I thluaka gland te tak te cancer a awm tih i hre tawh em? (Pineoblastoma) Hemi chungchang hi han sawi ila!

Lu na, i mit tihchet harsa, a nih loh leh i kal laiin i dinhmun nghet lo i tawng tawh em? I fain heng symptoms a neih hi i hmu tawh mai thei. A châng chuan ngaihthah mah ila, a tlem berah chuan heng thilte hi natna khirh tak chhinchhiahna a ni thei. Vawiin hian thluak cancer chi khat hmuh tur awm lo tak, fimkhur a pawimawh em em chungchang kan sawi dawn a ni. Hei hi `(Pineoblastoma)` an ti a.

Hei hi eng nge ni `(Pineoblastoma)`? A awlsam zawngin...

A awlsam zawngin `(Pineoblastoma)` hi kan thluaka `(pineal gland)`-a lo awm, cancer (`(malignant)` kan ti) tumor a ni. Hetiang cancer chi hi a thang chak hle a , a chhehvel tissue leh thluak vel tuiah a darh thei a ni. Hei hi dinhmun na tak a ni.

Minute khat tal nghak rawh, he pineal gland hi eng nge ni?

Awle, he `(Pineal Gland)` chungchang hi tlem han zir hmasa ila. Hei hi gland te tak te, cone ang maia lian, cashew nut ang chi a ni. Kan thluak lai takah a awm a. He gland hian hormone `(Melatonin)` tih a tichhuak thin. `(Melatonin)` tih hi i hre tawh ngei ang. Hei hian kan taksa nitin hnathawh dan, chu chu `(circadian rhythm)` thunun theitu a ni. A awlsam zawngin sawi ila, hei hi kan taksa natural clock ang mai a ni a, chu chuan chhun lama harh reng tur leh zan lama muhil turin min pui thin.

`(Pineoblastoma)` hi eng cancer chi nge ni?

He `(Pineoblastoma)` hi thluaka natna hrik lian chak tak a ni . Doctor-te pawhin `(grade 4 intracranial brain tumor)` an ti mai thei bawk. Tin, hei hi `(malignant tumor)` a ni a, chu chu cancer natna a ni tihna a ni. Chumi awmzia chu kan taksa tan a chhiat phah a, a darh thei tihna a ni.

He natna hi ``Pineoblastoma'' an tih hi engtiang chiahin nge a awm?

Pineoblastoma hi a takah chuan natna hmuh tur awm lo tak a ni. United States-ah chuan thluaka tumor 0.2% aia tlem lo chu pineal gland tumor anga hmuhchhuah a ni. Hetiang cancer chi hi naupang tê tê emaw, kum 20 hnuai lam emaw-ah hmuh a ni ber a , amaherawhchu, kum eng pawhah a lo awm thei tih hriat reng a pawimawh.

He natna `(Pineoblastoma)` hi eng chhinchhiahna nge ni?

Okay, tunah chuan he `(Pineoblastoma)` hi a lo chhuah hian eng ang symptoms nge kan hmuh tih hi han en ila.

• Lu na nasa tak i nei thei . Hei hi lu na pangngai mai a ni lo va, a na deuh deuh a ni.
• Chau tih hriat reng reng (`( Fatigue )`) . I chau lutuk a, engmah tih theih loh khawpin i inhria mai thei.
• I mit tihchet harsat . Hmun khata en reng pawh a harsa mai thei.
• Balance leh coordination lama harsatna awmKal laiin i balance i vawng reng thei lo ang mai a ni a, thil chelh harsa i tih ang mai a ni.
• Nungchang inthlak danglamna . A hma aia thinrim zawk, buai zawk, emaw, ngawi renga awm ang chi thil.
• Nausea leh luak chhuak .

Heng symptoms te hi `(hydrocephalus)` an tih natna avanga lo awm a ni fo. Chu chu thluak vel `(cerebrospinal fluid)` (cerebrospinal fluid kan ti) a pressure a sang chho tihna a ni. He cancer hi `(cerebrospinal fluid)` kaltlangin thluak hmun dang leh central nervous system (CNS) ah a darh thei a ni. Mahse, `(pineoblastoma)` cancer hi `(CNS)` piah lamah a darh tam lo hle.

Naupang tê tê, lu na chungchânga phunnawi reng, a hma anga a khelh tam loh, tlem a thinrim lutuk ang maia lang chu i nei ang tih han ngaihtuah teh. Nu leh pate chuan hei hi thil pangngaiah an ngai mai thei. Mahse heng symptoms te hi a awm reng chuan doctor pan a pawimawh hle.

He `(Pineoblastoma)` hi eng nge a chhan?

Chutianga kan tih chhan ber chu kan thluaka pineal gland-a cell chi khat ``pinealocyte cells'' an tih chu thunun theih loh leh a tam lutuk vang a ni Research atanga a lan dan chuan heng cell te hi kan genes (``genetic mutation'') a inthlak vangin hna pangngai lo takin an thawk tan thei a ni. Heng genetic mutations hi chi hnih a awm a: 1. Nu leh pa atanga rochun (``germline mutation'') : Hei hi naupai laiin a thleng a, chu chu nu leh pa sperm an inzawm khawm hian a ni. 2. Naupai hnua random-a lo awm (``sporadic mutation'') : Hetiang a nih chuan chhungkaw zingah hian tumahin he genetic mutation hi an nei lo mai thei.

