Ingabe uzizwa ukhathele futhi ukhathele kangangokuthi awukwazi ukwenza imisebenzi yakho yansuku zonke, noma ngisho nokuvuka embhedeni? Ingabe ukugeza nokulungisa ukudla kubonakala kungumsebenzi omkhulu? Uma utshela othile ngalokhu, ingabe uyakushaya indiva, ethi, "Ubuvila bakho nje," "Lala kancane," noma "Kuyinkinga yengqondo nje?" Khona-ke kufanele nakanjani ufunde lesi sihloko. Ngoba namuhla sikhuluma ngesimo esibangela izimpawu ezinjengalezi, kodwa abantu abaningi, kokubili emphakathini nakwezokwelapha, abaqapheli kahle.
Iyini ngempela i-Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)?
Kalula nje, i-ME/CFS yisimo sesikhathi eside, esiyinkimbinkimbi, nesinzima esingaphazamisa ngokuphelele imisebenzi yakho yansuku zonke. Uphawu oluyinhloko ukukhathala okukhulu okungabekezeleleki futhi okungenakuchazwa yinoma yisiphi isizathu. Lokhu akufani nokukhathala okuvamile. Lokhu kukhathala akupheli ngisho nangemva kwamahora okulala.
Zicabange ubuya ohambweni olufushane, noma wenza imisebenzi yasekhaya. Bese kuthi, izinsuku eziningi, uzizwe ukhathele kakhulu kangangokuthi awukwazi ukuphuma embhedeni. Lokhu sikubiza ngokuthi "i-Post-Exertional Malaise." Kusho ukuthi izimpawu ziya ziba zimbi kakhulu ngemva kokuzikhandla ngokomzimba noma ngokwengqondo.
Abantu abaningi abaphila nalesi simo babhekene nezinye izinkinga eziningi.
- Ukulala okungaqabulisi
- Ubuhlungu bomzimba
- Ukungakwazi ukugxila, ukukhohlwa konke, isimo esifana nenkungu yobuchopho
- Ukuzungeza lapho umi noma uhleli
Lezi zimpawu zenza kube yiphupho kubo ukusebenza, ukuhlanganyela emisebenzini yomphakathi, ngisho nokwenza imisebenzi yansuku zonke.
Ingabe lokhu kuyisifo sangempela? Noma awusinaki?
Lena inselele enkulu kunazo zonke abantu abane-ME/CFS ababhekana nayo. Hhayi nje kuphela imindeni yabo, abangani, kanye nabaphathi, kodwa ngezinye izikhathi ngisho nodokotela abazithathi ngokungathi sína lezi zimpawu. Ucwaningo lwamuva nje olwenziwe yi-CDC kanye ne-WebMD e-United States lwembule ukuthi ulwazi ngalesi sifo luphansi kakhulu.
Ama-90% alabo ababuzwa bathi lezi zimpawu zibaphoqe ukuba bayeke imisebenzi yezenhlalo, yokuzijabulisa, kanye neyomsebenzi. Kodwa-ke, ingxenye yesithathu kuphela yabo eyayikhulume nodokotela ngakho. Isizathu esiyinhloko salokhu kwakuwukwesaba ukuthi "udokotela ngeke asikholwe."
Cabanga ukuthi kudabukisa kanjani. Uhlushwa ukugula, kodwa akekho ongakutshela, futhi noma ngabe ukutshela, akekho okukholelwayo. Ngokusho kocwaningo, abantu abayisithupha kwabayishumi abaye babona udokotela banomuzwa wokuthi abazange bathathwe ngokungathi sína.
- Abangu-64% batshelwe odokotela babo ukuthi "baphumule kancane."
- Ama-62% athi "Lena inkinga yengqondo."
Lokhu kubambezela ukuxilongwa iminyaka eminingi. Abanye abantu bathatha iminyaka engaphezu kwemihlanu ukuthola ukuxilongwa okufanele.
Kungani kunzima kangaka ukuxilongwa?
Kunezizathu eziningana eziyinhloko zokuthi kungani ukuxilonga i-ME/CFS kungaba nzima.
1. Akukho ukuhlolwa okuqondile: Njengokuhlola ushukela egazini ukuze kutholakale isifo sikashukela, akukabikho ukuhlolwa kwegazi okuqondile noma iskeni esingaqinisekisa i-ME/CFS.
2. Izimpawu ziyahlukahluka: Indlela izimpawu ezibonakala ngayo ingahluka kumuntu nomuntu. Ngaphezu kwalokho, lezi zimpawu zibonakala kwezinye izifo eziningi.
