Sonke sibathanda kakhulu abantwana bethu. Siyoyika kangakanani nokuba ngumkhuhlane omncinci kubo? Khawuthelekelele ukuba ugqirha usixelele ukuba umntwana wakho unesifo esifana nomhlaza esinzima ukunyanga... akukho namnye kuthi othanda ukuva loo nto. Kodwa ngamanye amaxesha ebomini kufuneka sijongane neenyaniso ezinzima nezinzima kangaka. Namhlanje sithetha ngesihloko ekunzima ukusigqiba, kodwa kufuneka sithethe ngaso. Oko kukuthi, singenza njani ukuba ubomi bomntwana onesifo esinganyangekiyo bungabi buhlungu kwaye bukhululeke kangangoko kunokwenzeka.
Eli bali limalunga nenkwenkwe egama linguGabriel. Wachitha ihlobo lokugqibela lobomi bakhe njengayo nayiphi na enye inkwenkwe eselula. Wayechitha ixesha nabahlobo bakhe, waya kukhempisha, kwaye wayesoyikisa abazali bakhe ngokwenza izinto ezifana nokuntywila esibhakabhakeni. Emva koko, kamva kuloo nyaka, wazibulala.
Ukufa kukaGabriel kwakungeyonto imangalisayo. Wayesilwa nokufa ihlobo lonke. Emva kokufunyaniswa ukuba une-acute lymphocytic leukemia eneminyaka esi-7 ubudala, uGabriel wayesele efumene unyango lwe-chemotherapy kunye ne-radiation kabini xa wayeneminyaka eli-15 ubudala. Kodwa akukho nanye kwezo zinto eyayanele ukulawula umhlaza. Emva kweenyanga ezimbalwa, umhlaza wabuya.
Ukufakelwa umongo wethambo kwenziwa njengesisombululo sokugqibela. Kodwa xa oko kungaphumeleli kwaye umhlaza wabuya, lonke ithemba lokuphiliswa ngokupheleleyo laphela. Kwixesha lesayensi yezonyango ephucukileyo apho abantwana abathathu kwabane abanomhlaza banokunyangwa, oogqirha nabazali bakaGabriel babenomgomo omnye obuhlungu kodwa othobekileyo.
“Babengazami ukunyanga esi sifo. Babezama ukusilawula nokumnceda aphile ubomi obungcono kangangoko.” - Uyise kaGabriel.
Kodwa uGabriel waphila ixesha elide kwaye wonwabile ngaphezu kokuba nabani na wayelindele. Kangangeenyanga ezintlanu, wayedlala nge-jet-ski, etsiba esibhakabhakeni, aze adlale nenja yakhe. Ekugqibeleni, inkqubo yakhe yomzimba yokuzikhusela ebuthathaka ayizange ikwazi ukulwa nosulelo olukhulu lwefungus.
Yintoni iPalliative Care?
Iziganeko ezifana nezikaGabriel zizise ingqalelo yehlabathi ekubalulekeni kokhathalelo oluthomalalisa abantwana. Ngamafutshane, unyango oluthomalalisa abantwana lunyango nokhathalelo olunikezelwayo ukunciphisa ukubandezeleka neentlungu zomntu onesifo esinganyangekiyo nokuphucula umgangatho wobomi bakhe .
Oku akubhekiselele ekuzameni ukunyanga esi sifo, endaweni yoko, kuxhomekeke ekulawuleni iimpawu ezibangelwa sisifo (ezifana neentlungu, ubunzima bokuphefumla, isicaphucaphu), ukunika umntwana intuthuzelo yeemvakalelo, nokubanceda ukuba bachithe ixesha eliseleyo bekhululekile kwaye bevuya kangangoko kunokwenzeka.
Eyona nto ibalulekileyo: Ukhathalelo oluthomalalisa iintlungu alukho malunga "nokulahla ithemba." Lumalunga nokongeza ixabiso kunye nentuthuzelo kwiintsuku eziseleyo zobomi bomntwana.
Kutheni le nto kunzima kangaka ukuthetha ngayo?
Amaxesha amaninzi, kunzima koogqirha nabazali ukucinga nangokhathalelo lwe-palliative . Isizathu esiphambili soku kukuba abantu abacinga ukuba "ukuya kukhathalelo lwe-palliative kuthetha ukuba siyekile ukulwa."
Uphando lufumanise ukuba oogqirha bayayiqonda inyani yokuba "lo mntwana akanakuphiliswa" malunga neenyanga ezintathu ngaphambi kokuba abazali bakhe bafike. Kodwa kunzima kakhulu ukuxelela abazali oko, ukubalungiselela oko. Kuba wonke umntu unethemba lonyango ezintliziyweni zakhe.
Namhlanje, ama-75% abantwana abanomhlaza banokunyangwa. Loo nto yimpumelelo enkulu. Ngenxa yoku, oogqirha bagxile ngokupheleleyo kunyango lokunyanga . Ke ngoko, ingqalelo encinci inikwa kwinto ekufuneka yenziwe kwiimeko apho unyango lungenakwenzeka.
