Kodi mudamvapo za vuto lomwe simungathe kuletsa kutuluka magazi ngakhale mutadula pang'ono? Mwina wina m'banja mwanu ali nalo. Matenda akuluakulu omwe simungathe kuletsa
kutuluka magazi amatchedwa Hemophilia. Ndiye funso lomwe anthu ambiri ali nalo ndi lakuti, ngati izi ndi zobadwa nazo, kodi tingaletse kuti zisachitike? Tiyeni tikambirane za izi mwachidule.
Choyamba, kodi hemophilia ndi chiyani?
Mwachidule, tikavulala kapena
kuvulala kulikonse m'thupi lathu, kutuluka magazi kumasiya pakapita nthawi, sichoncho? Zimenezo zimatchedwa magazi kuundana. Monga momwe timamangira khoma, simenti imayikidwa pakati pa njerwa kuti ikwaniritse mipata, mapuloteni ena m'magazi athu amasonkhana kuti apange "pulagi" pamalo ovulalawo ndikuletsa kutuluka magazi. Timatcha mapuloteni awa
kuti Zinthu Zoundana . Munthu amene ali ndi hemophilia sapanga chimodzi kapena zingapo mwa Zinthu Zoundanazi m'thupi mochuluka momwe amafunikira. Kapena sagwira ntchito bwino. Chifukwa chake, ngakhale kuvulala pang'ono sikuletsa kutuluka magazi ndipo kumapitirira. Nthawi zina, kutuluka magazi kumatha kuchitika m'thupi, makamaka mkati mwa mafupa ndi minofu, popanda kuvulala kulikonse.
Kodi hemophilia imayamba bwanji? Kodi ndi yobadwa nayo?
Inde, hemophilia ndi
matenda a majini . Ndiko kuti, ndi chinthu chomwe timalandira kuchokera kwa makolo athu kudzera
m'majini . Jini lolakwika la matendawa lili pa chromosome ya X. Monga mukudziwa, akazi ali ndi ma chromosome awiri a X (XX), ndipo amuna ali ndi chromosome imodzi ya X ndi chromosome imodzi ya Y (XY). Chifukwa chake, matendawa ndi ofala kwambiri pakati pa amuna.
- Azimayi nthawi zambiri amakhala ndi matendawa okha. Izi zikutanthauza kuti ngakhale ali ndi jini yolakwika pa imodzi mwa ma chromosome awo a X, sasonyeza zizindikiro chifukwa cha chromosome ina yathanzi ya X. Komabe, amatha kupatsira jini yolakwikayo kwa ana awo.
- Ngati mwana wamwamuna alandira chromosome ya X yolakwika iyi kuchokera kwa amayi ake, adzakhala ndi hemophilia chifukwa ndi chromosome yokha ya X yomwe ali nayo.
Kodi mukumvetsa? Hemophilia si chinthu chomwe timachipeza kuchokera kunja ngati chimfine . Ndi matenda omwe amabwera ndi majini athu, omwe timatengera kwa makolo athu.
Choncho funso lalikulu ndi lakuti: Kodi hemophilia ingapewedwe kuti isalowe m'malo mwa mwana?
Yankho lalifupi komanso loona mtima kwambiri pa izi ndi lakuti,
"Ayi."Malinga ndi sayansi ya zamankhwala yomwe ilipo pano, palibe njira yoletsera munthu kuti asalandire jini yolakwika. Izi zikutanthauza kuti ngati pali mbiri ya banja la hemophilia, pali mwayi woti inu kapena mwana wanu mudzalandira jiniyo. Palibe mankhwala kapena katemera pakadali pano.
Koma musadandaule! Ngakhale sitingathe kuletsa matendawa kuti asalandire, pali zinthu zina zofunika kwambiri zomwe tingachite.
Zomwe zingachitike: Uphungu wa Majini
Ngati wina m'banja mwanu ali ndi vuto la hemophilia, chinthu chabwino kwambiri chomwe mungachite musanakwatirane kapena kukonzekera kukhala ndi mwana ndikufunsa
upangiri wa majini .
- Ndani ayenera kunena izi?
- Ngati m'banja muli anthu odwala matenda a magazi m'magazi (kumbali ya amayi kapena abambo).
- Ngati ndinu mkazi ndipo mukufuna kudziwa ngati ndinu wonyamula.
- Ngati makolo omwe ali kale ndi mwana wodwala hemophilia akuganiza zokhala ndi mwana.
- Kodi chimachitika ndi chiyani mu uphungu uwu?
