Ngaba ufuna ukwazi nge-Amniotic Band Syndrome, imeko eyingozi apho amabhanti ajikeleza umntwana wakho?

Uhlala ucinga ngempilo-ntle yomntwana wakho ngexesha lokukhulelwa, akunjalo? Ngamanye amaxesha, xa ubona into encinci ngexesha lokuskena, uziva uloyiko kakhulu. Yiyo loo nto uninzi loomama luxhalaba ngayo, kodwa ukuba unolwazi olufanelekileyo, le meko ibizwa ngokuba yi-amniotic band syndrome ilawuleka. Masithethe ngayo ngokulula, ngendlela onokuyiqonda.

Yintoni i-Amniotic Band Syndrome?

Ngamafutshane, oku kwenzeka xa imiqolo emincinci yolwelo oluvela kwi-amniotic sac (esiyibiza ngokuba yi-"Amniotic Sac") ejikeleze umntwana osesiswini ijikeleza umzimba womntwana. Cinga ngomntwana njengofana nebhaluni egcwele amanzi. Ukuba i-membrane ethambileyo ngaphakathi kwi-amnion yonakele nangayiphi na indlela, inokuqhekeka ibe ziingceba ezifana nomsonto okanye i-band-like ize intante ngaphakathi kwi-amniotic sac. Oku sikubiza ngokuba yi-"Amniotic Bands". La mabhanqa antantayo, njengebhola yomsonto, anokuxinana engalweni, emlenzeni, emnweni, okanye kwenye indawo yomzimba womntwana osesiswini. Ukuba la mabhanqa adibana ngokuqinileyo, ukuhamba kwegazi kuloo ndawo kuyancitshiswa, ngamanye amaxesha kuyeke ngokupheleleyo. Emva koko loo nxalenye ayiphuhli kakuhle. Ngamanye amaxesha oku kunokuchaphazela amalungu angaphakathi omntwana kwane-umbilical cord. Oku kunokukhokelela kwiziphene zokuzalwa (Congenital Disorders) kwaye, kwiimeko ezinzima, ukunqunyulwa. Ubunzima bemeko buxhomekeke ekubeni imiqolo ibotshelelwe kangakanani kwaye ibotshelelwe phi emzimbeni womntwana. Abanye abantwana banokuba neethegi ezincinci neziqinileyo zolusu xa bezalwa. Nangona kunjalo, abanye abantwana banokuzalwa bengenazo iingalo, imilenze, okanye iminwe. Ukuba ezi bhanti zinqumla igazi lomntwana kwi-placenta, zinokuba yingozi ebomini. Oogqirha ngamanye amaxesha banokuxilonga imeko nge-ultrasound scan ngexesha lokukhulelwa. Nangona kunjalo, uninzi lwexesha, oku akuqinisekiswa de kube semva kokuba umntwana ezelwe. Le meko ayixhaphakanga kangako. Iyenzeka malunga ne-1 kwi-1,200 ukuya kwi-15,000 yokuzalwa okuphilayo. Ikwabizwa ngokuba:

• Ulandelelwano lweBhendi yeAmniotic
• Isifo seMigca/Iingcezu zokuNciphisa
• I-Amniotic Band Disruption Complex
• Iibhendi/Iiringi zoKuncitshiswa kweCongenital
• I-ADAM Complex `(I-ADAM Complex - Ukukhubazeka kwe-Amniotic/ Ukunamathela /Ukususwa kwezicubu)`
• I-Streeter Anomaly

Zithini iimpawu zoku? Ungazibona njani?