Kodwa inyani yile, abantwana abafa ngenxa yomhlaza babandezeleka kakhulu kwiinyanga zokugqibela zobomi babo ngenxa yeempawu ezinzima ezifana neentlungu eziqatha, ukuphefumla kancinci , ukudinwa kakhulu, kunye nokucaphuka . Ezi zinto zinokulawulwa kakhulu ngonyango lokudambisa iintlungu.
Yintoni eyenziwa ngokwenene kunyango lokudambisa iintlungu?
Ukhathalelo oluthomalalisa iintlungu aluyonto inye. Yindlela ebanzi edibanisa izinto ezininzi ezahlukeneyo. Okwenzekayo apha kukubonelela ngentuthuzelo kumntwana, ngokwasemzimbeni nangokwengqondo.
| Uhlobo lokhathalelo | Imizekelo kunye neenkcazo |
|---|---|
| Ulawulo lweentlungu | Ukunika iintlungu ezinamandla ezifana ne-morphine okanye i-fentanyl. Ukunika iidosi ezincinci zee-antidepressants kwiintlungu zemisipha kunye namalungu. |
| Ukulawula ezinye iimpawu | Ukubonelela ngeoksijini xa umntu enengxaki yokuphefumla, amayeza okunyanga isicaphucaphu nokuhlanza, kunye neengcebiso zesondlo xa ediniwe kakhulu kwaye ene-anemia. |
| Unyango ekhaya | Ngamanye amaxesha, endaweni yokunikwa i-chemotherapy ngemithambo yegazi, kunikwa iipilisi ezinokuthathwa ekhaya. Ezi zinokunceda ukulawula umhlaza ngelixa zinciphisa iziphumo ebezingalindelekanga. Kukho neenkonzo eziza ekhayeni lakho (ukhathalelo lwe-hospice) ezinokunceda ngezinto ezifana nokunikela ngegazi. |
| Inkxaso yengqondo | Ukunika ingcebiso umntwana nabazali. Ukusebenzisa iindlela ezinje ngokufunda incwadi, i-hypnosis, okanye imifanekiso ekhokelwayo ukuze umntwana aphazamiseke ngexesha lovavanyo olubuhlungu. |
Inkxaso yabazali
Eli lixesha elinzima kakhulu kumntwana nakubazali. Akulula ukwamkela ukuba "umntwana wakho akanakuphiliswa." Abasebenzi bezengqondo banokunceda abazali ukuba bamkele le nyaniso inzima. Uphando luye lwabonisa ukuba abazali banokuyiqonda inyani xa bethetha nabacebisi abanjalo kunaxa bethetha noogqirha bodwa.
Kwibali likaGabriel, kwiiveki zakhe ezimbini zokugqibela, wayenomongikazi we-hospice owayesiza ekhayeni lakhe. Wanikwa isixhobo esincinci awayenokusisebenzisa ukuzijova ngee-painkillers (Fentanyl) nanini na xa efuna. Wade wanikela ngegazi ekhaya. Konke oku kwamvumela uGabriel ukuba achithe iintsuku zakhe zokugqibela ekhayeni lakhe, ngaphandle kwentlungu, nosapho lwakhe.
Ekugqibeleni, uGabriel waba buthathaka kancinci kancinci, wayeka ukutya, waza wabuyela ezingqondweni. Nangona yayilixesha elibuhlungu, uyise uchaza ukufa “njengokulula, okunoxolo.” Ngenye imini, ngelixa wayelele esofeni, uGabriel wabamba isandla sikayise waza wavala amehlo akhe ngonaphakade.
Ngobo busuku, udade boGabriel waphupha ngomntakwabo.
"Kulula na ukufa?" wabuza.
"Ewe, kulula njengokuphefumla," waphendula. "Kuvakala kamnandi ukukwazi ukuhamba kwakhona."
Umyalezo Wokuya Ekhaya
- Unyango oluthomalalisa iintlungu akuthethi ukuba ulahlekelwe lithemba.Imalunga nokuphucula umgangatho wobomi bomntwana onesifo esinganyangekiyo.
- Olu khathalelo alunciphisi nje kuphela ubunzima bomzimba obufana neentlungu, ubunzima bokuphefumla, kunye nokucaphuka , kodwa lukwabonelela ngokukhululeka kwengqondo kumntwana nakusapho.
- Unyango lokudambisa iintlungu lunokunikezelwa kunye nonyango lokunyanga. Lunokuba luncedo nakweyiphi na imeko yesifo.
- Ukuba umntwana wakho unesifo esinzulu, thetha ngokukhululekileyo nogqirha wakho ngaso. Musa ukoyika, buza ngonyango oluthomalalisa iintlungu. Kuya kuba namandla amakhulu kumntwana wakho nakuwe.
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