ʻAʻole anei ʻoe i luhi e like me ka wā ma mua, ke hele iki ʻoe, ke piʻi ʻoe i luna o ke alapiʻi? Ke manaʻo nei ʻoe ua pōkole kou hanu? Manaʻo paha ʻoe, 'ʻO kēia ka mea e hana ʻia ke ʻelemakule ʻoe.' Akā, ʻaʻole nā ʻū a pau, ʻaʻole nā ʻū a pau he mea maʻamau. I kēia lā, ke kamaʻilio nei mākou e pili ana i kahi maʻi e hiki ai ke hoʻoulu i ia mau hōʻailona, he mea koʻikoʻi iki ia, akā he mea nui loa ia e makaʻala. ʻO ia ka Pulmonary Fibrosis .
He aha maoli ka Pulmonary Fibrosis (PF)?
I ka ʻōlelo maʻalahi, ʻo ia ka manawa e paʻakikī mālie ai nā ʻiʻo palupalu i loko o kou mau māmā, e hana ana i kahi ʻeha. E like me ka hana ʻana o kahi ʻeha ma ko mākou ʻili i ka wā e loaʻa ai iā mākou kahi ʻoki, hana ʻia kekahi mea like i loko o ko mākou mau māmā. ʻO kēia ʻeha ke kumu o ka nalowale ʻana o ka elasticity o nā māmā, e hiki ʻole ai iā lākou ke pehu a hoʻohaʻahaʻa pono.
Ke hanu mākou, komo ka oxygen i loko o nā ʻeke ea liʻiliʻi (alveoli) i loko o nā māmā. Ke paʻakikī ka ʻiʻo a puni kēia mau ʻeke ea, ʻaʻole komo pono ka oxygen i loko o ke koko. ʻO kēia ka mea e paʻakikī ai iā mākou ke hanu pono a lilo mākou i ka hanu pōkole. ʻO kēia maʻi he maʻi holomua e lilo i mea ʻino i ka hala ʻana o ka manawa.
He aha ka idiopathic pulmonary fibrosis (PF)?
I kekahi manawa, ʻaʻole hiki i nā kauka ke loaʻa kahi kumu kikoʻī no ka paʻakikī a me ka ʻeha o nā māmā. ʻO ia ka mea a mākou e kapa nei he Idiopathic Pulmonary Fibrosis . ʻO ke ʻano o ka huaʻōlelo "idiopathic" ʻo ia hoʻi 'no ke kumu i ʻike ʻole ʻia.' ʻO ka ʻoiaʻiʻo, ʻo ka hapa nui o nā maʻi Pulmonary Fibrosis he ʻano idiopathic kēia.
He aha nā hōʻailona o kēia maʻi? Pehea ʻoe e ʻike ai?
ʻAʻole paha e ʻike ʻia kēia mau hōʻailona i ka wā mua, akā e piʻi mālie ana lākou i ka hala ʻana o ka manawa. Manaʻo paha ʻoe he mau loli maʻamau wale nō kēia e hele mai me ka ʻelemakule ʻana. Akā, he mea nui e hoʻolohe i kēia mau hōʻailona.
| Hōʻailona | Wehewehena |
|---|---|
| Pōkole o ka hanu | E manaʻo paha ʻoe he pōkole ka hanu, ʻoiai ke hele wāwae a i ʻole ke hana ʻana i nā hana maʻalahi e like me ke piʻi ʻana i nā alapiʻi. I ka holomua ʻana o ka maʻi, e paʻakikī paha iā ʻoe ke hanu ʻoiai ke kū mālie. |
| ʻŌhū maloʻo mau | ʻO ka ʻū mau, hoʻonāukiuki, maloʻo e kū mai me ka ʻole o ka mucus. |
| Luhi | ʻOiai inā ʻaʻole ʻoe e hana i kekahi hana, luhi a luhi mau ʻoe. |
| Ka emi koke ʻana o ke kaumaha | ʻOe ke emi ʻana o ke kaumaha me ka hoʻāʻo ʻole, me ke kumu ʻole. |
| Nā manamana lima i hoʻopaʻa ʻia | Lilo nā wēlau o nā manamana lima a me nā manamana wāwae i poepoe, a pehu ka ʻili a puni nā kui. |
| ʻIli polū/hina (Cyanosis) | I ka emi ʻana o ka pae oxygen i loko o ke koko, e lilo nā lehelehe, a puni nā maka, a i ʻole nā mākuʻu lima i polū, hina, a i ʻole keʻokeʻo. |
No ke aha e loaʻa ai kēia ʻano maʻi? He aha nā kumu?
