He maha ngā wā ka pāngia koe e te mamae rerekē e tīmata ana i muri o tōu mahunga, ka heke ki raro i tōu kaki? Ka piki ake tēnei mamae ina maremare koe, ina tihe, ina hiki rānei i tētahi mea taumaha? Ka pōuri koe i ētahi wā, ka ngaro tō taurite i a koe e hikoi ana, ka pāngia rānei ō ringaringa e te māuiui? Ahakoa ki tō whakaaro he ānini noa ēnei, tera pea he take huna kei muri i a rātou. Ko tētahi tēnei o ngā āhuatanga onge engari he mea nui kia mōhio koe.
He aha te Chiari Malformation?
He ingoa uaua tēnei, engari kia māmā noa iho. Kei roto i tō tātou angaanga te tiakitanga o tō tātou roro. Kei raro i tēnei angaanga, te wāhi tonu e tūtaki ai te kaki ki te angaanga, he kōhao kei reira e tomo ai tō tātou tuaiwi. Ka kiia tēnei ko te "foramen magnum" i roto i ngā kupu hauora.
I roto i tētahi āhuatanga e kiia nei ko te Chiari malformation, ka panaia, ka pēhia rānei te wāhanga o raro o tō tātou roro, inā koa te wāhanga e kiia nei ko te cerebellum , mā roto i te foramen magnum, ki roto i te wāhi kei reira te taurakira. Whakaarohia he rite ki te ngana ki te whakauru i tētahi mea nui ake i te mea ka taea te whakauru ki tētahi wāhi iti ake.
Ko te roro iti te mea e whakahaere ana i ā tātou nekehanga, i te taurite i te hikoi, i te whakahaere i te tū, me te aro hoki ki tētahi wāhi. Nō reira, ina pāngia tēnei wāhanga, ka ara ake pea ngā raruraru e pā ana.
Ka whakararuraru tēnei pēhanga i te rere o te wai cerebrospinal (CSF), e rere ana i te roro me te taurakira. He rite tēnei ki te paipa wai kua āraia. Ka pēhia ngā wāhanga o te roro me te taurakira, ka puta ai ngā tohu rerekē.
He aha tēnei e tupu nei? He aha ngā take?
I te nuinga o te wā, he mate whānau te mate Chiari malformation. Ko te tikanga ka puta te mate nā te hapa o te whanaketanga o te roro me te angaanga i te wā e tipu ana te pēpi i roto i te kōpū. Nā te mea he iti ake te wāhi o ētahi tāngata i te mea noa i roto i te angaanga e kiia nei ko te posterior fossa, koinei te wāhi kei reira te roro. Engari kāore anō kia tino mārama ngā kairangahau he aha i puta ai tēnei.
I ētahi wā, he take ira te take o tēnei.
He onge noa iho te puta o tēnei āhuatanga i muri i te whānautanga, arā, i te pakeketanga . Tērā pea nā:
- He pukupuku roro.
- Ka taea e te whara o te upoko te puta he pēke kī tonu i te wai (cyst) he toto totoka rānei (hematoma) ki roto i te roro.
- He āhuatanga e kiia nei ko te "hydrocephalus", arā, ko te kohikohinga o te wai i roto i te roro.
- Ko ētahi atu mate e pā ana ki te taurakiraki pērā i te tethered cord syndrome.
He rerekē ngā momo o tēnei āhuatanga?
Āe, kua wehea tēnei mate ki ētahi momo matua i runga i tōna kaha me te whānuitanga o te pānga ki ngā wāhanga o te roro .
| Momo | He whakamārama māmā |
|---|---|
| Momo I | Koinei te momo tino noa, ā, he iti rawa te kino . Ko te wāhanga o raro o te roro iti anake ka panaia ki roto i te awa tuaiwi. Ka taea e ētahi tāngata te ora me te kore he tohu. He maha ngā wā ka kitea noa i te wā o te matawai MRI mō tētahi atu take. |
| Momo II | Ka kiia hoki tēnei ko te `(Arnold-Chiari malformation).` I konei, ka panaia te cerebellum me te take o te roro ki raro. He maha ngā wā ka kitea ngātahitia tēnei me te `(spina bifida)`. |
| Momo III | He momo tino onge tēnei, ā, he kino hoki . Ka puta mai ētahi wāhanga o te roro i te angaanga ki muri o te kaki. Ka tūpono pea tēnei ki te ora. |
| Momo IV | He tino onge hoki tēnei. I tēnei wā, kāore anō kia tino whanake te roro iti. Kāore rānei, kua ngaro ngā wāhanga. |
He aha ngā tohu tino kitea o te momo I?
Ehara i te mea ka pāngia te katoa e te Momo I e ngā tohu. Heoi, ki te puta ngā tohu, ko ētahi o aua tohu ko:
- Te mamae o te upoko me te kaki:Koinei te tohu matua, te tohu tino kitea. Ka piki ake te mamae i te wā e maremare ana, e tihe ana, e hiki ana rānei i ngā mea taumaha.
