Ka ngenge rawa koe i ētahi wā, kāore he take? Ka mamae ō hononga, inā koa ō turi me ō matimati, ā, ka āhua hina, ka parauri rānei tō kiri? He maha ngā wā ka whakahē tātou i ēnei mea hei "āhua noa iho o te kaumātuatanga." Engari he tohu pea ēnei mō tētahi āhuatanga e piki haere ai te nui o te rino i roto i tō tātou tinana. Ko te ingoa hauora o tēnei āhuatanga ko te Hemochromatosis . Koinei tā tātou e kōrero nei i tēnei rā.
He aha te Hemochromatosis?
Ko te hemochromatosis he āhuatanga e nui rawa ai te rino e kohia ana e tō tinana . E kīia ana hoki e ētahi ko te " rahi rawa o te rino ".
I te nuinga o te wā, ko te nui o te rino e hiahiatia ana e te tinana mai i te kai e kainga ana e tātou ka mimiti noa iho. Heoi, i roto i te hunga e pangia ana e te hemochromatosis, he nui ake te rino e mimitihia ana e te tinana i tana e hiahia ana. Ko te raruraru, kāore he huarahi hei tango i tēnei rino nui mai i te tinana.
Nō reira, kei hea te tinana e rongoa ai i tēnei rino nui? Ka rongoatia ki roto i ō hononga, tae atu ki roto i ngā whekau nui pērā i tō ate , tō ngākau , tō kiri, tō repe pituitary, me tō pancreas . I roto i te wā, ka tīmata te kino o aua whekau i tēnei rino kua kohia. Ki te kore e rongoatia, ka mutu pea te mahi a ēnei whekau.
E rua ngā momo matua o tēnei mate.
Ka taea te wehewehe i tēnei āhuatanga ki ngā momo e rua.
1. Te Hemochromatosis Tuatahi: Koinei te momo tino noa. He tuku iho. Ki te kī ngāwari, kia pāngia ai koe e tēnei mate, me whiwhi koe i te ira hapa mai i tō whaea me tō pāpā. Ki te whiwhi koe i tēnei ira mai i te mātua kotahi anake, e kore koe e pāngia e te mate, engari tera pea he kaikawe koe i te ira.
2. Te Hemochromatosis Tuarua: Ka puta tēnei nā ētahi atu take. Hei tauira, ka puta pea tēnei āhuatanga i roto i te tangata e hiahia ana ki te whakawhiti toto pinepine nā te mea he mate toto nui pēnei i te anemia kino.
He aha te take o tēnei āhuatanga?
Kia tirohia tātou he aha ngā take mō tēnei.
Ngā take tuku iho (Hemochromatosis matua)
He ira kei roto i ō tātou tinana e kiia nei ko te `HFE`. Koinei te mea e whakahaere ana i te nui o te rino e mimitihia ana e tātou mai i ngā kai e kainga ana e tātou. E rua ngā whakarerekētanga ira i roto i tēnei ira `HFE`, arā, ko `C282Y` me `H63D`, koinei te take o te nuinga o ngā tūroro hemochromatosis tuku iho.
Hei tāpiritanga, ko ngā whakarerekētanga ira i roto i ētahi atu ira, pērā i te `HJV` me te `HAMP`, ka taea hoki te whakaputa i tēnei mate i roto i te tokoiti o te tangata (tata ki te 10%-15%). Ko te hunga e pāngia ana e ēnei ira ka puta ngā tohu i te wā taitamariki.
I puta mai i ētahi atu mate hauora (Hemochromatosis Tuarua)
Ko te tikanga, ka puta tēnei momo i ngā whakawhiti toto maha nā ngā āhuatanga pēnei i te anemia kino (pēnei i te anemia pūtau maripi) te ngoikore rānei o te hinu wheua. He nui te rino i roto i ngā toto whero e tukuna ana ina koha toto koe. Nā te mea kāore he ara a te tinana ki te tango i tēnei rino, ka tīmata te kohikohi.