Manaʻo nā kauka ua hana ʻia kēia mau ʻeha e ka hōʻino a i ʻole ka mumū ʻana o nā māmā i ho'ōla pono ʻole ʻia. Nui nā kumu hiki ke loaʻa.
| Kumu | Nā laʻana a me ka wehewehe ʻana |
|---|---|
| Maʻi pili o nā ʻiʻo | Hiki i nā maʻi e like me ka Rheumatoid Arthritis (RA ), Lupus , a me Scleroderma ke hoʻopilikia i nā māmā. |
| Ka ʻike ʻana i nā mea i ke kaiapuni | Ka lōʻihi o ka hoʻopili ʻia ʻana i ka lepo e like me ka asbestos a me ka silica. Hiki ke hana ʻia e kahi allergy ( Hypersensitivity Pneumonitis ) i kekahi mau ʻano mold, bacteria, grounds manu, a i ʻole dander. |
| ʻO kekahi mau lāʻau lapaʻau a me nā lāʻau lapaʻau | ʻO kekahi mau lāʻau lapaʻau e like me Amiodarone , i hoʻohana ʻia no ka maʻi puʻuwai, Nitrofurantoin , i hoʻohana ʻia no nā maʻi, Methotrexate , i hoʻohana ʻia no ka maʻi kanesa, a me ka radiation therapy hiki ke hōʻino i nā māmā. |
| Puhipaka | He kumu nui ka puhi paka no ka hoʻomohala ʻana i kēia maʻi. |
ʻO wai ka mea i ʻoi aku ka pilikia o ka loaʻa ʻana o kēia maʻi?
Ma waho aʻe o nā kumu i luna nei, aia kekahi mau kumu ʻē aʻe e hoʻonui ai i ka pilikia o ka hoʻomohala ʻana i kēia maʻi:
- ʻOiai ma luna o 65 mau makahiki.
- ʻOiai he kāne.
- ʻO ka loaʻa ʻana o kahi lālā pili o ka ʻohana (nā mākua, nā kaikaina) me kēia maʻi.
- ʻO ka loaʻa ʻana o kekahi mau maʻi i hoʻokumu ʻia e nā loli genetic ( DNA ).
He aha nā pilikia e hiki ke loaʻa mai ka Pulmonary Fibrosis?
Ke hana pono ʻole nā māmā, hoʻopilikia ia i ke kino holoʻokoʻa. Pono ka puʻuwai e hana ikaika. Hiki i kēia ke alakaʻi i nā pilikia like ʻole.
ʻO ka mea nui loa, ʻo ia ka ʻike mua ʻana i ka maʻi a hoʻomaka i ka mālama ʻana. Hiki i kēia ke hōʻemi i ka pilikia o nā pilikia e like me kēia.
- Hypoxemia: ʻAʻole loaʻa i nā ʻiʻo o ke kino ka nui o ka oxygen e pono ai.
- Ke koko kiʻekiʻe o ka puʻuwai : Hoʻonui ʻia ke kaomi i loko o nā kīʻaha koko e lawe ana i ke koko i nā māmā. Hoʻokau kēia i kahi kaumaha ma ka puʻuwai.
- Nā maʻi māmā a me ka hiolo ʻana o ka māmā.
