Ingabe umzimba wengane yakho uhlala uqhaqhazela ngendlela engavamile? Ake sifunde nge-Athetoid Cerebral Palsy!

Wake wababona abantwana abancane benyakaza futhi begubha ngokunyakaza okungalawuleki? Mhlawumbe nengane yakho nayo inale nkinga. Kuvamile ukuzizwa udangele futhi wesaba uma ubona lesi simo. Namuhla sizokhuluma ngesimo esibizwa ngokuthi i-Athetoid Cerebral Palsy, esibonisa lezi zimpawu.

Iyini le Athetoid Cerebral Palsy?

Kalula nje, i-Athetoid Cerebral Palsy iyinkinga yokunyakaza lapho imisipha yengane inyakaza khona ngokungazikhetheli (ebizwa nangokuthi i-dyskinesia ngodokotela). Lolu uhlobo lwesibili oluvame kakhulu lwe -cerebral palsy . I-cerebral palsy yisimo esithinta ubuchopho kanye nesistimu yezinzwa. Lokhu kubangela izinkinga ngokunyakaza kanye nokuxhumana, njengokuhamba nokuma. I-Athetoid ingathinta ukunyakaza kwengane kakhulu kunezinye izinhlobo ze-cerebral palsy. Ngakho-ke, kwezinye izimo, lesi simo singanciphisa isikhathi sokuphila kwengane. Udokotela wakho kungenzeka ukuthi uke wezwa lesi simo esibizwa ngokuthi i-dyskinetic cerebral palsy .

Sivame kangakanani lesi simo?

Emhlabeni wonke, izingane eziphakathi kuka-1 no-4 kwabayi-1,000 zitholakala zine-cerebral palsy. Kulaba, cishe u-12% kuya ku-14% une-athetoid cerebral palsy. Lokhu kusho ukuthi lolu hlobo luthinta izingane eziphakathi kuka-1 no-3 kwabayi-10,000 abane-cerebral palsy.

Ziyini izimpawu zalokhu?

Ingane ene-Athetoid Cerebral Palsy ingase ibhekane nokunyakaza okungalawuleki, okufana nalokhu:

• Ukujika nokuguqula umzimba.
• Ebonisa imvelo egoqekayo, egoqekayo, njengesibungu.
• Ukunyakaza okungazelelwe noma ukudlikizela .
• Ukuphinda ukunyakaza okufanayo.

Ukunyakaza okungalawulwa kanjena kungabangela izinkinga ezengeziwe:

• Ubuhlungu bomzimba.
• Ukuma kabi .
• Ukuvuza amathe .
• Ukuntuleka kokuxhumana phakathi kokunyakaza.

Yiziphi izimpawu ezibonakala ezinganeni ezincane?

Ingane encane ene-Athetoid Cerebral Palsy ingabonisa lezi zimpawu ezilandelayo:

• Uma ulele ngomhlane , izingalo nemilenze yakho kuyagoba futhi kuvuleke njalo .
• Ukwephuza ukwenza izinto ezifanele iminyaka yabo (isibonelo, ukubambezeleka kwezinyathelo zokukhula njengokukhasa nokuhamba).
• Ukujika nokujika komzimba njalo, ikakhulukazi lapho uphendula ikhanda ulibhekise ohlangothini olulodwa. Cabanga nje, ngisho nalapho ingane yakho idlala, ungase uqaphele ukuthi ikhanda layo liphendukela ohlangothini olulodwa ngokuzumayo, noma ukuthi ingalo noma umlenze umane uyanyakaza.

Yiziphi lezi zinyathelo ezibizwa ngokuthi i-athetoid?

Odokotela bahlukanisa lokhu kunyakaza okungalawulwayo ngamaphethini amaningana:

• I-Dystonia : Lokhu kubonakala ngokunyakaza okungahleliwe, okujikayo. Ngezinye izikhathi, umzimba ungase uzizwe sengathi ubambeke endaweni eyodwa.
• I-Chorea : Lokhu kufana nokudansa, ukunyakaza okusheshayo nokuphindaphindayo. Kufana nokuthi umzimba uyanyakaza nje uye phambili naphambili, awukwazi ukuhlala endaweni eyodwa.
• I-Athetosis : Lokhu kubonakala ngokuhamba kancane, okufana nezimpethu.

