Uma udokotela wakho ekutshela ukuthi unesifo sesibindi esibizwa ngokuthi i-PBC, noma i-`Primary Biliary Cholangitis`, ungase uzizwe wesaba kakhulu futhi ukhathazekile. "Kuzokwenzekani esibindini sami? Ingabe kuzodingeka ngifakelwe isibindi?" Ungase uzibuze. Kodwa ungakhathazeki. Eqinisweni, akuwona wonke umuntu one-PBC odinga ukufakelwa isibindi. Kulesi sihloko, sizokhuluma ngokuthi kudingeka nini ukufakelwa isibindi, ukuthi yiziphi izizathu, nokuthi udokotela wakho wenza kanjani lesi sinqumo.
Okokuqala, ake sibone ukuthi kungani kungebona bonke abantu abane-PBC abadinga ukufakelwa isibindi.
Kalula nje, i-PBC iyisifo esikhula kancane kakhulu . Ikakhulukazi uma usithola kusenesikhathi futhi ulandela imiyalelo kadokotela wakho, kungathatha iminyaka eyi-15 kuya kwengama-20 ukuthi lesi sifo siqhubekele esigabeni esibi kakhulu. Abantu abaningi bangaphatha izimpawu zabo ngemithi efanele futhi baphile impilo evamile iminyaka eminingi ngaphandle kwemiphumela emibi emikhulu.
Lokho kusho ukuthi asikho isizathu sokwesaba ukufakelwa isibindi ngoba nje une-PBC. Kudingeka kuphela kubantu abambalwa abanesifo esibi kakhulu nesibulalayo.
Cabanga nje, uma utholakala unesifo sekwephuzile, noma uma unesimo esibi salesi sifo esisakazeka ngokushesha, yilapho-ke lapho kufanele ucabange ngokufakelwa isibindi.
Ngakho-ke, kufanele ucabange nini ngokufakelwa isibindi?
Udokotela wakho kanye nethimba lezokwelapha bazobheka izici eziningana ukuze banqume ukuthi udinga yini ukufakelwa isibindi. Lesi akusona isinqumo esithathwa kanye kuphela. Bazoqhubeka nokuqapha isimo sakho futhi bafinyelele esiphethweni.
Ake sibone ukuthi yiziphi lezo zizathu eziyinhloko ezikuthebula elingezansi.
| Isizathu sokudluliselwa kokufakelwa isibindi | Kusho ukuthini lokhu? |
|---|---|
| Ukwehluleka kokwelashwa | Uma lesi sifo singakwazi ukulawulwa ngemithi oyinikwayo, isibonelo , i-Ursodeoxycholic acid (UDCA) kanye ne-Obeticholic acid (OCA) , futhi umonakalo esibindini uyaqhubeka ukwenzeka. |
| Ukwehluleka Kwesibindi | Uma isibindi siba nesibazi esikhulu (lokhu kubizwa ngokuthi i-cirrhosis ) futhi isibindi singakwazi ukwenza imisebenzi yaso eyinhloko, njengokuhlanza igazi nokwenza amaprotheni adingwa ngumzimba, |
| Ukuvela kwezinye izinkinga ezinkulu | Uma i-PBC ibangela ezinye izinkinga zempilo ezingathi sína, ezisongela impilo, njengokuphuma kwegazi ohlelweni lwakho lokugaya ukudla (i-GI tract) noma umdlavuza wesibindi, kungadingeka ukuthi ucabangele ukufakelwa isitho sobulili. |
| Izimpawu ezingabekezeleleki | Ngezinye izikhathi, noma ngabe isibindi asikasebenzi kahle, uma izimpawu ezifana nokulunywa okungabekezeleleki noma ukukhathala okukhulu zingenakulawuleka ngemithi, kunganconywa ukufakelwa isilwane ukuze kuthuthukiswe ikhwalithi yokuphila. |
Izimpawu udokotela azinaka kakhulu
Ngaphezu kwalezi zinto eziyinhloko, udokotela wakho uzobe efuna ezinye izinto. Isibonelo:
- Ingabe amehlo akho nesikhumba sakho kuyashintsha kube phuzi (i-jaundice)?
- Ingabe isisu sigcwala amanzi (ama-ascites)?
- Ingabe uhlanza igazi?
- Ingabe inkumbulo kanye nokuqonda kuyaphazamiseka (i-Hepatic encephalopathy)?
