He maha ngā wā ka ngenge koe, ka mamae hoki ō hononga? I ētahi wā ka whakaaro tātou he mea noa ēnei, ā, ka warewarehia. Engari he tohu anō hoki ēnei o te nui rawa o te rino i roto i tō tātou tinana. I tēnei rā ka kōrero tātou mō tētahi mate pēnei, ko te "Hemochromatosis". Ahakoa he ingoa tauhou tēnei, he mea tino nui kia mōhio tātou ki tēnei.
He aha te hemochromatosis?
Ko te hemochromatosis he
āhuatanga e nui rawa ai te rino e kohia ana e tō tinana. E kīia ana hoki e ētahi ko te "rahi rawa o te rino". I te nuinga o te wā, ko te nui anake o te rino e hiahiatia ana e tō tātou tinana ka mimitihia e ō tātou whekau mai i ngā kai e kainga ana e tātou. Engari i roto i te hunga e pāngia ana e te hemochromatosis, he nui ake te rino e mimitihia ana e te tinana i tōna e hiahiatia ana. Ko te raruraru, kāore he huarahi hei whakakore i tēnei rino nui. Nō reira, ka rongoatia e te tinana tēnei rino nui ki roto i ō hononga me ngā whekau nui pērā i te ate, te ngākau, me te pancreas.
Pērā i te tāke wai e puea ana i muri i te kīnga, ina nui rawa te rino i roto i te tinana, ka tīmata te kohikohi i roto i ō tātou whekau. Ina tupu tēnei i roto i te wā, ka taea e ia te kino i aua whekau. Ki te kore e rongoatia, ka taea e ia te aukati i te mahi a aua whekau.
E rua ngā momo matua o tēnei mate.
E rua ngā momo matua o tēnei mate. 1.
Hemochromatosis Tuatahi: He mate tuku iho tēnei. Arā, ka tukuna iho i roto i ngā mema o te whānau mā roto i ngā ira. Hei whakamārama ake, kia pāngia ai koe e tēnei mate, me whiwhi koe i te ira hapa mai i tō whaea me tō pāpā. 2.
Hemochromatosis Tuarua: Ka puta tēnei nā ētahi atu take. Hei tauira, ka puta pea tēnei mate i roto i te hunga he mate hauora e hiahia ana kia whakawhiti toto pinepine (hei tauira, te thalassemia) i roto rānei i te hunga he mate ate kē atu.
He aha ngā take o te hemochromatosis?
Ngā take tuku iho
Ko te ira HFE te kaiwhakahaere i te nui o te rino e mimitihia ana e te tinana mai i te kai. E rua ngā whakarerekētanga ira i roto i te ira HFE, arā, ko C282Y me H63D, te take o te nuinga o ngā take hemochromatosis tuku iho. Ka taea hoki e ētahi atu ira te whakaputa i ētahi take iti (tata ki te 10%-15%). Ka kiia ēnei he hemochromatosis kore-HFE. Mena he whakarerekētanga ira i roto i ngā ira pēnei i te HJV, te HAMP rānei, ka puta ngā tohu i te wā taitamariki. I ētahi wā, ka puta te kino o te ate
me te cirrhosis i te wā tamarikitanga.Tērā pea ka ara ake te āhuatanga.
Ētahi atu take o waho (Ngā Take Tuarua)
Ka puta tēnei momo mate ina pāngia te tangata e te mate pēnei i te anemia nui, ā, me tuku toto pinepine. Nā te mea he nui te rino kei roto i ngā toto whero e hoatu ana ki a rātou mai i waho. Nā te mea kāore he ara a te tinana ki te tango i tēnei rino, ka tīmata te kohikohi. Ka piki ake hoki te kohikohinga rino ina pakaru te ate i ngā mate pēnei i te cirrhosis, te hepatitis B, C rānei.
Ko wai te mea tino mōrearea mō tēnei?
Mena kei a koe ēnei āhuatanga e whai ake nei, he nui ake te tūponotanga ki te pāngia koe e te hemochromatosis. Me titiro tātou ki tētahi ripanga kia mārama ai tātou ki tēnei.
| Tauwehenga mōrearea | Whakaahuatanga |
|---|
| E rua ngā ira HFE hapa | Koinei te tino take mōrearea. Me tuku iho te ira i te whaea me te matua. |
| Hītori whānau | Mena kei tētahi o ō mātua, o ō tuākana, tuāhine rānei tēnei āhuatanga, kei roto hoki koe i te mōrearea. |
| Te noho hei tāne | E rima ngā wā ka nui ake te tūponotanga o te tāne ki te pāngia e tēnei mate i ngā wāhine. |
| Te paheketanga | Ka ngaro te nui o te rino i roto i te tinana o ngā wāhine mā te toto o ia marama. Ka mutu tēnei i muri i te paheketanga, i muri rānei i te tango i te kōpū, ka nui ake te tūponotanga o te nui rawa o te rino. |
He aha ngā tohu o te hemochromatosis?
Tata ki te haurua o te hunga e pāngia ana e te hemochromatosis kāore e pāngia e tetahi tohu. Mō ngā tāne, ka tīmata ngā tohu i waenga i te 30 me te 50 tau te pakeke. Mō ngā wāhine, ka puta pinepine ngā tohu i muri i te 50 tau te pakeke, i muri rānei i te menopause. Anei ētahi o ngā tohu matua:
He mea nui, ka kino rawa atu tēnei āhua mēnā ka tangohia e koe ngā pire huaora C , ka nui ake rānei te kai i ngā kai he nui te huaora C. Nā te mea ka whakanui ake te huaora C i te mimiti o te rino mai i te kai e te tinana.
