Kua rongo koe i tētahi wāhanga o tō tinana, arā, tō kaki, tō ringa, tō waewae, tae noa ki ō kamo, kei te wiriwiri, kei te mau rānei i tētahi tūranga? He tino whakamā tēnei, ā, he mamae hoki i ētahi wā. Ehara i te mea noa te nekenekehanga o ngā uaua pēnei me te kore e taea te whakahaere. I tēnei rā kei te kōrero tātou mō tētahi mate pūnaha io e kiia nei ko te dystonia , e puta ai ēnei tohu engari kāore i te kōrerohia whānuitia i roto i te hapori.
He aha rawa te Dystonia?
He kupu ngāwari, he mate pūnaha io te dystonia e pā ana ki te nekehanga. Ko te āhua o te whakawhāiti me te whakangā o ō tātou uaua ka whakahaeretia e ngā tohu mai i te roro. Heoi, i roto i te dystonia, he raruraru kei roto i te whakawhitiwhiti kōrero i waenga i ngā pūtau io i roto i te basal ganglia, he wāhanga hohonu o te roro e whakahaere ana i te nekehanga. Nō reira, ka whiwhi ngā uaua i ngā tohu hē, ā, ka whakawhāiti kore e taea te whakahaere. Ka meinga e tēnei ngā wāhanga o te tinana kia takahuri, kia totoro, kia mau ki te tūranga kotahi.
Ka pā pea tēnei āhuatanga ki tētahi uaua kotahi, ki tētahi rōpū uaua, ki te tinana katoa rānei. E whakapoauau ana ētahi tāngata i ngā āhuatanga e rua, arā, ko te dystonia me te dyskinesia. Ko te Dyskinesia, he momo dystonia anō hoki, he rōpū nekehanga ohorere, e ohooho ana nā te whakahekenga o ngā uaua.
He aha ngā tohu o te dystonia?
Ko te tohu matua ko ngā kōpeketanga uaua kāore e taea te whakahaere. Ka rerekē ēnei mai i te tino ngawari ki te kino. Ka kino haere ēnei tohu i te roanga o te wā.
Anei ētahi tohu noa ka kitea i ngā wāhanga tōmua:
- Te ahua e tō ana tetahi waewae i te wā e hikoi ana.
- Te rakuraku pinepine i ngā kapu o ngā waewae.
- Te tōia, te takahuri rānei i te kaki ki tetahi taha me te kore e taea te whakahaere.
- Te kimokimo kāore e taea te whakahaere.
- Te uaua ki te kōrero.
- I muri i te tīmatanga o te tuhituhi, ka pōrearea tō tuhituhi , ka tīmata rānei tō ringa ki te mamae.
- Te wiri o ngā wāhanga o te tinana.
Tērā pea ka puta mai, ka kino ake rānei ēnei tohu i ngā wā ahotea, ngenge rānei. Ka pāngia hoki ēnei tūroro e te mamae me te ngenge nā te uaua tonu e kōpiripiri ana.
Ka rerekē te whanaketanga o ngā tohu i runga i te tau e puta ai tēnei mate.
- I te wā o te tamarikitanga:Ko te tikanga ka tīmata ngā tohu i te ringa, i te waewae rānei, engari i roto i te wā ka horapa ki te tinana katoa.
- Mō ngā taiohi: Ka tīmata ngā tohu i te taha whakarunga o te tinana (hei tauira, te kaki, ngā ringa). Ka āta horapa ngā tohu.
He aha ngā take o te dystonia?
Ko te nuinga o ngā dystonia kāore he tino take, engari ka wehea e ngā tākuta te mate kia toru ngā wāhanga matua.
