Ngaba amalungu omntwana wakho awagobi kakuhle? Ngaba amalungu aqinile? Ngaba yimeko ebizwa ngokuba yi-"Amyoplasia"? Makhe sithethe ngale nto!

Ngaba wakha waziva ngathi amalungu omzimba omntwana wakho awasebenzi kakuhle, okanye amanye amalungu akhe aqinile? Okanye mhlawumbi ugqirha ukuxelele igama elithi ``Amyoplasia''? Kuqhelekile ukuba uzive usoyika xa usiva eli gama. Kodwa ungakhathazeki. Namhlanje, siza kuthetha ngokucacileyo nangokulula malunga nokuba yintoni le meko, kutheni isenzeka, kunye noko kunokwenziwa.

Yintoni i-`(Amyoplasia)`? Masiyiqonde ngokulula

Ngamafutshane, `(Amyoplasia)` yimeko eyenzeka xa umntwana ezalwa. Kule meko, izihlunu ezijikeleze amalungu omntwana azikhuli kakuhle, kwaye zithathelwa indawo zizicubu ezinamaqhina kunye namafutha. Khawuthelekelele, ukuze ilungu lisebenze kakuhle, izihlunu ezijikeleze lona kufuneka ziguquguquke. Kodwa kule meko, ngenxa yokuba izihlunu zithathelwa indawo zezinye izihlunu, amalungu ayaqina kancinci kancinci, angakwazi ukugoba okanye ukunwebeka ngokufanelekileyo. Oku sikubiza ngokuba yi`(contractures)` kumayeza. Le meko idla ngokubonakala kuzo zonke izitho ezine. Ngenxa yale meko, ukuguquguquka kwamalungu kuyehla, kwaye uluhlu lokuhamba luyancipha. Kufana nokuba nesiqwenga somthi endaweni yebhanti yerabha.

Le meko (i-Amyoplasia) imchaphazela njani umntwana?

I-Amyoplasia lolona hlobo luqhelekileyo lweqela lezifo zamalungu ezizalwa nazo ezibizwa ngokuba yi-Arthrogryposis Multiplex Congenita (AMC). Ngamanye amaxesha ibizwa ngokuba yi-classic arthrogryposis okanye i-amyoplasia congenita. Usana olunale meko lunokuba namalungu akhubazekileyo kakhulu. Ezi contractures, okanye ukuqina kwamalungu, ngamanye amaxesha zinokuba sisigxina. Oku kunokukhokelela ekulahlekelweni kukusebenzisa ingalo okanye umlenze ochaphazelekayo. Oku kunokwenza kube nzima kumntwana ukwenza imisebenzi yemihla ngemihla efana nokuhlala, ukuhamba, nokudlala.

Kodwa, eyona nto ibalulekileyo apha kukwenza umntwana ashukume ngokukhawuleza nangokufuthi. Ngokwenza njalo, unokulawula kakhulu ukuba mandundu kokuqina nokuqina kwamalungu . Ngoko ke musa ukuphelelwa lithemba.

Ziziphi iintlobo zokuqunjelwa ezenzekayo kwi-amyoplasia?

Oku kuqina kwamalungu, okanye "ukuqunjelwa," kunokukuchaphazela ngeendlela ezahlukeneyo. Makhe sijonge iintlobo eziphambili:

• Ukuxhwilwa: Oku kwenzeka xa inxalenye yomzimba itsalwa kude nomgca ophakathi womzimba. Umzekelo, ukuba une-abstinence contracture kwi-hip joint, umlenze ungatsalwa ngaphandle ukusuka esinqeni uze uqine.
• `(Ulwandiso)`: Oku kwenzeka xa ilungu linwetshwa, lidala i-engile enkulu phakathi kwamalungu amabini omzimba eliwadibanisayo, okanye athe tye. `(Ulwandiso lwe-extension)` lwedolo luyenzeka xa idolo linwetshwa, kwaye umlenze uthe tye kwaye uqinile.
• `(Ukujija)` (Ukujija):Oku kuquka ukugoba ilungu, ukudala i-engile ebukhali. Ukuba une-flexion contracture engqinibeni, ingalo isenokugoba ngaphakathi kwaye umzimba ongasentla unokuba ngqongqo kwaye uqine.
• Ukudilika: Oku kwenzeka xa amathambo akufutshane nelungu ephuma endaweni yalo. Umzekelo, igxalaba eliphumileyo kuxa ithambo lengalo ephezulu liphuma kwisokethi ekwiblade yegxalaba.
• `(Ukujikeleza): Oku kuquka ukuqinisa ijoyinti, njengegxalaba, ngendlela ejikelezayo. Oku kunokubangela ukuba amagxa ajike angene ngaphakathi, nto leyo ebangela ukuba umzimba ugobe.

