Sonke siyabathanda kakhulu abantwana bethu. Sisaba kangakanani ngisho nomkhuhlane omncane kubo? Ake ucabange ukube udokotela ubesitshela ukuthi ingane yakho inesifo esinjengomdlavuza okunzima ukuselapha... akekho kithi othanda ukuzwa lokho. Kodwa ngezinye izikhathi empilweni kufanele sibhekane namaqiniso anzima kangaka. Namuhla sikhuluma ngesihloko okunzima ukusenza, kodwa kumele sikhulume ngaso. Okusho ukuthi, singenza kanjani impilo yonke yengane ehlushwa isifo esingelapheki ibe msulwa futhi ikhululeke ngangokunokwenzeka.
Le ndaba imayelana nomfana omncane ogama lakhe linguGabriel. Wachitha ihlobo lokugcina lempilo yakhe njenganoma yimuphi omunye umfana omncane. Wachitha isikhathi nabangani bakhe, waya ekhempini, futhi wethusa abazali bakhe ngokwenza izinto ezifana nokushwibeka esibhakabhakeni. Kwabe sekuthi kamuva ngalowo nyaka, wazibulala.
Ukushona kukaGabriel kwakungesona isimanga. Wayelokhu elwa nokufa ihlobo lonke. Ngemva kokuxilongwa ukuthi une-acute lymphocytic leukemia eneminyaka engu-7, uGabriel wayesethole ukwelashwa ngamakhemikhali kanye nemisebe kabili ngesikhathi eneminyaka engu-15. Kodwa akukho nokukodwa kwalokho okwakwanele ukulawula umdlavuza. Ezinyangeni ezimbalwa kamuva, umdlavuza wabuya.
Ukufakelwa umnkantsha wethambo kwenziwa njengendlela yokugcina. Kodwa lapho lokho kwehluleka futhi umdlavuza ubuya, lonke ithemba lokwelashwa okuphelele lalahleka. Enkathini yesayensi yezokwelapha ethuthukisiwe lapho izingane ezintathu kwezine ezinomdlavuza zingelapheka khona, odokotela nabazali bakaGabriel babenomgomo owodwa obuhlungu kodwa othobekile.
"Babengazami ukwelapha lesi sifo. Babezama ukusilawula nokumsiza aphile impilo engcono kakhulu." - Uyise kaGabriel.
Kodwa uGabriel waphila isikhathi eside futhi ejabule kakhulu kunalokho okwakulindelwe yinoma ubani. Izinyanga ezinhlanu, wagibela i-jet-ski, wagxuma esibhakabhakeni, wadlala nenja yakhe. Ekugcineni, isimiso sakhe somzimba esibuthakathaka sehluleka ukulwa nokutheleleka okukhulu kwesikhunta.
Kuyini Ukunakekelwa Kwe-Palliative?
Imicimbi efana nekaGabriel ilethe ukunaka komhlaba wonke ekubalulekeni kokunakekelwa kwezingane okunciphisa ubuhlungu . Kalula nje, ukunakekelwa okunciphisa ubuhlungu kuyindlela yokwelapha nokunakekela okunikezwayo ukunciphisa ukuhlupheka nobuhlungu bomuntu onesifo esibulalayo nokuthuthukisa ikhwalithi yempilo yakhe .
Lokhu akukhona ukuzama ukwelapha lesi sifo. Kunalokho, kumayelana nokulawula izimpawu ezibangelwa yilesi sifo (njengobuhlungu, ubunzima bokuphefumula, isicanucanu), ukunikeza ingane induduzo engokomzwelo, nokuyisiza ukuba ichithe isikhathi esisele ngokunethezeka nangenjabulo ngangokunokwenzeka.
Into ebaluleke kakhulu: Ukunakekelwa kokunciphisa ubuhlungu akuphathelene "nokulahla ithemba." Kumayelana nokwengeza inani kanye nenduduzo ezinsukwini ezisele zokuphila kwengane.
Kungani kunzima kangaka ukukhuluma ngalokhu?
Ngokuvamile, kunzima kodokotela nabazali ukucabanga ngokunakekelwa kwe-palliative . Isizathu esiyinhloko salokhu isimo sengqondo esingalungile sokuthi "ukuya ekunakekelweni kwe-palliative kusho ukuthi sesiyeke ukulwa."
Ucwaningo luthole ukuthi odokotela bayaqaphela iqiniso lokuthi "lo mntwana akanakwelashwa" cishe ezinyangeni ezintathu ngaphambi kwabazali. Kodwa kunzima kakhulu ukutshela abazali lokho, ukubalungiselela lokho. Ngoba wonke umuntu unethemba lokwelashwa ezinhliziyweni zakhe.
Namuhla, ama-75% ezingane ezinomdlavuza angelapheka. Lokho kuyimpumelelo enkulu. Ngenxa yalokhu, odokotela bagxile ngokuphelele ekwelashweni kokwelapha . Ngakho-ke, kuncane ukunaka okukhokhwayo kulokho okufanele kwenziwe ezimweni lapho ukwelashwa kungenzeki khona.
