Ke ʻike nei ʻoe i kekahi manawa i kahi ʻeha ʻē ma kou ʻōpū haʻahaʻa e hoʻonui mālie ana i kēlā me kēia lā, a me ke kua? Malia paha ua emi kou mimi ʻana , ua pehu kekahi wāwae, a ua loli ke kala o kou ʻili? ʻOiai he mea maʻamau kēia mau mea, i kekahi manawa hiki ke lilo i mau hōʻailona o kahi maʻi kakaikahi akā koʻikoʻi. I kēia lā ke kamaʻilio nei mākou e pili ana i kekahi o ia ʻano maʻi - Retroperitoneal Fibrosis . ʻOiai paha he paʻakikī ke kani ʻana o ka inoa, e mālama kākou i ka maʻalahi.
He aha ka Retroperitoneal Fibrosis?
I ka ʻōlelo maʻalahi, ʻo kēia ka ulu ʻana o nā ʻiʻo fibrous ma hope (ʻo ka huaʻōlelo retro ʻo ia hoʻi 'ma hope') o ka membrane pale (peritoneum) e hoʻopuni ana i nā ʻōpū e like me nā ʻōpū i loko o ko kākou lua ʻōpū. ʻO ke kikoʻī, ulu kēia ʻiʻo a puni ke kīʻaha koko nui i loko o ko kākou ʻōpū (ka aorta abdominal) a me nā kīʻaha koko ʻē aʻe e lālā ana mai ia mea.
E noʻonoʻo i ka mea e hana ʻia ke ulu kēia ʻiʻo makemake ʻole ʻia. Hiki i kēlā ʻiʻo ke ālai i nā ureters, nā ʻōmole e lawe ana i ka mimi mai ko mākou mau puʻupaʻa a i ko mākou ʻōpū mimi. Hiki i kēia ke ālai i ke kahe o ka mimi. Hiki iā ia ke hoʻopilikia i nā ʻōpū ʻē aʻe i loko o ka ʻōpū. Ua kapa ʻia kēia maʻi ʻo ka maʻi ʻo Ormond.
ʻO ke kino e ulu ana ma kēia ʻano hiki ke lilo i maʻi kanesa a ʻaʻole paha. He maʻi maʻamau loa kēia. ʻOi aku ka maʻamau i nā kāne waena. Akā, ʻoiai i waena o lākou, he mea kakaikahi loa ia.
He aha ke kumu o kēia kūlana?
ʻAʻole ʻike maopopo nā kauka i ke kumu kikoʻī, akā manaʻo kekahi poʻe loea e pili ana ia i kahi mea i loko o kā mākou ʻōnaehana pale . ʻO ia hoʻi, ke hana kūʻē nei ka ʻōnaehana pale o ko mākou kino iā mākou.
Eia kekahi, ua ʻike ʻia kekahi mau kumu ʻē aʻe e hiki ke kōkua i kēia kūlana.
| Kumu | Wehewehena |
|---|---|
| Puhi paka | Ua manaʻo ʻia ka puhi paka he kumu nui ia no kēia. |
| Nā ʻeha kino (Trauma) | Nā ʻeha koʻikoʻi i ka ʻōpū a i ʻole nā wahi a puni. |
| ʻoki kino | Hiki ke hana ma hope o kekahi mau ʻoki ʻana o ka ʻōpū. |
| Kekahi mau kemika | Ka ʻike ʻia ʻana i nā mea e like me ka asbestos. |
| Nā maʻi | ʻO kekahi mau maʻi bacteria a fungal paha. |
| Nā puʻupuʻu/neoplasms | Ma ke ʻano he hopena ʻaoʻao o nā maʻi kanesa ʻē aʻe. |
| Radiotherapy | Lapaʻau radiation no ka maʻi ʻaʻai. |
| Kekahi mau lāʻau lapaʻau | ʻO kekahi mau lāʻau lapaʻau kahiko i hoʻohana ʻia no ka migraines. |
| Ka hoʻohana ʻana i nā lāʻau lapaʻau | Ka hoʻohana ʻana i nā lāʻau lapaʻau ʻole e like me ka cocaine. |
ʻAʻohe hōʻike maopopo e hōʻike ana ua hoʻoili ʻia kēia maʻi mai kēlā hanauna a i kēia hanauna . ʻO ka hapa nui o ka manawa, hiki wale mai ia.
