Ngaba umntwana wakho ukuxelela ngequbuliso ngokubona okufipheleyo, ukulahleka kokulinganisela xa ehamba, okanye ukurhawuzelela kwamalungu omzimba? Ngamanye amaxesha sicinga ukuba ezi zizinto eziqhelekileyo, kodwa ezi zinokuba ziimpawu zesifo esibizwa ngokuba yi-MS , okanye i-Multiple Sclerosis . Musa ukoyika xa usiva eli gama. Eyona nto ibalulekileyo kukwazi ngokupheleleyo ngayo. Namhlanje, siza kuthetha nge-MS ebantwaneni ngendlela elula, ngendlela onokuyiqonda.
Yintoni i-MS ngokulula?
Ngamafutshane, i-MS ebantwaneni yimeko yokuzikhusela komzimba apho amajoni omzimba wabo ahlasela imizimba yabo . Ichaphazela kakhulu inkqubo yemithambo-luvo yomntwana, eyingqondo kunye nomqolo.
Cinga ngenkqubo yomzimba wethu yokuzikhusela njengomkhosi okhusela ilizwe. Umsebenzi walo mkhosi kukusikhusela ngokulwa neentshaba ezifana neentsholongwane kunye neentsholongwane ezingena emzimbeni. Kodwa emzimbeni womntwana one-MS, lo mkhosi wenza impazamo encinci. Bacinga ukuba inxalenye yomzimba ngokwawo, isigqubuthelo esikhuselayo esijikeleze imithambo-luvo, lutshaba baze baqale ukuyihlasela.
Esi sigqubuthelo sokukhusela sibizwa ngokuba yi-myelin . Njengesigqubuthelo seplastiki esijikeleze ucingo lombane, esi sigqubuthelo se-myelin sinceda imiyalezo ukuba ihambe ngemithambo-luvo ngokukhawuleza nangokulula. Ngoko ke, xa inkqubo yomzimba yokuzikhusela yonakalisa esi sigqubuthelo se-myelin, imiyalezo evela engqondweni iya kuwo wonke umzimba ayidluli kakuhle. Kufana nomjikelo omfutshane xa isigqubuthelo seplastiki esikwintambo sisusiwe. Oku kubangelwa ziimpawu ezinjengobuthathaka bemisipha, ukudinwa , iingxaki zenkumbulo, ubunzima bokuhamba, kunye notshintsho lombono.
Into ebalulekileyo kukuba nangona okwangoku kungekho nyango lupheleleyo lwe-MS, kukho unyango olusebenzayo kakhulu olunokulawula iimpawu kwaye luncede umntwana aphile kakuhle.
Ngaba kukho iintlobo eziphambili ze-MS ebantwaneni?
Ewe, kukho uhlobo oluphambili olubonwayo ebantwaneni.
Malunga ne-98% yabantwana banohlobo olubizwa ngokuba yi -relapsing-remitting MS . Oku kubonakala ngamaxesha okuqhambuka kweempawu, kulandele amaxesha okuxolelwa.
Cinga ngale ndlela. Kwiiveki ezithile, umntwana unokuba nobunzima bokuhamba aze adinwe. Kodwa ngonyango, imeko iya kuphucuka kancinci. Kwiinyanga ezimbalwa, iingxaki zokubona zinokuphinda zivele. Le yindlela imeko eqhubeka ngayo, kunye neempawu ezibonakala kwaye ziphele.
I-MS eqhubekayo yokuqala luhlobo lwe-MS olungaqhelekanga kakhulu ebantwaneni. Ibonakaliswa ziimpawu eziya ziba mandundu kancinci kancinci ngokuhamba kwexesha.
Ziziphi iimpawu zokuqala ekufuneka uziqaphele?
Xa ugqirha erhanela ukuba une-MS, kukho iimpawu ezimbalwa zokuqala azinika ingqalelo ekhethekileyo. Kubalulekile nokuba wena, njengomzali, uzazi ezi mpawu.
| Iimpawu zokuqala | Icacisiwe ngokulula |
|---|---|
| I-optic neuritis | Ukubona okufipheleyo, ngamanye amaxesha ukulahleka, kunye nentlungu kwelinye okanye omabini amehlo. Umntwana usenokungayiboni kakuhle imibala. |
| I-myelitis eguqukayo | Usulelo lomqolo (umzimba wemithambo-luvo ngaphakathi komqolo) lunokubangela ubuthathaka, ukungaziva, okanye ukulahlekelwa zimvakalelo kumalungu omzimba. |
Ezinye iimpawu eziqhelekileyo
Ukongeza kwezi mpawu zokuqala, kukho nezinye iimpawu ezininzi ezinokubonwa.