Kodwa iqiniso liwukuthi, izingane ezibulawa umdlavuza zihlupheka kakhulu ezinyangeni zokugcina zokuphila kwazo ngenxa yezimpawu ezinzima njengobuhlungu obukhulu, ukuphelelwa umoya , ukukhathala okukhulu, kanye nesicanucanu . Lokhu kungalawulwa kakhulu ngokunakekelwa kokunciphisa ubuhlungu.
Yini ngempela eyenziwayo ekunakekelweni kobuhlungu?
Ukunakekelwa kwe-palliative akuyona into eyodwa. Kuyindlela ebanzi ehlanganisa izinto eziningi ezahlukene. Okwenzekayo lapha ukunikeza ingane induduzo, ngokomzimba nangokwengqondo.
| Uhlobo lokunakekelwa | Izibonelo nezincazelo |
|---|---|
| Ukulawula ubuhlungu | Ukunikeza amaphilisi okudambisa ubuhlungu anamandla njenge-morphine noma i-fentanyl. Ukunikeza imithamo ephansi yemithi yokucindezeleka yobuhlungu bemisipha namalunga. |
| Ukulawula ezinye izimpawu | Ukuhlinzeka ngomoya-mpilo ngenxa yobunzima bokuphefumula, imithi yokucanuzela nokuhlanza, kanye nezeluleko zokudla okunempilo ngokukhathala okukhulu kanye nokuntuleka kwegazi emzimbeni. |
| Ukwelashwa ekhaya | Ngezinye izikhathi, esikhundleni sokwelashwa ngamakhemikhali ngemithambo yegazi, kunikezwa amaphilisi angathathwa ekhaya. Lawa angasiza ekulawuleni umdlavuza ngenkathi enciphisa imiphumela emibi. Kukhona ngisho nezinsizakalo ezifika ekhaya lakho (ukunakekelwa kwe-hospice) ezingasiza ngezinto ezifana nokunikela ngegazi. |
| Ukusekelwa kwengqondo | Ukweluleka ingane nabazali. Ukusebenzisa amasu anjengokufunda incwadi, i-hypnosis, noma izithombe eziqondisiwe ukuze kuphazamise ingane ngesikhathi sokuhlolwa okubuhlungu. |
Ukusekelwa kwabazali
Lesi isikhathi esinzima kakhulu enganeni nakubazali. Akulula ukwamukela ukuthi "ingane yakho ayikwazi ukwelapheka." Izisebenzi zezengqondo zingasiza abazali ukuba bamukele leli qiniso elibuhlungu. Ucwaningo luye lwafakazela nokuthi abazali bangase baqonde iqiniso uma bekhuluma nabeluleki abanjalo kunalapho bekhuluma nodokotela bodwa.
Endabeni kaGabriel, emasontweni akhe amabili okugcina, wayenomhlengikazi we-hospice owayefika ekhaya lakhe. Wanikezwa ithuluzi elincane ayengalisebenzisa ukuzijova ngemithi yobuhlungu (i-Fentanyl) noma nini lapho ethanda. Waze wanikela ngegazi ekhaya. Konke lokhu kwavumela uGabriel ukuthi achithe izinsuku zakhe zokugcina ekhaya lakhe, ngaphandle kobuhlungu, nomndeni wakhe.
Ekugcineni, uGabriel waba buthaka kancane kancane, wayeka ukudla, waphinde waqonda. Nakuba kwakuyisikhathi esibuhlungu, uyise uchaza ukufa “njengokulula, okunokuthula.” Ngolunye usuku ntambama, elele kusofa, uGabriel wabamba isandla sikayise wavala amehlo akhe unomphela.
Ngalobo busuku, udadewabo kaGabriel waphupha ngomfowabo.
"Kulula yini ukufa?" ebuza.
"Yebo, kulula njengokuphefumula," ephendula. "Kuzwakala kumnandi kakhulu ukukwazi ukuhamba futhi."
Umlayezo Wokuya Nawe Ekhaya
- Ukunakekelwa kwe-palliative akusho ukulahla ithemba.Kumayelana nokuthuthukisa ikhwalithi yempilo yengane ehlushwa isifo esingelapheki.
- Lokhu kunakekelwa akugcini nje ngokunciphisa ukucindezeleka ngokomzimba njengobuhlungu , ubunzima bokuphefumula, kanye nesicanucanu , kodwa futhi kunikeza impumuzo yengqondo enganeni nasemndenini.
- Ukunakekelwa kokunciphisa ubuhlungu kunganikezwa kanye nokwelashwa okwelaphayo. Kungaba usizo kunoma yisiphi isimo sesifo.
- Uma ingane yakho ihlushwa ukugula okungathí sina, khuluma nodokotela wakho ngakho ngokukhululekile. Ungesabi, buza ngokunakekelwa kokunciphisa ubuhlungu. Kuzoba amandla amakhulu enganeni yakho nakuwe.
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