1. Te Dystonia Ira
Nā te hapa i roto i ngā ira i riro mai i ngā mātua tēnei. He maha ngā ira kua tautuhia e pā ana ki te dystonia. Hei tauira, ko ngā whakarerekētanga ira i roto i ngā ira pēnei i te DYT1, DYT5, me te DYT6 ka taea te whakaputa i tēnei āhuatanga. Ko ētahi o ēnei momo ka tīmata i te tamarikitanga, ā, ka taea hoki te whakaputa i ngā hauātanga kino.
2. Te Dystonia i Whiwhihia
Ka kiia hoki tēnei ko te dystonia tuarua. Ka puta mai i te kino o tētahi wāhanga o te roro e kiia nei ko te basal ganglia. Ka taea tēnei kino te puta mai i ngā mea penei:
- Whara o te Roro
- Whiu
- Puku roro
- Te korenga o te hāora ki te roro i te whānautanga, i tētahi atu wā rānei
- Ngā mate roro
- Ngā paihana i puta mai i te horomitanga o te hauota waro, ngā konganuku taumaha rānei pērā i te mata. (Mēnā kei te whakapae koe kei te paihana koe, whakapā atu tonu ki te Pokapū Mōhiohio Paihana ā-Motu i te Hōhipera ā-Motu o Colombo.)
- Ngā tauhohenga ki ētahi rongoā (Tardive Dystonia). He wā poto noa iho ēnei.
3. Te Dystonia Idiopathic
Ko te tikanga o te kupu idiopathic "kāore e kitea he take." He maha ngā tāngata e pāngia ana e te dystonia ka pāngia e te mate, kāore he take e kitea ana.
He aha ngā momo dystonia?
Ka taea te wehewehe i te dystonia ki ētahi momo, i runga i te wāhanga o te tinana e pāngia ana. Mā te mārama ki tēnei whakarōpūtanga ka āwhina i a koe ki te mārama ake ki tō āhua.
| Momo Dystonia | Whakaahuatanga |
|---|---|
| Te Dystonia o te Cervical | Koinei te momo tino noa. E kiia ana hoki ko te torticollis, ka pā ki ngā uaua o te kaki, ka kukumea te upoko ki tetahi taha, ka piko, ka whakatītaha rānei ki mua, ki muri rānei. |
| Te pupuhi o te kiri | Ka pā ki ngā uaua huri noa i ngā kanohi. Ka tīmata mā te kimo haere, ā, i ētahi wā ka piri tonu ngā kanohi. Ahakoa he pai te tirohanga, ka kati tonu ngā kanohi, ā, me te mea he matapo tetahi. |
| Te Dystonia o te Laryngeal | Ka pāngia ngā uaua o ngā taura reo i roto i te korokoro e āwhina ana i a koe ki te kōrero. Tērā pea ka ngoikore tō reo, ka pāorooro, ka puta rānei he tangi wheezing, ka uaua ai te mārama o ētahi atu. |
| Te Dystonia o te Oromandibular | Ka pā ki ngā uaua o te kauae, ngutu, me te arero, ka uaua ai te kōrero me te horomi. |
| Dystonia Motuhake-Mahi | Ka puta noa tēnei i ngā mahi auau. Hei tauira, ko te mamae o te kaituhi, ka puta noa i te wā e tuhituhi ana, te mamae rānei e pā ana ki te hunga whakatangi puoro. |
He aha ngā maimoatanga mō te dystonia?
Kāore anō kia kitea he rongoā mō te dystonia. Heoi anō, he maha ngā maimoatanga whai hua hei āwhina i te whakahaere i ngā tohu me te whakangāwari ake i te oranga. Mā tō tākuta e whakatau te maimoatanga pai rawa atu māu.
Ngā rongoā
He maha ngā momo rongoā hei āwhina i te whakahaere i ngā whakahekenga uaua mā te whakaiti i te tukunga o ngā tohu hē ki roto i te roro.
- Ngā rongoā e pā ana ki te pūnaha dopamine: Ngā rongoā pēnei i te `Levodopa`.
- Ngā rongoā ārai-cholinergic: Ngā rongoā pēnei i te 'Trihexyphenidyl'.