Tute nge `(Pineoblastoma)` vei theihna chance sang zawk?

Mi thenkhat chuan he ``Pineoblastoma'' hi an vei theihna chance a sang deuh hlek a ni.

• Mit retina-a cancer chi khat, retinoblastoma i neih chuan pineoblastoma vei theihna a sang hle.
• Tin, gene `(RB1)` leh `(DICER1)`-a mutations thenkhat nei te pawhin he cancer hi an vei tam zawk bawk . Sawi tawh ang khan he genetic mutation hi nu leh pa atanga rochun a ni thei a, a nih loh leh random takin a thleng thei bawk.

Chhungkaw din i tum a nih chuan heng risk factors te hi i neih leh neih loh hriat nan doctor nen genetic testing chungchang sawipui a tha ang.

Engtin nge Pineoblastoma hi hmuhchhuah a nih?

Doctor chuan he natna (Pineoblastoma) hi a enfiah che a, test chi hrang hrang a ti a.

• Taksa enfiahna : A hmasain doctor chuan i natna lan chhuah dan te, i chhungte zingah hetiang dinhmun hi an nei tawh em tih te a zawt ang che a, i mit che dan pawh a enfiah ang.
• Test bik neih tur : 1 .
• Thluak scan (Magnetic Resonance Imaging - MRI ) hmanga tih a ni.
• `(Computed Tomography - CT)` hmanga enfiah a ni.
• `(Positron Emission Tomography - PET)` scan a ni mai thei.
• Biopsy chu tumor atanga tissue te tak te lakchhuah a, enfiah a ni. Hei hian cancer a nih leh nih loh leh eng chi nge a nih tih a hril a ni.
• Thisen test leh/ emaw cerebrospinal fluid (thluak vel tui) te hi tumor chhinchhiahna awm leh awm loh enfiah nan an ti thin.

`(Pineoblastoma)` hi a dam kim thei em?

Hei hi mi tam takin zawhna an neih chu a ni. Dik tak chuan tun dinhmunah hian `(Pineoblastoma)` hi damdawi a la awm lo . Mahse, lungngai suh, enkawlna kawng hrang hrang a awm. Tumor a la darh lo a nih chuan doctor-in operation hmangin a la chhuak thei a ni. Mahse, `(Pineoblastoma)` hi cancer chi khat enkawl harsa tak a ni. Chuvangin he cancer atanga harsatna awm thei hi a sang hle. Hun kal zelah symptoms a zual thei a, dam rei zawng pawh a tawi thei bawk. Tin, cancer hi enkawl hnuah a lo let leh theihna a awm bawk.

`(Pineoblastoma)` hi eng enkawlna nge ni?

`(Pineoblastoma)` enkawlna atan a hnuaia mi hi tih theih a ni:

• Surgery : Surgery hi tumor thenkhat emaw, a zawng zawng emaw lak chhuah a ni. I surgeon chuan surgery hian eng nge a tih theih tih leh a hlauhawmnate chu a hrilhfiah ang che.
• Hydrocephalus surgery : Thluak chhehvela cerebrospinal fluid awm zat tihtlem nan shunt (tube te tak te) dah theih a ni. Hei hian tui tam lutuk chu a paih chhuak a, pressure a ti tlem bawk.
• Radiation therapy : Hei hi operation hnua enkawl dan tlangpui a ni. Radiation therapy hian tumor a ti tlem thei a, cancer cell a tihlum thei bawk.
• Chemotherapy : Radiation therapy leh surgery bakah enkawlna pek thin a ni. Chemotherapy hian operation hmain tumor chu a ti tlem thei a, operation hnua cancer cell la awm zawng zawng chu a that thei bawk.
• High-dose chemotherapy leh autologous stem cell transplant : Hetah hian high-dose chemotherapy hmain nangmah ngeiin stem cells te chu lakkhawm a ni. Tichuan, chemotherapy hnuah chuan chu stem cells te chu i taksaah an infuse leh ta a ni.

Damdawi thar leh enkawlna thar a awm chhoh zel chuan ``clinical trial-ah pawh tel theihna hun i nei thei bawk.`` Hei hian damdawi thar ``targeted therapy`` emaw ``immunotherapy.`` emaw test te pawh a huam thei

Heng enkawlnaah hian tute nge inrawlh?

Pineoblastoma i neih chuan i medical team-ah hian:

• A rilru lam doctor (neurologist) pakhat chuan .
• Oncologist (cancer chungchanga mithiam) .
• Radiation hmanga oncologist a ni
• Neurosurgeon (`(Neurosurgeon)`) te chuan an rilru a buai em em a.

Enkawlna hian side effect a nei em?