- ʻŌnaehana hanuKa Holo ʻole ʻana o ka Hanu: ʻAʻole hiki i nā māmā ke hāʻawi hou i ke kino i ka oxygen e pono ai.
- Ka Holo ʻole o ka Puʻuwai: Hana ʻia ka holo ʻole o ka puʻuwai ke koi ʻia ka puʻuwai e hana ikaika loa no kahi manawa lōʻihi.
Pehea e ʻike pololei ai i ka maʻi? (Diagnosis)
ʻAʻole kēia he maʻi e hiki ke ʻike ʻia me kahi hoʻāʻo hoʻokahi. E hoʻolohe pono kāu kauka i kāu mau hōʻailona, e hoʻolohe i kou umauma me kahi stethoscope, a laila e paipai i kekahi mau hoʻāʻo.
ʻO nā hoʻokolohua nui i hana ʻia:
- X-ray o ka umauma: He nānā ʻana i ka umauma me ke kiʻi X-ray.
- ʻO ke kiʻi CT hoʻonā kiʻekiʻe (HRCT): He kiʻi kūikawā kēia e hōʻike ana i nā kikoʻī maikaʻi aʻe o nā māmā ma mua o ka CT scan maʻamau.
- Nā hoʻāʻo hana pulmonary (mama): Pili kēia iā ʻoe e puhi i loko o kahi mīkini, e ana ana i ka nui o ka ea e hiki i kou mau māmā ke lawe i loko a me ka wikiwiki o kou hanu ʻana i waho.
- Nā hoʻāʻo koko: Hana ʻia nā hoʻāʻo koko e nānā i nā mea e like me nā pae oxygen koko.
- Bronchoscopy: He kaʻina hana e hoʻokomo ʻia ai kahi ʻōmole lahilahi me kahi kāmela ma o ka ihu a i ʻole ka waha e nānā i loko o nā māmā.
- Biopsy: I kekahi manawa, lawe ʻia kahi ʻāpana liʻiliʻi o ka ʻiʻo mai ka māmā a nānā ʻia e hōʻoia i ka maʻi.
He aha nā lāʻau lapaʻau no kēia? Hiki ke ho'ōla loa ʻia?
ʻO kahi nīnau a ka poʻe he nui e nīnau ai, inā paha hiki ke ho'ōla loa ʻia. ʻO ka ʻoiaʻiʻo, ʻaʻole hiki ke hoʻohuli ʻia ka ʻeha i hana ʻia i nā māmā e kēia maʻi.
Akā, mai hopohopo. Hiki i ka lāʻau lapaʻau ke hoʻolohi i ka holomua o ka maʻi, kaohi i nā hōʻailona, a hoʻomaikaʻi i kou ʻano ola .
| ʻAno lapaʻau | He aha ka mea e hana ʻia? |
|---|---|
| Nā lāʻau antifibrotic | Hoʻolohi nā lāʻau lapaʻau e like me Nintedanib lāua ʻo Pirfenidone i ka wikiwiki o ka hōʻeha ʻana i ka māmā. |
| Nā Corticosteroids | Hoʻohana ʻia kēia mau mea i kekahi manawa e hōʻemi i ka mumū i loko o nā māmā. |
| Hoʻōla ʻOkikene | Inā haʻahaʻa ka pae oxygen i loko o ke koko, hāʻawi ʻia ka oxygen keu ma o kahi ʻōmole liʻiliʻi i kau ʻia i loko o ka ihu. |
| Hoʻōla hou ʻana o ka puʻuwai | He papahana kūikawā kēia e hoʻomaikaʻi ai i kou ikaika a me kou ola maikaʻi ma o nā hoʻomaʻamaʻa hanu, ka hoʻoikaika kino, a me ka ʻike ʻana i nā maʻi. |
| Hoʻoili ʻana i ka māmā | Hiki i kekahi mau maʻi me ka maʻi koʻikoʻi loa ke kūpono no ka hoʻoili ʻana i ka māmā inā lākou e kū i nā kūlana. |
Āhea ʻoe e ʻike ai i ke kauka? Āhea ʻoe e hele ai i ka ʻOihana Pōpilikia (ETU)?
