Ingabe umama wakho osekhulile, ubaba, ugogo, noma u-anti wakho ukhohlwa izinto ezincane? Ingabe ngokuzumayo bayakhohlwa ukuthi bazothini ngenkathi bekhuluma? Ingabe amalungu omndeni athi, "O, kunjalo uma ukhula"? Yiqiniso, kuvamile ukukhohlwa izinto ezincane njengoba ukhula. Kodwa akuwona wonke amaphutha ayingxenye "yokuguga." Ngezinye izikhathi lokhu kungaba izimpawu zokuqala zesifo esifana ne-Alzheimer's. Lesi sifo asikhathaleli uhlanga, inkolo, noma ubulili. Noma ubani angasithuthukisa. Kodwa indlela esakhuliswa ngayo, isiko lethu, nezinkolelo zethu kuthinta kakhulu indlela esibhekana ngayo nalesi sifo. Ake sixoxe ngalokho namuhla.
Yiziphi izinkolelo ezivamile emphakathini wethu mayelana nesifo i-Alzheimer's?
Kunemibono ehlukene emphakathini wethu mayelana nesifo i-Alzheimer kanye nezifo ezifanayo zokulahlekelwa yinkumbulo (Dementia). Ngenxa yale mibono, ngezinye izikhathi sekwephuze kakhulu ukufuna ukwelashwa okufanele. Cabanga ngakho, ingabe lezi zinto nawe uyazijwayele?
- "Kunjalo nje uma ukhula": Abantu abaningi bacabanga ukuthi ukulahlekelwa yinkumbulo kuyinto evamile njengoba bekhula. Ngakho-ke, abazinaki izimpawu zokuqala zokulahlekelwa yinkumbulo.
- Ukungazi: Abantu abaningi abazi ukuthi isifo i-Alzheimer's siyisifo esithinta ubuchopho. Abafuni ukukhuluma ngaso ngoba basibona njengesifo sengqondo.
- Ihlazo nomuzwa wecala: Abantu abaningi bafihla lezi zimo ngoba banamahloni okuthi, "Kukhona othile emndenini wethu onesifo sengqondo."
- Ukungazethembi imithi yaseNtshonalanga: Abanye abantu bathambekele kakhulu emithini yendabuko (imithi yendawo) kunemithi enqunywe odokotela. Lokhu kungaholela ekubambezelekeni kokuxilongwa.
- Ukuhlonipha kakhulu abantu abadala: Esikweni lethu, sibahlonipha kakhulu abantu abadala. Lokho kuyinto enhle. Kodwa ngezinye izikhathi, siphuza ukwelashwa ngoba nje sihlonipha umbono wabo, njengokuthi, "Umama/Ubaba akafuni ukuya kudokotela."
- Ukungabelani ngezinkinga zomndeni: Inkolelo yokuthi "izindaba zomndeni kufanele zigcinwe ekhaya" yenza abantu bangabaze ukutshela noma ubani ongaphandle, ngisho nodokotela, ngezinguquko zengqondo zelungu lomndeni.
- Ukulinda kuze kube yisimo esiphuthumayo: Kuvamile ukungamboni udokotela kuze kube yilapho isifo sesibucayi kakhulu, okusho ukuthi kuyisimo esiphuthumayo.
- Ukuthembela enkolweni: Kuhle ukuthola induduzo ezinkolelweni nasemasikweni enkolo. Kodwa-ke, ngezinye izikhathi, ukunganaki ukwelashwa kwezokwelapha nokuthembela kuphela emasikweni enkolo ukuze uthole impumuzo kungenza lesi sifo sibe sibi kakhulu.
Lezi zinkolelo zithinta kanjani ukuxilongwa kanye nokwelashwa?
Ngenxa yobudlelwano obuqinile bomndeni emphakathini wethu, lapho umuntu osekhulile eqala ukubonisa izimpawu ze-dementia, owokuqala ukungenela ukumnakekela umndeni wakhe. Ngokuvamile, indodakazi, indodana, noma umalokazana uthatha lo mthwalo wemfanelo. Lokhu kuyinto enhle kakhulu okufanele yenziwe. Kodwa ngezinye izikhathi, izinkolelo zethu zamasiko zingabambezela ukuxilongwa nokwelashwa.
Into ebalulekile ukuthi isifo i-Alzheimer's siyisifo esibangelwa ukulimala kwamangqamuzana obuchopho, hhayi umphumela ojwayelekile wokuguga. Uma sisheshe sitholakale futhi selashwe, impilo ingaba lula esigulini nasemndenini.