I ētahi wā, kāore te mate e whakaatu i ēnei tohu, engari ka puta hei raruraru kē atu. Hei tauira:
- Ngā raruraru ate, inā koa ko te cirrhosis
- Mate huka
- Ngā rerekētanga o te ngakau
- Mate rumatiki
- Te ngoikore o te ure
Me pēhea e kitea ai tēnei e koe, e Tākuta?
Nā te mea ka kitea ēnei tohu i roto i ētahi atu mate, i ētahi wā ka uaua te tautuhi i te mate. Engari, ki te mea he tohu āu, he āhuatanga mōrearea, he mema rānei o te whānau e pāngia ana e te mate, ka tirohia e tō tākuta. Anei ētahi o ngā huarahi matua hei tautuhi i te mate:
- Te pātai mō tō hītori hauora me tō whānau: Ka pātai te tākuta mēnā kei roto i tō whānau tētahi o ēnei mate, mate ate, mate rumatiki rānei.
- Whakamātautau tinana: Ka tirotirohia tō tinana.
- Ngā whakamātautau toto: E rua ngā whakamātautau matua ka mahia.
1.
Te mākū o te transferrin: E whakaatu ana tēnei i te nui o te rino e herea ana ki te transferrin, he pūmua e kawe ana i te rino i roto i te toto. 2.
Ferritin toto: Mā tēnei ka ine i te taumata o te ferritin, he pūmua e penapena ana i te rino i roto i te tinana. Mena ka whakaatuhia e ēnei whakamātautau he nui ngā taumata rino, ka tukuna pea koe e tō tākuta mō te whakamātautau ira hei whakatau mena kei a koe te ira e puta ai te hemochromatosis.- Kohikohi ate: Ka tangohia he wāhanga iti rawa o te ate, ka tirotirohia i raro i te karuārai hei tirotiro mēnā he kino kei te ate.
- Matawai MRI: Ka whakamahia ngā aukume me ngā ngaru reo irirangi hei hanga whakaahua mārama o ō whekau.
He aha ngā maimoatanga?
Mena he hemochromatosis tuku iho tōu, ko te maimoatanga matua ko te phlebotomy . He rite tonu ki te tikanga o tā mātou koha toto i Sri Lanka. Ka werohia e te tākuta, e te nēhi rānei he ngira ki roto i te uaua i tō ringa, ā, ka tangohia he toto. Ko te whāinga matua o tēnei ko te whakahoki i ngā taumata rino i roto i tō toto ki te āhua noa. E rua ngā wāhanga o tēnei:- Te maimoatanga tuatahi: Me haere koe ki te hōhipera, ki te whare hauora rānei kotahi, e rua rānei i te wiki kia tangohia he toto kia hoki rā anō ō taumata rino ki te āhua noa. Tērā pea ka roa te wā mō tēnei tau, neke atu rānei.
- Maimoatanga tiaki: Kia hoki anō ngā taumata rino ki te āhua noa, ka whakaitihia te auau o ngā whakawhiti toto. E rua ki te whā ngā wā ka mahia tēnei i te tau.
Mena he hemochromatosis tuarua tōu, ki te kore rānei ō uaua e kaha ki te tango i te toto, ka tūtohu pea tō tākuta i tētahi maimoatanga e kiia nei ko te chelation therapy . Ko te tikanga o tēnei ko te hoatu rongoā ki a koe hei āwhina i tō tinana ki te tango i te rino nui mā roto i tō mimi me tō tūtae. He aha ngā huringa ka taea te mahi i te kāinga, i roto hoki i tō āhua noho?
Mena kei te tangohia he toto i roto i tō tinana, kāore koe e hiahia ki te whai i tētahi kai tino pakari nā te mea ka āwhina i te whakahaere i ō taumata rino. Heoi, ka taea e koe te mahi i ēnei hei whakaiti i tō tupono ki ngā raruraru:- Āta karohia te waipiro. Ka taea e te waipiro te whakanui ake i te kino o te ate.
- Kaua e kai ika mata, kaua hoki e kai mātaitai. Tērā pea kei roto i ēnei he huakita ka pāngia ai te hunga he nui te rino.
- Kaua e tango i ngā tāpiringa huaora C. Heoi, kāore he raruraru ki te kai i ngā kai tūturu kei roto te huaora C (hei tauira, te karaka, te tāne).
- Kaua e tango i ngā tāpiringa rino, i ngā huaora maha rānei kei roto te rino.
- Āta karohia ngā pata parakuihi he rino kei roto (he mea whakapakari).
- Whakaitihia te kai i ngā kai he nui te rino (hei tauira, te tio, te parera, te pīnihi). Pātai atu ki tō tākuta mō tēnei.Whakarongo mai, kia mōhio ai koe ki ētahi atu kōrero.
Karere Tangohia ki te Kāinga
- Ko te hemochromatosis he mate e nui rawa ai te rino e kohia ana i roto i te tinana. He mate ira te nuinga o te wā ka tukuna iho i roto i ngā whakatipuranga.
- Ko ngā tohu pea ko te ngenge, te mamae o ngā hononga, me te rerekētanga o te kiri. Tērā pea kāore he tohu o ētahi tāngata.
- Mena kei a koe ngā tohu, kei te pāngia rānei tētahi o tō whānau e tēnei mate, me toro atu ki tō tākuta tonu mō ētahi tohutohu.
- Mā te tautuhi me te maimoatanga wawe (Phlebotomy) ka taea te whakahaere i ngā taumata rino i roto i te tinana me te ārai i te kino o ngā okana.
- Ehara tēnei i te āhuatanga hei wehi. Mā te maimoatanga hauora me ngā tohutohu tika, ka taea e koe te noho ora, hauora hoki.
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