Mlangizi wa majini kapena mlangizi wa majini adzawunikanso mbiri yanu yachipatala ndi ya banja lanu. Kenako adzafotokoza za chiopsezo cha mwana wanu kukhala ndi hemophilia. Ngati pakufunika,
mayeso apadera a magazi angachitike kuti adziwe ngati ndinu amene ali ndi matendawa. Kufunsana kumeneku kudzakuthandizani kupanga chisankho chodziwa bwino. Dokotala wanu angakambiranenso
za mayeso a mimba (monga amniocentesis, chorionic villus sampling - CVS) omwe angapeze matendawa mwa mwana akadali m'mimba.
Ngati matendawa sangathe kupewedwa, kodi mavuto angapewedwe bwanji?
Iyi ndi gawo lofunika kwambiri. Ngakhale sitingathe kuletsa hemophilia kuti isatengedwe mwachibadwa, pali zinthu zambiri zomwe tingachite
kuti tipewe mavuto ndi zoopsa zomwe zingabwere chifukwa cha hemophilia. Zinthuzi zingakuthandizeni kukhala ndi moyo wathanzi komanso wabwinobwino ndi hemophilia.
| Mavuto Otha Kupewedwa | Zinthu zoti muchite |
|---|
| Kutuluka magazi pafupipafupi ndi mabala | - Kupewa masewera olimbitsa thupi monga rugby ndi nkhonya. - Kuchita masewera olimbitsa thupi otetezeka monga kusambira ndi kuyenda. - Ngati muli ndi mwana wamng'ono, gwiritsani ntchito zophimba zoteteza pa zinthu zakuthwa m'nyumba, ndi ma pedi pamawondo ndi zigongono. |
| Kuwonongeka kwa Mafupa | - Kumwa mankhwala ophera magazi omwe dokotala wakupatsani panthawi yoyenera komanso mu mlingo woyenera. Ichi ndiye chinthu chofunikira kwambiri. - Kuchita masewera olimbitsa mafupa motsatira malangizo a physiotherapy. |
| Kutuluka magazi m'mano ndi m'kamwa | - Sungani bwino mkamwa. Tsukani mano anu tsiku lililonse ndi burashi yofewa. - Pitani kwa dokotala wa mano nthawi zonse. Musanachite opaleshoni iliyonse monga kuchotsa mano, ndikofunikira kudziwitsa dokotala wanu za vuto lanu la hemophilia. |
| Kutuluka magazi chifukwa cha mankhwala osokoneza bongo | - Pewani kumwa mankhwala omwe amachepetsa magazi kuundana, monga aspirin ndi NSAIDs (monga ibuprofen, diclofenac). - Nthawi zonse funsani dokotala musanamwe mankhwala aliwonse. |
Ngati zinthuzi zitsatiridwa bwino, ngakhale munthu wodwala matenda a magazi amatha kukhala ndi moyo wabwino popanda mavuto oopsa. Chifukwa chake, m'malo modandaula kuti sangathe kupewa matendawa kuti asatengedwe ndi makolo, chofunika kwambiri ndikudziwa momwe mungakhalire ndi matendawa komanso momwe mungapewere mavuto.
Uthenga Wopita Nawo Kunyumba
- Hemophilia ndi matenda a majini omwe sangapewedwe kapena kuchiritsidwa ndi njira zamakono.
- Ngati m'banja mwanu muli kale ndi vuto la hemophilia, ndikofunikira kwambiri kufunafuna upangiri wa majini musanaganize zokhala ndi mwana.
- Ngakhale kuti matendawa sangapewedwe, pali zinthu zambiri zomwe zingachitike kuti tipewe mavuto (kutuluka magazi, kuwonongeka kwa mafupa ) omwe amayamba chifukwa cha matendawa.
- Ndikofunikira kumwa mankhwala (Factor Replacement Therapy) omwe dokotala wakupatsani bwino, kukhala ndi moyo wabwino, komanso kupewa mankhwala oopsa.
- Ngati muli ndi nkhawa kapena mantha okhudza izi, musawasunge nokha. Dokotala wanuKambiranani nawo momasuka ndipo pezani upangiri woyenera.
Hemophilia, Kutseka magazi, Uphungu wa majini, Matenda a majini, Kutuluka magazi, Zinthu Zokhudza Kutseka Magazi
💬 Comments (0)
Palibe ndemanga zomwe zatumizidwa pano. Onjezani ndemanga yanu pano koyamba.
Onjezani ndemanga yanu