Cabanga nje, lokhu kunyakaza kufana nopopi onezintambo eziboshiwe, futhi imilenze yengane inyakaza ngokuzenzakalelayo, hhayi ngendlela efunwa yiyo. Lokhu kuyinselele kakhulu kokubili enganeni nakubazali.

Kungani lokhu kwenzeka? Yiziphi izizathu?

Imbangela eyinhloko ye-Athetoid Cerebral Palsy ukulimala kwe-basal ganglia kanye ne-thalamus, ezitholakala ekujuleni kobuchopho bengane . Le basal ganglia isiza ukuthumela imiyalezo evela engxenyeni yobuchopho elawula ukunyakaza kwethu iye emgogodleni. Ngakho-ke uma lokhu kulimele, kuba nzima ukulawula ukunyakaza. Lolu hlobo lomonakalo lungenzeka ngesikhathi ingane isesibelethweni, ngesikhathi sokuzalwa, noma ngokushesha nje ngemva kokuzalwa. Okulandelayo kungabangela lokhu:

• Ukopha ebuchosheni (Ukopha kwegazi).
• Isifo sohlangothi .
• Ukungafikisi igazi noma umoya-mpilo owanele ebuchosheni (okubizwa nangokuthi `(Perinatal Asphyxia)`).
• Ukwanda ngokweqile kwenani le -bilirubin egazini (lokhu kungabangela izimo ezibizwa ngokuthi i-Hyperbilirubinemia noma i-Kernicterus).

Ubani osengozini enkulu yalesi simo? (Izici Eziyingozi)

Kwezinye izimo, izici ezithinta umama zingase zandise nengozi yokuba ingane ibe ne-cerebral palsy:

• Izinkinga ngesikhathi sokukhulelwa (isibonelo, ukuqhekeka kwesibeletho ).
• Njengoba besesibelethweni njengamawele, amawele amathathu ngesikhathi esisodwa.
• Ukwelashwa kokungabi nabantwana.
• Ukuchayeka kumakhemikhali athile (njenge-methylmercury ekudleni kwasolwandle ).

Ngaphezu kwalokho, izici ezilandelayo ezithinta ingane nazo zandisa ingozi yokuthola i-Athetoid Cerebral Palsy:

• Isisindo esiphansi sokuzalwa.
• I-jaundice enzima .
• Ezinye izifo (njenge-cytomegalovirus - CMV).

Yiziphi ezinye izinkinga ezingabangelwa yilokhu?

I-Athetoid Cerebral Palsy ingahambisana nezinye izinkinga zempilo. Ezinye zazo yilezi:

• Izinkinga zokuthuthukiswa kwengqondo (ezibizwa nangokuthi "Ukukhubazeka Kwengqondo" ngodokotela).
• Isifo sokuwa.
• Ubunzima bokukhuluma nokusebenzisa ulimi.
• Ukukhubazeka kokuzwa noma ukubona.
• Ukukhubazeka kwamathambo yizimo ezithinta amathambo noma uhlelo lwemisipha.
• Izinkinga zokulala.
• Izinkinga zempilo yengqondo, isibonelo, ukucindezeleka.
• Ukungabi nesisindo esifanele iminyaka nobude.
• Ukuhogela ukudla noma uketshezi emigwaqweni yomoya kungabangela ukwehluleka kokuphefumula.

Kubalulekile ukukhumbula ukuthi ezinye zalezi zinkinga zingaba yingozi ngisho nokuphila.

Odokotela bakuthola kanjani lokhu?

I-Cerebral Palsy ivame ukuhlonzwa udokotela lapho ingane isencane. Ngenxa yalokhu, ingane iyahlolwa futhi kwenziwa izivivinyo ezahlukene. Udokotela uzokubuza (umnakekeli wengane) ngezibonakaliso nezimpawu ingane ezibonisayo. Uzohlola nokuthi ingane iyakhula futhi yenza izinto ngokweminyaka yayo (`Izigigaba Zokukhula`). Ngesikhathi sokuhlolwa ngokomzimba, amakhono okunyakaza kwengane kanye nokuxhumana kwayo nakho kuyahlolwa.

Hlobo luni lokuhlolwa olwenzayo?

