Imajin, yu yes dɛn kin rɛd ɛn pen wantɛm wantɛm. Ɔ yu nos, yu ni, ɛn yu jɔyn dɛn kin swel ɛn yu kin fil pen. Dis kayn tin kin go afta sɔm dez ɛn kam bak bak? Dis nɔto jɔs ɔda tin. Dis kin bi sayn fɔ wan sik we nɔ kin apin so ɔltɛm bɔt we kin mek pɔsin wɔri we dɛn kɔl Rilapsing Polychondritis . Lɛ wi tɔk bɔt dis tide.
Wetin na dis Rilaps Polychondritis (RP)?
Fɔ tɔk am simpul wan, Rilapsing Polychondritis (RP) na wan sik we nɔ kin apin so ɔltɛm we kin mek di katilej ɛn ɔda tisu dɛn na wi bɔdi inflamɛns . Katilaj na wan tin we strɔng bɔt we kin chenj, lɛk di bon dɛn we de na wi yes, nos, ɛn jɔyn dɛn.
Naw, wetin na dis inflamɛns ? Imajin se we sɔntin lɛk vayrɔs ɔ baktri kam insay wi bɔdi, wi bɔdi in imyun sistɛm kin bigin fɔ fɛt am. Dɔn, di say we da fɛt de apin kin rɛd, swel, wam, ɛn i kin fil pen. Na dat wi kin kɔl inflammation. insay RP, dis kayn inflameshn de apin na di εria dεm we di kכtilaj de.
De pen wae de kam pan dis sik kin kam wan wan. Pan ɔl we i kin afɛkt man ɛn uman, ɛn ɛni ej, i kin bɔku pan pipul dɛn we ol bitwin 40 ɛn 60 ia.
RP nɔ de afɛkt ɔlman di sem we.
- Fɔ sɔm pipul dɛm: Dis na sik wae nɔr kin pasmak , ɛn de sik kin dɔn fɔ dɛnsɛf insay sɔm dez.
- Fɔ ɔda pipul dɛn: Dis sik kin apin bɔku tɛm ɛn i kin mek pɔsin fil pen pasmak .
Dis sik kin afɛkt di men ɔgan dɛm lɛk di at ɛn di lכng, ɛn sɔmtɛm i kin mek pɔsin in layf de pan denja. So, i rili impɔtant fɔ mek wi no bɔt dis.
Wetin na di sayn dɛm fɔ dis sik?
RP de mεntal afekt di katilej na wi yes, nos, εn joyn dεm. Bɔt i kin afɛkt di rib dɛn, di spayna , ɛn di trakya bak.Infakt, dis sik kin afɛkt ɛni say we gɛt tisu we tan lɛk katilej, fɔ ɛgzampul, di yay, di at, di skin, di kidni, di blɔd vesel , ɛn ivin di nervɔs sistɛm.
Lɛ wi si wetin na di kɔmɔn sayn dɛm.
| Di pat na di bɔdi we dɛn afɛkt | Di tin dɛn we pɔsin kin si |
|---|---|
| Yes | Di ɔda pat na di yes (earlobe) kin rɛd wantɛm wantɛm, i kin swel, ɛn i kin fil pen. |
| Nos | di damej pan di nos kכtilaj, we de mek di brij na di nos sink (sadul nos). Di nos kin at ɛn swel. |
| Yay | Ay rɛd, pen, swel, ɛn prɔblɛm wit yu yay. |
| Jɔyn dɛn | Swel ɛn pen na di jɔyn dɛn lɛk di an, finga, sholda, ɛlb, ni, ɛn anklɛ. Dis kin apin wit ɔr nɔr gɛt at at sik. |
| Trot & Windpaip we yu kin yuz | I nɔ izi fɔ blo, i nɔ kin izi fɔ tɔk, i nɔ kin izi fɔ swɛla, i kin kɔf, ɛn i kin fil pen na di trot/nɛk eria. |
| Rib & Chɛst | Sivεr pen na di jכnkshכn fכ di rib dεm εn na di brεstbon. |
| Kanda | Difrɛn difrɛn skin rash dɛn. |
Apat frɔm dat, pipul dɛm wae gɛt dis sik kin gɛt ɔda inflammatory conditions bak, lɛk vasculitis (inflammation of the blood vessels) ɔr ankylosing spondylitis, ɔr ɔda sik dɛm wae dɛn kin gɛt fɔ dɛnsɛf, lɛk lupus.
De tin wae impɔtant pas ɔl na, if yu gɛt wan ɔr mɔr pan dɛn sik ya, mɔr lɛk if dɛn kam ɛn go, den de kam bak, nɔr west tɛm ɛn go to dɔktɔ.
Wetin na di rizin fɔ dis?
Infakt, dɔktɔ dɛn stil nɔ no di rayt tin we kin mek pɔsin gɛt RP. Sɔm sayɛnsman dɛn biliv se wan patikyula jin kin mek pɔsin gɛt dis sik mɔ ɛn mɔ, bɔt nɔto sik we pɔsin kin gɛt frɔm in mama ɛn papa.
Dɛn kin tek dis as ɔtoimyun disɔda .
Wetin i min? Fɔ tɔk am simpul wan, di imyun sistɛm we dɛn se de protɛkt wi bɔdi frɔm sik, kin mistek bigin fɔ atak wi yon bɔdi we gɛt wɛlbɔdi. I tan lɛk se wi yon ami de atak wi yon kɔntri. Wan tiori de bak se dis sik kin wɔs bikɔs ɔf strɛs ɔr sɔm tin dɛm wae de na di envayrɔmɛnt.