- Pōuriuri me ngā raruraru taurite : Te pōuriuri, me te mea ka hemo koe ina hikoi koe.
- Te ngoikore o te uaua.
- Te ngenge, ētahi atu kare ā-roto rerekē rānei o ngā ringa me ngā waewae .
- Ngā raruraru tirohanga: te tirohanga pōuri, te tirohanga takirua.
- Ngā uauatanga o te horomi.
- Te tangi o ngā taringa (tinnitus) me te ngoikore o te whakarongo.
- Ngā raruraru moe: Te kore moe, te mutu rānei o te manawa mō ngā wā poto i te wā e moe ana (sleep apnea).
- Whakapairuaki me te ruaki.
Ko te mea nui, he rerekē rawa ēnei tohu i waenga i te tangata me te tangata. Kāore hoki i te ōrite tonu. I ētahi rā ka kino ake, i ētahi rā ka pai ake.
Me pēhea e kitea ai tēnei e koe, e Tākuta?
Kia oti i a koe te whakaahua i ō tohumate, ka tirotirohia koe e tō tākuta me te āta tirotiro, inā koa he whakamātautau io . Mā tēnei ka tirohia tō taurite, tō kaha uaua, ō urupare, me ō kare ā-roto.
Kātahi, ki te mea he ruarua mō tēnei āhuatanga, ka tukuna koe e rātou mō ētahi whakamātautau hei whakaū.
- Matawai MRI (Atahanga Āhua-Mate): Koinei te whakamātautau pai rawa atu, te whakamātautau nui rawa atu hoki hei tautuhi i te mate Chiari. Ka taea e te MRI te kite mārama i te hanganga o te roro me te taurakira. Ka taea te kite tika i te nui o te pēhanga o te roro, me te mea kua āraihia te rere o te wai 'CSF'.
- MRI Kiriata: He momo MRI motuhake tēnei. He rite ki te ataata. Ka taea e koe te kite i te nekenekehanga o te CSF huri noa i te roro i te wā tūturu, arā, i te ora tonu.
- Matawai CT (Tomography Rorohiko): Ka taea e tēnei te tirotiro i ngā āhuatanga rerekē o ngā wheua o te angaanga.
He aha ngā maimoatanga?
Ko te maimoatanga e whakawhirinaki ana ki te momo e pā ana ki a koe, te kaha o ō tohumate, me tōna pānga ki tō oranga o ia rā.
1. Kāore he Tohu: Mena kei a koe te Momo I, ā, kāore he tohu, kāore rānei e pāngia ana koe, kāore pea koe e hiahia ki tētahi maimoatanga . Ka kī atu tō tākuta kia haere mai koe ki te tirotiro i tō āhua i ia wā.
2. Rongoā:Mena kei a koe ngā tohu pēnei i te mamae o te upoko me te mamae o te kaki, ka tohua pea e tō tākuta ngā rongoā whakamamae mamae (NSAID) me ngā rongoā whakangāwari uaua hei whakahaere i aua tohu.
3. Pokanga: Mena he nui ngā tohumate e kore e taea te whakahaere mā te rongoā, ki te kitea rānei he kino o te roro, te taurakira rānei i roto i ngā matawai, ka tūtohu pea tō tākuta kia pokangahia.
Ko ngā whāinga matua e rua o te pokanga ko:
- Te whakaiti i te pēhanga ki runga i te roro me te taurakira.
- Te whakaora i te rere o te wai CSF.
Ko te pokanga tino noa ko te Posterior Fossa Decompression Surgery . I roto i tēnei, ka tangohia e te taote pokanga tētahi wahi iti o te wheua mai i te pūtake o te angaanga, ki te wāhi e tūtaki ai ki te kaki. Mā tēnei ka nui ake te wāhi mō te roro me te taurakira. Ka whakatuwheratia hoki te kiriuhi e karapoti ana i te roro (dura) ā, ka tuia he wāhi ki tōna wāhi. Mā tēnei ka taea te rere noa o te wai cerebrospinal (CSF).
Mena he hydrocephalus anō tōu (he putunga wai kei runga i te roro), me tāuta he shunt hei tango i te wai tāpiri.
Karere Tangohia ki te Kāinga
- Ko te Chiari Malformation he hapa hanganga e puta mai ana i te pana o te wāhanga o raro o te roro ki roto i te awa tuaiwi.
- I te Momo I, te momo tino noa, kāore he tohu o te nuinga o te tangata. Ahakoa kei te kitea ngā tohu, ko te tohu matua he ānini i te tuara o te māhunga me te kaki.
- Ko te whakamātautau matua e whakamahia ana hei tautuhi i tēnei mate ko te matawai MRI .
- Ki te kore he tohu, kāore he maimoatanga e hiahiatia ana. Ki te puta he tohu, ka rongoatia mā te rongoā, mā te pokanga rānei.
- Mena he ruarua, he tohu rānei āu, ko te mea pai ko te toro atu ki tō tākuta mō ētahi tohutohu . He mea tino nui kia whai i ngā tohutohu hauora, kaua e rapu mōhiohio i runga i te ipurangi.
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