Iimpawu zale meko zixhomekeke kakhulu ekubeni intambo ibambeke phi emzimbeni womntwana kwaye ibambeke kangakanani.Malunga nama-80 ekhulwini amatyala achaphazela iingalo nemilenze. Kodwa la mabhande anokubhityaniswa entloko, entanyeni nasesiswini. Ngamanye amaxesha oku akubi kangako. Kunciphisa kuphela ukuhamba kwegazi kumphezulu wesikhumba. Emva koko xa umntwana ezalwa, kunokubakho izinto ezifana neendandatho zokuxinana eluswini, okanye ukukhubazeka okuncinci emilenzeni. Kodwa ngamanye amaxesha la mabhande abhityaniswa kakhulu kangangokuba ukuhamba kwegazi ukuya kuloo nxalenye yomzimba okanye kwilungu lomzimba kunqunyulwa ngokupheleleyo. Emva koko loo nxalenye inokulahleka, ukuhanjiswa kwegazi kulahleke, kwaye ngamanye amaxesha iingxaki ezisongela ubomi zinokwenzeka. Ezinye iimpawu ezinokubonwa kule meko zezi:

• Ukuzalwa ungenazo iingalo, imilenze, okanye iminwe.
• Iminwe enamatheleneyo (Syndactyly). Kusenokubakho ulusu phakathi kweminwe, njengeyedada.
• Amalungu mafutshane kwaye akakhuliswanga kakuhle.
• Ukudumba apho imitya idityaniswe khona.
• I-Clubfoot .
• Umlomo Oqhekekileyo kunye neNtlalo Eqhekekileyo .
• Ukukhubazeka kwamathambo, okufana ne-scoliosis.
• I-Choanal Atresia (ukukhula okungaphelelanga kwempumlo). Oku kunokwenza kube nzima kumntwana ukuphefumla.
• Amehlo amancinci kakhulu okanye angakhulanga kakuhle (iMicrophthalmia).

Zeziphi iingxaki ezinokubangela oku?

I-Amniotic band syndrome inokubangela iingxaki ezininzi, ezinye zazo zinokuba ngunobangela wobomi bonke. Ezinye iingxaki zinzima kakhulu kwaye zisongela ubomi. Umzekelo:

• Imingxunya ekhakhayini (i-Encephalocele). Kwimeko enjalo, inxalenye yengqondo ingaphuma ngekhakhayini.
• Imingxunya okanye ukukhubazeka kwiindonga zesisu okanye zesifuba.
• Ukonakala kwiinkqubo ezibalulekileyo ezifana nenkqubo yesisu okanye inkqubo ye-genitourinary .
• Iingxaki ezinokubakho ukuba ezi ntambo zibambeka kwi-umbilical cord zize zivale ukuhamba kwegazi lomntwana.

Le meko idla ngokubangela ukuba umntwana azalwe ngaphambi kwexesha. Ukuzalwa ngaphambi kwexesha kuneengozi zayo. Kukwakho nomngcipheko wokuphuphuma kwesisu okanye ukuzalwa sele efile. Abantwana abanale meko banokufuna unyango lomzimba kunye nonyango lomsebenzi kangangeminyaka, okanye bade baqhelane nemingeni yokungabikho kwamalungu omzimba okanye ukukhula okukhawulezileyo.

Kutheni i-amniotic band syndrome (ABS) isenzeka? Zithini izizathu?

Izifundo ezininzi zibonisa ukuba akukho sizathu sicacileyo nesicacileyo sale nto.Kukholelwa ukuba oku kubangelwa kukonakala komaleko ongaphakathi we-amnion (ingxowa yamanzi ejikeleze umntwana). Ezinye zezizathu ezinokubangela umonakalo kule ngxowa yamanzi ziquka:

• Ezinye iimvavanyo zenziwa ngexesha lokukhulelwa , njengeChorionic Villus Sampling (CVS) okanye iAmniocentesis. Oku kuquka ukubhoboza ingxowa yamanzi ngenaliti kunye nokuthatha isampuli yolwelo okanye izicubu kumntwana. Nangona kunjalo, kunqabile kakhulu ukuba ezi vavanyo zibe yingozi.
• Utyando Lomntwana Ongekazalwa: Oku kwenziwa kuphela kwiimeko ezinzulu kakhulu nezisongela ubomi.