Umntwana omnye usenokuba nenye okanye ngaphezulu kwezi ntlobo ezahlukeneyo zokuxhuzula.

Kutheni le nto `(Amyoplasia)` isenzeka? Yintoni unobangela?

Enyanisweni, abaphandi abakafumani ukuba yintoni kanye kanye ebangela i-Amyoplasia. Ayisiyongxaki yemfuza. Oko kukuthi, ayibangelwa kukuguquka kwemfuza. Ayisiyongxaki yemfuza. Ngoko ke ukuba uyazibuza, "Ngaba le yinto endiyenzileyo ingalunganga?" ungacingi njalo. Ayilotyala lamntu.

Zithini iimpawu zesifo `(Amyoplasia)`?

Usana olunesi sifo lunokubona iimpawu kwiindawo ezahlukeneyo zomzimba walo. Makhe sijonge ukuba ziintoni.

Iimpawu ezinxulumene neenyawo (amalungu asezantsi)

Ungazibona ezi mpawu ezinqeni zomntwana wakho, emilenzeni nasezinyaweni:

• `( Unyawo oludibeneyo ): Oku kuthetha ukuba unyawo lujikelezwe ngaphakathi okanye ngaphandle.
• Intlungu yesithende: Ngamanye amaxesha intlungu yesithende inokubakho ngenxa yokuba umaleko ongqindilili wezicubu ezinamafutha (`i-heel pad`) ekufuneka zibekho esithendeni awukho okanye awukho.
• Ukuqhekeka kwesinqe , okanye ukujijeka kwesinqe okuqinileyo okanye ukubiwa kwaso.
• Idolo eliqinileyo xa idolo ligobile okanye linwebeka.

Iimpawu ezinxulumene nesandla (amalungu angasentla)

Ungazibona ezi mpawu emagxeni, ezingalweni, nakwiminwe yomntwana wakho:

• Ukuqiniswa kwengqiniba.
• Ukuxhwilwa kweminwe.
• Ulwandiso oluqinileyo lwesithupha.
• Ukugoba kokujikeleza kwamagxa.

Iimpawu ezibonakalayo eluswini

Imeko ethi ``(Amyoplasia)`` ngamanye amaxesha inokuchaphazela ulusu lomntwana. Kwiimeko ezinjalo, unokubona izinto ezifana nezi:

• Ukuqhekeka kolusu.
• Ukulahlekelwa yimibimbi yesikhumba phezu kwamalungu.
• `(Ukulunywa yiNkumba)` (Ukulunywa yiNkumba):Olu luphawu oluqhelekileyo, olupinki okanye olubomvu. Luhlala lubonakala ebusweni nangasemva kwentamo.
• Ukungaqheleki kwemithambo yegazi ebusweni: Umzekelo, amabala abomvu afana ne-"hemangioma". Oku kukwabizwa ngokuba yi-"vascular malformation".
• Ulusu olugobileyo kufutshane nengqiniba okanye idolo.

Ngaba zikho ezinye iimpawu ekufuneka uzazi ngaphandle kwezi?

Ewe, kunqabile kakhulu ukuba kubekho ezinye iingxaki emzimbeni xa kukho imeko ethi ``(Amyoplasia).`` Kodwa ezi azibonakali rhoqo. Kodwa kulungile ukuzazi.

• Inxalenye yamathumbu ayikhuli kakuhle okanye ayikho (`Bowel atresia`).
• I-Gastroschisis (umngxuma omncinci esiswini kufutshane ne-anus).
• Ukugoba okuncinci okanye okungekhoyo kwilungu lobufazi lamantombazana (hypoplasia).
• I-hernia ye-Inguinal.
• Umhlathi omncinci okanye otshonileyo (Micrognathia).
• Ukulahlekelwa yiminwe okanye ziinzwane.
• I-Scoliosis.
• Amasende angathobeliyo kumakhwenkwe.

Musa ukoyika xa ubona ezi mpawu. Ezi aziqhelekanga. Ugqirha wakho uza kukuxelela ngale nto.

Oogqirha bayixilonga njani imeko `(i-Amyoplasia)`?