He aha nā hōʻailona o kēia maʻi?
Hiki ke ʻokoʻa nā hōʻailona mai kēlā kanaka a kēia kanaka. Eia kekahi, ʻokoʻa nā hōʻailona ma muli o ka mamao o ka laha ʻana o ka ʻiʻo i makemake ʻole ʻia aʻu i ʻōlelo ai a me kahi i hana ʻia ai.
I nā lā mua, e ʻike paha ʻoe i kahi ʻeha ʻoi a palupalu hoʻi ma kou ʻōpū lalo. Hiki ke hoʻonui ʻia kēia ʻeha i kēlā me kēia lā. I ka manawa like, e emi paha ke kahe ʻana o ke koko i kou mau wāwae.I kona emi ʻana, e ʻike paha ʻoe i kahi loli i ke kala o kou mau wāwae a i ʻole ka pehu ʻana ma kekahi wāwae .
ʻO ka mea nui loa, ʻo ia ka hoʻolohe ʻana i kēia mau hōʻailona i ka wā e ʻike ai ʻoe iā lākou. Inā loaʻa iā ʻoe ka ʻeha o ka ʻōpū ma lalo a i ʻole ke kua, ʻoiai inā ua emi nui ka nui o kāu mimi, e ʻike koke i kāu kauka.
| Nā hōʻailona ʻē aʻe e pili ana me ka Retroperitoneal Fibrosis | |
|---|---|
| - Ka luaʻi a me ka luaʻi | – Kuni |
| ʻEha i loko o nā testicles (no nā kāne) | – ʻOi aku ka makewai ma mua o ka maʻamau |
| - He manaʻo o ke ola ʻole i loko o ke kino | ʻEha hope |
| - Ka emi ʻana o ke kaumaha | - Paʻakikī ka mimi (hiki ʻole, kahe koko, mimi pinepine i ka pō) |
Pehea e ʻike ai ke kauka i kēia?
Ke hele ʻoe i ke kauka, e nīnau mua ʻo ia e pili ana i kou mōʻaukala olakino a hana i kahi hoʻokolokolo kino. Pono ʻo ia e holo i kekahi mau hoʻokolohua e hoʻoholo ai inā ʻo ke kumu o kāu mau hōʻailona he Retroperitoneal Fibrosis a i ʻole kekahi maʻi ʻē aʻe.
Eia nā hoʻokolohua e hiki ke hoʻohana ʻia no kēia:
- Nā hoʻāʻo koko : E ʻike e pili ana i nā maʻi i loko o ke kino a me ka hana o nā puʻupaʻa.
- Nā hoʻāʻo mimi : E nānā i ke koko a i ʻole nā mea ʻē aʻe i loko o ka mimi.
- ʻO ke kani ʻana o nā puʻupaʻa: E nānā i ke kūlana o nā puʻupaʻa a me nā ureters.
- ʻO ke kiʻi CT o ka ʻōpū:ʻAe kēia iā ʻoe e ʻike maopopo i ka wahi, ka nui, a me ka hopena o ke kino keu ma nā ʻōpū a puni.
- ʻO ke kiʻi MRI o ka ʻōpū: He hoʻāʻo like me ka CT scan, akā me nā kiʻi kikoʻī hou aku.
- Nā hoʻāʻo X-ray: Pono paha i kekahi mau hihia.
- Biopsy: Pili kēia i ka lawe ʻana i kahi ʻāpana liʻiliʻi loa o ka ʻiʻo e ulu ana a nānā iā ia ma lalo o kahi microscope e ʻike ai inā he maʻi kanesa a ʻaʻole paha.
Pehea e mālama ʻia ai? Hiki ke ho'ōla ʻia?
ʻAe, aia ka lāʻau lapaʻau no kēia maʻi. Aia ke ʻano o ka lāʻau lapaʻau ma ke kumu o ka maʻi, ke koʻikoʻi o ka maʻi, a me ka pōʻino i hana mua ʻia.
Aia kekahi mau ʻano lapaʻau nui:
- Nā lāʻau anti-inflammatory: Hāʻawi ʻia nā lāʻau lapaʻau kiʻekiʻe e like me corticosteroids e kāohi i ka mumū a me ka ulu ʻana o nā ʻiʻo i loko o ke kino.