• Ukuhlolwa kwezithombe zobuchopho: Ukuhlolwa okufana nokuthi `(Magnetic Resonance Imaging - MRI)` kungabona izindawo zomonakalo wobuchopho.
• Ukuhlolwa kwegazi: Lokhu kusetshenziselwa ukuqeda ezinye izimo ezingase zibangele izimpawu ezifanayo.

Ukwelashwa kanjani? (Ukwelashwa)

Umgomo oyinhloko wokwelashwa kwe-Athetoid Cerebral Palsy ukunciphisa izimpawu zengane, ukwenza impilo yansuku zonke ibe lula, nokuthuthukisa ikhwalithi yokuphila kwengane . Kunezindlela ezahlukene zokwelapha lokhu:

• Ukwelashwa Komzimba, Ukwelashwa Komsebenzi, kanye Nokwelashwa Ngenkulumo . Lokhu kusiza ekuthuthukiseni ukunyakaza kwengane, ikhono lokwenza imisebenzi yansuku zonke, kanye nokukhuluma.
• Amadivayisi okusiza njengemikhonto, izisekeli zemilenze (`ama-brace`) noma izihlalo zabakhubazekile (`izihlalo zabakhubazekile`).
• Ukwenza izinguquko ekudleni ukuqinisekisa ukuthi ingane ithola ukudla okufanele ekudingayo.
• Ukusetshenziswa kwemithi .
• Imijovo ye-Botulinum Toxin.
• Indlela yokwelapha ebizwa ngokuthi i-Deep Brain Stimulation (DBS).
• Indlela ebizwa ngokuthi i-Intrathecal Baclofen Therapy (IBT).
• Kwezinye izimo, ukuhlinzwa kungadingeka.

Udokotela uzokuchazela ukuthi yiziphi izindlela zokwelapha ezilungele ingane yakho, ukuze ukwazi ukwenza izinqumo ezinolwazi mayelana nempilo yengane yakho. Njengoba kungekho ikhambi lalesi simo, kuzodingeka siphathwe impilo yonke.

Yimiphi imithi esetshenziswayo?

Eminye yemithi evame ukusetshenziswa kakhulu ye-Athetoid Cerebral Palsy yile:

• I-Baclofen `(Baclofen)`
• I-Trihexyphenidyl `(Trihexyphenidyl)`
• I-Levodopa
• I-Diazepam `(Diazepam)`
• I-Tetrabenazine `(Tetrabenazine)`
• I-Carbamazepine

Ingabe ikhona imiphumela emibi yokwelashwa?

Njengazo zonke izindlela zokwelapha, lezi zindlela zokwelapha zingabangela imiphumela emibi. Udokotela wengane yakho uzokuchazela le miphumela emibi ngaphambi kokuba ukwelashwa kuqale. Imiphumela emibi evamile ihlanganisa:

• Izimpawu ziya ziba zimbi kakhulu.
• Ukozela.
• Ikhanda elibuhlungu.
• Ubuthakathaka bemisipha.
• Isicanucanu.

Impilo izoba njani ngengane enalesi simo?

Akukho ukwelashwa kwe-athetoid cerebral palsy. Lokhu kusho ukuthi kuyisimo esihlala isikhathi eside. Kodwa-ke, asibi sibi njengoba ingane ikhula (esingathuthuki). Ngokuvamile sithinteka kakhulu ukunyakaza okungalawuleki kunezinye izinhlobo ze-cerebral palsy. Lokhu kungenza kube nzima ngengane ukwenza imisebenzi yansuku zonke, njengokukama izinwele zayo nokugqoka. Kungaba nzima nokuhambahamba ngaphandle kwedivayisi yokusiza njengesihlalo sabakhubazekile. Kodwa-ke, ukwelashwa kungasiza ukulawula izimpawu zengane futhi kuyisize iphile ngokunethezeka. Izingane ezinalesi simo zingase zehlise isisindo. Lokhu kungenxa yokuthi lokhu kunyakaza okungalawuleki kusebenzisa amandla amaningi kunalawo eziwathola ekudleni ezikudlayo. Ngakho-ke, udokotela uzohlala eqapha isisindo sengane kanye nemikhuba yokudla ukuqinisekisa ukuthi ithola ukudla okufanele.