Hei tauira, mā te kino o te ate, nā te mate ate momona ( cirrhosis ) me te hepatitis B, C rānei, ka kohia te rino i roto i te tinana.
Ko wai kei te nui ake te mōrearea ki te whakawhanake i tēnei mate?
Ahakoa ka taea e te tangata katoa te pāngia e te hemochromatosis, he nui ake te mōrearea o ētahi tāngata.
Ko te mea nui, ahakoa kei a koe ēnei āhuatanga mōrearea , ki te puta mai ngā tohumate, me toro atu koe ki te tākuta.
| Tauwehenga mōrearea | Whakaahuatanga |
|---|---|
| E rua ngā ira HFE hapa | Mena kua riro mai i a koe te ira hapa i tō whaea rāua ko tō pāpā. |
| Hītori whānau | Mena kei tētahi o ō mātua, o ō tuākana, o teina rānei tēnei mate. |
| Te tāne | E rima ngā wā ka nui ake te tūponotanga o ngā tāne ki te pāngia e tēnei mate i ngā wāhine. |
| Ngā wāhine kua pāngia e te menopause | Ina mutu te tango a te tinana i te rino i te wā o te paheketanga, ka piki ake te tūponotanga o te kohikohinga rino. Ka pā anō hoki tēnei tūponotanga ki ngā wāhine kua tangohia te kōpū. |
Kei a koe anō ēnei tohu?
Tata ki te haurua o te hunga e pāngia ana e te hemochromatosis kāore e pāngia e tetahi tohu. Ko te tikanga ka puta ngā tohu ki ngā tāne i waenga i te 30 me te 50 tau te pakeke, ko ngā wāhine ia ka puta ngā tohu i muri i te 50 tau te pakeke, i muri rānei i te menopause.
| Ngā tohu noa | |
|---|---|
| Te mamae o ngā hononga (ina koa i ngā hononga me ngā turi) | Te ngenge me te ngenge pinepine |
| Te ngaronga taumaha mō te kore take | Ka huri te tae kiri ki te parahi, ki te hina rānei |
| Mamae puku | Te hekenga o te hiahia moepuku |
| Te ngaronga o te makawe o te tinana | Te mahara pōuri, te uaua ki te arotahi |
| Ngā raruraru ka puta ake ina kino haere te mate | |
| Ngā raruraru ate (hei tauira, cirrhosis) | Mate huka |
| Ngā rerekētanga o te pā o te ngakau (Arrhythmia) | Te ngoikore o te ure i roto i ngā tāne |
He mea nui: Ka kino ake pea tēnei āhua mēnā ka tangohia e koe ngā pire huaora C, ka nui rānei ngā kai e nui ana te huaora C i roto, nā te mea ka whakanui ake te huaora C i te mimiti o te rino mai i te kai.
Me pēhea e kitea ai tēnei e koe, e Tākuta?
Nā te mea ka kitea ēnei tohu i roto i ētahi atu mate, he uaua pea te tautuhi i ētahi wā. Ka pātai atu tō tākuta ki a koe mō tō hītori hauora whānau, ā, ka tirotirohia hoki e ia tō tinana.
Hei tāpiri, ka taea te whakahaere i ēnei whakamātautau:
- Ngā whakamātautau toto: E rua ngā whakamātautau matua e mahia ana i konei.
- Te Mātotorutanga o te Transferrin: E ine ana tēnei i te nui o te rino e herea ana ki te pūmua (transferrin) e kawe ana i te rino i roto i te toto.
- Ferritin Serum: Ka ine tēnei i te nui o te pūmua (ferritin) e penapena ana i te rino i roto i te toto.
Mena ka whakaatuhia e ēnei whakamātautau he nui ō taumata rino, ka whakahaerehia pea e tō tākuta he whakamātautau ira hei tirotiro mena kei a koe te ira e puta ai te hemochromatosis.
