Ingabe izitho zomntwana wakho azigobi kahle? Ingabe amalunga aqinile? Ingabe yisimo esibizwa ngokuthi "i-Amyoplasia"? Ake sixoxe ngalokhu!

Wake wazizwa sengathi izitho zomntwana wakho azisebenzi kahle, noma ukuthi amanye amalunga azo aqinile kancane? Noma mhlawumbe udokotela ukutshele igama elithi ``Amyoplasia''? Kuvamile ukuzizwa wesaba kancane uma uzwa leli gama. Kodwa ungakhathazeki. Namuhla, sizokhuluma ngokucacile nangokulula ngokuthi siyini lesi simo, ukuthi kungani senzeka, nokuthi yini engenziwa.

Kuyini `(Amyoplasia)`? Ake sikuqonde kalula

Kalula nje, `(Amyoplasia)` yisimo esenzeka lapho kuzalwa. Kulesi simo, imisipha ezungeze amalunga omntwana ayikhuli kahle, futhi ithathelwa indawo yizicubu ezinama-fibrous kanye namafutha. Cabanga nje, ukuze ilunga lisebenze kahle, imisipha elizungezile idinga ukuguquguquka. Kodwa kulokhu, ngenxa yokuthi imisipha ithathelwa indawo ezinye izicubu, amalunga ayaqina kancane kancane, angakwazi ukugoba noma ukwelula kahle. Yilokhu esikubiza ngokuthi `(ama-contractures)` kwezokwelapha. Lesi simo sivame ukubonakala kuzo zonke izitho ezine. Ngenxa yalesi simo, ukuguquguquka kwamalunga kuyehla, futhi ububanzi bokunyakaza buyancipha. Kufana nokuba nokhuni esikhundleni sebhande lerabha.

Lesi simo (i-Amyoplasia) siyithinta kanjani ingane?

I-Amyoplasia uhlobo oluvame kakhulu lweqembu lezifo zamalunga ezizalwa nazo ezibizwa ngokuthi i-Arthrogryposis Multiplex Congenita (AMC). Ngezinye izikhathi ibizwa ngokuthi i-classic arthrogryposis noma i-amyoplasia congenita. Ingane enalesi simo ingaba namalunga akhubazekile kakhulu. Lokhu kuqina kwamalunga, noma ukuqina kwamalunga, ngezinye izikhathi kungaba unomphela. Lokhu kungaholela ekulahlekelweni ukusebenzisa ingalo noma umlenze othintekile. Lokhu kungenza kube nzima ngengane ukwenza imisebenzi evamile yansuku zonke njengokuhlala, ukuhamba, nokudlala.

Kodwa, into ebaluleke kakhulu lapha ukwenza umntwana anyakaze ngokushesha okukhulu futhi kaningi. Ngokwenza kanjalo, ungakwazi ukulawula kakhulu ukuwohloka kwalokhu kuqina kwamalunga nokuqina kwawo . Ngakho ungalilahli ithemba.

Yiziphi izinhlobo zokugoba ezenzeka nge-amyoplasia?

Lokhu kuqina kwamalunga, noma "ukugoba kwamalunga," kungakuthinta ngezindlela ezahlukene. Ake sibheke izinhlobo eziyinhloko:

• Ukuthunjwa: Lokhu kwenzeka lapho ingxenye yomzimba idonswa kude nomugqa ophakathi womzimba. Isibonelo, uma une-abmortment ejoyintini lesinqe, umlenze ungase udonswe ngaphandle usuka esinqeni bese uqina.
• `(Isandiso)`: Lokhu kwenzeka lapho ilunga linwetshwa, okudala i-engeli enkulu phakathi kwezingxenye zomzimba ezimbili elizixhumanisayo, noma eliqondile. `(Isandiso sokunwetshwa)` sedolo yilapho idolo linwetshwa, kanti umlenze uqondile futhi uqinile.
• `(Ukujiya)` (Ukujiya):Lokhu kuhilela ukugoba ijoyinti, ukudala i-engeli ebukhali. Uma une-contracture egobileni, ingalo ingase igobe ngaphakathi kanti umzimba ongaphezulu ungase uqine futhi uqine.
• Ukuhlukana: Lokhu kwenzeka lapho amathambo aseduze kwamalunga ephuma endaweni yawo. Isibonelo, ihlombe elihlukanisiwe yilapho ithambo lengalo engenhla liphuma khona esokhethini ehlombe.
• (Ukujikeleza): Lokhu kuhilela ukuqinisa ilunga, njengehlombe, ngendlela ejikelezayo. Lokhu kungabangela ukuba amahlombe aphendukele ngaphakathi, okubangela ukuba umzimba uthathe isikhundla sokugoba.

