Tērā pea kua kōrerotia e tō tākuta he mate tōu e kiia nei ko te myopathy. He mea noa te puta ake o ngā pātai maha ki tō hinengaro ina rongo koe i tēnā. He aha rawa te myopathy? He mea hei wehi māu? He rongoā kei reira mōna? Me kōrero māmā noa iho, me mārama hoki.
He aha te myopathy?
Ko te myopathy he ingoa whānui e hoatu ana ki tētahi rōpū mate e pā ana ki ngā uaua anga o tō tātou tinana. Ka kino, ka ngoikore hoki ēnei mate i ngā muka uaua o ō tātou uaua. Ka kitea pea tēnei āhuatanga i te whānautanga mai, ka whanake rānei i muri mai i te ao.
Tērā pea kei te whakaaro koe he aha ngā uaua angaiwi. He tino māmā noa iho. Ko ngā uaua ēnei e piri ana ki tō tātou angaiwi, ā, ka taea e tātou te whakahaere me te neke i tā tātou e hiahia ana. Whakaarohia, ina hiki ake tō ringa, ina piko tō waewae, ina hikoi, ina kōrero... ka āwhina ēnei uaua angaiwi i ēnei mea katoa. Ko te nuinga o ngā uaua o tō tātou tinana nō tēnei momo. Nō reira, ina puta he myopathy, he uaua tonu te mahi i ēnei mahi o ia rā.
He aha ngā momo matua o ngā myopathy?
E rua ngā momo matua o te myopathies : te tuku iho me te whiwhi. Me titiro motuhake tātou ki ēnei momo.
| Momo myopathy | He whakamārama māmā |
|---|---|
| 1. Ngā Myopathies Tuku Iho Ngā momo i riro mai i ngā mātua mā te whakarerekētanga ira. | |
| Ngā Myopathies whānau | I te nuinga o te wā ka puta ēnei hei tohu i roto i te pēpi, i te tamaiti rānei. Tērā pea ka whakaroahia ngā pūkenga nekeneke pēnei i te ngokingoki me te hikoi. He maha ngā wā ka pāngia ngā uaua anga katoa o te tinana, ā, kāore te āhua e kino haere i roto i te wā. |
| Ngā Myopathies Mitochondrial | Nā ngā hapa o roto i ngā mitochondria, arā, ngā "pūngao" o ō tātou pūtau e whakaputa pūngao ana, ka puta mai tēnei. Haunga te ngoikore o te uaua, ka pā anō hoki ki te ngākau, te roro, me te pūnaha nakunaku. Hei tauira, ko te mate Kearns-Sayre , te MELAS , me te MERRF . |
| Ngā Matepukupuku Uaua | I ēnei āhuatanga, ka piki haere te ngoikore o te uaua i roto i te wā. Ko te take o tēnei āhuatanga ko te pakaru o te kiko uaua nā ngā hapa o ngā pūmua e tautoko ana i te kiko uaua. |
| Ngā Myopathies Pūmua | He āhuatanga tēnei e ngoikore ohorere ai te uaua i te wā e whakakorikori tinana ana, e pēhia ana rānei te uaua. Ka puta tēnei āhuatanga i ngā hapa o ngā ira e whakaputa ana i ētahi whākōkī. |
| 2. Ngā Myopathies i Whiwhihia Ngā momo ka puta ake i muri mai i te ao nā ngā take o waho. | |
| Myopathy Ārai Mate/Mumura | Ka puta mai i tētahi raruraru o tō tātou ake pūnaha ārai mate e whakaeke ana i ngā uaua. |
| Myopathy paitini | Tērā pea nā ētahi paitini (hei tauira, te nui rawa o te waipiro) me ētahi rongoā rānei. |
| Te Myopathy Endocrine | Ka puta mai ēnei i ngā raruraru o te pūnaha endocrine, e whakahaere ana i ngā homoni i roto i tō tātou tinana. Ka puta pea ēnei i ngā mate o te repe thyroid, i ngā repe adrenal rānei. |
| Myopathy pangia | Te ngoikore o te uaua nā te mate huaketo, kitakita, pirinoa, harore rānei. |
| Te Myopathy Mate Kino i te Wāhanga Tiaki Kaha | Ka puta pea tēnei i te wā e rongoatia ana i roto i te wāhanga tiaki nui (ICU). E whakaarohia ana nā te noho roa i te tūranga kotahi. Ko te nuinga o te wā ka pā ki ngā uaua e āwhina ana i te manawa. |
He aha ngā tohu noa o te myopathy?
Ko te tohu matua e kitea ana i ngā momo myopathy katoa ko te ngoikore o te uaua . Ka kitea tēnei i ngā ringa o runga, i ngā pakihiwi, me ngā huha. Hei tāpiri, ko ngā tohu pēnei i:
- Ngā mamae uaua me te pakari
- Ngā mamae o te uaua
- Pūngao iti
- Ka tere te ngenge ahakoa i muri i te mahi i ngā mahi iti
Nā te ngoikore o ngā uaua nei, ahakoa ngā mahi māmā o ia rā pēnei i te whakakakahu, te kaukau, te heru i ō makawe, te piki arawhata, me te ara ake i te moenga, ka uaua pea.