Ungathini ngobude besikhathi sokuphila? (Ubude besikhathi sokuphila)

Isikhathi sokuphila kwengane siyahlukahluka kuye ngokuthi isimo sibucayi kangakanani . Akuzona zonke izingane ezithinteka ngendlela efanayo. Uma izimpawu nezinkinga zinzima kakhulu, isikhathi sokuphila singancishiswa. Uma kuqhathaniswa nezinye izinhlobo ze-cerebral palsy, isikhathi sokuphila sabantu abane-athetoid cerebral palsy sivame ukuba sifushane kancane.

Ingabe ikhona indlela yokuvimbela lokhu? (Ukuvimbela)

Ayikho indlela yokuvimbela zonke izimo ze-Athetoid Cerebral Palsy. Kodwa-ke, ungathatha izinyathelo zokuphepha ngesikhathi sokukhulelwa.Ngokuya njalo ekuhlolweni, unganciphisa ingozi yengane yakho yokuba ne-cerebral palsy. Udokotela wakho uzokunikeza iseluleko osidingayo ukuze uhlale uphilile futhi uphephile kuwe nakumntanakho.

Yiziphi izikhathi ezinhle kakhulu zokuya kudokotela?

Uma ingane yakho ibonisa izimpawu ze-athetoid cerebral palsy, njengokulibaziseka ekwenzeni izinto ezihambisana nobudala bayo noma ukunyakaza komzimba okungavamile, bona udokotela ngokushesha . Uma ingane esivele ine-cerebral palsy iba nezimpawu ezintsha, uma izimpawu ezikhona ziba zimbi kakhulu, noma uma kuvela imiphumela emibi ngenxa yokwelashwa, tshela udokotela wakho ngokushesha.

Yimiphi imibuzo ebalulekile okufanele uyibuze udokotela?

Kuvamile ukuba nemibuzo lapho ufunda ngesimo sengane yakho. Unganqikazi ukubuza udokotela imibuzo efana nale:

• Yikuphi ukwelashwa okuncoma ingane yami?
• Ingabe ikhona imiphumela emibi kulezo zindlela zokwelapha?
• Ingabe kudingeka ngenze izinguquko ekudleni ukuze ngiqinisekise ukuthi ingane yami ithola ukudla okufanele ekudingayo?
• Zingakanani izimpawu zengane yami?
• Yiziphi izinkinga okufanele ngiziqaphele ngokukhethekile?
• Yimaphi amadivayisi okusiza angasiza ingane yami?

Kungaba nzima ukwazi ukuthi ingane yakho inesifo esingapheli impilo yayo yonke esingenakwelashwa. I-Athetoid Cerebral Palsy ingenza ingane izizwe njengenhlanzi ephuma emanzini . Ngenxa yokuthi ubuchopho bayo abukwazi ukuthumela imiyalezo ezingxenyeni zomzimba wayo ezilawula ukunyakaza kahle, ingaguqa futhi iguqa ngokungalawuleki. Lolu hlobo lwe-Cerebral Palsy lungenza kube nzima ngengane yakho ukwenza imisebenzi yansuku zonke nokuhamba emhlabeni ngaphandle kwesihlalo sabakhubazekile. Kodwa khumbula, awuwedwa. Ngokusekelwa yithimba lezokwelapha lengane yakho, ungasiza ingane yakho ukuthi ilawule izimpawu zayo futhi ihlale iphilile.

Ngamafuphi, khumbula (Umyalezo Wokuya Ekhaya)

I-Athetoid Cerebral Palsy yisimo esingaba nomthelela omkhulu empilweni yengane. Kodwa-ke, ngokuqonda okufanele, ukwelashwa ngesikhathi esifanele, kanye nokunakekelwa ngothando, ingane yakho ingasizwa ukuba iphile impilo evamile ngangokunokwenzeka. Uma ingane yakho inanoma yiziphi zalezi zimpawu, ungangabazi ukufuna iseluleko sezokwelapha. Khumbula, yonke ingane iyigugu, futhi yonke ingane inelungelo lokujabula. I-Athetoid Cerebral Palsy, I-Cerebral Palsy, I-Cerebral Palsy, Izinkinga Zobuchopho, Izifo Zezingane, Izinkinga Zokunyakaza, Izifo Zezinzwa