ʻO ka maopopo ʻana i kēia mea e hiki ai ke kōkua i ka hoʻopakele ʻana i kou ola.
E ʻike i ke kauka i nā manawa a pau.
Inā ʻike ʻoe i kekahi o nā hōʻailona i ʻōlelo ʻia ma luna, e like me ka hanu pōkole, ka ʻū mau, a i ʻole ka paʻakikī e hana i nā hana maʻalahi loa, mai hoʻowahāwahā iā ia . E ʻike koke i kāu kauka a kūkākūkā i kēia. ʻO ka wikiwiki o ka ʻike ʻia ʻana o ka maʻi, ʻo ka maʻalahi ka mālama ʻana.
Ke pono ʻoe e hele koke i ETU
Inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona, mai hoʻonele i ka manawa a e hele koke i ka Emergency Treatment Unit (ETU) o ka haukapila a i ʻole e kelepona iā 1990.
| Pilikia! E hele koke i ka haukapila. | |
|---|---|
| 🚨 Paʻakikī nui a koke paha ka hanu ʻana | |
| ʻEha ka umauma | |
| 🚨 Huikau a ʻike loli paha | |
| 🚨 ʻO ke kala polū o ka ʻili, nā lehelehe, a i ʻole nā kui | |
He aha ka mea e hiki mai ana me kēia maʻi?
He mea maʻamau ke makaʻu a me ke kānalua no ka wā e hiki mai ana ke ʻike ʻia ua loaʻa iaʻu kēia maʻi. He mea maʻamau nō hoʻi ke noʻonoʻo, 'Pehea ka lōʻihi o koʻu ola ʻana?'
Akā e hoʻomanaʻo, ʻaʻole like nā maʻi a pau. No kekahi poʻe, lohi loa ka holomua o ka maʻi, i nā makahiki. No kekahi poʻe, wikiwiki iki paha ka holomua, i kekahi mau mahina. ʻAʻohe mea hiki ke ʻōlelo maopopo.
ʻO ka mea nui loa, ʻo ia ke kamaʻilio ākea me kāu kauka, e loaʻa i ka lāʻau kūpono, a e kū i kēia me ka ikaika a me ke kākoʻo mai kou ʻohana. Ua hoʻomaikaʻi nui nā lāʻau lapaʻau hou i ke ola a me ke ʻano o ke ola o nā maʻi.
Hiki iā ʻoe ke hui pū me nā hui kākoʻo e loaʻa ai ka ikaika mai nā ʻike o nā poʻe ʻē aʻe e noho nei me ka maʻi.
Leka Lawe-Home
- ʻO ka Pulmonary Fibrosis kahi e paʻakikī ai nā ʻiʻo o ka māmā a lilo i mea ʻeha, e paʻakikī ai ka hanu ʻana.
- ʻO ka paʻakikī o ka hanu ʻana, ka ʻū maloʻo mau, a me ka luhi nui nā hōʻailona nui. Mai hoʻowahāwahā i kēia mau mea.
- ʻOiai ʻaʻole hiki ke ho'ōla loa ʻia kēia maʻi, hiki i ka lāʻau lapaʻau kūpono ke kāohi i ka holomua o ka maʻi a ʻae iā ʻoe e ola i kahi ola maikaʻi.
- Inā ʻoe e puhipaka, he mea nui e hoʻōki koke . He mea nui loa hoʻi e pale iā ʻoe iho mai ka lepo a me nā kemika e hōʻino i nā māmā.
- Inā loaʻa iā ʻoe a i ʻole kekahi āu i ʻike ai kēia mau hōʻailona, e ʻimi koke i ke kōkua lapaʻau . He mea nui ka ʻike koke ʻana no ka mālama ʻana.
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