Nangona kunjalo, kwezinye iimeko ze-amniotic band syndrome, ingxowa yamanzi ayonakalanga konke konke. Ngenxa yoko, ezinye iingcali zikholelwa ukuba oku kungenxa yengxaki yokujikeleza kwegazi emzimbeni womntwana. Mhlawumbi ezinye iintsana zinokuba nokujikeleza kwegazi okungalunganga ngenxa yempembelelo yemfuza.

Ngubani osengozini enkulu yokuba nale meko?

Amathuba akho okuba nomntwana onesi sifo anokuba phezulu kancinci ukuba:

• Ukuba unezinye iingxaki ngexesha lokukhulelwa.
• Ukuba unesifo esibizwa ngokuba yi-`(Vascular Ehlers-Danlos Syndrome)`.
• Ukuba utshaya ngexesha lokukhulelwa.
• Ukuba usebenzisa amayeza ongawanikwanga ngaphandle kwengcebiso kagqirha, okanye ukuba usebenzisa amayeza athile ngexesha lokukhulelwa.

Uyixilonga njani le nto kanye kanye?

Ugqirha udla ngokubona le meko emva kokuba umntwana ezelwe, xa ehlola umntwana. Kodwa ngamanye amaxesha, iimpawu zoku zinokubonakala ngexesha lokuhlolwa kwe-ultrasound ngexesha lokukhulelwa. Ukuhlolwa kunokubonisa imigca ebangelwa ziintambo eziqinileyo. Kodwa rhoqo, ukuvavanywa kubonisa ukuba amalungu omzimba akakho, okanye ukuba amalungu omzimba awakhulanga kakuhle.

Oku kunokubonwa ngokukhawuleza kangakanani kwiskeni?

Iimpawu ze-amniotic band syndrome ngamanye amaxesha zinokubonakala kwangethuba kwiiveki ezili-12 zokukhulelwa, kodwa kunzima kakhulu. Uninzi lwexesha, ugqirha wakho uya kubona iimpawu zoku ngexesha lokuhlolwa kwe-anatomy, okwenziwa malunga neeveki ezingama-20. Ukuba kukho amathandabuzo, ugqirha wakho unokuyalela iimvavanyo ezongezelelweyo, ezifana ne-MRI (Magnetic Resonance Imaging).

Zithini iindlela zonyango zoku?

Unyango ludla ngokwenziwa emva kokuba umntwana wakho ezelwe. Uhlobo lonyango luxhomekeke ekubeni iteyiphu yayikuphi kwaye yayiqinile kangakanani. Kwiimeko ezingephi, ukujonga ugqirha ngokusondeleyo kunokuba yinto efunekayo.Kodwa ukuba imeko inzima ngokwaneleyo ukuba ichaphazele iimvakalelo zomntwana, kufuneka inyangwe ngokukhawuleza. Ngamanye amaxesha utyando lunokulungisa iingxaki ezifana ne-clubfoot, i-cleft lip kunye ne-palate, kunye ne-syndactyly. Iintsana kunye nabantwana abanemilenze elahlekileyo okanye emfutshane banokungenelwa kwi-prosthetics. Unyango lomzimba kunye nonyango lomsebenzi lunokubanceda basebenzise la malungu okwenziwa kwaye baphucule ukusebenza kwawo ngokubanzi.

Kunqabile kakhulu ukuba ugqirha enze inkqubo ebizwa ngokuba yi-fetoscopy yokususa i-amniotic sac ngelixa usana lusesesibelekweni. Injongo yolu tyando kukukhulula i-tight sac nokuthintela umonakalo ongakumbi. Nangona kunjalo, le nkqubo inokubangela iingozi ezinkulu kwimpilo yomama nomntwana. Oku kudla ngokwenziwa kuphela xa i-tight sac ide ibeke ubomi esichengeni.

Ngaba umntwana angasinda na kule meko?

Ewe, iintsana ezininzi ziphila nale meko. Ukuba ziyasinda okanye azisindi kuxhomekeke kwizinto ezifana nokuba iteyiphu yayikuphi kwaye yayiqinile kangakanani.

Ngaba ezi bhendi ze-amniotic ziyaphela?

