i te take o tō mate me te pēhea te rongoā. Haunga tēnei whakamātautau toto, ka whakahaua pea e tō tākuta ētahi atu whakamātautau hei whakaū i te mate me te mārama ki te āhuatanga:

He whakamātautau mimi (Tatari mimi).
He hihi-X o te uma.
He matawai CT (Matawai Tomography Rorohiko (CT).
He angiogram (e tiro ana i te āhua o ngā oko toto).
Ngā whakamātautau MRA (angiogram resonance aukume) me te angiogram CT (angiogram CT).
He whakamātautau mō te kawe io.
He whakamātautau electromyography (EMG) (tirohia te mahi a te uaua).
He koiora (te tango i tētahi wahi iti o te kiko, mai i te kiri, i te whatukuhu rānei, hei tirotiro).

Me pēhea te rongoā mō tēnei?

Ko te maimoatanga mō te cryoglobulinemia e whakawhirinaki ana ki ngā whekau e pāngia ana, te nui o te kino, me te mea kei a koe ētahi atu mate hauora.He mea nui kia rongoāhia ētahi atu mate e pā ana ki te cryoglobulinemia, pērā i te hepatitis C, me ētahi atu mate e pā ana ki tēnei. Nā te mea ka taea e te rongoā i aua atu mate te āwhina i ētahi wā ki te whakaiti i ngā tohu o te cryoglobulinemia. Mena kāore ō tohu i te kino, ka tūtohu pea tō tākuta i ngā rongoā mamae ka taea te hoko kore utu (pērā i ngā NSAID) me te tohutohu i a koe kia kaua e pāngia e te makariri . Ka tūtohu pea rātou kia tirotirohia koe i ia wā hei aroturuki i tō mate. I ngā take ngawari, i ngā take ngawari ki te kino rānei, tera pea he rerekē te maimoatanga:

Ngā rongoā ārai mate: Koinei te maimoatanga matua. I ētahi wā ka hoatu ngā corticosteroids, pērā i te prednisone, me ētahi atu rongoā. Kei te okana e pāngia ana me te nui o te kino.
Ngā rongoā ārai huaketo: Ki te kitea e tō tākuta he mate kē atu tōu, pērā i te hepatitis C, ka tūtohu pea ia i tētahi maimoatanga ārai huaketo. Tērā pea ka tukuna koe e ia ki tētahi tohunga ate (hepatologist).
Ngā rongoā koiora: He rongoā noa te Rituximab mō te cryoglobulinemia. Ko ngā rongoā koiora he pūmua matatini i hangaia mai i ngā rauropi ora e aro ana ki ngā wāhanga motuhake o te pūnaha ārai mate hei whakahaere i te mumura.
Plasmapheresis: He maimoatanga anō tēnei. Mā te whakaiti i te nui o ngā cryoglobulins i roto i tō toto ka mahi. I roto i tēnei tukanga, ka tangohia ngā cryoglobulins mai i tō plasma (te wāhanga wai o tō toto). Ka āwhina tēnei ki te ārai i ngā cryoglobulins kei ārai i ō uaua, e aukati ana i te rere o te toto, e whakaiti ana hoki i te kino o ngā okana.

Kia mōhio hoki tātou ki ngā pānga taha me ngā raruraru o te maimoatanga.

Tērā pea ka pāngia ētahi pānga kino e ngā rongoā e tohua ana e ngā tākuta hei rongoā i te cryoglobulinemia. Ko ngā mea matua ko te osteoporosis me te hekenga o te kaha o te tinana ki te whawhai ki ngā mate. Nō reira, he mea nui kia kite i tō tākuta i ia wā mō ngā tirotiro. Kātahi ka taea e tō tākuta te tohu i ētahi atu rongoā hei whakahaere i ēnei pānga taha. He mea nui anō hoki kia tiakina koe i ngā mate. Nō reira, kōrero ki tō tākuta mō ngā werohanga ka taea te whakaiti i te mōrearea o te mate.

He ara hei ārai i tēnei āhuatanga?

Nā te mea kāore i te mōhiotia te tino pūtake o te cryoglobulinemia, kāore he huarahi motuhake hei ārai i tēnei. Heoi, mā te karo i te makariri ka āwhina .Ka āwhina pea ki te whakahaere i ētahi tohumate, pērā i te mate a Raynaud. He mea nui anō hoki kia whakamātauria koe mō te mate Hepatitis C, ā, kia whiwhi maimoatanga mēnā kei a koe.