- Ukungaziva mnandi okanye ukurhawuzelela kwamalungu okanye umzimba (iParesthesia)
- Isiyezi
- Ukulahlekelwa yibhalansi xa uhamba kwaye uwela phantsi.
- Ukudinwa
- Ubuthathaka bemisipha
- Iingxolo
- Ubunzima bokugxila nokukhumbula izinto
- Umbono ophindwe kabini okanye umbono ofipheleyo
Khumbula, ayizizo zonke ezi mpawu eziya kubakho kumntwana ngamnye. Ezi mpawu zinokwahluka kumntwana ngamnye. Ngamanye amaxesha uphawu olukhoyo ngolunye usuku lunokungabikho ngolunye usuku.
Kutheni abantwana befumana i-MS? Yintoni unobangela?
Njengoko besitshilo ngaphambili, unobangela oyintloko woku kukususwa kwemyelin . Kulapho inkqubo yomzimba yokuzikhusela yonakalisa ngempazamo i-sheath ye-myelin ekhuselayo ejikeleze imithambo-luvo. Lo monakalo ubangela ukuba kubekho 'amanxeba' amancinci kwimithambo-luvo. Oogqirha babiza ezi zilonda okanye iiplaque . Ezi zinokubonwa kwi-MRI scans.
Abaphandi abakayazi kakuhle ukuba kutheni inkqubo yomzimba yokuzikhusela isenza le mpazamo, kodwa bafumanise izinto ezininzi ezinokubangela oku.
- Ukunqongophala kweVithamin D: Ukwehla kwamanqanaba eVithamin D emzimbeni kamama ngexesha lokukhulelwa.
- Usulelo lwentsholongwane: Ingakumbi usulelo lwentsholongwane ye-Epstein-Barr .
- Ukuchanabeka ekutshayeni: Ukuchanabeka kukamama kumsi otshayiweyo ngexesha lokukhulelwa.
- Ukutyeba kakhulu
Ezi zizinto nje ezinobungozi. Asinguye wonke umntu onazo oza kuba ne-MS.
Oogqirha bayixilonga njani ngokuchanekileyo le sifo?
Ukuchonga isifo se-MS kunokuba yinkqubo enzima kuba iimpawu zinokufana nezinye izifo ezininzi. Ngoko ke, ugqirha uya kulandela amanyathelo aliqela ukuze afumane isifo.
Okokuqala, umntwana uza kuhlolwa kakuhle, kwaye wena nomntwana wakho niza kubuzwa ngeempawu zakhe. Emva koko, kuza kwenziwa uvavanyo oluninzi ukuze kuthintelwe ezinye izifo kunye nokufumanisa i-MS.
| Uvavanyo | Icacisiwe ngokulula |
|---|---|
| Uvavanyo lwegazi nomchamo | Jonga ezinye izifo okanye iimeko ezibangela iimpawu ezifana neze-MS. |
| Iskeni ye-MRI | Olu lolona vavanyo lubalulekileyo. Lunokubona ngokucacileyo ukuba kukho 'izilonda' okanye umonakalo kwi-myelin engqondweni nasemgogodleni. |
| Ukubhoboza emqolo | Kule meko, indawo yomqolo iyaphelelwa ngamandla kwaye inani elincinci lolwelo lwe-cerebrospinal lithathwa ngenaliti encinci kakhulu kwaye lihlolwe. Kwi-MS, iiproteni ezikhethekileyo zinokubonwa kolu lwelo. |
| Uvavanyo oluvuselelweyo (EP) | Uvavanyo olulinganisa isantya imiyalezo yombane ehamba ngaso kwimithambo-luvo. Esi santya siyancitshiswa ukuba i-myelin yonakele. |
Le nkqubo ingathatha ixesha. Inokuba yingxaki engqondweni yakho. Kodwa kubalulekile ukufumana uxilongo oluchanekileyo kwaye uqale unyango olufanelekileyo kumntwana wakho.
Ziziphi iindlela zonyango ze-MS?