Hayi. Kwiimeko ezininzi , ukubotshwa okanye amanxeba abangelwa zii-amniotic bands awapheli. Oku kuxhomekeke ekubeni ii-bands zingene nzulu kangakanani eluswini. Buza ugqirha wakho malunga nonyango olunokwenzeka kwezi ntlobo zamanxeba.

Ngaba ikho indlela yokuthintela oku?

Akukho ndlela ithile yokuthintela i-amniotic band syndrome. Oogqirha bakholelwa ukuba uninzi lwexesha kwenzeka ngengozi, ngaphandle kwesizathu.

Sicinga ntoni ngale meko kwixesha elizayo? (Imbono)

Kwiintsana ezine-ABS ethambileyo, imeko yazo intle. Iintsana ezizalwa zinengxaki ethile yamalungu zihlala ziqhelana kakuhle neenkqubo zokufakelwa amalungu kunye neenkqubo zokubuyisela umva. Nangona kunjalo, iintsana ezinomonakalo omkhulu wamalungu kunye nokuhamba kwegazi okuncinci kwi-umbilical cord zihlala zingaphili. Malunga ne-1 kwi-70 yokuzalwa zizelwe zifile ngenxa ye-amniotic band syndrome.

Yintoni omele uyenze ukuba umntwana wakho une-amniotic band syndrome?

Abantwana abanale meko bafuna inkxaso enamandla kunye nokhathalelo lwexesha elide.Abazali, amalungu osapho, kunye noogqirha bonke kufuneka basebenzisane ukunceda umntwana wakho ukuba aqhelane notshintsho kwinkangeleko kunye nemingeni yokusebenza ebangelwa yile meko. Umntwana wakho unokufuna ukubona iingcali ezahlukeneyo. Umzekelo, oogqirha bamathambo kunye neengcali ze-neurologists (kuxhomekeke ekubeni zeziphi iindawo zomzimba ezichaphazelekileyo). Amalungu osapho kunye nabantakwabo banokufumana inkxaso kumaqela enkxaso kwiintsapho ezinabantwana abanale meko. Xa ufumanisa ukuba umntwana wakho une-amniotic band syndrome, unokuba nemibuzo emininzi kunye noloyiko. Okokuqala, khumbula ukuba iqela lakho lezonyango likhona ukukunceda wena nomntwana wakho, ukukunyamekela kakuhle. Uhlobo oluchanekileyo lwemeko yakho luya kuxhomekeka ekubeni ziqine kangakanani ii-bands kunye nokuba ziphi na. Oku kunokuthetha ukuba kuya kufuneka wenze ii-ultrasound scans rhoqo ngexesha lokukhulelwa kwakho. Okanye unokufuna utyando emva kokuba umntwana ezelwe, ukuvuselelwa kwexesha elide, okanye ukusetyenziswa kwamalungu okwenziwa ukubuyisela ukusebenza. Musa ukoyika ukuthetha nogqirha wakho weklinikhi yangaphambi kokubeleka okanye iqela lezonyango lomntwana wakho malunga nokuchongwa kunye nendlela okuya kuyichaphazela ngayo intsapho yakho.

Umyalezo Wokugqibela Wokuya Ekhaya

I-Amniotic Band Syndrome yinto eyoyikisayo ngokwenene, kodwa kubaluleke kakhulu ukuba uyiqaphele.

• Le yimeko engaqhelekanga kakhulu.
• Ixesha elininzi, oku kwenzeka ngengozi, nto leyo ethetha ukuba akulotyala lamntu.
• Iintsana ezininzi ezizalwa nale meko ziphila kakuhle ngonyango olufanelekileyo kunye nenkxaso yosapho.
• Ukuba oku kunokuchongwa ngexesha lokukhulelwa, kuya kunceda ukucwangcisa unyango olufunekayo kumntwana.
• Ukuba unamathandabuzo okanye imibuzo, qiniseka ukuba uthetha nogqirha wakho. Baza kukunika lonke ulwazi kunye nenkxaso oyifunayo. Ungakhathazeki, awuwedwa.