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Know your body mass index (BMI) and weight classification
Reka tubanze turebe, kuki kuva amaraso bidahagarara mu gihe cy'indwara ya hemophilia?
Mu magambo make, hari poroteyine zidasanzwe zifasha amaraso yacu kuvura. Ibyo tubyita " ibintu bivura amaraso ." Nk'uko sima ikenewe kugira ngo amatafari afatanye mu kubaka urukuta, ibyo bintu bivura amaraso ni ingenzi kugira ngo amaraso ahagarike kuva. Umuntu urwaye hemophilia aba adafite kimwe muri ibyo bintu bivura amaraso.- Abantu barwaye hemophilia A badafite ikintu cyitwa Factor VIII.
- Abantu barwaye hemophilia B babura ikintu cyitwa Factor IX.
None se uyu muti mushya witwa Qfitlia (fitusiran) ni uwuhe?
Uyu ni umuti ukora mu buryo butangaje cyane. Twavuze mbere ko amaraso akeneye ikintu cyitwa thrombin kugira ngo agire ubwoya. Mu mibiri yacu, hari indi poroteyine igenzura ikorwa ry'iyi thrombin, ni ukuvuga ko ihagarika ikorwa rya thrombin nyinshi. Yitwa antithrombin .Tekereza muri ubu buryo. Ufite ikintu gituma amaraso abumba (thrombin) mu mubiri wawe gifasha amaraso kubumba. Ariko hari ikindi kintu (antithrombin) kiyigenzura kikayibuza gukora. Muri hemophilia, umusaruro w'ikintu gifasha (thrombin) uba muke mu ntangiriro. Rero iyo ikintu gikingira (antithrombin) gikora neza, amaraso abumba arushaho kugabanuka. Icyo Qfitlia ikora ni ukugabanya ingano ya antithrombin iyibuza. Hanyuma, ingano ya thrombin umubiri wawe ukora mu buryo busanzwe yemererwa gukora neza nta mbogamizi. Ibi bivuze ko ikoresha sisitemu y'umubiri ubwayo kugira ngo itere amaraso kubumba, aho kuguha ikintu gikingira amaraso watakaje. Uyu ni wo muti wa mbere ugabanya thrombin ukoreshwa mu kuvura hemophilia.Reka dusobanure itandukaniro riri hagati y'ubu buryo bubiri bwo kuvura.
Ushobora gusobanukirwa neza iri tandukaniro ukurikije imbonerahamwe iri hepfo.| Ibiranga | Uburyo gakondo bwo kuvura (Gusimbuza ibintu) | Uburyo bwo kuvura bwa Qfitlia (fitusiran) |
|---|---|---|
| Imikorere | Ikintu gituma amaraso agabanuka kibura mu mubiri gitangwa hanze. | Igabanya antithrombin, ibuza amaraso kuvura, kandi igatuma umubiri ukoresha thrombin yawo cyane. |
| Uburyo bwo gutanga | Akenshi hakoreshejwe imitsi. | Munsi y'uruhu (mu ruhu rwo munsi y'uruhu). |
| Inshuro | Bishobora kuba ngombwa inshuro nyinshi mu cyumweru. | Rimwe mu kwezi cyangwa buri mezi abiri (inshuro 6-12 mu mwaka). |
| Ku bafite imbogamizi zo kwirinda | Uburyo busanzwe bwo kuvura indwara ntiburakora, kandi hakenewe ubundi buryo bwihariye bwo kuvura (bypassing agents). | Ubu buryo bwo kuvura bushobora no gukoreshwa neza ku bantu bafite imiti igabanya ubukana bw'indwara. |
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Niba ufite hemophilia A cyangwa B kandi ukaba ufite imyaka irenga 12, muganga wawe ashobora gusuzuma niba uyu muti ukubereye. Ikintu cy'ingenzi ni uko ushobora no gukoreshwa ku bantu bafite imiti igabanya ubukana bw'indwara zo mu maraso. Ariko, mbere yo gutangira ubu buryo, muganga wawe azakora ibizamini byinshi by'amaraso . 1. Igipimo cya antithrombin: Ibi bipima ingano ya antithrombin mu maraso yawe. Igipimo cya Qfitlia kigenwa hakurikijwe iki gipimo. 2. Imikorere y'umwijima: Umwijima wawe ukurikiranwa mbere no mu gihe cyo kuvurwa. Uyu muti utangwa nk'urushinge munsi y'uruhu (mu buryo bworoshye). Ibi bivuze ko udashyirwa mu mitsi. Wowe cyangwa umuganga wawe mushobora kuwuguha mu rugo nyuma yo kwitoza. Utangwa mu ruhu rwo mu nda, mu itako, cyangwa inyuma y'ukuboko. Ugomba kwirinda ahantu hari ibikomere cyangwa ibikomere. Niba usanzwe ufata ubundi buryo bwo kuvura hemophilia, ushobora gukenera guhagarika cyangwa guhindura ubwo buryo nyuma yo gutangira Qfitlia. Muganga wawe azagusobanurira neza. Ntukareke gufata imiti usanzwe ufata cyangwa ngo ureke gufata Qfitlia utabanje kugirwa inama na muganga. Kubikora bishobora kongera ibyago byo kuva amaraso.Ese natwe twagombye kumenya ingaruka mbi zishobora kubaho? Twakwirinda dute?
Kimwe n'indi miti iyo ari yo yose, Qfitlia ishobora kugira ingaruka zimwe na zimwe. Ni ngombwa kubimenya no gufata ingamba zo kubikumira.- Udukoko tw'amaraso: Kubera ko uyu muti utuma amaraso abumba, ni gake cyane ko amaraso adakenewe atangira kubumba mu mitsi. Muganga wawe azagena igipimo gikwiye cy'urugero rwa antithrombin yawe kugira ngo agabanye ibi byago.
- Imisemburo y'umwijima iri hejuru: Hari abantu bashobora kuba bafite imisemburo y'umwijima iri hejuru. Niyo mpamvu abaganga bakurikirana buri gihe umwijima umeze neza bakoresheje ibizamini by'amaraso .
- Indwara y'imisemburo n'ububyimbirwe bw'imisemburo: Niba ugize ibimenyetso nk'ububabare bukabije mu gifu, isesemi no kuruka , bimenyeshe muganga wawe ako kanya.
- Kwandura: Hari ibyago bike byo kwandura aho watewe inshinge. Kubwibyo, ni ngombwa guhora utera inshinge neza kandi nk'uko muganga yabigutegetse. Isuku nziza, nko gukaraba intoki kenshi, nabyo ni ingenzi.
Ubutumwa bwo kujyana mu rugo
- Qfitlia (fitusiran) ni uburyo bushya bwo kuvura hemophilia A na B bukora mu buryo butandukanye.
- Ibi bikora mu kugabanya ingano ya antithrombin, ibuza amaraso kuvura, aho gutanga ubushobozi buke bwo kuvura umubiri hanze.
- Uyu muti ni urushinge munsi y'uruhu, ntabwo ushyirwa mu mitsi, kandi akenshi utangwa gake cyane, nko rimwe mu kwezi cyangwa buri mezi abiri.
- Muganga wawe azasuzuma niba ubu buryo bw'ubuvuzi bukubereye nyuma yo gupimwa amaraso inshuro nyinshi.
- Kugira ngo wirinde ingaruka mbi, ni ngombwa gupimwa amaraso (cyane cyane antithrombin n'imikorere y'umwijima) buri gihe nk'uko muganga yabigutegetse.
- Irinde guhagarika kuvurwa na Qfitlia nta nama za muganga ku mpamvu iyo ari yo yose.
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