Ni e, enkawlna thenkhat, a bik takin radiation therapy hian side effect a nei thei a ni. Hengte hian i endocrine function a nghawng thei a ni. Chumi awmzia chu:

• Hmasawn (`(Thinlung)`) .
• Energy level (`(Energy level)`) a ni a, a hlawhtlinna chu a hlawhtlinna a ni.
• Nau neih theihna (`(Nau neih theihna)`) .

Enkawl i tan hmain i doctor nen a side effect awm thei chungchang sawipui rawh . Anni hian an lo enkawl reng ang che a, side effect lo awm thei apiang an enkawl bawk ang.

`(Pineoblastoma)` hi i dam thei ang em?

Ni e, mi thenkhat chu Pineoblastoma atanga damchhuak an ni. Pineoblastoma vei kum nga chhunga dam rei zawng chu 60% atanga 69.5% a ni . Chumi awmzia chu he natna vei zinga 60% atanga 70% inkar vel chu kum nga hnuah pawh an la dam tawh tihna a ni. Pineoblastoma hian i dam rei zawng a ti tawi thei a, mahse, hriselna tha leh dam rei theihna tur enkawlna a awm.

Pineoblastoma hi eng prognosis nge ni?

`(Pineoblastoma)` tih a hriat hnuah i doctor chuan a hmalam hun tur a hrilh ang che. Sawi tawh ang khan `(Pineoblastoma)` tihdamna tur a awm lova, enkawl dan erawh a awm. Mi pakhat dam rei zawng chu thil tam takah a innghat a, chu chu i hriselna pum pui, enkawlna i dawn dan, leh tumor a lo lian chak dan te hi a ni . `(Pineoblastoma)` tih hriatchhuah hnuah doctor pan fo a ngai dawn a ni. Hei hi a chhan chu side effect i neih leh neih loh an enfiah ang che a, a tul ang ang an ti ang.

Pineoblastoma hi ven theih a ni em?

Vanduaithlak takin tunah hian Pineoblastoma ven dan tur hriat a la awm lo .

Engtikah nge Doctor ka hmuh ang?

Nangmah emaw i fa emaw tan `(Pineoblastoma)` chhinchhiahna, chung zingah chuan:

• Lu na
• Nungchang inthlak danglamna
• Mit tihchet harsat

A hnuaia mi hi i neih chuan doctor pan nghal rawh . `(Pineoblastoma)` i vei tih hmuhchhuah a nih a, enkawl mek i nih chuan side effect i neih chuan doctor hnenah hrilh rawh. I fa chu a la naupang a nih chuan a enkawl dan chuan a thanlenna a nghawng thei a ni. I fa chu a kum nena inmil rate-a a thanlen theih nan hun rei tak a hmang nia i hriat chuan, chu chu i doctor nen pawh sawipui rawh.

Doctor hnenah eng zawhna nge ka zawh ang?

Doctor i hmuh hian hetiang zawhna hi zawh a tha ang:

• Eng ang enkawlna nge i rawt?
• Cancer hi a darh tawh em?
• Surgery ka mamawh em?
• Enkawlna hian eng side effect nge a neih?
• Ka dam rei zawng emaw, ka prognosis emaw chu eng nge ni?

"Cancer i nei" tih thu i hriat hian mangang, lungngai leh hlauhna i neih hi thil pangngai a ni. Vawikhatmah, eng nge i tih leh tur, eng nge i beisei ang, eng nge i beisei ang tih zawhna tam tak i nei ta a ni. Lungngai suh . I doctor leh medical team te chuan he diagnosis hi an hmachhawn ang che a, i tana tha ber tur treatment an thlang ang che. Hetih lai hian chhungte leh ṭhiante ṭanpuitu nen in hual vel ngei ang che. Pineoblastoma enkawlna thar zirchianna chu a la awm zel a, chuvangin beiseina nei reng ang che.

Take-Home Thuchah a ni

• Pineoblastoma hi cancer hmuh tur awm lo mahse a thang chak hle a, thluak pineal gland-ah a lo awm thin.
• Lu na, mit lama harsatna, balance hloh, nungchang inthlak danglam ang chi symptoms a awm thei. Chungte chu hydrocephalus (thluaka tui awmkhawm) vang a ni thei .
• A chhan chu genetic a ni fo. `(Retinoblastoma)` vei te leh `(RB1)` leh `(DICER1)` gene mutation nei te hi an hlauhawm zawk.
• MRI, CT scan, biopsy ang chi test te hmangin a natna hriat theih a ni.
• Damdawi famkim awm lo mah se, surgery, radiation therapy, leh chemotherapy ang chi enkawlna a awm .
• Symptom i neih chuan doctor rawn la nghal rawh . Zawhna zawh hreh suh.
• Hei hi dinhmun harsa tak ni mah se, beiseina leh chakna nen enkawlna hmachhawn rawh . Nangmah chauh i ni lo.

He thu hi in tan a tangkai ngei ka beisei. Symptoms i rinhlelh chuan Doctor pan mai tur a ni.

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