He aha te āhua o te oranga mō te tangata e ora ana me tēnei mate?

Ko tō tirohanga, arā, te āhua o te mate, e whakawhirinaki ana ki ētahi mea:

Ētahi atu mate hauora kei a koe.
Te nui o te kino ki ō whekau.
Te pai o tō urupare ki te maimoatanga.

Waihoki, he rerekē te kaha o te mate i ia tangata, i ia tangata. Tērā pea kāore he tohu o ētahi tāngata, he ngawari noa iho rānei tō rātou āhua, kāore e hiahiatia he maimoatanga. Mō te hunga he āhua ngawari, he kino rānei ngā mate, mā te tautuhi wawe me te maimoatanga ka āwhina i te whakamamae i ngā tohu me te ārai i ngā raruraru roa. Ki te kore ō whekau e pakaru tuturu, he tino pai te tirohanga.

Me pēhea taku tiaki i ahau anō? Ko wai kei reira hei āwhina i ahau?

Ko te mea pai rawa atu ka taea e koe ko te mahi tahi me tō tīma hauora. I runga i ngā okana kua pāngia e tō cryoglobulinemia, me mahi tahi pea koe me tētahi tīma tākuta maha-mātauranga. Kei roto i ēnei ko:

Ngā tākuta e tohunga ana ki ngā mate hononga me ngā mate hononga (Ngā tākuta mate pūkahukahu).
Ngā tākuta kiri.
Ngā tohunga toto.
Ngā tākuta e tohunga ana ki ngā mate tākihi (Ngā tohunga roro).
Ngā tākuta ngakau.
Ngā tohunga roro.
Ngā tohunga mate ate.

Kia mōhio pai ki tō tīma hauora. Kōrerohia ōu ake whakaaro. Pātai atu. Mēnā he āwangawanga āu mō tō mahere maimoatanga, kōrerohia. Kei reira ō tākuta hei whakarongo ki a koe, hei whakarite hoki kia tino mārama koe ki ngā mea katoa e pā ana ki tō hauora me tō manaakitanga.

Āhea ahau me toro atu ki te tākuta?

Mena kei a koe ētahi tohu o te cryoglobulinemia, me rapu tonu koe i te awhina hauora. Waihoki, ki te pāngia koe e te hepatitis C, ā, ka puta mai tētahi o ēnei tohu, me toro atu ki te tākuta. Ahakoa he pai te maimoatanga, ka taea tonu te hoki mai o te mate (ka hoki anō). Mena ka puta he tohu hou, ki te kino haere ō tohu o nāianei, ki te hoki mai rānei ō tohu, me toro atu ki te tākuta. He mea nui ngā tirotiro hauora auau me te aroturuki auau hei kite wawe i ngā hokinga mai me te ārai i ngā raruraru.

He aha ngā pātai me pātai atu e au ki te tākuta?

Ina kite koe i tō tākuta, he mea pai kia pātai koe i ēnei pātai:

He aha te mea i pā mai ai tēnei mate ki ahau?
He aha ngā maimoatanga e taunaki ana koe?
He aha ngā pānga taha o te maimoatanga me māharahara ahau?
He aha ngā raruraru ka puta mai i tēnei āhuatanga?
He aha taku e taea ai te mahi hei ārai i te hokinga mai o te mate?

Ngā mea tino nui hei maumahara mā tātou (Karere hei tango ki te kāinga)

He uaua te noho me te cryoglobulinemia i ētahi wā. Ka pā nui ngā tohu me ngā pānga taha o ngā rongoā ki tō oranga hinengaro. Ka pā hoki ki ngā āhuatanga maha atu o tō oranga.

Engari kia maumahara, kāore koe i te mokemoke. Pātai atu ki tō tākuta mō te āwhina, me te kimi i ngā rōpū tautoko hei wāhi e taea ai e ētahi atu e pāngia ana e ngā āhuatanga ōrite te huihui. Mā te whakapuaki i ō wheako me ō mōhiotanga ka āwhina i a koe ki te noho me te cryoglobulinemia. He mea nui te tiaki i a koe anō i te makariri, te rapu tohutohu hauora, te kore e momi hikareti, me te kai i tētahi kai taurite.

Ko tāku tumanako ka whai hua ēnei kōrero ki a koe. Kia ora tonu!