Kodi nthawi zina mumamva dzanzi, ululu, kapena kumva kuwawa m'manja ndi m'mapazi anu? Ngakhale anthu ena amaganiza kuti izi ndi zinthu zachilendo, nthawi zina pangakhale vuto lalikulu komanso losowa la majini kumbuyo kwawo. Lero tikulankhula za jakisoni wotchedwa Vutrisiran, womwe umagwiritsidwa ntchito pochiza vuto lotere. Umadziwika kwambiri ndi dzina la kampani ya AMVUTTRA.
Kodi Vutrisiran uyu ndi mankhwala amtundu wanji?
Mwachidule, Vutrisiran ndi mankhwala omwe amagwiritsidwa ntchito pochiza matenda osowa kwambiri a majini otchedwa hereditary transthyretin-mediated amyloidosis (hATTR) .
Chabwino, tsopano mwina mukudabwa kuti matendawa ali ndi dzina lalitali chonchi. Tiyeni tifotokoze mwachidule.
Uwu ndi mkhalidwe womwe tingalandire kuchokera ku majini athu. Chomwe chimachitika pamenepa ndichakuti puloteni yotchedwa 'transthyretin', yomwe imapangidwa m'chiwindi chathu, imasintha mawonekedwe ake modabwitsa, ndipo imasonkhana pamodzi ndikupanga malo otchedwa 'amyloid' m'mbali zosiyanasiyana za thupi, makamaka m'mitsempha. Malo osazolowereka a mapuloteniwa amachititsa kuwonongeka kwa mitsempha.
Apa ndi pamene zizindikiro zomwe ndatchula kale, monga kupweteka kwa mitsempha, dzanzi m'miyendo, kugwedezeka, kutayika kwa kumverera m'miyendo, ndi kufooka, zimawonekera.
Mankhwalawa, otchedwa Vutrisiran, amagwira ntchito poletsa kupanga mapuloteni osazolowereka. Ntchito yaikulu ya mankhwalawa ndi kuchepetsa kuwonongeka kwa mitsempha ndikuwongolera zizindikiro.
Zinthu zomwe muyenera kuuza dokotala musanagwiritse ntchito mankhwalawa
Dokotala wanu asanasankhe kukupatsani mankhwala awa, adzakufunsani mafunso angapo. Panthawiyo, muyenera kumuuza zinthu izi popanda kuzibisa.
- Matenda a ziwengo: Tiuzeni ngati muli ndi vuto lililonse la ziwengo ku Vutrisiran, mankhwala ena aliwonse, chakudya, utoto, kapena zotetezera.
- Mimba: Ngati muli ndi pakati, mukufuna kutenga mimba, kapena mukuganiza kuti muli ndi pakati, onetsetsani kuti mwadziwitsa dokotala wanu.
- Ngati ndinu mayi woyamwitsa: Ngati ndinu mayi woyamwitsa, lankhulani ndi dokotala wanu za zimenezo.
Kodi ndingapeze bwanji jakisoni?
Iyi si mankhwala omwe mungamwe kunyumba. Ndi jakisoni wopangidwa pansi pa khungu . Nthawi zambiri mumayenera kulandira jakisoni iyi miyezi itatu iliyonse.
Izi zimaperekedwa kuchipatala kapena ku chipatala ndi dokotala kapena namwino amene waphunzitsidwa bwino, kotero palibe chodetsa nkhawa.
Nanga bwanji ngati ndaphonya mlingo wa mankhwala?
Ndikofunikira kwambiri kulandira jakisoni wanu pa nthawi yake kuti mupeze chithandizochi. Ngati pazifukwa zina simungathe kupita pa tsiku lomwe mwakonza, imbani dokotala wanu kapena chipatala nthawi yomweyo ndikusintha nthawi. Musadumphe mankhwala anu.
Nanga bwanji ngati mankhwalawo atengedwa mopitirira muyeso?
Izi zimaperekedwa kuchipatala kotero mwayi woti izi zichitike ndi wochepa kwambiri . Komabe, ngati mukuganiza kuti mwamwa mankhwala mopitirira muyeso, funsani nthawi yomweyo ku National Poisons Information Centre ku Colombo National Hospital kapena pitani ku Emergency Department (ETU) ya chipatala chapafupi.