3. Ukuntuleka kolwazi phakathi kodokotela: Izikole eziningi zezokwelapha emhlabeni wonke azifaki i-ME/CFS ohlelweni lwazo lwezifundo, okwenza abanye odokotela bacabange ukuthi kuyinkinga yengqondo.
Ngakho-ke, ukuze uxilonge lesi sifo, udinga udokotela onekhono olalela isiguli ngesineke esikhulu futhi ahlaziye izimpawu ngokucophelela . Udokotela uzofinyelela kulesi siphetho ngemva kokulalela ngokujulile izimpawu zakho futhi asuse ezinye izimo zezokwelapha.
| Izindlela eziyisisekelo zokuxilonga i-ME/CFS | |
|---|---|
| Izimpawu eziyinhloko (zonke ezintathu kumele zibe khona) | |
| 1. Ukukhathala okukhulu | Ukukhathala okukhulu okuhlala izinyanga eziyisithupha noma ngaphezulu futhi okwenza kube nzima ukwenza imisebenzi yansuku zonke. |
| 2. Ubuhlungu Obungapheli Ngemva Kokuzivocavoca | Izimpawu ziba zimbi kakhulu ngisho nangemva kokuzikhandla okuncane ngokomzimba, ngokwengqondo, noma ngokomzwelo. |
| 3. Ukulala Okungaqabulisi | Ngisho nangemva kokulala amahora amaningi, usazizwa ukhathele lapho uvuka. |
| Izimpawu ezengeziwe (okungenani eyodwa yalezi kumele ibe khona) | |
| 1. Ukukhubazeka Kokuqonda | Eyaziwa ngokuthi "i-Brain Inkungu," ubunzima bokukhumbula, ukungakwazi ukugxilisa ingqondo, kanye nokuthatha isikhathi eside ukucubungula ulwazi. |
| 2. Ukungabekezeleli Amalunga | Izimpawu ezifana nokuzungeza, ubuthakathaka, noma ukubona okufiphele kwenzeka lapho uhleli noma umile futhi ziyakhululeka lapho ulele phansi. |
Iyini Inkungu Yobuchopho?
Lokhu kuyimpawu ecasulayo kakhulu. Ngokusho kweziguli, ngezinye izikhathi bathayipha futhi bathumele i-imeyili emsebenzini, kodwa ngomzuzu olandelayo abakhumbuli ukuthi i-imeyili ithunyelwe noma ukuthi yini ekuyo. Kuthatha isikhathi eside ukucabanga ngezinto ezilula nokwenza izinqumo. Lokhu kunomthelela omkhulu emsebenzini wabo kanye nempilo yabo yomuntu siqu.
Izinselele zokuphila nalesi simo
Laba bantu bahlushwa ukucindezeleka kwengqondo okubi kakhulu kunobuhlungu obungokomzimba obubangelwa yi-ME/CFS. Usizi kanye nesizungu abazizwayo lapho umndeni wabo ucabanga ukuthi, "Uyaziphatha," nalapho abangane babo bebasola ngokuthi, "Uyasigwema manje," kunzima kakhulu ukukuthwala.
Kunezinto ofuna ukuzenza, izinto ofuna ukuzenza. Kodwa umzimba wakho awukuvumeli. Bese othile ethi kuwe, "Udinga ukuphumula." Ngenxa yezinto ezinjengalezi, abantu abane-ME/CFS banamathuba amaningi okuthola izinkinga zempilo yengqondo njengokucindezeleka nokukhathazeka .**
Ngakho-ke, kubaluleke kakhulu kithi sonke ukuba siqaphele lesi sifo. Uma unalezi zimpawu, noma uma othile omaziyo ehlushwa yilesi simo, usizo olukhulu ongalwenza ukumsekela nokumqonda.
Umlayezo Wokuya Nawe Ekhaya
- I-Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) yisimo sezokwelapha sangempela nesibucayi . Akusibo ubuvila noma ukucabanga nje.
- Izimpawu eziyinhloko ukukhathala okungabekezeleleki, izimpawu eziya ziba zimbi ngisho nangemva kokuzikhandla okuncane, kanye nokulala okungaqabulisi.
- Ukuxilongwa kungaba nzima, ngakho-ke kubalulekile ukubona udokotela ozolalela ngesineke izimpawu zakho .
- Ngaphambi kokuba ubonane nodokotela, ukugcina idayari yezimpawu zakho (isib. uma ziba zimbi kakhulu, amaphethini okulala, izinkinga zenkumbulo) kuzokusiza ukuthi uthole ukuxilongwa okunembile.
- Kunzima ukuhamba lolu hambo wedwa. Kodwa ungalilahli ithemba. Ngokuqonda nokusekelwa okufanele, lesi simo singaphathwa.
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