Ngaba uziva udiniwe kakhulu imini yonke? Uvuka udiniwe, kwaye nokuba ulala kangakanani ebusuku, loo kudinwa akupheli? Ngamanye amaxesha unokucinga ukuba oku kukudinwa nje okubangelwa kukusebenza kakhulu. Kodwa kunzima ngaphezu koko, kwaye inokuba yimeko yempilo ekufuneka siyiqwalasele ngokuqinisekileyo. Namhlanje siza kuthetha ngolu hlobo lokudinwa okungapheliyo, okwaziwa ngokwezonyango njenge-'Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Ngamanye amaxesha kuthiwa yi-'Systemic Exertion Intolerance Disease (SEID)'.
Ngamafutshane, le yimeko apho ibhetri yomzimba wakho ingatshaji kakuhle. Oku kukwenza udinwe kakhulu ukuba ungenza imisebenzi yakho yemihla ngemihla. Ngamanye amaxesha, nokwenza into elula njengokuya evenkileni, ukwenza umsebenzi omncinci wasekhaya, okanye ukubhala ileta kunokwenza iimpawu zakho zibe zimbi ngakumbi. Le meko inokuhlala ixesha elide kangangeenyanga ezi-6, okanye iminyaka. Eyona nto ibalulekileyo kukuba oku kudinwa akupheli, nokuba uphumle kangakanani kwaye ulala kamnandi kangakanani.
Ugqirha angakunceda uxilonge esi sifo aze alawule iimpawu zakho, kodwa kufuneka kuqala ayixilonge njengesifo.
Ziziphi iimpawu eziphambili zale meko?
Ukuba une-ME/CFS, ngokuqinisekileyo unazo ezi mpawu "ziphambili" zintathu. Makhe sijonge ukuba ziyintoni na.
| Uphawu oluphambili | Ukuchaza ngokulula... |
|---|---|
| Ukudinwa okunganyamezelekiyo | Ukudinwa kakhulu kangangeenyanga ezingaphezu kwezi-6, nto leyo eyenza kube nzima ukwenza nemisebenzi yemihla ngemihla elula. Olu lutshintsho olukhulu xa luthelekiswa noko ubukwenza ebomini bakho bangaphambili. |
| I-Post-Exertional Malaise (PEM) | Olu lolona phawu lubalaseleyo lwesi sifo. Emva kokuba kwenziwe umsebenzi omncinci womzimba okanye wengqondo (umz., ukuhamba umgama omfutshane, ukufunda incwadi), iimpawu ziba nzima kakhulu kangangeeyure okanye iintsuku. |
| Ukulala okungaphumziyo | Nokuba ulele kamnandi ebusuku, usaziva ungenabomi xa uvuka kusasa. Uziva udiniwe, ngokungathi ubuvukile ubusuku bonke. |
Yintoni i-Post-Exertional Malaise (PEM)?
Kubalulekile ukucacisa oku ngakumbi. Khawuthelekelele usenza umsebenzi olula oqhele ukuwenza, njengokucoca indlu. Umntu ophilileyo usenokuziva ediniwe kancinci, kodwa uza kuphela emva kwexesha elithile. Nangona kunjalo, umntu one-ME/CFS, emva kokwenza loo msebenzi ulula, mhlawumbi emva kweeyure ezili-12-48, unokufumana iimpawu ezinje ngeentlungu zomzimba eziqatha, iintloko ezibuhlungu, ubunzima bokugxila, umphimbo obuhlungu, kunye nokudinwa kakhulu . Le meko inokuhlala iintsuku, kwaneeveki.
Ezinye iimpawu ezifunekayo ukuze kufunyanwe isifo
Ukongeza kwiimpawu ezintathu eziphambili ezikhankanyiweyo apha ngasentla, ukuze ugqirha akwazi ukufumanisa ngokuchanekileyo i-ME/CFS, kufuneka ubuncinane ube nenye yezi mpawu zimbini zingezantsi.
- Iingxaki zokuqonda:
Abantu abaninzi bayibiza le nto ngokuthi "yingxolo yengqondo." Kuthetha ukuba unengxaki yokugxila, awukwazi ukugxila, unengxaki yokufumana amagama, awukwazi ukukhumbula izinto ezintsha, kwaye isantya sakho sokucinga siyehla. Kufana nokuba intloko yakho igqunywe yingxolo.
- Iimpawu ziya zisiba mandundu xa ume okanye uhleli (Orthostatic Intolerance):
Okwenzekayo kule meko kukuba iimpawu ziya ziba mandundu xa ume okanye uhleli uthe nkqo okwethutyana. Uziva unesiyezi, umbono wakho uba mnyama, uzive ubuthathaka, umbono wakho uba luzizi, kwaye usenokuziva ngathi unezinto ezidadayo phambi kwamehlo akho. Yiyo loo nto uhlala uziva ngathi uza kufa isiqaqa.
Sifanele siye kugqirha nini?
Ukuba unempawu enye okanye ezingaphezulu kwezi zikhankanyiweyo kweli nqaku, ingakumbi ukuba ukudinwa sele kuqhubeke kangangeenyanga, nceda ungacingi nje ukuba kukudinwa nje. Le yinto omele uthethe ngayo nogqirha wakho.
Ngamanye amaxesha ezi mpawu zinokubangelwa zezinye iimeko zonyango, ezifana neengxaki ze-thyroid, i-anemia, kunye nokudakumba. Ngoko ke, kubaluleke kakhulu ukufumanisa unobangela wokwenene wezi mpawu. Ngugqirha kuphela onokwenza oko.
Xa usiya kugqirha wakho, qiniseka ukuba ucacisa yonke into malunga neempawu zakho, kuquka umhla ezaqala ngawo, ixesha ezaqala ngalo ukuba mandundu (PEM), kunye neendlela zakho zokulala. Ukuba kuyimfuneko, bhala ezi zinto kwincwadi yeencwadi. Oku kuya kunceda ugqirha aqonde imeko yakho.
Ungabuza ugqirha wakho ngamava akhe okunyanga i-ME/CFS. Ekubeni le yimeko enzima, ungacela ukuthunyelwa komnye ugqirha ogxile kweli candelo. Musa ukoyika ukuthetha ngayo.
Umyalezo Wokuya Ekhaya
- I-Chronic Fatigue Syndrome (ME/CFS) ayikokudinwa nje kuphela, kodwa yimeko yempilo enzima, yexesha elide enokuchaphazela kakhulu ubomi bakho bemihla ngemihla.
- Iimpawu ezintathu eziphambili kukudinwa kakhulu okuhlala iinyanga ezingaphezu kwezi-6, ukuba mandundu kweempawu emva kokusebenza kancinci (PEM), kunye nokungalali kakuhle.
- Ukongeza, ubunzima bokukhumbula nokucinga (inkungu yobuchopho) okanye iimpawu eziya ziba mandundu xa umile (ukunganyamezelani kwamalungu omzimba) zixhaphakile.
- Ukuba unale mpawu, musa ukuzityeshela. Qiniseka ukuba ubona ugqirha wakho ukuze akunike uxilongo olufanelekileyo kunye nesikhokelo.
- Kukho iindlela ezahlukeneyo zokulawula le meko. Ngoko ke ungalahli ithemba. Inyathelo lokuqala nelibalulekileyo kukufuna iingcebiso zonyango.
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