Ingane efanayo ingase ibe nohlobo olulodwa noma ngaphezulu lwalezi zinhlobo ezahlukene zokuxhuzula.

Kungani lokhu `(Amyoplasia)` kwenzeka? Iyini imbangela?

Eqinisweni, abacwaningi abakakatholi ukuthi yini ngempela ebangela i-Amyoplasia. Akusona isimo sofuzo. Okusho ukuthi, asibangelwa ukuguquka kwezakhi zofuzo. Akusona futhi isimo sofuzo. Ngakho-ke uma uzibuza, "Ingabe lokhu kuyinto engiyenzile kabi?" ungacabangi kanjalo. Akulona iphutha lanoma ubani.

Ziyini izimpawu zesimo `(Amyoplasia)`?

Ingane enalesi simo ingase ibone izimpawu ezingxenyeni ezahlukene zomzimba wayo. Ake sibheke ukuthi ziyini.

Izimpawu ezihlobene nezinyawo (imilenze engezansi)

Ungase uqaphele lezi zici ezinqeni, emilenzeni nasezinyaweni zengane yakho:

• `( Izinyawo ezigoqekayo ): Lokhu kusho ukuthi unyawo luphendukele ngaphakathi noma ngaphandle.
• Ubuhlungu besithende: Ngezinye izikhathi ubuhlungu besithende bungenzeka ngoba ungqimba olujiyile lwezicubu ezinamafutha (`isithende`) okufanele lube khona esithendeni alukho noma alukho.
• Ukuqhekeka kwesinqe , noma ukujiya kwesinqe okuqinile noma ukuthunjwa.
• Idolo eliqinile lapho idolo ligoba noma linwebeka.

Izimpawu ezihlobene nesandla (izitho zangasese ezingaphezulu)

Ungase uqaphele lezi zici emahlombe, ezingalweni, naseminweni yengane yakho:

• Ukuqina kwendololwane.
• Ukuthunjwa kweminwe.
• Isandiso sesithupha esiqinile.
• Ukugoba kokujikeleza kwamahlombe.

Izimpawu ezibonakalayo esikhumbeni

Isimo esithi ``(Amyoplasia)`` ngezinye izikhathi singathinta isikhumba somntwana. Ezimweni ezinjalo, ungase ubone izinto ezifana nalezi:

• Ukufiphala kwesikhumba.
• Ukulahlekelwa imibimbi yesikhumba phezu kwamalunga.
• `(Ukulunywa yi-stork)` (Ukulunywa yi-stork):Lolu uphawu lokuzalwa oluvamile, olupinki noma olubomvu. Luvame ukubonakala ebusweni nangemuva kwentamo.
• Ukungahambi kahle kwemithambo yegazi ebusweni: Isibonelo, amabala abomvu njenge-"hemangioma". Lokhu kubizwa nangokuthi "ukukhubazeka kwemithambo yegazi".
• Ukwelukwa kwesikhumba eduze kwendololwane noma idolo.

Zikhona yini ezinye izimpawu okufanele uziqaphele ngaphandle kwalezi?

Yebo, akuvamile kakhulu ukuthi kube nezinye izinkinga emzimbeni ngesimo esithi "(Amyoplasia).` Kodwa lezi azibonakali njalo. Kodwa kuhle ukuziqaphela.

• Ingxenye yamathumbu ayikhuli kahle noma ayikho (`i-bowel atresia`).
• I-Gastroschisis (imbobo encane esiswini eduze kwe-anus).
• Ukugoqana okuncane noma okungekho esithweni sangasese sabesifazane samantombazane (i-hypoplasia).
• I-hernia ye-inguinal.
• Umhlathi omncane noma otshonile (Micrognathia).
• Ukulahlekelwa yiminwe noma izinzwane.
• I-Scoliosis.
• Amasende angakafiki kubafana.

Ungesabi uma ubona lezi zimpawu. Lezi azivamile. Udokotela wakho uzokwazisa ngalokhu.

Odokotela basithola kanjani lesi simo `(i-Amyoplasia)`?

Esikhathini esiningi, lokhu kugoba kungabonakala ngesikhathi sokuhlolwa ngokomzimba okwenziwa udokotela ngemva kokuzalwa komntwana. Ngemva kwalokho, kwenziwa ne-X-ray ejwayelekile ukuze kutholakale ubucayi besimo. Ngezinye izikhathi, kungadingeka ukufuna usizo lwabanye ochwepheshe.

