So woate tebea bi a wuntumi nnyae mogya a efi wo twa ketewaa bi mpo mu ho asɛm pɛn? Ebia obi a ɔwɔ w’abusua mu wɔ bi. Wɔfrɛ yare titiriw a wuntumi nni
wo mogya a ɛretu no so no Hemophilia. Enti asɛmmisa a nnipa pii wɔ ne sɛ, sɛ eyi fi awosu mu a, so yebetumi asiw ano? Momma yɛnka eyi ho asɛm pɛpɛɛpɛ, tiawa.
Nea edi kan koraa no, dɛn ne hemophilia?
Sɛ yɛbɛka no tiawa a, sɛ yɛtwitwa anaa
yepira yɛn nipadua no baabiara a, mogya no gyae bere tiaa bi akyi, ɛnte saa? Ɛno na wɔfrɛ no mogya a ɛtwetwe. Te sɛ bere a wɔresi ɔfasu no, wɔde semɛnte gu birikisi no ntam de hyɛ nsonsonoe no mu ma no, protein ahorow bi a ɛwɔ yɛn mogya mu no bom yɛ "plug" wɔ baabi a opira no na ɛma mogya no gyae. Yɛfrɛ saa protein ahorow yi
Clotting Factors . Obi a ɔwɔ hemophilia no ntumi nyɛ saa Nneɛma a ɛma mogya tu yi mu biako anaa nea ɛboro saa wɔ nipadua no mu wɔ dodow a wɔhwehwɛ no mu. Anaasɛ wɔnyɛ adwuma yiye. Enti, opira ketewaa bi mpo ntumi nsiw mogya no ano na ɛkɔ so. Ɛtɔ da bi a, mogya tumi tu wɔ nipadua no mu, titiriw wɔ nkwaa ne ntini mu, a opira biara.
Ɔkwan bɛn so na hemophilia nya nkɔso? So ɛyɛ awosu mu?
Yiw, hemophilia yɛ
awosu mu yare . Ɛne sɛ, ɛyɛ biribi a yenya fi yɛn awofo hɔ denam
awosu mu nkwaadɔm so . Awosu mu abɔde a ɛnteɛ a ɛde yare yi ba no wɔ X chromosome no so. Sɛnea wunim no, mmea wɔ X chromosome abien (XX), na mmarima wɔ X chromosome biako ne Y chromosome biako (XY). Enti, saa yare yi abu so wɔ mmarima mu.
- Mpɛn pii no, mmea yɛ wɔn a wɔde yare no kɔ nkutoo. Eyi kyerɛ sɛ ɛwom mpo sɛ wɔwɔ awosu mu abɔde a asɛe no wɔ wɔn X chromosome biako so de, nanso wonhu sɛnkyerɛnne biara esiane X chromosome foforo a ɛte apɔw no nti. Nanso, wobetumi de awosu mu abɔde a asɛe no akɔma wɔn mma.
- Sɛ abofra barima nya X chromosome a asɛe yi fi ne maame hɔ a, obenya hemophilia efisɛ ɛno nkutoo ne X chromosome a ɔwɔ.
Enti, so wote ase? Hemophilia nyɛ biribi a yefi abɔnten kyere te sɛ atiridii . Ɛyɛ tebea a ɛne yɛn awosu mu nkwaadɔm ba, a yenya fi awo mu.
Enti asɛmmisa titiriw ne sɛ: So wobetumi asiw hemophilia ano na wɔannye obi afi awo mu?
Mmuae tiawa na ɛyɛ nokware ma eyi ne sɛ,
"Dabi."Sɛnea mprempren aduruyɛ ho nyansahu kyerɛ no, ɔkwan biara nni hɔ a wɔbɛfa so asiw obi kwan sɛ obenya awosu mu abɔde a asɛe. Eyi kyerɛ sɛ sɛ abusua bi wɔ hɔ a ɛkyerɛ sɛ mogya mmoroso a, hokwan pɔtee bi wɔ hɔ sɛ wo anaa wo ba benya awosu mu abɔde no. Wɔnnya nnyaa aduru anaa nnuru a wɔde bɛbɔ wɔn ho ban.
Nanso mma ɛnhaw wo! Ɛwom sɛ yentumi nsiw yare no ano sɛ yebenya yɛn awo de, nanso nneɛma bi wɔ hɔ a ɛho hia paa a yebetumi ayɛ.
Nea wobetumi ayɛ: Awosu mu Afotu
Sɛ obi wɔ w’abusua mu wɔ hemophilia a, ade a eye sen biara a wubetumi ayɛ ansa na woaware anaa woayɛ nhyehyɛe sɛ wobɛwo ba ne sɛ wobɛhwehwɛ
awosu mu afotu .
- Henanom na ɛsɛ sɛ wɔtwe adwene si eyi so?
- Sɛ hemophiliacs wɔ abusua no mu (wɔ ɛna anaa agya afã).
- Sɛ woyɛ ɔbea na wopɛ sɛ wuhu sɛ woyɛ soafo anaa.
- Sɛ awofo a wɔwɔ abofra a ɔwɔ hemophilia dedaw no resusuw ho sɛ wɔbɛwo a.
- Dɛn na ɛba wɔ saa nkɔmmɔbɔ yi mu?