- Kohikohi Ate: Ka tangohia e te tākuta tētahi wahi iti o te kiko mai i te ate, ka tirohia i raro i te karuārai hei tirotiro mēnā he kino kei te ate.
- Matawai MRI: Ka taea e tēnei te tango whakaahua mārama o ō whekau me te tirotiro mēnā he putunga rino kei roto.
He aha ngā maimoatanga?
Mena he Hemochromatosis Tuatahi tōu, he tino māmā noa te maimoatanga. Ko te tango i te toto mai i tō tinana i runga i tētahi wātaka kua whakaritea. Ka kiia tēnei ko te Phlebotomy.
Te tango toto i roto i te toto
He rite tēnei ki te tuku toto. Ka werohia e te tākuta, e te nēhi rānei he ngira ki roto i te uaua i roto i tō ringa, ka tangohia te toto ki roto i te pēke toto.
- Maimoatanga tuatahi: I te tīmatanga, me haere koe ki te hōhipera kotahi, e rua rānei i te wiki kia tangohia he toto kia hoki rā anō ō taumata rino ki te āhua noa. Tērā pea ka roa pea tēnei mō ētahi marama, mō tētahi tau rānei.
- Te rongoā pupuri: Kia hoki anō ngā taumata rino ki te āhua noa, ka whakaitihia te auau o ngā whakawhiti toto, ki te rua ki te whā wā i te tau.
Te rongoā i ngā rongoā (Te rongoā Chelation)
Mena he hemochromatosis tuarua tōu, ki te kore rānei ō uaua e kaha ki te mimiti toto, ka tohua pea e tō tākuta he maimoatanga e kiia nei ko te 'Chelation Therapy'. I roto i tēnei, ka hoatu he rongoā ki a koe hei āwhina i tō tinana ki te tango i te rino nui rawa mā roto i tō mimi me tō tūtae.
Ka taea te whakahaere i tēnei āhuatanga i te kāinga?
Ko te tangata e whiwhi ana i te maimoatanga phlebotomy, kāore e hiahiatia kia huri nui i tā rātou kai, nā te mea ko te maimoatanga tonu e whakahaere ana i ō rātou taumata rino. Heoi, ka taea e koe te mahi i ēnei e whai ake nei hei whakaiti i tō tupono ki ngā raruraru:
- Āta karohia te waipiro. Ka kino te ate i te waipiro, ā, ka tino morearea tēnei mate.
- Kaua e kai ika mata, kaua hoki e kai mātaitai. Ka taea e ngā huakita o roto i ēnei te whakararu i ngā mate kino ki te hunga he nui te rino.
- Kaua e tango i ngā tāpiringa huaora C. Heoi, kāore he raruraru ki te kai i ngā hua me ngā huawhenua kei roto te huaora C.
- Kaua e tango i ngā pire rino, i ngā huaora maha rānei kei roto te rino.
- Āta karohia ngā pata parakuihi he mea whakakaha ki te rino.
Karere Tangohia ki te Kāinga
- Ko te hemochromatosis he mate e nui rawa ai te rino e kohia ana i roto i te tinana. Ki te kore e rongoatia, ka kino pea ngā whekau pēnei i te ate me te ngākau.
- Kaua e warewarehia ngā tohu pēnei i te ngenge pinepine, te mamae o ngā hononga, me te rerekētanga o te kiri. Kōrero ki tō tākuta.
- He mea tuku iho tēnei i te nuinga o te wā, engari ka taea hoki e ētahi atu mate hauora te puta.
- Ko te maimoatanga matua ko te tango toto i ia wā (phlebotomy), he maimoatanga tino whai hua, he haumaru hoki.
- Haunga te rongoā hauora, ka taea te whakahaere pai i te mate mā te whakarerekē i te āhua noho, pērā i te karo i te waipiro.
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