Hlobo luni lokwelashwa ingane yami ezoludinga nge-``(Amyoplasia)``?

Kunemigomo eminingana eyinhloko yokwelapha lesi simo. Ukwelashwa kusenesikhathi kuhlose:

• Ukwandisa ububanzi bokunyakaza kwamalunga.
• Ukunciphisa ubuhlungu nokuvimbela ukuwohloka kwemisipha.
• Ukunciphisa ukuvaleka kwamalunga.

Ukuze kufezwe le migomo, ukwelashwa okunjengalokhu kungaba usizo kakhulu enganeni:

• Ukwelashwa ngokomzimba : Lokhu kubaluleke kakhulu. Kulokhu, uchwepheshe wezokwelapha ngokomzimba oqeqeshiwe usebenzisa amasu okwelula okuthambile kanye nokubhucunga ukuze asize imisipha yengane yakho yeluleke. Ukuzivocavoca kukhuthaza ukugeleza kwegazi emisipheni nasemalungeni. Lokhu kuyinto okufanele iqhutshwe njengoba ingane yakho ikhula.
• Ukwelashwa emsebenzini:Kulokhu, umntwana uqeqeshwa ekuzilolongeni okuthuthukisa amakhono okunyakaza komzimba amsiza ukuba enze imisebenzi yansuku zonke ngokuzimela. Isibonelo, ufundiswa ukuthi angathatha kanjani amathoyizi nokuthi adle kanjani.
• I-Splinting: Lokhu kuyinsika esuswayo, eqinile esetshenziselwa ukubamba ijoyinti endaweni ethile. Udokotela wakho angase akuncome ukuthi ugqoke lokhu ebusuku noma ngezikhathi ezithile zosuku.
• Ukuphonswa kwe-serial: Lokhu kuhilela ukwandisa kancane kancane inani lokubambelela kwejoyinti esikhathini esingamasonto amaningana (mhlawumbe kuze kube amasonto ayisithupha). I-cast ishintshwa njalo ngesonto, bese ijoyinti lidonswa kancane. Lokhu kunganciphisa kakhulu ukuqina kwamalunga.

Yiziphi ezinye izindlela zokwelapha ezikhona?

Ngezinye izikhathi, uma isimo sibi kakhulu, noma uma ukwelashwa okungenhla kungalethi imiphumela efiselekayo, kungase kudingeke izinqubo zokuhlinzwa. Ungakhathazeki, lezi zenziwa odokotela abangochwepheshe.

• Ukuhlinzwa kokudluliselwa kwemisipha: Kulokhu, odokotela abahlinzayo basusa izicubu zemisipha ezingasebenzi kahle bese bezishintsha ngezicubu zemisipha kwenye ingxenye yomzimba enempilo.
• Ukuhlinzwa Kwamathambo: Kulokhu kuhlinzwa, ingcezu encane yethambo iyasikwa bese isuswa ukuze kuthuthukiswe ububanzi bokunyakaza kwelunga eliseduze. Lokhu kungashintsha indawo yelunga futhi kwenze kube lula ukunyakaza.

Udokotela uzokuchazela kahle lokhu kuhlinzwa.

Ingabe ingane ene-`(Amyoplasia)` ingahamba?

Lona umbuzo abazali abaningi abanawo. Ukuthi ingane ingakwazi yini ukuhamba noma cha kuncike ohlotsheni kanye nobunzima bokugoba. Isibonelo, ingane enokugoba okukhulu kwedolo ingaba nobunzima bokuhamba. Ngokufanayo, izingane eziningi ezinezigoba ezinzima ze-hip flexion zingase zingakwazi ukuhamba. Kodwa-ke, izingane eziningi zingahamba! Ngezinye izikhathi, kudingeka amadivayisi akhethekile ukuze azisize zihambe.

Isibonelo, izingane eziningi zihamba zisebenzisa amadivayisi afana nohlaka lokuma, izinsimbi zokubopha imilenze, izinti zokuhamba, kanye nezinduku zokusibekela.

Ingabe i-Amyoplasia ingavinjelwa?

Lokhu kuyinto abantu abaningi abayibuzayo. Njengoba abacwaningi bengakayazi imbangela eqondile ye-"(Amyoplasia)", okwamanje akukho ongakwenza ukuvimbela lesi simo. Ungakhathazeki ngakho. Ukugxila kwakho kufanele kube ekuhlinzekeni ukwelashwa okungcono kakhulu kanye nokusekelwa kwengane yakho.

