Kodi munayamba mwamvapo ngati manja ndi zala zanu zikuchepa mphamvu pang'onopang'ono? Mwina ntchito zosavuta monga kugwira chikho kapena kukanikiza batani zakhala zovuta? Kodi mumakumananso ndi kugwedezeka kwa minofu? Izi sizinthu wamba, zitha kukhala zizindikiro za vuto lapadera la mitsempha lotchedwa 'multifocal motor neuropathy ' lomwe tikambirana lero. Musadandaule, tikambirana chilichonse mwachidule.
Kodi matenda a mitsempha ya multifocal motor (MMN) ndi chiyani?
Mwachidule, Multifocal Motor Neuropathy (MMN) ndi vuto losowa kwambiri. Limachitika pamene mitsempha yomwe imalamulira ntchito ya minofu m'thupi lathu (mitsempha yamagetsi) yawonongeka. Izi zimapangitsa kuti minofu ifooke pang'onopang'ono pakapita nthawi. Kufooka kumeneku kumakhudza kwambiri manja, zala, ndi miyendo.
Taganizirani izi motere: minofu m'thupi mwathu ili ngati zipangizo zamagetsi. Mitsempha ndi mawaya omwe amapereka magetsi kwa iwo. Mu MMN, chitetezo chathu cha mthupi chimaukira 'mawaya' awa. Kenako, minofuyo silandira zizindikiro zamagetsi zomwe imafuna, kotero imafooka pang'onopang'ono.
Ngakhale kuti vutoli ndi losatha, lomwe limakhalapo kwa moyo wonse ndipo silingathe kuchiritsidwa, chinthu chabwino kwambiri ndichakuti pali mankhwala othandiza kwambiri . Chithandizo nthawi zambiri chimatha kuletsa kupitirira kwa matendawa ndikubwezeretsa mphamvu ya minofu.
Matendawa amapezeka kwambiri mwa anthu azaka zapakati pa 40 ndi 50. Komabe, amatha kufalikira kwa aliyense wazaka zapakati pa 20 ndi 80. Matendawa ndi ofala pang'ono mwa amuna kuposa akazi.
Kodi chifukwa chenicheni cha MMN ndi chiyani?
Choyambitsa chenicheni cha izi sichinapezekebe. Koma tikudziwa kuti si chinthu chobadwa nacho. Izi zikutanthauza kuti si matenda obadwa nawo .
Izi zimatchedwa matenda a autoimmune . Izi zikutanthauza kuti chitetezo chamthupi , chomwe chimayenera kuteteza thupi lathu, molakwika chimayamba kuukira maselo athu amitsempha athanzi ngati kuti ndi adani. Ofufuza akuyesetsabe kupeza chifukwa chake izi zimachitika.
Kodi zizindikiro za matendawa ndi ziti?
Mungayambe kumva zizindikiro m'manja ndi zala zanu.
- Kufooka kwa minofu: Mphamvu zimachepa, makamaka m'zala ndi m'manja. Zinthu monga kulemba, kulemba ndi cholembera, ndi kutseka shati zingakhale zovuta.
- Kugubuduza ndi kukoka minofu (Tw)Kuyabwa ndi Kupweteka kwa Minofu: Mungamve minofu yanu ikugwedezeka komanso ikupweteka kwambiri.
- Kulemera mbali imodzi: Nthawi zambiri zizindikirozi zimamveka kwambiri mbali imodzi ya thupi (monga mkono wakumanja).
- Pakapita nthawi, kufooka kumeneku kungakhudzenso miyendo.
Chofunika kwambiri ndichakuti palibe ululu kapena dzanzi mu matendawa. Mumamva chilichonse chili bwino. Izi zili choncho chifukwa matendawa amakhudza mitsempha yoyendetsa thupi yomwe imalamulira kayendedwe ka thupi. Mitsempha yomvera siiwonongeka.
Kodi mungazindikire bwanji matendawa molondola?
Zizindikiro za matendawa zimafanana kwambiri ndi za ALS (Amyotrophic Lateral Sclerosis) , matenda oopsa komanso osachiritsika amitsempha. Chifukwa chake, ngakhale madokotala nthawi zina amasokoneza matenda awiriwa. Komabe, popeza MMN ndi matenda ochiritsika komanso otha kuthetsedwa , ndikofunikira kwambiri kuzindikira matendawa molondola .