Aw dɔktɔ kin fɛn dis?
No spesifik test nɔ de fɔ RP. Yu dɔktɔ go fɔs chɛk yu ɛn aks yu bɔt di sik dɛn we yu gɛt. Dɛn kin du blɔd tɛst fɔ chɛk if yu bɔdi gɛt inflamɛns. Dɛn kin du ɛkstrem rayt bak fɔ luk fɔ ɛni say we di sik dɔn afɛkt.
Fɔ no di sik klia wan, dɔktɔ go luk fɔ tri ɔ mɔ pan dɛn sayn ya:
| Tin dɛn we yu fɔ tink bɔt fɔ no if yu gɛt di sik |
|---|
| Inflameshɔn na di katilej na di tu yes dɛn. |
| Inflameshɔn na di nos katilej. |
| Inflameshɔn na di katilej na di aywe. |
| Atraytis na fayv ɔ mɔ jɔyn dɛn di sem tɛm. |
| Prɔblɛm fɔ yɛri ɔ balans (diziz, nɔ de yɛri fayn). |
| di yay inflameshn (e.g. konjunktivitis, skleritis). |
Sɔntɛnde, di dɔktɔ kin disayd fɔ tek smɔl pat pan di tisu frɔm di say we di sik dɔn ɛn chɛk am ɔnda maykroskɔp fɔ kɔnfirm di sik. Wi kin kɔl dis bayɔpsi .
Dipen pan aw de sik de afɛkt yu, dɛn kin sɛn yu to spɛshal dɔktɔ. Fɔ ɛgzampul, dɔktɔ we de mɛn yu bɔdi, dɔktɔ we de mɛn yu at, ɔ pɔsin we sabi aw fɔ mɛn pen.
Wetin na di tritmɛnt dɛm fɔ dis?
No mɛrɛsin nɔ de fɔ RP yet. Bɔt yu dɔktɔ kin ɛp fɔ mek yu nɔ fil pen, fɔ kɔntrol di tin dɛn we de sho se yu gɛt sik, ɛn fɔ mek yu bɔdi nɔ pwɛl yu bɔdi. Di tritmɛnt we dɛn kin pik kin difrɛn difrɛn wan bay aw di sik siriɔs.
- Di tin dɛn we dɛn kin yuz fɔ mɛn pen: Fɔ di wan dɛn we nɔ gɛt bɛtɛ sik, dɛn kin gi dɛn jenɛral pen kil (anti-inflammatories) fɔ kɔntrol di pen.
- Stɛroyd: Dɛn kin gi stɛroyd lɛk prɛdnisɔn fɔ kɔntrol di inflamɛns.
- Mεdikeshכn dεm we de mek yu imyun sistεm: If di sik bad, yu kin nid fכ gi yu strכng mεdikeshכn dεm we de slow yu imyun sistεm.
- Ɔpreshɔn: If i rili siriɔs, dɛn kin nid fɔ du ɔpreshɔn, lɛk fɔ mek di at valv we dɔn pwɛl ɔ fɔ put tyub fɔ mek i nɔ ebul fɔ blo fayn.
I rili impɔtant: Nɔ yuz ɛni wan pan dɛn mɛrɛsin ya we yu nɔ go to yu dɔktɔ. Dipen pan di kayn sik we yu gɛt, na yu dɔktɔ nɔmɔ go ebul fɔ no di tritmɛnt ɛn di doz we go fayn fɔ yu.
Aw layf go go bifo wit dis sik?
Di lɔng tɛm autkam fɔ RP kin difrɛn frɔm wan pɔsin to ɔda pɔsin. Dis sik kin kam tranga pasmak as tɛm de go. Wae yu nɔr de si ɛn yɛri fayn, at ɛn lɔng sik, ɛn wae pɔrsin nɔr kin ebul fɔ balans, na tin wae kin kam wae de sik kin kam leta.
Pan ɔl we i kin kil pɔsin we i sik bad bad wan, nɔ wɔri. Wit di advans we dɛn dɔn mek pan mɛdikal sayɛns insay di las sɔm ia, di rit fɔ liv fɔ dɛn sik pipul ya dɔn go ɔp bad bad wan. If dɛn gɛt di rayt tritmɛnt ɛn advays, bɔku pipul dɛn kin liv fayn fayn wan wit dis sik.
Mɛsej we dɛn kin kɛr go na os
- Rilaps Polychondritis (RP) na wan sik we nɔ kin apin so ɔltɛm we kin atak di bɔdi in katilej.
- Di men sayn dɛm na we yu kin fil pen wantɛm wantɛm, yu kin rɛd , ɛn yu kin swel na yu yes, yu nos, ɔ yu jɔyn dɛm.
- Dɛn sayn ya kin stɔp afta sɔm tɛm ɛn afta dat dɛn kin apia bak (we kin kam bak).
- Nɔr patikyula tɛst nɔr de fɔ no dis, ɛn dɛn kin no bɔt dis sik bay sɔm sayn dɛm.
- Pan ɔl we dɛn nɔ go ebul fɔ mɛn di sik ɔltogɛda, if dɛn trit am fayn, dɛn go ebul fɔ kɔntrol di sayn dɛm ɛn liv nɔmal layf.
- If yu gɛt sayn dɛn lɛk dis, i rili impɔtant fɔ go to dɔktɔ wantɛm wantɛm ɛn aks fɔ advays .
Rilaps Polichondritis, Kartilaj Sik, Jɔyn Pen, Iya pen, Nose pen, Ɔtoimyun, Imyun Sistɛm
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