Uninzi lwexesha, ezi contractures zinokubonwa ngexesha lovavanyo lomzimba oluqhutywa ngugqirha emva kokuba umntwana ezelwe. Emva koko, kwenziwa nee-X-ray rhoqo ukuze kuchongwe ubunzulu bemeko. Ngamanye amaxesha, kunokufuneka ufune uncedo kwezinye iingcali.

Luhlobo luni lonyango oluya kudingwa ngumntwana wam kwi-``(Amyoplasia)``?

Kukho iinjongo eziphambili ezininzi ekunyangeni le meko. Unyango lwasekuqaleni lujolise koku:

• Ukwandisa uluhlu lokuhamba kwamalungu.
• Ukunciphisa iintlungu nokuthintela ukuwohloka kwemisipha.
• Ukunciphisa ukudumba kwamalungu omzimba.

Ukufezekisa ezi njongo, unyango olufana nolu lunokuba luncedo kakhulu kumntwana:

• Unyango lomzimba : Oku kubaluleke kakhulu. Kule meko, ingcali yonyango lomzimba eqeqeshiweyo isebenzisa iindlela zokuzolula ezithambileyo kunye neendlela zokuphulula ukuze incede imicu yemisipha yomntwana wakho yoluleke. Ukuzilolonga kukhuthaza ukuhamba kwegazi ukuya kwimisipha kunye namalungu. Le yinto ekufuneka iqhubeke njengoko umntwana wakho ekhula.
• Unyango lomsebenzi:Kule nto, umntwana uqeqeshwa kwimithambo ephuhlisa izakhono zakhe zomzimba ezimnceda ukuba enze imisebenzi yemihla ngemihla eyedwa. Umzekelo, ufundiswa indlela yokukhetha amathoyizi kunye nendlela yokutya.
• I-Splinting: Le yinkxaso esuswayo neqinileyo esetyenziselwa ukubamba ilungu kwindawo ethile. Ugqirha wakho unokucebisa ukuba uzinxibe ebusuku okanye ngamaxesha athile emini.
• Ukuphoswa kwe-serial: Oku kubandakanya ukunyusa kancinci kancinci ubungakanani bokubambelela kwijoyinti kangangeeveki ezininzi (mhlawumbi ukuya kuthi ga kwiiveki ezintandathu). I-cast itshintshwa qho ngeveki, kwaye ijoyinti itsalwa kancinci. Oku kunokunciphisa kakhulu ukuqina kwamalungu.

Zeziphi ezinye iindlela zonyango ezikhoyo?

Ngamanye amaxesha, ukuba imeko imbi kakhulu, okanye ukuba unyango olungentla aluvelisi ziphumo zifunekayo, kunokufuneka iinkqubo zotyando. Ungakhathazeki, ezi zenziwa ngoogqirha abaziingcali.

• Utyando lokudlulisa izihlunu: Kule meko, oogqirha basusa izihlunu ezingasebenzi kakuhle baze bazifake izihlunu kwenye indawo yomzimba ephilileyo.
• Utyando lwe-Osteotomy: Kolu tyando, iqhekeza elincinci lethambo liyasikwa lize lisuswe ukuze kuphuculwe indlela elihamba ngayo ilungu elikufutshane. Oku kunokutshintsha indawo yelungu kwaye kube lula ukushukuma.

Ugqirha uza kukuchazela kakuhle olu tyando.

Ngaba umntwana one-`(Amyoplasia)` angahamba?

Lo ngumbuzo abazali abaninzi abanawo. Ukuba umntwana uyakwazi ukuhamba okanye akakwazi kuxhomekeke kuhlobo kunye nobunzima bokugoba. Umzekelo, umntwana ogoba kakhulu edolweni unokuba nobunzima bokuhamba. Ngokufanayo, abantwana abaninzi abane-hip flexion enzima basenokungakwazi ukuhamba. Nangona kunjalo, abantwana abaninzi banokuhamba! Ngamanye amaxesha, kufuneka izixhobo ezikhethekileyo ukubanceda bahambe.

Umzekelo, abantwana abaninzi bahamba besebenzisa izixhobo ezifana neefreyimu zokuma, izixhobo zokuxhasa imilenze, izixhobo zokuhamba, kunye neenduku.

Ngaba i-Amyoplasia ingathintelwa?

Le yinto abantu abaninzi abayibuzayo. Ekubeni abaphandi bengekayazi eyona nto ibangela ``(i-Amyoplasia)'', okwangoku akukho nto unokuyenza ukuthintela le meko. Ungakhathazeki ngayo. Ingqwalasela yakho mayibe kukubonelela ngonyango olungcono kakhulu kunye nenkxaso kumntwana wakho.