Ake sichaze lokhu kabanzi kuthebula elingezansi.
| Inkolelo yamasiko evamile | Umthelela ongaba khona walokhu |
|---|---|
| Ukucabanga ukuthi ukulahlekelwa yinkumbulo kuyinto evamile yokuguga. | Ukungazinaki izimpawu zokuqala zokugula. Ukulibazisa ukubona udokotela. |
| Ukunakekela asebekhulile emndenini ekhaya (ukunakekelwa ekhaya). | Nakuba lokhu kuyinto enhle, ukunakekela ngaphandle kweseluleko sochwepheshe kungaba yinto ecindezelayo kakhulu kokubili isiguli kanye nomnakekeli. |
| Ukuba namahloni ngokuba nesifo sengqondo. | Ukufihla lesi simo emndenini, kubangani nasemphakathini. Ukungatholi ukwesekwa okudingekayo. |
| Ukucabanga, "Abantu bazocabangani?" | Ukungathandi ukukhipha isiguli endlini, ukuhlanganyela emicimbini yomphakathi. Isiguli sinesizungu. |
'Abantu bazothini?' - Indlela lokhu kucwaswa okuthinta ngayo
Ukucwaswa, kafushane nje, umbono ongemuhle ngento ethile, incazelo engemihle enayo. Lokhu kuhlazeka nokwesaba kuvame ukuhlotshaniswa nezimo zempilo yengqondo njenge-Alzheimer's. Lokhu kungenza abanye bazizwe sengathi bayacwaswa futhi bayacwaswa. Ungase uzizwe unecala ngakho.
Izinto eziyingozi ezingase zenzeke ngenxa yaleli hlazo yilezi:
- Ukungathandi ukucela usizo, ukuthola ukuxilongwa, noma ukufuna ukwelashwa.
- Kusuka emndenini, kubangani, komakhelwaneUkuntuleka kokuqonda nokusekelwa.
- Ukucindezeleka okukhulu kwengqondo kumnakekeli wesiguli.
- Isiguli nomndeni babhekana namahloni, umuzwa wecala, kanye nokungazethembi .
Indlela engcono kakhulu yokubhekana naleli hlazo ukukhuluma ngalo ngokukhululekile. Khuluma nodokotela wakho ngakho. Uma kudingeka, joyina iqembu lokusekelana nabantu abaye baba nokuhlangenwe nakho okufanayo. Kungaba namandla kakhulu ukwazi ukuthi awuwedwa.
Umphakathi we-LGBTQ+ kanye nesifo i-Alzheimer's: Izinselele Ezikhethekile
Uma othile ovela emphakathini we-LGBTQ+ (lesbian, gay, bisexual, transgender, nabanye) ethola i-Alzheimer's, ubhekana nezinselele ezengeziwe nezingavamile.
Kunezizathu eziningana zalokho:
- Ukuntuleka kokusekelwa umndeni: Ngezinye izikhathi, ngenxa yokuhlala wedwa, uhlukaniswe nomndeni, akekho ozokunakekela uma ugula.
- Ubandlululo: Ingozi yokubandlululwa emphakathini ngenxa yobuntu bomuntu siqu kanye nesifo i-Alzheimer's.
- Isizungu: Ukuzizwa unesizungu kakhulu uma ugula, ngenxa yokuhlala wedwa ungenabantwana noma amalungu omndeni aseduze.
Ngaphansi kwezimo ezinjalo, kubaluleke kakhulu ukuhlela ikusasa ngokushesha okukhulu.
- Thola udokotela okuqondayo: Kubalulekile ukuthola udokotela ohlonipha ubuwena bakho, okuphatha wena nomlingani wakho ngokulinganayo, futhi okwenza uzizwe ukhululekile ukubuza imibuzo.
- Thola ukwesekwa: Uma ungenalo ukwesekwa komndeni, funa usizo kubangani, abantu obajwayele, noma izinhlangano ezisekela umphakathi we-LGBTQ+ ezingakusiza.
- Hlela ikusasa: Kubalulekile ukulungiselela idokhumenti yezomthetho (isiqondiso kusengaphambili) mayelana nezidingo zakho zokunakekelwa kwesikhathi esizayo kanye nokwelashwa ngokushesha ngangokunokwenzeka ngemva kokuqala kwezimpawu, ngenkathi usakwazi ukwenza izinqumo. Isibonelo, lokhu kungafaka phakathi ukubiza umuntu ozokwenzela izinqumo zezokwelapha uma ungakwazi ukwenza izinqumo (igunya elihlala isikhathi eside lommeli wezokunakekelwa kwezempilo) noma ukuveza izifiso zakho ngokubhala mayelana nokwelashwa okuthile (intando yokuphila). Kungcono ukufuna iseluleko sommeli ngalokhu.
Umlayezo Wokuya Nawe Ekhaya
- Isifo i-Alzheimer's asiyona into evamile yokuguga. Siyisifo esithinta ubuchopho.
- Uma ubona izimpawu ezifana nokulahlekelwa yinkumbulo, ukukhohlwa amagama, noma izinguquko zobuntu, ungazinaki nje ngokuthi "ukuguga nje." Bonana nodokotela ngokushesha okukhulu.
- Uma lesi sifo sisheshe sitholakale, impilo ingaba lula ngesiguli kanye nalabo abasinakekelayo.
- Ungabi namahloni ngokuthi "abantu bazothini." Lesi yisimo esingathinta noma ubani. Ungesabi ukucela ukwesekwa.
- Uma ungumnakekeli womuntu one-Alzheimer's, nakekela impilo yakho yengqondo neyomzimba. Funa usizo uma kudingeka.
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