Liyini ikusasa labantwana abane-`(Amyoplasia)`?

Lena yinto ebaluleke kakhulu. Ngokuvamile, izingane ezine-`(Amyoplasia)` zingaphila isikhathi esijwayelekile sokuphila. Lesi simo asithinti ukuhlakanipha kwengane, ukucabanga, noma ikhono lokufunda.Ngakho-ke, laba bantwana bangaya esikoleni, bafunde, futhi babonise amakhono abo njengabanye abantwana. Bangasebenzisa amakhono abo angokomzimba ngokugcwele futhi baphumelele empilweni.

Izinto ezibalulekile okufanele uzazi uma uhlala ne-`(Amyoplasia)`

Khumbula lokhu:

• Lapho beneminyaka emi-5, iningi lezingane lisuke lihamba futhi lihlanganyela ngokugcwele emisebenzini yansuku zonke.
• Ukuze kutholakale imiphumela emihle kangaka, ukwelashwa ngokomzimba kanye nokwelashwa ngokomsebenzi, okuqalwa ngokushesha ngangokunokwenzeka ngemva kokuzalwa, kubalulekile. Lokhu kufana nokunisela nokunakekela isitshalo kusukela ebuntwaneni.
• Kunamathuluzi nezindlela ezikhethekile ezingasiza ingane yakho ukuthi isebenze ngokuzimela ngangokunokwenzeka. Ungafundisa ingane yakho ukuthi izisebenzise. Nazi izibonelo ezimbalwa:
• Izitsha ezivumelana nezimo yizitsha ezingagotshwa eceleni noma zixhunywe esandleni ukuze zisize ekudleni.
• Izisekelo ezikhethekile (`Izinsika Zesihlalo`) ezikuvumela ukuthi uhlale ngokuphepha nangokukhululekile ezihlalweni.
• Ingwegwe enamathiselwe phansi kodonga ukusiza ekugqokeni nasekukhumuleni ibhulukwe. Izinto ezincane ezifana nalezi nazo zandisa ukuzethemba kwengane.

Uma kwenzeka i-`(Amyoplasia)`, imisipha ezungeze amanye amalunga iyafinyela futhi iqine. Lokhu kubangela i-`(contractures)` futhi kwenza ukunyakaza kube nzima. Kodwa-ke, ngokwelashwa kwasekuqaleni njengokwelashwa ngokomzimba kanye ne-`(serial casting)`, ubukhali balezi `(contractures)` bungalawulwa kakhulu. Izingane eziningi zingase zidinge ukuhlinzwa okukodwa noma ngaphezulu ekugcineni. Kodwa-ke, ngemishini ekhethekile, izindlela ezahlukene kanye ne-`(occupational therapy`), noma ngabe ukuqina kwamalunga (``contractures`` kunzima, ingane inganikezwa indawo edingekayo ukuze iphile ngokuzimela nangenjabulo ngangokunokwenzeka.

Umlayezo Wokuya Nawe Ekhaya

Ngakho-ke, bomama nobaba, nansi izinto ezibaluleke kakhulu okudingeka nizithathe kule ndaba:

• "(I-Amyoplasia)" yisimo esiba khona lapho kuzalwa futhi esibangela ukuqina kwamalunga. Lokhu akulona iphutha lomuntu.
• Ukuxilongwa kusenesikhathi kanye nokwelashwa kusenesikhathi kubaluleke kakhulu, ikakhulukazi ukwelashwa ngokomzimba kanye nokwelashwa ngokomsebenzi.
• Ukuhlakanipha kwalaba bantwana ngeke kulinyazwe nganoma iyiphi indlela. Bangafunda kahle.
• Usebenzisa imishini nezindlela ezikhethekile, ungasiza ingane yakho ukuba izimele ngangokunokwenzeka.
• Hlala unethemba! Ngokuphathwa kahle kanye nothando lwakho kanye nokusekelwa, laba bantwana bangaphila impilo ejabulisayo nephumelelayo njengabo bonke abanye.

Uma uneminye imibuzo, ungangabazi ukukhuluma nodokotela wakho. Bazokwazi ukukusiza kabanzi. I-Amyoplasia, i-arthrogryposis, ukuqina kwamalunga, ukuqina kwamalunga, ukuzalwa, ukwelashwa ngokomzimba, ukwelashwa emsebenzini, ukukhubazeka kokuzalwa, izifo zamalunga, impilo yengane