- Ke mālama ʻana i ke kumu kumu: Inā loaʻa ke kūlana i kahi maʻi a maʻi ʻaʻai paha, mālama ʻia ke kumu kumu.
- ʻOki kino: Wehe ʻoki kino i ka mea ulu. He mea pono loa kēia inā ua ālai ʻia ka urethra.
- Ka wehe ʻana i ka mimi mai nā puʻupaʻa: Inā ua paʻa loa nā ureters, hoʻokomo ʻia kahi paipu liʻiliʻi (stent) ma o ka ʻili e wehe i ka mimi e hōʻiliʻili ana i loko o nā puʻupaʻa.
- Nā lāʻau lapaʻau e kāohi ana i ka pale ʻana: Inā hana ʻia kēia e kahi ʻōnaehana pale ikaika loa, hāʻawi ʻia nā lāʻau lapaʻau e kāohi iā ia.
ʻO ka nūhou maikaʻi, pane maikaʻi ka hapa nui o ka poʻe i ka lāʻau lapaʻau. I loko o ʻelua pule o ka hoʻomaka ʻana o ka lāʻau lapaʻau, hoʻomaka ka ʻike ʻia ʻana o nā hōʻailona o ka hoʻōla ʻana o nā puʻupaʻa. Kākaʻikahi kēia ʻano e holomua a hiki i ka hāʻule piha ʻana o nā puʻupaʻa.
Akā e hoʻomanaʻo, ʻoiai ma hope o ka mālama ʻana a me ka hoʻōla ʻana, he mea nui e ʻike mau i ke kauka no ka hahai ʻana. ʻO kēia no ka mea no kekahi poʻe, hiki i ka maʻi ke hoʻi hou mai i nā makahiki he nui ma hope o ka mālama ʻana.
ʻOi aku ka maikaʻi o ka hoʻōla a me ke ola ʻana o ka poʻe me ke ʻano maʻi ʻaʻai (malignant) Retroperitoneal Fibrosis ma mua o ka poʻe me ke ʻano maʻi ʻaʻai (malignant).
Aia kekahi ala e pale aku ai i kēia?
ʻOiai he maʻi laha ʻole kēia, he palena wale nō nā mea hiki ke hana ʻia e pale aku ai. Akā, hoʻokahi mea nui. Ua ʻike ʻia e ka noiʻi ʻana, ʻo ka hoʻohana lōʻihi ʻana i ka lāʻau lapaʻau ʻo `methysergide`, ka mea i hoʻohana ʻia no ka migraines, hiki ke hoʻoulu i kēia maʻi. No laila, mai hoʻohana i ka lāʻau lapaʻau no ka manawa lōʻihi me ka ʻole o ka ʻōlelo aʻoaʻo a ke kauka.
ʻO ka mea nui loa, ʻo ia ke ʻimi i ke kōkua lapaʻau i ka wā e ʻike ʻia ai nā hōʻailona. ʻO ka wikiwiki o ka ʻike ʻia ʻana o ka maʻi, ʻoi aku ka maikaʻi o ka pale ʻana i nā pilikia a me ka holomua o ka mālama ʻana.
Leka Lawe-Home
- He ʻano laha ʻole ka Retroperitoneal Fibrosis kahi e ulu ai nā ʻiʻo fibrous i makemake ʻole ʻia ma hope o nā ʻōpū o ka ʻōpū.
- ʻO nā hōʻailona nui e komo pū me ka ʻeha ma ke kua a me ka ʻōpū lalo i wehewehe ʻole ʻia, ka emi ʻana o ka mimi, a me ka pehu ʻana o nā wāwae.
- Inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona, mai hoʻowahāwahā iā lākou a e ʻike koke i kāu kauka. He mea nui loa ka ʻike mua ʻana.
- Hiki i ka lāʻau lapaʻau ke ho'ōla pinepine i ka maʻi, akā he mea nui ka nānā mau ʻana no ka mea hiki i ka maʻi ke hoʻi hou mai.
- E hōʻalo i ka hoʻohana ʻana i kekahi lāʻau lapaʻau no ka manawa lōʻihi me ka ʻole o ke aʻo ʻana mai ke kauka.
ʻO ka Fibrosis Retroperitoneal, ka maʻi Ormond, ʻEha kua, ʻEha ʻōpū, Nā maʻi ʻōpū mimi, Nā maʻi puʻupaʻa, Ola kino o nā kāne
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