Liyintoni ikamva labantwana abane-`(Amyoplasia)`?

Le yeyona nto ibalulekileyo. Ngokwesiqhelo, abantwana abane-`(Amyoplasia)` banokuphila ubomi obuqhelekileyo. Le meko ayichaphazeli ingqondo yomntwana, indlela acinga ngayo, okanye ubuchule bakhe bokufunda.Ngoko ke, aba bantwana banokuya esikolweni, bafunde, baze babonise iziphiwo zabo njengabanye abantwana. Banokusebenzisa izakhono zabo zomzimba ngokupheleleyo baze baphumelele ebomini.

Izinto ezibalulekileyo ekufuneka uzazi xa uhlala ne-`(Amyoplasia)`

Khumbula oku:

• Xa beneminyaka emi-5 ubudala, uninzi lwabantwana luhamba kwaye luthatha inxaxheba ngokupheleleyo kwimisebenzi yemihla ngemihla.
• Ukuze kufumaneke iziphumo ezilungileyo kangaka, unyango lomzimba kunye nonyango lomsebenzi, oluqala ngokukhawuleza emva kokuzalwa, lubalulekile. Oku kufana nokunkcenkceshela nokukhulisa isityalo kwasebuntwaneni.
• Kukho izixhobo ezikhethekileyo kunye neendlela ezinokunceda umntwana wakho asebenze eyedwa kangangoko. Ungamfundisa umntwana wakho ukuzisebenzisa. Nazi imizekelo embalwa:
• Izixhobo ezilungelelaniswayo zizixhobo ezinokugotywa ecaleni okanye zincamathiselwe esandleni ukuze zincede ekutyeni.
• Izixhasi ezikhethekileyo (`izitulo ezifakiweyo`) ezikuvumela ukuba uhlale ngokukhuselekileyo nangokukhululekileyo ezitulweni.
• Ikhoko eqhotyoshelwe ezantsi kodonga ukunceda ekunxibeni nasekukhululeni ibhulukhwe. Izinto ezincinci ezifana nezi zikwakhulisa ukuzithemba komntwana.

Kwimeko ye-`(Amyoplasia)`, izihlunu ezijikeleze amanye amalungu ziyafinyela kwaye ziqine. Oku kubangela `(contractures)` kwaye kwenza kube nzima ukuhamba. Nangona kunjalo, ngonyango lwasekuqaleni olufana nonyango lomzimba kunye `(serial casting)`, ubunzima bezi `(contractures)` bunokulawulwa kakhulu. Abantwana abaninzi banokufuna utyando olunye okanye ngaphezulu ekugqibeleni. Nangona kunjalo, ngezixhobo ezikhethekileyo, iindlela ezahlukeneyo kunye `(occupational therapy`), nokuba ukuqina kwamalungu (``contractures`` kunzima, umntwana unokunikwa indawo efunekayo yokuhlala ngokuzimela nangolonwabo kangangoko kunokwenzeka.

Umyalezo Wokuya Ekhaya

Ngoko ke, mama nootata, nazi izinto ezibalulekileyo ekufuneka nizithathe kweli bali:

• ``(I-Amyoplasia)`` yimeko ekhoyo ekuzalweni kwaye ibangela ukuqina kwamalungu. Oku akulotyala lomntu.
• Ukuxilongwa kwangoko kunye nonyango kwangoko kubaluleke kakhulu, ingakumbi unyango lomzimba kunye nonyango lomsebenzi.
• Ubukrelekrele baba bantwana abuyi konakaliswa nangayiphi na indlela. Banokufunda kakuhle.
• Usebenzisa izixhobo kunye neendlela ezikhethekileyo, unokunceda umntwana wakho ukuba azimele kangangoko.
• Hlala unethemba! Ngonyango olufanelekileyo nothando lwakho kunye nenkxaso, aba bantwana banokuphila ubomi obonwabisayo nobunempumelelo njengaye wonke umntu.

Ukuba uneminye imibuzo, ungathandabuzi ukuthetha nogqirha wakho. Baya kukwazi ukukunceda ngakumbi. I-Amyoplasia, i-arthrogryposis, ukuqina kwamalungu, ukuqunjelwa, i-congenital, unyango lomzimba, unyango lomsebenzi, iziphene zokuzalwa, izifo zamalungu, impilo yabantwana