He tohu motuhake anō hoki ō ētahi momo myopathy. Hei tauira, i roto i ngā mate uaua, ka piki haere te ngoikore o te uaua . He maha ngā wā ka tīmata tēnei ngoikore i te mata, i ngā hope, me ngā pakihiwi.
Me pēhea te tautuhi i te myopathy?
Nā te mea he maha ngā mate e pā ana ki ngā io me ngā uaua o ō tātou tinana, e hiahiatia ana kia maha ngā whakamātautau hei tautuhi tika i te myopathy. Tērā pea ka tūtohu tō tākuta i tētahi, i ētahi rānei o ēnei whakamātautau.
| Ingoa o te whakamātautau | Hei whakarāpopototanga... |
|---|---|
| Whakamātautau Ira | Ka whakamahia e rātou he tauira toto, he tauira huware rānei hei tirotiro mēnā he hapa kei roto i ō ira. |
| Whakamātautau Ira Matū Koiora | Ka whakamātauria te toto, te mimi, te wai tuaiwi rānei hei rapu i ngā āhuatanga rerekē o te whākōkī. |
| Matawai CT (Tomography Rorohiko) | Ka tangohia he raupapa hihi-X hei hanga i tētahi whakaahua 3D katoa o ngā wheua, ngā uaua toto, me ngā kiko ngohengohe. |
| Wero i te hope | Ka werohia he ngira iti ki waenganui i ngā tuaiwi e rua i te tuara o raro, ā, ka tangohia te wai cerebrospinal (CSF) ka whakamatautauria. |
| Matawai MRI (Whakaahua Āhua Aukume) | Ka whakamahia he papa aukume kaha me ngā ngaru reo irirangi hei tiki whakaahua taipitopito o ngā whekau, ngā kiko, me te angaanga. |
| Te Kohikohi io me te Uaua | Hei whakamātautau, ka tangohia he wahi iti o te kiko mai i te uaua, i te io rānei e tika ana mā te pokanga, ka tukuna ki te taiwhanga. |
| Ngā Rangahau Whakahaere Io | Ka tāpirihia ngā hiko ki te kiri, hei whakaoho i ngā io, hei ine hoki i te tere o te haere o ngā tohu hiko mā roto i aua tohu. Mā tēnei ka āwhina ki te whakatau mēnā he raruraru kei ngā io. |
| Te Ine Matūhiko (EMG) | Ka whakaurua ngā irahiko iti ki roto i ngā uaua, ā, ka inehia te ngohe hiko i te wā e kōpeke ana, e neke ana te uaua. Ka āwhina hoki tēnei ki te whakatau mēnā kei roto i ngā uaua tonu te raruraru. |
He aha ngā maimoatanga mō te myopathy?
Ko te maimoatanga mō te myopathy ka whakawhirinaki katoa ki te momo myopathy kei a koe.
Kāore he rongoā mō te nuinga o ngā myopathies tuku iho . Heoi, ka taea te whakahaere i ngā tohu, ā, ka taea te whakahaere i te oranga mā roto i ngā maimoatanga pēnei i te whakaora tinana . Ko ētahi momo, pēnei i te Duchenne muscular dystrophy me te mate Pompe, ka taea hoki te rongoā mā te rongoā.
Ko te tikanga, ko te myopathy kua pāngia e te mate pūkahukahu ka rongoatia mā te rongoā i te pūtake o te mate . Hei tauira, ko te myopathy endocrine ka rongoatia mā te whakatau i ngā taumata homoni. I runga anō i te kaha o te mate, tera pea ka hiahiatia he rongoā tinana i ēnei wā.
Ko te mea nui, mā tō tākuta e whakatau te mahere maimoatanga pai rawa atu mō tō āhua, nō reira kia tuwhera, kia pono hoki ki a ia mō ngā mea katoa.
Karere Tangohia ki te Kāinga
- Ehara te myopathy i te mate pūnaha io, engari he mate e pā ana ki ngā uaua .
- He maha ngā momo o tēnei; ko ētahi ka kitea i te whānautanga, ko ētahi ka puta i muri mai i te ao.
- Ko te tohu matua ko te ngoikore o te uaua, ka uaua ai ngā mahi pēnei i te hikoi me te hiki.
- Tērā pea e hiahiatia ana ngā whakamātautau maha, pēnei i ngā whakamātautau toto, ngā karapa, me ngā koiora, hei tautuhi tika i te mate.
- Ko te maimoatanga e whakawhirinaki ana ki te momo myopathy kei a koe, no reira me toro atu ki tō tākuta mō ngā tohutohu tika.
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