Zinthu zofunika kukumbukira mukamamwa mankhwalawa
Dokotala wanu aziyang'anira matenda anu nthawi zonse mukamamwa mankhwalawa, choncho ndikofunikira kwambiri kufika pa nthawi yanu yokumana ndi dokotala.
- Vitamini A: Vitamini A yanu ingachepe mukamamwa mankhwalawa. Chifukwa chake, dokotala wanu mwina angakulembereni vitamini A yowonjezera kuti mumwe tsiku lililonse. Ndikofunikira kumwa monga momwe dokotala wanu akulangizira. Komanso, lankhulani ndi dokotala wanu za zakudya zomwe zili ndi vitamini A (monga kaloti, mbatata, sipinachi, mazira).
- Kusintha kwa masomphenya: Ngati muwona kusintha kulikonse m'masomphenya anu, monga kusawona bwino kapena kuchepa kwa masomphenya ausiku, musanyalanyaze. Uzani dokotala wanu nthawi yomweyo .
- Mankhwala Ena: Uzani dokotala wanu za mankhwala ena onse omwe mukumwa (kuphatikizapo mavitamini, mankhwala azitsamba, ndi zowonjezera). Mankhwalawa sangagwirizane ndi mankhwala ena, koma ndi bwino kudziwitsa dokotala wanu.
Kodi zotsatirapo zake zingakhale zotani?
Monga mankhwala ena aliwonse, anthu ena amatha kukhala ndi zotsatirapo zina. Si aliyense amene angakumane nazo. Komabe, ndikofunikira kudziwa izi.
| Zotsatira zoyipa za Vutrisiran | |
|---|---|
| Zotsatirapo zoyipa zomwe muyenera kuuza dokotala wanu nthawi yomweyo | |
| Matenda a ziwengo | Kutupa pakhungu, kuyabwa, kutupa kwa nkhope, milomo, lilime kapena pakhosi. |
| Kusintha kwa masomphenya | Kusintha kulikonse kwa masomphenya, monga kusawona bwino kapena kuchepa kwa masomphenya. |
| Kuvuta kupuma | Kupuma movutikira, kupuma movutikira. |
| Kuchepa kwa kugunda kwa mtima | Chizungulire, kumva chizungulire, kukomoka, kutopa kwambiri. |
| Zotsatirapo zomwe nthawi zambiri sizili zoopsa, koma ziyenera kufotokozedwa kwa dokotala wanu ngati zikupitirira | |
| Kupweteka kwa mafupa | Kupweteka kwa mafupa. |
| Kusasangalala ndi malo obayira jakisoni | Kufiira, kupweteka, kapena kutupa komwe kunabayidwa jakisoni. |
Mndandandawu suli ndi zotsatirapo zonse zomwe zingachitike. Ngati muwona china chilichonse, lankhulani ndi dokotala wanu za izi.
Uthenga Wopita Nawo Kunyumba
- Vutrisiran ndi jakisoni wapadera womwe umachiritsa matenda osowa kwambiri a m'mitsempha otchedwa hATTR .
- Mankhwalawa amaperekedwa ndi ogwira ntchito zachipatala ophunzitsidwa bwino kuchipatala kapena ku chipatala. Simungasunge kapena kugwiritsa ntchito kunyumba.
- Ndikofunikira kwambiri kuuza dokotala wanu za ziwengo zanu zonse komanso ngati muli ndi pakati kapena mukufuna kutenga mimba musanayambe kulandira chithandizo.
- Mukamamwa mankhwalawa, imwani zowonjezera vitamini A monga momwe dokotala wanu wanenera ndipo munene za kusintha kulikonse kwa masomphenya anu.Ngati izi zitachitika, ndikofunikira kudziwitsa nthawi yomweyo.
- Ngati mukukumana ndi mavuto aakulu monga kutupa pankhope kapena kupuma movutikira, funsani upangiri wa dokotala nthawi yomweyo.
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