- Ngā rongoā whakahaere GABA: Ngā rongoā pēnei i te `Baclofen`, `Clonazepam`.
- Werohanga Paitini Botulinum:Ko tētahi tēnei o ngā maimoatanga tino whai hua e whakamahia ana i roto i te nuinga o ngā wā. E mōhiotia ana ko te 'Botox'. Ko te werohanga tika i tēnei rongoā ki roto i te uaua e pāngia ana. Ka ngoikore te uaua mō te wā poto, ā, ka mutu ngā mamae e kore e hiahiatia. Me hoatu tēnei werohanga e te tākuta whai tohu i ia toru marama.
Pokanga
Ka whakaarohia te pokanga i ngā take tino kino kāore e taea te whakahaere mā te rongoā.
- Te Whakaoho Roro Hōhonu (DBS): Ko te whakauru i tētahi hikohiko ki roto i te wāhi e pāngia ana o te roro, ka hono atu ki tētahi pākahiko i raro i te kiri o te uma. Mā ngā pāorooro hiko ngawari e tukuna ana mai i tēnei hikohiko ka whakahaere i ngā tohu rerekē i roto i te roro, ka whakaiti hoki i te whakahekenga o ngā uaua.
Ētahi atu Whakaora
- Whakaora Tinana: Ka āwhina i te whakapakari i ngā uaua, te mahi i ngā mahi totoro, me te whakanui ake i te whānuitanga o te nekehanga.
- Whakaora Mahi: Ka āwhina i a koe ki te mahi i ngā mahi o ia rā pēnei i te whakakakahu me te kai kia māmā ake.
- Whakaora Kōrero: Ka āwhina i te hunga he raruraru reo kia ngāwari ake te kōrero.
Ngā mea ka taea e koe te mahi i te kāinga
Haunga te maimoatanga hauora, he maha ngā mea ka taea e koe te mahi hei whakaora i ngā tohumate.
- Tāpirihia he kōpeke wera, he kōpeke makariri rānei ki ngā uaua e mamae ana.
- Whakaitihia te ahotea. Ka taea e ngā mahi pēnei i te manawa hōhonu me te whakaaroaro te āwhina.
- Whakamātauria ngā mea e kiia nei ko ngā "tinihanga ā-hinengaro." Ka taea e ētahi tāngata te whakamutu i te wiri, te wiri rānei mō te wā poto mā te pā mārire ki te uaua e wiri ana, ki te wāhi rānei e tata ana.
- Mō te kai, kāore he taunakitanga e pā ana tētahi kai ki te dystonia. Heoi, he whakaohooho te kawheine, ā, ka piki ake pea ngā tohu i roto i ētahi tāngata. Nō reira, me whakaaro pea koe ki te whakawhāiti i ngā mea pēnei i te tī me te kawhe. Heoi, i mua i te hanga i tētahi huringa nui ki te kai, me kōrero ki tō tākuta.
Karere Tangohia ki te Kāinga
- Ko te Dystonia he mate pūnaha io e mimiti haere ai ngā uaua nā te kore e taea te whakahaere i ngā tohu o te roro.
- Ka taea tēnei āhuatanga te puta mai i ngā ira tuku iho, i te kino o te roro, i te kore take rānei.
- Ko ngā tohu matua pēnei i te mārō o te kaki, te katinga ā-ture o ngā kanohi, me te mamae o te ringa i te wā e tuhituhi ana.
- Ka taea e ngā maimoatanga pēnei i ngā rongoā, ngā werohanga Botox, te pokanga DBS, me te whakaora tinana te whakahaere tika i ngā tohumate.
- Mena kei te pāngia koe, tetahi atu rānei e mōhio ana koe e ēnei tohu, ko te mea pai ko te toro atu ki tētahi tākuta roro kia whiwhi ai i te tautuhi tika me te mahere maimoatanga.
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