Awosu ho ɔfotufo anaa awosu ho ɔfotufo bɛhwɛ wo ne wo hokafo abusua aduruyɛ ho abakɔsɛm mu. Afei wɔbɛkyerɛkyerɛ asiane a ɛwɔ hɔ sɛ wo ba no benya hemophilia mu. Sɛ ɛho hia a, wobetumi ayɛ
mogya mu nhwehwɛmu titiriw de ahu sɛ ebia woyɛ obi a ɔsoa mogya anaa. Saa nkɔmmɔbɔ yi bɛboa wo ma woasi gyinae a ɛfata. Wo duruyɛfo nso betumi asusuw
nhwehwɛmu a wɔyɛ ansa na wɔawo (e.g., amniocentesis, chorionic villus sampling - CVS) a ebetumi ahu yare no wɔ akokoaa no mu bere a ɔda so ara wɔ awotwaa mu no ho.
Sɛ wontumi nsiw yare no ano a, ɔkwan bɛn so na wobetumi asiw ɔhaw ahorow ano?
Eyi ne ɔfã a ɛho hia sen biara. Ɛwom sɛ yɛrentumi nsiw hemophilia ano de, nanso nneɛma pii wɔ hɔ a yebetumi ayɛ
de asiw nsɛnnennen ne asiane ahorow a ebetumi de aba no ano. Saa nneɛma yi betumi aboa wo ma woatra ase wɔ apɔwmuden, a ɛfata a wowɔ hemophilia.
| Nsɛnnennen a Wobetumi Siw Ano | Nneɛma a ɛsɛ sɛ woyɛ |
|---|
| Mogya a ɛtaa tu ne akisikuru | - a wokwati contact sports te se rugby ne boxing. - a wode wo ho bɛhyɛ apɔw-mu-teɛteɛ a ahobammɔ wom te sɛ asuguare ne nantew mu. - se wowo abofra ketewa a, fa nkatasoɔ a ɛbɔ wo ho ban di dwuma wɔ nneɛma a ano yɛ nnam so wɔ fie, ne ntama a wɔde kata wo nkotodwe ne wo nsateaa so. |
| Nkwaa a Ɛsɛe | - a wonom mogya a etumi tu a oduruyɛfo no akyerɛ no wɔ bere a ɛfata mu ne dodow a ɛfata mu. Eyi ne ade a ɛho hia sen biara. - a wobɛyɛ nkwaa mu den apɔw-mu-teɛteɛ sɛnea nipadua mu ayaresa kyerɛ no. |
| Mogya a ɛtɔ fi sẽ ne anom | - a wokura anom ahotew pa ara mu. Fa brɔs a ɛyɛ mmerɛw brush wo sẽ da biara da. - kɔ wo nsensan ho oduruyɛfo nkyɛn daa. Ansa na wobɛyɛ oprehyɛn biara te sɛ wo sẽ a woyi no, ɛho hia sɛ wobɔ wo duruyɛfo amanneɛ wɔ wo hemophilia tebea no ho. |
| Mogya a ɛtɔ a nnuru a enye na ɛde ba | - kwati koraa sɛ wobɛnom nnuru a ɛtew mogya a ɛtɔ so, te sɛ aspirin ne NSAIDs (e.g., ibuprofen, diclofenac). - bisa wo duruyɛfo bere nyinaa ansa na woanom aduru biara. |
Sɛ wodi saa nneɛma yi akyi yiye a, obi a ɔyare mogya mmoroso mpo betumi atra ase pa a nsɛnnennen a asiane biara nni ho. Enti, sɛ́ anka wobɛhaw wo ho sɛ worentumi nsiw yare no ano na woannye obi afi awo mu no, nea ɛho hia sen biara ne sɛ wubehu sɛnea wobɛtra ase ne yare no ne ɔkwan a wobɛfa so asiw nsɛnnennen ano.
Nkrasɛm a Wɔde Kɔ Fie
- Hemophilia yɛ awosu mu yare a wontumi mfa akwan a ɛwɔ hɔ mprempren no nsiw ano anaa nsa.
- Sɛ obi anya hemophilia wɔ w’abusua mu a, ɛho hia yiye sɛ wobɛhwehwɛ awosu mu afotu ansa na woasusuw ho sɛ wobɛwo.
- Ɛwom sɛ wontumi nsiw yare no ano de, nanso wobetumi ayɛ nneɛma pii de asiw ɔhaw ahorow (mogya a ɛtɔ, nkwaa a ɛsɛe) a yare no de ba no ano.
- Ɛho hia sɛ wofa ayaresa (Factor Replacement Therapy) a oduruyɛfo no akyerɛw ama wo no yiye, fa asetra kwan a ahobammɔ wom, na wokwati nnuru a epira.
- Sɛ wowɔ eyi ho dadwen anaa ehu bi a, mfa nsie wo ho da. Wo duruyɛfoWo ne wɔn nkasa pefee na nya afotu a ɛfata.
Hemophilia, Mogya a ɛtwetwe, Awosu mu afotu, Awosu mu nyarewa, Mogya a ɛtɔ, Nneɛma a ɛma mogya tu
💬 අදහස් (0)
තවමත් කිසිදු අදහසක් පළ කර නොමැත. ඔබේ අදහස පළමු වරට මෙහි එක් කරන්න.
ඔබේ අදහස එක් කරන්න