Lezi zimpawu zisho ukuthi isibindi sinenkinga yokwenza umsebenzi waso ngendlela efanele. Ngezikhathi ezinjalo, noma ngabe izimpawu zakho azizimbi kakhulu, udokotela wakho angase anqume ukukudlulisela ukuze uyofakelwa isibindi.
Inqubo yokudluliselwa kokufakelwa isibindi yenzeka kanjani?
Udokotela wakho ojwayelekile uzokudlulisela kudokotela wezifo zesibindi , udokotela ogxile ezifweni zesibindi kanye nenyongo. Uma ehlola kahle isimo sakho futhi ethola ukuthi kudingeka ukufakelwa, uzothunyelwa esikhungweni esikhethekile esibhedlela esenza ukuhlinzwa kokufakelwa isibindi.
Lena inqubo ende kancane.
1. Ukuhlangana nethimba lochwepheshe: Uzohlolwa yithimba elikhulu elihlanganisa odokotela abahlinzayo, ochwepheshe besibindi, abahlengikazi kanye nabasebenzi bezenhlalakahle.
2. Ukuhlolwa: Izinto eziningi ezifana nokuhlolwa kwegazi kanye nokuskena kwenziwa ukuze kubonakale ukuthi umzimba wakho ungamelana yini nokuhlinzwa okukhulu kangaka.
3. Ukufakwa ohlwini lokulinda: Uma konke kufaneleka, uzofakwa ohlwini lokulinda lukazwelonke ukuze ulinde isibindi.
Kungathatha izinyanga, ngezinye izikhathi isikhathi eside, ukuthola isibindi. Isibindi sitholakala kumuntu oshonile onikelayo, noma kumuntu ophilayo, njengelungu lomndeni, elinikela ngengxenye yesibindi salo.
Into ebalulekile ukuthi ukuthi udokotela wakho ukuthumelele ukufakelwa isitho akusho ukuthi uzohlinzwa kusasa. Kusho ukuthi usuthathe isinyathelo sokuqala sokuzilungiselela esikhathini esizayo, uma kudingeka.
Kumele ngenzeni?
Into ebaluleke kakhulu okufanele uyenze ukungesabi futhi uhlale uxhumana nodokotela wakho njalo.
- Yiya emitholampilo ngesikhathi: Ungayeki noma yimuphi umtholampilo. Kubalulekile ukuqapha isimo sakho.
- Phuza imithi yakho njengoba nje udokotela wakho ekuyalele: Phuza imithi yakho ngesikhathi esifanele, ngesilinganiso esifanele.
- Indlela yokuphila enempilo: Yeka ukuphuza utshwala ngokuphelele. Yidla ukudla okulinganiselayo. Xhumana nodokotela wakho ukuze uthole iseluleko esengeziwe ngalokhu.
- Buza imibuzo: Khuluma nodokotela wakho ngokukhululekile mayelana nokwesaba kwakho, ukungabaza, kanye nokukhathazeka. Ungesabi ukubuza imibuzo efana nokuthi, "Dokotela, injani imibiko yami? Ingabe kufanele ngicabangele ukufakelwa isitho?"
Ukuphila ne-PBC kungaba yinselele, kodwa khumbula, ngemithi ethuthukisiwe yanamuhla, abantu abaningi bangaphatha lesi simo ngempumelelo futhi baphile impilo enhle.
Umlayezo Wokuya Nawe Ekhaya
- Akuwona wonke umuntu one-PBC ozodinga ukufakelwa isibindi. Lesi sifo ngokuvamile siqhubeka kakhulu.
- Ukufakelwa isibindi kufanele kucatshangelwe kuphela uma ukwelashwa kungaphumeleli, uma isibindi singasakwazi ukuhlinzwa ngokuphelele (ukwehluleka kwesibindi), noma uma kuvela ezinye izinkinga ezinkulu.
- Isinqumo sokugcina sokuthi udinga ukufakelwa isitho noma cha sizokwenziwa udokotela wakho ochwepheshe, ngokusekelwe ekuhlolweni kwegazi lakho, izimpawu, kanye nempilo yakho iyonke.
- Into engcono kakhulu ongayenza ukulandela imiyalelo kadokotela wakho, uphuze imithi yakho njengoba uyalelwe, bese uya emitholampilo.
- Khuluma nodokotela wakho ngokukhululekile nganoma yimiphi imibuzo noma ukukhathazeka onakho ngesimo sakho.
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