Kei te pāngia tonutia koe e te mākūkū me te wiri o tō tinana? Me kōrero tātou mō te CIDP (CIDP)

I ētahi wā ka pāngia tātou e te ngaungau i te ringa kotahi, i te waewae rānei, ā, ka memeha haere i muri i tētahi wā, tika? Engari whakaarohia, ki te ngoikore haere ō ringaringa me ō waewae, ka tīmata te ngoikore, ā, ka piki haere te āhua i roto i ngā marama e rua neke atu? Koinei tētahi o ngā tohu matua o tētahi mate pūnaha io onge e kiia nei ko te CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) . Ahakoa he ahua uaua te ingoa, kia mārama noa tātou. Ahakoa he mate onge tēnei, he mea tino nui kia mōhio te katoa ki tēnei.

He aha te CIDP?

He mate roa te CIDP e puta ana ina whakaekea hētia e tō tātou pūnaha ārai mate (te pūnaha e tiaki ana i a tātou i te mate ) ō tātou ake io . Ina koa, ka pakaru te hipoki tiaki e karapoti ana i ngā io (e kiia nei ko te myelin ). Whakaarohia tēnei hipoki hei hipoki kirihou e karapoti ana i te waea hiko . Ina pakaru tēnei hipoki, kāore ngā io e tuku karere ki te roro me ētahi atu wāhanga o te tinana. Koinei te take e puta ai ngā tohu pēnei i te ngoikore me te korekore o ngā peka.

Ahakoa ka taea te pā mai tēnei mate i ngā tau katoa, he nui ake te kitea i waenga i ngā pakeke me ngā tāne.

He aha te rerekētanga i waenga i te CIDP me te Guillain-Barre syndrome (GBS)?

Kua rongo pea koe i te mate Guillain-Barre ( GBS ). Ka pāngia ngā io e ēnei mate e rua, ā, he rite tonu ngā tohu. Engari he mārama ngā rerekētanga i waenganui i ngā mate e rua.

• Te Mate Guillain-Barre (GBS): Ka tīmata ohorere tēnei i muri i ētahi rā i te mate, pērā i te mamae o te puku. Engari mā te rongoā, he nui ake te tūponotanga ka tere te ora.
• CIDP: He mate roa tēnei ka puta i roto i ngā marama, kāore he hononga ki tētahi mate. Kāore e maha ngā wā ka taea e te GBS te neke ki te CIDP me te kore he maimoatanga.

He aha ngā tohu o te CIDP?

Kāore ngā tohu o te CIDP e ōrite mō te katoa. Ka rerekē pea i runga i te momo CIDP kei a koe. I te nuinga o te wā, ka pāngia koe e te ngenge nui, te ngoikore, me te mamae. Ka taea e tēnei te whakaroa i ō urupare ā-tinana, me te ngoikore o ō ringa me ō waewae.

Ko te tohu matua me te tohu tuatahi e kitea ana ko te piki haere mārire o te papatipu uaua i roto i te wā e rua marama, neke atu rānei.Te ngoikore o te uaua . Ka pāngia ngā taha e rua o te tinana e tēnei ngoikore. Ina koa:

• Ngā hope me ngā huha
• Ngā pakihiwi me ngā ringa o runga
• Ringaringa
• Waewae

Haunga tēnei tohu matua, ka kitea pea ētahi atu tohu:

• Te ngoikore o te uaua: Ka mimiti ngā uaua, ka iti haere.
• Paresthesia: He ahua ngoikore, he ngau rānei i ngā pito o ngā maihao.
• Te uaua ki te hikoi: Te ngaronga o te taurite me te kore e taea te hikoi tika.
• Mamae neuropathic: He mamae nui e puta mai ana i ngā raruraru o te pūnaha io.
• Ngā urupare ngoikore (Ngā raruraru uaua hōhonu): Ina pā te tākuta ki te turi me te hama iti, ka ngaro te urupare, me te mea kei te totorohia te waewae.

He tino onge pea te uaua ki te horomi (dysphagia) me te tirohanga takirua rangitahi (diplopia).

He rerekē ngā momo CIDP?

Āe, ka taea te wehewehe i te CIDP ki ētahi momo matua i runga i ngā tohu. Mā tēnei ripanga mōhiohio koe e mārama ai.

Waihoki, ka whakarōpūhia e ngā tākuta te mate kia toru ngā wāhanga i runga i tana whanonga:

• Haere whakamua: Ka kino haere ngā tohu i te roanga o te wā.
• Auautanga: Ka puta mai ngā tohu, ka ngaro, ka puta anō.
• Monophasic: Kotahi noa te wā ka pā mai ai te mate i te oranga katoa. Ka memeha haere i muri i te 1-3 tau.

He aha te take o te CIDP? He mate hopuhopu?

