Kei te ngoikore haere ō peka me ō waewae? Kei te ngoikore rānei? Tērā pea he CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)?

Kei te ahua ngoikore haere ō ringaringa me ō waewae i ētahi wā? Kei te mākūkū noa iho rānei koe, kei te ahua rerekē rānei tō wairua, kāore he ora? Mena kua neke atu i te rua marama te piki haere o tēnei mate, kaua e whakakore noa i te mea he mea ngāwari noa iho. I tēnei rā kei te kōrero tātou mō tētahi mate ka puta ai ēnei tohu, he mea onge noa iho, engari he mea tika kia mōhiotia. Ko te CIDP tēnā.

He aha te CIDP?

Kaua e wehi i te ingoa roa CIDP. Kia māmā noa iho. Ko te CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) he mate roa e whakaeke hē ai te pūnaha parepare o te tinana, arā, te pūnaha ārai mate, i ō tātou ake io.

Whakaarohia ō tātou io he waea hiko. Pērā i ngā waea hiko he ārai kei te taha, he hipoki tiaki anō hoki ō tātou io e kiia nei ko te myelin . Ko tēnei pūkahu myelin te mea e āhei ai ngā tohu mai i te roro kia tere me te tika te haere ki ngā peka. I roto i te CIDP, ka whakaekea e tō tātou ake pūnaha ārai mate tēnei pūkahu myelin. Me te mea kua tangohia te pūkahu i runga i te waea hiko, ka whakararuraruhia te tuku tohu. Ka hua ake ngā tohu pēnei i te ngoikore me te korekore o ngā peka.

He aha ngā tohu o te CIDP?

Kāore ēnei tohu e rite mō te katoa. Engari he iti noa ngā tohu matua ka kitea e koe. Kia maumahara, ki te whakapae koe kei a koe te CIDP, me noho ēnei tohu mō te iti rawa i te 8 wiki .

Ko te tohu tuatahi, ko te tohu tino kitea, ko te ngoikore haere o te uaua e roa ana mō te neke atu i te rua marama . I te nuinga o te wā ka pā tēnei ki ngā taha e rua o te tinana.

He aha te take e puta ai te CIDP? He mate hopuhopu rānei?

Kāore anō kia mōhiotia te tino take o te CIDP. Engari e mōhio ana tātou he raruraru kei roto i te pūnaha ārai mate te take. Kāore e horapa . Kāore e taea te hopu mai i tētahi atu, kāore hoki e taea te hora atu ki tētahi atu.

Kāore anō kia kitea he hononga ira, he mate rānei i puta mai i tētahi mate. Ahakoa ka taea e te tangata te pāngia, he mea tino noa i waenga i te hunga i waenga i te 50 me te 60 tau te pakeke, me ngā tāne hoki .

Me pēhea te tātaritanga a te tākuta i te CIDP?

Kāore he whakamātautau kotahi hei whakaatu tika mēnā kei a koe te CIDP. Nō reira, ka pātai tuatahi tō tākuta ki a koe mō ō tohumate. Nōnahea i tīmata ai, he aha te āhua, ā, mēnā kei te kino haere? Kātahi ka tirotirohia e ia te tinana.

Hei tāpiritanga, he maha ngā whakamātautau ka taea te whakahaere hei whakaū i tēnei āhua me te whakakore i ētahi atu āhua hauora.

• Ngā whakamātautau toto me te mimi: Tirohia mēnā he take kē atu.
• Te Rangahau Arataki Io me te EMG:Tirohia mēnā kua pakaru te pūkahu myelin o ngā io, me te pēhea e tukuna ai ngā tohu.
• Werohanga Lumbar: Hei tirotiro i ngā taumata teitei o ngā pūmua e pā ana ki te CIDP i roto i te wai o te tuaiwi.
• Ngā whakamātautau MRI: Tirohia mēnā he pupuhi o ngā pakiaka io.
• Kohikohi io: I ētahi wā ka tangohia he wahi iti o te io ka tirotirohia.

He aha ngā maimoatanga mō te CIDP?

He maha ngā tāngata e pāngia ana e te CIDP me rongoā. Ko te wawe o te tīmatanga o te rongoā, ka nui ake te tūponotanga kia ora katoa. Ko te whāinga matua o te rongoā he aukati i te pūnaha ārai mate kei kino i ngā io.

Ngā tikanga maimoatanga matua

• Corticosteroids: He rongoā momo steroid ēnei e whakaiti ana i te mumura i roto i te tinana, e whakahaere ana hoki i te mahi a te pūnaha ārai mate.
• Ārai Mate: Ka whakararuraru ēnei rongoā i ngā tukanga o te pūnaha ārai mate, ā, ka aukati i tana whakaekenga i te myelin.
• Te Immunoglobulin Ā-uaua (IVIG): Ko te tikanga o tēnei ko te hoatu i tētahi horopeta kukū o ngā paturopi i tangohia mai i ngā tāngata hauora mā te uaua (IV). Ka āwhina tēnei ki te whakahaere i te urupare ārai mate rerekē o te tinana.
• Te Whakawhitinga Plasma (PE): Kei roto i tēnei ko te tango i te wāhanga plasma o tō toto, te tātari hei tango i ngā paturopi kino, kātahi ka whakahokia ki tō tinana.

Te rongoā tāpiri

Haunga ngā maimoatanga matua, me whai atu pea koe i ētahi atu maimoatanga hei whakahaere i tō oranga o ia rā.

• Whakaora Tinana: He mea tino nui tēnei hei whakapakari anō i te kaha o ngā uaua me te whakapai ake i te āheinga hikoi.
• Whakaora Mahi: Ka tuku tohutohu mō te mahi i ngā mahi o ia rā (pēnei i te tunu kai, te whakakakahu) kia māmā ake te mahi me te mate.
• Korikori tinana me te kai: Mā te korikori tinana taurite ka āwhina i te whakapakari i te kaha me te whakapai ake i te taurite. Mā te kai taurite, kai totika ka āwhina i te ārai i te pikinga taumaha koretake me te taumahatanga uaua. Kōrero ki tō tākuta mō tēnei.

Te noho tahi me te CIDP me te oranga hinengaro

He uaua te noho me tētahi mate roa pēnei i te CIDP. He tīma hauora kei reira hei āwhina i a koe. Kei roto i tēnei ko tētahi tākuta roro .Tae atu ki ngā tāngata pēnei i te kaiwhakaora tinana.

Ka taea e tēnei mate te whakararu i te pouri, te manukanuka, me te pōuri. He mea tino noa. Ki te pēnei tō whakaaro, kōrero ki tō whānau me ō hoa mō tēnei mea. Kaua e mangere ki te rapu āwhina mai i tētahi tohunga hauora hinengaro mēnā e hiahiatia ana. He tino āwhina tēnei i roto i tō haerenga whakaora.