Akukho nyango lwe-MS okwangoku. Nangona kunjalo, kukho unyango oluninzi olusebenzayo olunokunceda ukulawula esi sifo, ukunciphisa ukuvela kweempawu, kunye nokunceda umntwana aphile ubomi obuqhelekileyo.
- Unyango Lokuguqula Izifo (DMT): La mayeza asebenza ngokunciphisa umonakalo wenkqubo yomzimba yokuzikhusela kwi-myelin nokulawula ukuqhubela phambili kwesi sifo. I-Fingolimod , ipilisi evunyiweyo yi-FDA yabantwana abangaphezu kweminyaka eli-10 ubudala, isetyenziselwa le njongo.
- Ezinye iindlela zonyango: Ezi ndlela zonyango ziluncedo kakhulu ekulawuleni iimpawu.
- Unyango lomsebenzi: Lukunceda ukuba wenze imisebenzi yemihla ngemihla ngokulula.
- Unyango lomzimba: Lunceda ukuqinisa izihlunu nokunciphisa ubunzima bokuhamba.
- Unyango lokuthetha: Ukuba kukho ubunzima bokuthetha okanye bokuginya, bayanyangwa.
- Uvavanyo lwe-neuropsychology kunye nonyango: Inceda kwiingxaki ezifana nokukhumbula kunye nokukhathalela.
Ngaba i-MS iya kuyichaphazela umsebenzi wesikolo womntwana wam?
Abanye abantwana abane-MS banokuba nemingeni ngenkumbulo, ukufunda, kunye nengqalelo. Ngoko ke, kubalulekile ukuthetha nootitshala bomntwana wakho ngale nto rhoqo. Uvavanyo lwe-neuropsychological ukuze kuchongwe amandla kunye nobuthathaka bomntwana wakhoKwakhona kuluncedo kakhulu ukwenza njalo. Ngale ndlela, unganika umntwana inkxaso ekhethekileyo ayidingayo esikolweni.
Kodwa eyona nto ibalulekileyo kukuba uninzi lwabantwana abane-MS badlale nabahlobo babo, bafunde, kwaye baziphathe ngendlela eqhelekileyo. Banokuzibandakanya kuyo yonke imisebenzi eyenziwa ngabanye abantwana. Ngoko ke akukho mfuneko yokoyika kakhulu.
Ndifanele ndimbone nini ugqirha?
Ukuba umntwana wakho ufumana naziphi na iimpawu ezinokuba zinxulumene ne-MS, njengokungaziva mnandi kwilungu okanye utshintsho embonweni, musa ukuyithatha njengento encinci loo nto. Kubaluleke kakhulu ukubona ugqirha womntwana wakho ngokukhawuleza kwaye uxoxe naye ngale nto.
Okukhona isifo sifunyanwa ngokukhawuleza, kokukhona unyango lunokuqala ngokukhawuleza kwaye kokukhona amathuba okuthintela iingxaki ezihlala ixesha elide esanda.
Kwanasemva kokuba umntwana wakho efunyenwe enesifo, ukuba iimpawu zakhe ziqala ukuba zintsha okanye zibe mandundu, kufuneka wazise ugqirha wakho ngoko nangoko.
Umyalezo Wokuya Ekhaya
- I-MS yingxaki yenkqubo yomzimba yokuzikhusela, ayisosifo esosulelayo. Ngenxa yoko, ayinakudluliselwa ukusuka komnye umntwana ukuya komnye.
- Uhlobo oluqhelekileyo lwe-MS phakathi kwabantwana yi-MS ephinda ibuyele esiqhelweni, apho iimpawu zifika zize ziphele.
- Ukuba umntwana wakho uxela iimpawu ezifana nokutshintsha kombono, ubunzima bokuhamba, okanye ukuba ndindisholo, musa ukuzityeshela kwaye funa ingcebiso kagqirha ngoko nangoko.
- Nangona i-MS ingenakunyangwa ngokupheleleyo, unyango olusebenzayo kakhulu lunokulawula esi sifo kwaye luncede umntwana aphile ubomi obusebenzayo nobonwabisayo njengabanye abantwana.
- Inkxaso efanelekileyo nokuqonda okuvela kubazali, kootitshala nakoogqirha kuya kuyiqinisa kakhulu indlela umntwana aqhuba ngayo olu hambo.
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