Kāore anō kia mōhiotia te tino pūtake o te CIDP, engari e mōhio ana tātou nā te mumura o ngā io me ngā pakiaka io i puta ai. E ai ki te kōrero i mua ake nei, ka kino te pūkahu myelin e karapoti ana i ngā io.

Me pēhea te tautuhi i te mate?

Kāore he whakamātautau motuhake mō te CIDP. Nō reira, ka pātai tuatahi tō tākuta mō ō tohumate (nōnahea i tīmata ai, me pēhea ō kare ā-roto), kātahi ka whakahaere i tētahi whakamātautau tinana, ka tūtohu i ētahi whakamātautau hei kimi i te he o ō io, hei whakakore hoki i ētahi atu mate.

Kei roto pea i ēnei whakamātautau:

• Ngā whakamātautau toto me te mimi.
• Te rangahau i te kawe io me te Electromyogram (EMG): Ka tirohia e ēnei ngā pakaru o ngā io me te pukupuku myelin.
• Werohanga Lumbar: Ka tangohia he wai iti mai i te taurakira hei tirotiro i ngā taumata pūmua teitei, he mea noa i roto i te CIDP.
• Kohikohi io: Ka tangohia he wahi iti o te kiko mai i te io, ka tirotirohia i raro i te karu hiko.
• Matawai MRI: Ka taea te tirotiro mō te pupuhi o ngā pakiaka io.

He aha ngā kōwhiringa maimoatanga?

He tokomaha te hunga e hiahia ana ki te maimoatanga. Ko te wawe o te tīmatanga o te maimoatanga, ko te nui ake o te tūponotanga ka ora katoa rātou.

Ngā momo rongoā

• Corticosteroids: He rongoā momo steroid ēnei e whakaiti ana i te mumura me te whakahaere i te mahi a te pūnaha ārai mate.
• Ārai Mate: Ka aukati ēnei rongoā i te pūnaha ārai mate mai i te whakaeke i te myelin.
• Ngā rongoā koiora: Ka whakamahia hoki ngā rongoā pēnei i a Vyvgart, he momo rongoā hou kua whakaaetia i ēnei wā tata nei, mō tēnei kaupapa.

Ngā maimoatanga motuhake

• Immunoglobulin intravenous (IVIG): Ka werohia he momo paturopi kukū i tangohia mai i te toto o te hunga hauora. Ka āwhina tēnei ki te whakahaere i te kore mahi a tō pūnaha ārai mate.
• Te whakawhitiwhiti toto (PE): Kei roto i tēnei ko te tango i ō toto, te tuku mā roto i tētahi mīhini motuhake, te tango i te toto kei roto ngā paturopi kino, kātahi ka werohia anō te toto ma ki roto i tō tinana.
• Te whakatō pūtau take: I roto i tēnei maimoatanga tino onge, ka whakatōkia ngā pūtau take hauora hei "tautuhi anō" i te pūnaha ārai mate.

Ētahi atu maimoatanga tautoko

• Whakaora tinana: He tino āwhina tēnei mō te whakahoki mai i te kaha kua ngaro, te hikoi, me te whakapai ake i te taurite.
• Whakaora mahi: Ka ako i a koe me pēhea te mahi i ngā mahi o ia rā me te ngāwari ake ahakoa tō āhua.
• Korikori tinana me te kai: Mā te korikori tinana taurite ka āwhina i a koe kia kaha tonu. Engari me mahi noa te korikori tinana i raro i te tirotiro a tō tākuta, a tō kaiwhakaora tinana rānei. Mā te kai taurite ka āwhina i te ārai i te pikinga taumaha koretake.

Te noho tahi me te CIDP me te tirohanga

Ina whiwhi koe i te tātaritanga CIDP, tera pea ka pōuri koe. He mea noa tēnā. He mea nui kia noho whakapā atu koe ki tō tākuta me te kōrero mō ō tohu me te maimoatanga.

He mea tino nui hoki te rapu āwhina ngaio hei whakahaere i te mamae me te kimi i te whakamarie hinengaro. Ko tō whānau, ko ō hoa, me tō tīma hauora he puna nui mōu i tēnei haerenga.

Mō te tirohanga whānui, kei tō tau, te momo mate, te tīmatanga wawe o te maimoatanga, me te urupare a tō tinana ki te maimoatanga.Ko te rongo pai, mā te maimoatanga, tata ki te 90% o te tangata ka ora. Tērā pea ka hoki mai ngā tohumate ki ētahi tāngata. Heoi, kāore te CIDP e whakapoto i te roanga o te oranga.

CIDP, neuropathy, ngoikore, ngoikore uaua, myelin, Guillain-Barre syndrome, immunotherapy, mate pūnaha ārai mate, CIDP sinhala