Ngati muli ndi zizindikiro izi, muyenera kuonana ndi dokotala wa mitsempha. Iye adzakuyesani ndikukufunsani mafunso okhudza zizindikiro zanu. Kenako, adzalamula mayeso ena kuti atsimikizire matenda ena ndikutsimikizira MMN.
| Mayeso | Mwachidule... |
|---|---|
| Kafukufuku Woyendetsa Mitsempha (NCS) | Izi zimayesa liwiro limene zizindikiro zamagetsi zimadutsa m'mitsempha yanu. Zili ngati kuyeza liwiro limene mphamvu imayenda kudzera mu waya. Mu MMN, liwiro limeneli limachepetsedwa m'mitsempha ina. |
| Needle Electromyography (EMG) | Mu izi, ma electrode ang'onoang'ono okhala ndi ma pin amalowetsedwa mu minofu ndipo ntchito yamagetsi ya minofu imayesedwa. Izi zitha kugwiritsidwa ntchito kuti ziwone ngati minofu ikuyankha bwino zizindikiro zochokera ku mitsempha. |
| Kuyesa Magazi (Kuyesa Magazi kwa ma antibodies a GM1) | Odwala ena a MMN ali ndi ma antibodies ambiri otchedwa GM1 m'magazi mwawo. Kuyesaku kungatsimikizire izi. Komabe, n'zotheka kukhala ndi MMN ngakhale ma antibodies amenewa ali abwinobwino. |
Kodi chimachiritsidwa bwanji?
Ngati zizindikiro zanu ndi zochepa kwambiri, simungafunike chithandizo. Komabe, ngati kufooka kwanu kuli kwakukulu, dokotala wanu mwina angakupatseni chithandizo choyamba.
Chithandizo chachikulu: IVIG
Chithandizo chachikulu komanso chothandiza kwambiri pa izi ndi Intravenous Immunoglobulin (IVIG) . Ichi ndi mankhwala operekedwa kudzera m'mitsempha. Amagwira ntchito poletsa ntchito ya ma antibodies oopsa ndikuletsa kuwonongeka kwa mitsempha.
- Mudzamva mphamvu ya minofu yanu ikubwerera mkati mwa milungu 3-6 mutalandira chithandizo cha IVIG.
- Popeza zotsatira za chithandizochi zimachepa pakapita nthawi, chithandizo chobwerezabwereza chimafunika, pafupifupi kamodzi pamwezi.
- IVIG ili ndi zotsatirapo zochepa zoyipa, koma ndi mankhwala okwera mtengo kwambiri.
Mankhwala ena
Ngati chithandizo cha IVIG sichikuyenda bwino kapena sichingaperekedwe, madokotala angaganizire za mankhwala ena monga Cyclophosphamide , koma ali ndi zotsatirapo zina.
Kuwonjezera pa izi, chithandizo cha thupi , masewera olimbitsa thupi, ndi chithandizo cha kutentha zingathandize kusunga mphamvu ndi kugwira ntchito bwino kwa minofu. Lankhulani ndi dokotala wanu za izi ndipo sankhani yoyenera.
Kodi ndingachite chiyani ndikukhala ndi MMN?
MMN si chifukwa choyimitsa moyo wanu. Mukayang'aniridwa bwino, mutha kukhala ndi moyo wabwino.
- Thanzi la maganizo: Kupsinjika maganizo kumatha kuchitika ndi matenda aliwonse osatha. Choncho chepetsani kupsinjika maganizo kwanu ndipo funsani thandizo kwa katswiri wa zamaganizo ngati pakufunika kutero.
- Moyo Wathanzi: Idyani zakudya zopatsa thanzi komanso tulo tokwanira.
- Kuchita Maseŵera Olimbitsa Thupi: Funsani dokotala wanu kapena katswiri wa masewera olimbitsa thupi kuti akupatseni masewera olimbitsa thupi ofatsa omwe ali oyenera kwa inu.
- Pemphani thandizo: Ngati mukuvutika ndi ntchito za tsiku ndi tsiku, musazengereze kupempha thandizo.
- Magulu Othandizira: Kulankhula ndi kugawana zomwe mwakumana nazo ndi anthu omwe akudwala matenda ofanana kungakuthandizeni kwambiri.
Matendawa sadzafupikitsa moyo wanu. Ngati matendawa apezeka msanga ndikuchiritsidwa bwino,Mukhoza kukhala otanganidwa, kugwira ntchito, ndikukhala moyo wabwinobwino kwa zaka zambiri.
Uthenga Wopita Nawo Kunyumba
- Multifocal Motor Neuropathy (MMN) ndi matenda a autoimmune neuropathy osowa koma ochiritsika.
- Chizindikiro chachikulu ndi kufooka pang'onopang'ono kwa minofu m'manja ndi miyendo. Palibe kupweteka kapena dzanzi.
- Ndikofunikira kusiyanitsa izi ndi matenda ena akuluakulu monga ALS. Pachifukwa ichi, dokotala wa mitsempha ayenera kufunsa.
- IVIG ndi mankhwala othandiza kwambiri omwe angabwezeretse mphamvu ya minofu.
- Matendawa safupikitsa nthawi yoti munthu akhale ndi moyo, ndipo mukayang'aniridwa bwino, mutha kukhala ndi moyo wokangalika.
- Ngati muli ndi zizindikiro izi, musataye nthawi ndipo funsani dokotala wanu (dokotala) kuti akupatseni upangiri.
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